{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,24]],"date-time":"2026-10-24T00:01:06Z","timestamp":1792800066810,"version":"4.5.0"},"reference-count":21,"publisher":"European Respiratory Society (ERS)","issue":"1","license":[{"start":{"date-parts":[[2020,11,19]],"date-time":"2020-11-19T00:00:00Z","timestamp":1605744000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100004359","name":"Vetenskapsr\u00e5det","doi-asserted-by":"publisher","award":["2019-02081"],"award-info":[{"award-number":["2019-02081"]}],"id":[{"id":"10.13039\/501100004359","id-type":"DOI","asserted-by":"publisher"}]},{"name":"The study was supported by the Swedish Association of Local Authorities and Regions","id":[{"id":"https:\/\/ror.org\/053m0aq28","id-type":"ROR","asserted-by":"crossref"}]}],"content-domain":{"domain":["publications.ersnet.org"],"crossmark-restriction":true},"short-container-title":["ERJ Open Res"],"accepted":{"date-parts":[[2020,10,16]]},"published-print":{"date-parts":[[2021,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The Swedish Registry of Respiratory Failure (Swedevox) collects nationwide data on patients starting continuous positive airway pressure (CPAP) treatment, long-term mechanical ventilator (LTMV) and long-term oxygen therapy (LTOT). We validated key information in Swedevox against source data from medical records.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      This was a retrospective validation study of patients starting CPAP (n=175), LTMV (n=177) or LTOT (n=175) across seven centres 2013\u20132017. Agreement with medical record data was analysed using differences in means (\n                      <jats:sc>sd<\/jats:sc>\n                      ) and proportion (%) of a selection of clinically relevant variables. Variables of interest included for CPAP: apnoea\u2013hypopnoea index (AHI), height, weight, body mass index (BMI) and Epworth Sleepiness Scale (ESS) score; for LTMV: date of blood gas, arterial carbon dioxide tension (\n                      <jats:italic>P<\/jats:italic>\n                      <jats:sub>\n                        aCO\n                        <jats:sub>2<\/jats:sub>\n                      <\/jats:sub>\n                      ) (breathing air), weight and diagnosis group; and for LTOT: blood gases breathing air and oxygen, spirometry and main diagnosis.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Data on CPAP and LTOT had very high validity across all evaluated variables (all &lt;5% discrepancy). For LTMV, variability was higher against source information for\n                      <jats:italic>P<\/jats:italic>\n                      <jats:sub>\n                        aCO\n                        <jats:sub>2<\/jats:sub>\n                      <\/jats:sub>\n                      (&gt;0.5\u2005kPa in 25.9%), weight (&gt;5\u2005kg in 47.5%) and diagnosis group. Inconsistency was higher for patients starting LTMV acutely\n                      <jats:italic>versus<\/jats:italic>\n                      electively (\n                      <jats:italic>P<\/jats:italic>\n                      <jats:sub>\n                        aCO\n                        <jats:sub>2<\/jats:sub>\n                      <\/jats:sub>\n                      difference &gt;0.5\u2005kPa in 36%\n                      <jats:italic>versus<\/jats:italic>\n                      21%, p&lt;0.05, respectively). However, there were no signs of systematic bias (mean differences close to zero) across the evaluated variables.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Validity of Swedevox data, compared with medical records, was very high for CPAP, LTMV and LTOT. The large sample size and lack of systematic differences support that Swedevox data are valid for healthcare quality assessment and research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1183\/23120541.00340-2020","type":"journal-article","created":{"date-parts":[[2020,11,19]],"date-time":"2020-11-19T21:06:16Z","timestamp":1605819976000},"page":"00340-2020","update-policy":"https:\/\/doi.org\/10.1183\/ers-crossmark-policy","source":"Crossref","is-referenced-by-count":32,"title":["Validation of the Swedevox registry of continuous positive airway pressure, long-term mechanical ventilator and long-term oxygen therapy"],"prefix":"10.1183","volume":"7","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7227-5113","authenticated-orcid":false,"given":"Magnus","family":"Ekstr\u00f6m","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dirk","family":"Albrecht","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Andersson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7405-1682","authenticated-orcid":false,"given":"Ludger","family":"Grote","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Birgitta","family":"K\u00e4rrsten Rundstr\u00f6m","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andreas","family":"Palm","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2819-2799","authenticated-orcid":false,"given":"Jenny","family":"Theorell-Hagl\u00f6w","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josefin","family":"Wahlberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bengt","family":"Midgren","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"81","published-online":{"date-parts":[[2020,11,19]]},"reference":[{"key":"2024101710564882000_7.1.00340-2020.1","doi-asserted-by":"crossref","first-page":"335","DOI":"10.5664\/jcsm.7640","article-title":"Treatment of adult obstructive sleep apnoea with positive airway pressure: an American Academy of Sleep Medicine clinical practice guideline","volume":"15","author":"Patil","year":"2019","journal-title":"J Clin Sleep Med"},{"key":"2024101710564882000_7.1.00340-2020.2","doi-asserted-by":"crossref","first-page":"2035","DOI":"10.1513\/AnnalsATS.201606-454FR","article-title":"Home mechanical ventilation: an overview","volume":"13","author":"Simonds","year":"2016","journal-title":"Ann Am Thorac Soc"},{"key":"2024101710564882000_7.1.00340-2020.3","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.01003-2019"},{"key":"2024101710564882000_7.1.00340-2020.4","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.02426-2016"},{"key":"2024101710564882000_7.1.00340-2020.5","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2015-206865"},{"key":"2024101710564882000_7.1.00340-2020.6","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-93-3-391"},{"key":"2024101710564882000_7.1.00340-2020.7","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(81)91970-X"},{"key":"2024101710564882000_7.1.00340-2020.8","doi-asserted-by":"crossref","first-page":"3159","DOI":"10.2147\/COPD.S140264","article-title":"A nationwide structure for valid long-term oxygen therapy: 29-year prospective data in Sweden","volume":"12","author":"Ekstrom","year":"2017","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"key":"2024101710564882000_7.1.00340-2020.9","doi-asserted-by":"publisher","DOI":"10.1016\/j.rmed.2015.11.010"},{"key":"2024101710564882000_7.1.00340-2020.10","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.sleep.2018.07.007","article-title":"Factors influencing adherence to continuous positive airway pressure treatment in obstructive sleep apnea and mortality associated with treatment failure - 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