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We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.<\/jats:p><jats:sec><jats:title>Educational aims<\/jats:title><jats:list list-type=\"bullet\"><jats:list-item><jats:p>To identify the main needs of patients with PF and their caregivers.<\/jats:p><\/jats:list-item><jats:list-item><jats:p>To describe the components of a comprehensive approach to a supportive care programme for patients with PF.<\/jats:p><\/jats:list-item><jats:list-item><jats:p>To identify further areas of research to address technical issues related to the management of patients with PF.<\/jats:p><\/jats:list-item><\/jats:list><\/jats:sec>","DOI":"10.1183\/20734735.0101-2023","type":"journal-article","created":{"date-parts":[[2023,9,12]],"date-time":"2023-09-12T11:20:28Z","timestamp":1694517628000},"page":"230101","update-policy":"https:\/\/doi.org\/10.1183\/ers-crossmark-policy","source":"Crossref","is-referenced-by-count":22,"title":["Holistic management of patients with progressive pulmonary fibrosis"],"prefix":"10.1183","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4516-6904","authenticated-orcid":false,"given":"Ana","family":"Oliveira","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gaia","family":"Fabbri","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1577-6595","authenticated-orcid":false,"given":"Thomas","family":"Gille","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elena","family":"Bargagli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0872-2983","authenticated-orcid":false,"given":"Boris","family":"Duchemann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Evans","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5976-8386","authenticated-orcid":false,"given":"Hilary","family":"Pinnock","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2061-845X","authenticated-orcid":false,"given":"Anne E.","family":"Holland","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elisabetta","family":"Renzoni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7227-5113","authenticated-orcid":false,"given":"Magnus","family":"Ekstr\u00f6m","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steve","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marlies","family":"Wijsenbeek","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8651-5176","authenticated-orcid":false,"given":"Anh Tuan","family":"Dinh-Xuan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6733-2809","authenticated-orcid":false,"given":"Guido","family":"Vagheggini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"81","published-online":{"date-parts":[[2023,9,12]]},"reference":[{"key":"2024101704093687000_19.3.230101.1","doi-asserted-by":"publisher","DOI":"10.1186\/s12890-018-0651-3"},{"key":"2024101704093687000_19.3.230101.2","doi-asserted-by":"crossref","first-page":"152","DOI":"10.1164\/rccm.201903-0614PP","article-title":"Comprehensive supportive care for patients with fibrosing interstitial lung disease","volume":"200","author":"Wijsenbeek","year":"2019","journal-title":"Am J Respir Crit Care Med"},{"key":"2024101704093687000_19.3.230101.3","unstructured":"European Respiratory Society . 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