{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,21]],"date-time":"2025-10-21T15:15:50Z","timestamp":1761059750626},"reference-count":9,"publisher":"Springer Science and Business Media LLC","issue":"1","content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Source Code Biol Med"],"published-print":{"date-parts":[[2014,12]]},"DOI":"10.1186\/1751-0473-9-14","type":"journal-article","created":{"date-parts":[[2014,6,20]],"date-time":"2014-06-20T01:03:26Z","timestamp":1403226206000},"update-policy":"http:\/\/dx.doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["Second generation registry framework"],"prefix":"10.1186","volume":"9","author":[{"given":"Matthew I","family":"Bellgard","sequence":"first","affiliation":[]},{"given":"Lee","family":"Render","sequence":"additional","affiliation":[]},{"given":"Maciej","family":"Radochonski","sequence":"additional","affiliation":[]},{"given":"Adam","family":"Hunter","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2014,6,20]]},"reference":[{"issue":"5","key":"114_CR1","doi-asserted-by":"publisher","first-page":"394","DOI":"10.1016\/j.cct.2010.06.007","volume":"31","author":"YR Rubinstein","year":"2010","unstructured":"Rubinstein YR, Groft SC, Bartek R, Brown K, Christensen RA, Collier E, Farber A, Farmer J, Ferguson JH, Forrest CB, Lockhart NC, McCurdy KR, Moore H, Pollen GB, Richesson R, Miller VR, Hull S, Vaught J: Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). Contemp Clin Trials. 2010, 31 (5): 394-404. 10.1016\/j.cct.2010.06.007.","journal-title":"Contemp Clin Trials"},{"key":"114_CR2","volume-title":"Disease Registries in Europe","author":"OR Series","year":"2013","unstructured":"Series OR: Disease Registries in Europe. 2013, Available from: \n                    http:\/\/www.orpha.net\/orphacom\/cahiers\/docs\/GB\/Registries.pdf"},{"issue":"10","key":"114_CR3","doi-asserted-by":"publisher","first-page":"E2356","DOI":"10.1002\/humu.22154","volume":"33","author":"MI Bellgard","year":"2012","unstructured":"Bellgard MI, Macgregor A, Janon F, Harvey A, O'Leary P, Hunter A, Dawkins H: A modular approach to disease registry design: successful adoption of an internet-based rare disease registry. Hum Mutat. 2012, 33 (10): E2356-E2366. 10.1002\/humu.22154.","journal-title":"Hum Mutat"},{"issue":"1","key":"114_CR4","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1186\/1751-0473-8-21","volume":"8","author":"M Bellgard","year":"2013","unstructured":"Bellgard M, Beroud C, Parkinson K, Harris T, Ayme S, Baynam G, Weeramanthri T, Dawkins H, Hunter A: Dispelling myths about rare disease registry system development. Source Code Biol Med. 2013, 8 (1): 21-10.1186\/1751-0473-8-21.","journal-title":"Source Code Biol Med"},{"issue":"2","key":"114_CR5","doi-asserted-by":"publisher","first-page":"113","DOI":"10.1007\/s13313-011-0099-x","volume":"41","author":"MI Bellgard","year":"2012","unstructured":"Bellgard MI, Bellgard SE: A Bioinformatics Framework for plant pathologists to deliver global food security outcomes. Austral Plant Pathol. 2012, 41 (2): 113-124. 10.1007\/s13313-011-0099-x.","journal-title":"Austral Plant Pathol"},{"key":"114_CR6","first-page":"10","volume-title":"Systems Approach for Pest Risk Management of Fruit Flies (Tephritidae)","author":"IPPC ISPM 35","year":"2012","unstructured":"IPPC ISPM 35: Systems Approach for Pest Risk Management of Fruit Flies (Tephritidae). 2012, 10-Available from: \n                    http:\/\/www.fao.org\/docrep\/016\/k6768e\/k6768e.pdf"},{"issue":"12","key":"114_CR7","doi-asserted-by":"publisher","first-page":"1749","DOI":"10.1016\/j.jocn.2012.04.008","volume":"19","author":"M Rodrigues","year":"2012","unstructured":"Rodrigues M, Hammond-Tooke G, Kidd A, Love D, Patel R, Dawkins H, Bellgard M, Roxburgh R: The New Zealand Neuromuscular Disease Registry. J Clin Neurosci. 2012, 19 (12): 1749-1750. 10.1016\/j.jocn.2012.04.008.","journal-title":"J Clin Neurosci"},{"issue":"3","key":"114_CR8","doi-asserted-by":"publisher","first-page":"322","DOI":"10.1177\/1740774512438980","volume":"9","author":"ST Grinnon","year":"2012","unstructured":"Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S: National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012, 9 (3): 322-329. 10.1177\/1740774512438980.","journal-title":"Clin Trials"},{"issue":"1","key":"114_CR9","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/1751-0473-7-1","volume":"7","author":"AA Hunter","year":"2012","unstructured":"Hunter AA, Macgregor AB, Szabo TO, Wellington CA, Bellgard MI: Yabi: An online research environment for grid, high performance and cloud computing. Source Code Biol Med. 2012, 7 (1): 1-10.1186\/1751-0473-7-1.","journal-title":"Source Code Biol Med"}],"container-title":["Source Code for Biology and Medicine"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/1751-0473-9-14.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,1,22]],"date-time":"2019-01-22T01:35:29Z","timestamp":1548120929000},"score":1,"resource":{"primary":{"URL":"https:\/\/scfbm.biomedcentral.com\/articles\/10.1186\/1751-0473-9-14"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,6,20]]},"references-count":9,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2014,12]]}},"alternative-id":["114"],"URL":"https:\/\/doi.org\/10.1186\/1751-0473-9-14","relation":{},"ISSN":["1751-0473"],"issn-type":[{"value":"1751-0473","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,6,20]]},"assertion":[{"value":"3 February 2014","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"4 June 2014","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"20 June 2014","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}}],"article-number":"14"}}