{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T06:21:50Z","timestamp":1791181310885,"version":"4.1.0"},"reference-count":25,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2012,11,26]],"date-time":"2012-11-26T00:00:00Z","timestamp":1353888000000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Health Serv Res"],"published-print":{"date-parts":[[2012,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient reported outcome measures (PROMs) are self-report measures of health status increasingly promoted for use in healthcare quality improvement. However people with low literacy skills or learning disabilities may find PROMs hard to complete. Our study investigated stakeholder views on the accessibility and use of PROMs to develop suggestions for more inclusive practice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Taking PROMs recommended for chronic obstructive pulmonary disease (COPD) as an example, we conducted 8 interviews with people with low literacy skills and\/or learning disabilities, and 4 focus groups with 20 health professionals and people with COPD. Discussions covered the format and delivery of PROMs using the EQ-5D and St George Respiratory Questionnaire as prompts. Thematic framework analysis focused on three main themes:\n                      <jats:italic>Accessibility<\/jats:italic>\n                      ,\n                      <jats:italic>Ease of Use<\/jats:italic>\n                      , and\n                      <jats:italic>Contextual factors<\/jats:italic>\n                      .\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      <jats:italic>Accessibility<\/jats:italic>\n                      included issues concerning the questionnaire format, and suggestions for improvement included larger font sizes and more white space.\n                      <jats:italic>Ease of Use<\/jats:italic>\n                      included discussion about PROMs\u2019 administration. While health professionals suggested PROMs could be completed in waiting rooms, patients preferred settings with more privacy and where they could access help from people they know.\n                      <jats:italic>Contextual Factors<\/jats:italic>\n                      included other challenges and wider issues associated with completing PROMs. While health professionals highlighted difficulties created by the system in managing patients with low literacy\/learning disabilities, patient participants stressed that understanding the purpose of PROMs was important to reduce intimidation.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Adjusting PROMs\u2019 format, giving an explicit choice of where patients can complete them, and clearly conveying PROMs\u2019 purpose and benefit to patients may help to prevent inequality when using PROMs in health services.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/1472-6963-12-431","type":"journal-article","created":{"date-parts":[[2012,11,26]],"date-time":"2012-11-26T14:15:47Z","timestamp":1353939347000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":46,"title":["Using patient reported outcome measures in health services: A qualitative study on including people with low literacy skills and learning disabilities"],"prefix":"10.1186","volume":"12","author":[{"given":"Deepa","family":"Jahagirdar","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thilo","family":"Kroll","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Ritchie","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sally","family":"Wyke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2012,11,26]]},"reference":[{"key":"2303_CR1","volume-title":"Getting the most out of PROMS: putting health outcomes at the heart of NHS decision-making","author":"NJ Devlin","year":"2010","unstructured":"Devlin NJ, Appleby J: The King\u2019s fund. 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