{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T08:09:24Z","timestamp":1777882164185,"version":"3.51.4"},"reference-count":48,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,10,1]],"date-time":"2025-10-01T00:00:00Z","timestamp":1759276800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,10,1]],"date-time":"2025-10-01T00:00:00Z","timestamp":1759276800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"CIMAGO\u2014Center of Investigation on Environment, Genetics and Oncobiology","award":["UID\/NEU\/04539\/2013"],"award-info":[{"award-number":["UID\/NEU\/04539\/2013"]}]},{"name":"Foundation for Science and Technology","award":["UID\/NEU\/04539\/2019"],"award-info":[{"award-number":["UID\/NEU\/04539\/2019"]}]},{"name":"COMPETE-FEDER","award":["POCI-01-0145-FEDER-007440"],"award-info":[{"award-number":["POCI-01-0145-FEDER-007440"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat&amp;#65533;Care"],"published-print":{"date-parts":[[2025,10]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Adolescence is a period of significant physical, psychological, and social changes, which can be intensified by the diagnosis of serious or chronic illnesses. This makes promoting autonomy in palliative care particularly challenging.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>The present review aimed to identify factors and strategies that promote the autonomy of adolescents in palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>We conducted a systematic review following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, searching PubMed, Web of Science, and Scopus. This systematic review synthesized existing literature and evidence regarding communication, involvement, and psychosocial support strategies in adolescent palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>The study examined various tools and models, including Voicing My Choices, Building Our Solutions Together for Pediatric Advance Care Planning (BOOST-pACP), and the Family-Centered Advance Care Planning (FACE) model, to evaluate their effectiveness in facilitating communication, family support, and decision-making.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Effective communication tools and family-centered approaches are crucial for promoting adolescent autonomy. Strategies focused on open communication, psychosocial support, and active adolescent involvement in decisions can enhance autonomy, although further research is needed to assess their effectiveness.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Implementing communication facilitation, psychosocial support, and adolescent involvement strategies is essential. Despite the need for more evidence, the review offers a set of recommendations to support the autonomy of adolescents in palliative care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524251386501","type":"journal-article","created":{"date-parts":[[2025,10,31]],"date-time":"2025-10-31T12:37:16Z","timestamp":1761914236000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Autonomy in adolescents in palliative care and its biopsychosocial impact: A systematic review"],"prefix":"10.1177","volume":"19","author":[{"given":"Ana Raquel","family":"Castro","sequence":"first","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Portugal"}]},{"given":"Joana Brand\u00e3o","family":"Silva","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Portugal"},{"name":"School of Medicine and Biomedical Sciences, University of Porto, Portugal"}]},{"given":"Ant\u00f3nio","family":"Pereira Neves","sequence":"additional","affiliation":[{"name":"Department of Biomedicine\u2014Unit of Anatomy, Faculty of Medicine of University of Porto, Portugal"},{"name":"Vascular Service, Local Health Unit S. Jo\u00e3o, Porto, Portugal"},{"name":"RISE-Health, Faculty of Medicine, University of Porto, Portugal"}]},{"given":"Jo\u00e3o","family":"Rocha Neves","sequence":"additional","affiliation":[{"name":"Department of Biomedicine\u2014Unit of Anatomy, Faculty of Medicine of University of Porto, Portugal"},{"name":"Vascular Service, Local Health Unit S. Jo\u00e3o, Porto, Portugal"},{"name":"RISE-Health, Faculty of Medicine, University of Porto, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6623-7420","authenticated-orcid":false,"given":"Hugo","family":"Ribeiro","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Portugal"},{"name":"Department of Biomedicine\u2014Unit of Anatomy, Faculty of Medicine of University of Porto, Portugal"},{"name":"Community Palliative Care Team Gaia, Local Health Unit Gaia and Espinho, Vila Nova de Gaia, Portugal"},{"name":"Coimbra Institute for Clinical and Biomedical Research, Portugal"}]},{"given":"Mar\u00edlia","family":"Dourado","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Coimbra, Portugal"},{"name":"Coimbra Institute for Clinical and Biomedical Research, Portugal"}]}],"member":"179","published-online":{"date-parts":[[2025,10,31]]},"reference":[{"key":"e_1_3_2_2_2","unstructured":"World Health Organization (WHO). Palliative care https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/palliative-care (2020 accessed 8 August 2025)."},{"key":"e_1_3_2_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2020.04.027"},{"key":"e_1_3_2_4_2","doi-asserted-by":"publisher","DOI":"10.1097\/NCC.0b013e3181aaf0fa"},{"key":"e_1_3_2_5_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-012-1710-z"},{"key":"e_1_3_2_6_2","doi-asserted-by":"publisher","DOI":"10.1186\/s44158-023-00085-8"},{"key":"e_1_3_2_7_2","doi-asserted-by":"publisher","DOI":"10.1038\/nn.3177"},{"key":"e_1_3_2_8_2","doi-asserted-by":"publisher","DOI":"10.1038\/nature25770"},{"key":"e_1_3_2_9_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11019-006-9000-z"},{"key":"e_1_3_2_10_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.39244.650926.47"},{"key":"e_1_3_2_11_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.08.001"},{"key":"e_1_3_2_12_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221136160"},{"key":"e_1_3_2_13_2","article-title":"PRISMA 2020 explanation and elaboration: updated guidance and exemplars for reporting systematic reviews","volume":"372","author":"Page MJ","year":"2021","unstructured":"Page MJ, Moher D, Bossuyt PM, et al. PRISMA 2020 explanation and elaboration: updated guidance and exemplars for reporting systematic reviews. BMJ 2021; 372: n160.","journal-title":"BMJ"},{"key":"e_1_3_2_14_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.39489.470347.AD"},{"key":"e_1_3_2_15_2","doi-asserted-by":"publisher","DOI":"10.1002\/cncr.30033"},{"key":"e_1_3_2_16_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2008-2379"},{"key":"e_1_3_2_17_2","doi-asserted-by":"publisher","DOI":"10.1634\/theoncologist.7-2-154"},{"key":"e_1_3_2_18_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2021.2003876"},{"key":"e_1_3_2_19_2","doi-asserted-by":"publisher","DOI":"10.1111\/jpc.16095"},{"key":"e_1_3_2_20_2","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.30554"},{"key":"e_1_3_2_21_2","doi-asserted-by":"publisher","DOI":"10.3390\/pharmacy6010018"},{"key":"e_1_3_2_22_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2008.11.015"},{"key":"e_1_3_2_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732310380060"},{"key":"e_1_3_2_24_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2003-1134-L"},{"key":"e_1_3_2_25_2","doi-asserted-by":"publisher","DOI":"10.1111\/jan.14674"},{"key":"e_1_3_2_26_2","doi-asserted-by":"publisher","DOI":"10.1001\/archpedi.159.12.1173"},{"key":"e_1_3_2_27_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2023-080024"},{"key":"e_1_3_2_28_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2022.20696"},{"key":"e_1_3_2_29_2","doi-asserted-by":"publisher","DOI":"10.1080\/01488376.2011.607367"},{"key":"e_1_3_2_30_2","doi-asserted-by":"publisher","DOI":"10.1002\/smi.2780"},{"key":"e_1_3_2_31_2","volume-title":"Family therapy in clinical practice","author":"Bowen M.","year":"1993","unstructured":"Bowen M. Family therapy in clinical practice. Jason Aronson, 1993."},{"key":"e_1_3_2_32_2","doi-asserted-by":"publisher","DOI":"10.1037\/a0035695"},{"key":"e_1_3_2_33_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-017-0869-x"},{"key":"e_1_3_2_34_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jped.2024.08.004"},{"key":"e_1_3_2_35_2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM198812223192504"},{"key":"e_1_3_2_36_2","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0b013e31819a5acc"},{"key":"e_1_3_2_37_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.puhe.2021.08.009"},{"key":"e_1_3_2_38_2","doi-asserted-by":"publisher","DOI":"10.1002\/nur.22162"},{"key":"e_1_3_2_39_2","doi-asserted-by":"publisher","DOI":"10.1111\/jan.14801"},{"key":"e_1_3_2_40_2","doi-asserted-by":"publisher","DOI":"10.3390\/medicina57090924"},{"key":"e_1_3_2_41_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216310373164"},{"key":"e_1_3_2_42_2","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2009.23.0516"},{"issue":"2","key":"e_1_3_2_43_2","first-page":"147","article-title":"Plano Individual e Integrado de Cuidados Como Objetivo da Rela\u00e7\u00e3o Cl\u00ednica","volume":"26","author":"Carneiro R.","year":"2019","unstructured":"Carneiro R. Plano Individual e Integrado de Cuidados Como Objetivo da Rela\u00e7\u00e3o Cl\u00ednica. Med Interna (Bucur) 2019; 26(2): 147\u2013152.","journal-title":"Med Interna (Bucur)"},{"key":"e_1_3_2_44_2","doi-asserted-by":"publisher","DOI":"10.3390\/children10071179"},{"key":"e_1_3_2_45_2","doi-asserted-by":"publisher","DOI":"10.3390\/children9060830"},{"key":"e_1_3_2_46_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951514000054"},{"key":"e_1_3_2_47_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-021-02841-7"},{"key":"e_1_3_2_48_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163241242331"},{"key":"e_1_3_2_49_2","doi-asserted-by":"publisher","DOI":"10.3122\/jabfm.17.1.59"}],"container-title":["Palliative Care and Social Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251386501","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/26323524251386501","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251386501","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T01:04:02Z","timestamp":1777597442000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/26323524251386501"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,10]]},"references-count":48,"alternative-id":["10.1177\/26323524251386501"],"URL":"https:\/\/doi.org\/10.1177\/26323524251386501","relation":{},"ISSN":["2632-3524","2632-3524"],"issn-type":[{"value":"2632-3524","type":"print"},{"value":"2632-3524","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,10]]},"article-number":"26323524251386501"}}