{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,21]],"date-time":"2026-04-21T01:27:28Z","timestamp":1776734848166,"version":"3.51.2"},"reference-count":34,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,2,13]],"date-time":"2025-02-13T00:00:00Z","timestamp":1739404800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,2,13]],"date-time":"2025-02-13T00:00:00Z","timestamp":1739404800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["156084"],"award-info":[{"award-number":["156084"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Med Inform Decis Mak"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>We recognized a paucity of accessible, evidence-based, empowering patient-centred resources for those with endometriosis-associated dyspareunia. Affecting more than 50% of people with endometriosis, dyspareunia can significantly impact relationships, chronic pain and the ability to have a family. We aimed to develop a patient-centred educational website for those affected by endometriosis-associated dyspareunia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>To develop a functional and meaningful website for endometriosis-associated dyspareunia, we utilized a Knowledge to Action framework, supplemented with a patient-centred research design and technology-enabled knowledge translation. Our patient partners influenced the direction and scope of the project, provided critical feedback throughout the development process, and approved website revisions prior to launch. The website was developed in five phases; (1) needs assessment interviews and focus groups with key stakeholders, (2) landscape analysis of pre-existing websites, (3) development, (4) usability testing and qualitative interviews, and (5) revisions and launch.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Phase 1 and 2 emphasized a need for comprehensive yet plain language explanations of pain mechanisms and strategies for pain management. Rigorous consultation with key stakeholders informed the creation of the preliminary website in phase 3. Usability testing in phase 4 identified five main categories of usability problems, most of which were considered minor. Phase 4 qualitative interviews identified users\u2019 overall impressions of the preliminary website, including that the website could help people understand their pain and describe their pain to partners and healthcare providers, as well as feel empowered to seek healthcare and validated in their experiences. User suggestions, combined with usability testing, informed revisions in phase 5.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>We developed an educational website for endometriosis-associated painful sex where people can find evidence-based etiologies for pain, pain management options, and actionable resources. Based on the data collected through qualitative interviews with patients, this website can potentially empower people to seek health care. The strength of the website development approach used was the inclusion of qualitative user insights in addition to the commonly completed user tests. The patient interviews provided insights into the potential impact of the website and, thus, ensured that we not only created a functional website that meets end users\u2019 needs, but a website that is also meaningful to those affected by this condition.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12911-025-02907-x","type":"journal-article","created":{"date-parts":[[2025,2,13]],"date-time":"2025-02-13T07:48:21Z","timestamp":1739432901000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Pelvic pain &amp; endometriosis: the development of a patient-centred e-health resource for those affected by endometriosis-associated dyspareunia"],"prefix":"10.1186","volume":"25","author":[{"given":"Gurkiran","family":"Parmar","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A. Fuchsia","family":"Howard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Heather","family":"Noga","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leah","family":"Tannock","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Abdul-Fatawu","family":"Abdulai","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catherine","family":"Allaire","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sarah","family":"Lett","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jessica","family":"Sutherland","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edurne Lopez","family":"de Arbina","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lone","family":"Hummelshoj","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Phillipa","family":"Bridge-Cook","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul J.","family":"Yong","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,2,13]]},"reference":[{"issue":"2","key":"2907_CR1","doi-asserted-by":"publisher","first-page":"315","DOI":"10.1093\/humrep\/dew293","volume":"32","author":"NP Johnson","year":"2017","unstructured":"Johnson NP, Hummelshoj L, Adamson GD, Keckstein J, Taylor HS, Abrao MS, et al. World Endometriosis Society consensus on the classification of endometriosis. Hum Reprod. 2017;32(2):315\u201324. https:\/\/doi.org\/10.1093\/humrep\/dew293.","journal-title":"Hum Reprod"},{"issue":"13","key":"2907_CR2","doi-asserted-by":"publisher","first-page":"1244","DOI":"10.1056\/NEJMra1810764","volume":"382","author":"KT Zondervan","year":"2020","unstructured":"Zondervan KT, Becker CM, Missmer SA. Endometr NEJM. 2020;382(13):1244\u201356. https:\/\/doi.org\/10.1056\/NEJMra1810764.","journal-title":"Endometr NEJM"},{"issue":"4","key":"2907_CR3","doi-asserted-by":"publisher","first-page":"495","DOI":"10.1016\/j.sxmr.2017.06.005","volume":"5","author":"PJ Yong","year":"2017","unstructured":"Yong PJ. Deep dyspareunia in endometriosis: a proposed framework based on pain mechanisms and genito-pelvic pain penetration disorder. Sex Med Rev. 2017;5(4):495\u201307. https:\/\/doi.org\/10.1016\/j.sxmr.2017.06.005.","journal-title":"Sex Med Rev"},{"key":"2907_CR4","doi-asserted-by":"publisher","first-page":"641","DOI":"10.1111\/j.1365-2648.2004.03055.x","volume":"46","author":"E Denny","year":"2004","unstructured":"Denny E. Women\u2019s experience of endometriosis. J Adv Nurs. 2004;46:641\u20138. https:\/\/doi.org\/10.1111\/j.1365-2648.2004.03055.x.","journal-title":"J Adv Nurs"},{"key":"2907_CR5","doi-asserted-by":"publisher","first-page":"1579","DOI":"10.2147\/JPR.S248887","volume":"13","author":"K Witzeman","year":"2020","unstructured":"Witzeman K, Antunez Flores O, Renzelli-Cain RI, Worly B, Moulder JK, Carrillo JF, Schneider B. Patient-physician interactions regarding Dyspareunia with endometriosis: Online Survey results. J pain res. 2020;13:1579\u201389. https:\/\/doi.org\/10.2147\/JPR.S248887.","journal-title":"J pain res"},{"key":"2907_CR6","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1016\/B978-0-444-63247-0.00002-X","volume":"130","author":"R Basson","year":"2015","unstructured":"Basson R. Human sexual response. Handb Clin Neurol. 2015;130:11\u20138. https:\/\/doi.org\/10.1016\/B978-0-444-63247-0.00002-X.","journal-title":"Handb Clin Neurol"},{"issue":"5","key":"2907_CR7","first-page":"407","volume":"60","author":"T Tonsaker","year":"2014","unstructured":"Tonsaker T, Bartlett G, Trpkov C. Health information on the internet: gold mine or minefield? Can Fam Physician. 2014;60(5):407\u20138. PMID: 24828994; PMCID: PMC4020634.","journal-title":"Can Fam Physician"},{"issue":"1","key":"2907_CR8","doi-asserted-by":"publisher","first-page":"e20","DOI":"10.2196\/jmir.1600","volume":"13","author":"J Powell","year":"2011","unstructured":"Powell J, Inglis N, Ronnie J, Large S. The characteristics and motivations of online health information seekers: cross-sectional survey and qualitative interview study. J Med Internet Res. 2011;13(1):e20. https:\/\/doi.org\/10.2196\/jmir.1600.","journal-title":"J Med Internet Res"},{"issue":"6","key":"2907_CR9","doi-asserted-by":"publisher","first-page":"671","DOI":"10.1093\/her\/16.6.671","volume":"16","author":"RJW Cline","year":"2001","unstructured":"Cline RJW, Haynes KM. Consumer health information seeking on the internet: the state of the art. Health Educ Res. 2001;16(6):671\u201392. https:\/\/doi.org\/10.1093\/her\/16.6.671.","journal-title":"Health Educ Res"},{"issue":"1","key":"2907_CR10","first-page":"31","volume":"66","author":"CR Wilson","year":"2020","unstructured":"Wilson CR, Rourke J, Oandasan IF, Bosco C. On behalf of the Rural Road Map Implementation Committee; au nom du Comit\u00e9 sur la mise en \u0153uvre du plan d\u2019action sur la m\u00e9decine rurale. Progress made on access to rural health care in Canada [Progr\u00e8s r\u00e9alis\u00e9s dans l\u2019acc\u00e8s aux soins de sant\u00e9 ruraux Au Canada]. Can Fam Phys. 2020;66(1):31\u20136. PMCID: PMC7012120.","journal-title":"Can Fam Phys"},{"issue":"7","key":"2907_CR11","doi-asserted-by":"publisher","first-page":"829","DOI":"10.1016\/j.jogc.2019.10.038","volume":"42","author":"S Singh","year":"2020","unstructured":"Singh S, Soliman AM, Rahal Y, Robert C, Defoy I, Nisbet P, Leyland N, Prevalence. Symptomatic Burden, and diagnosis of endometriosis in Canada: cross-sectional survey of 30 000 women. J Obstet Gynaecol Can. 2020;42(7):829\u201338. https:\/\/doi.org\/10.1016\/j.jogc.2019.10.038.","journal-title":"J Obstet Gynaecol Can"},{"issue":"1","key":"2907_CR12","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1002\/chp.47","volume":"26","author":"ID Graham","year":"2006","unstructured":"Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, Robinson N. Lost in knowledge translation: time for a map? J Contin Educ Health Prof. 2006;26(1):13\u201324. https:\/\/doi.org\/10.1002\/chp.47.","journal-title":"J Contin Educ Health Prof"},{"key":"2907_CR13","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-4614-3495-5","volume-title":"Technology enabled knowledge translation for eHealth","author":"K Ho","year":"2012","unstructured":"Ho K, Jarvis-Selinger S, Lauscher H. Technology enabled knowledge translation for eHealth. New York, USA: Springer; 2012."},{"key":"2907_CR14","doi-asserted-by":"publisher","first-page":"57","DOI":"10.1186\/1472-6947-12-57","volume":"12","author":"CH Yu","year":"2012","unstructured":"Yu CH, Parsons J, Mamdani M, Lebovic G, Shah BR, Bhattacharyya O, Laupacis A, Straus SE. Designing and evaluating a web-based self-management site for patients with type 2 diabetes\u2013systematic website development and study protocol. BMC Med Inf Decis Mak. 2012;12:57. https:\/\/doi.org\/10.1186\/1472-6947-12-57.","journal-title":"BMC Med Inf Decis Mak"},{"issue":"1","key":"2907_CR15","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1136\/bmjebm-2018-111017","volume":"24","author":"MA Syed","year":"2018","unstructured":"Syed MA. Knowledge translation facilitating co-creation of evidence in public health. BMJ Evid-Based Med. 2018;24(1):15\u20139. https:\/\/doi.org\/10.1136\/bmjebm-2018-111017.","journal-title":"BMJ Evid-Based Med"},{"issue":"2","key":"2907_CR16","doi-asserted-by":"publisher","first-page":"e12","DOI":"10.2196\/mededu.7825","volume":"3","author":"RA Damarell","year":"2017","unstructured":"Damarell RA, Tieman JJ. How do clinicians learn about knowledge translation? An investigation of current web-based Learning opportunities. JMIR Med Educ. 2017;3(2):e12. https:\/\/doi.org\/10.2196\/mededu.7825.","journal-title":"JMIR Med Educ"},{"key":"2907_CR17","unstructured":"Canadian Institute of Health Research. Strategy for Patient-Oriented Research. http:\/\/www.cihr-irsc.gc.ca\/e\/45851.html. Published 2019. Accessed August 12, 2019."},{"issue":"10","key":"2907_CR18","doi-asserted-by":"publisher","first-page":"2677","DOI":"10.1093\/humrep\/det284","volume":"28","author":"AA De Graaff","year":"2013","unstructured":"De Graaff AA, D\u2019Hooghe TM, Dunselman GA, Dirksen CD, Hummelshoj L, WERF EndoCost Consortium. The significant effect of endometriosis on physical, mental and social wellbeing: results from an international cross-sectional survey. Hum Reprod. 2013;28(10):2677\u201385. https:\/\/doi.org\/10.1093\/humrep\/det284.","journal-title":"Hum Reprod"},{"issue":"8","key":"2907_CR19","doi-asserted-by":"publisher","first-page":"1676","DOI":"10.3390\/ijerph15081676","volume":"15","author":"J Rademakers","year":"2018","unstructured":"Rademakers J, Heijmans M. Beyond reading and understanding: health literacy as the Capacity to act. Int J Environ Res Public Health. 2018;15(8):1676. https:\/\/doi.org\/10.3390\/ijerph15081676.","journal-title":"Int J Environ Res Public Health"},{"issue":"3","key":"2907_CR20","doi-asserted-by":"publisher","first-page":"e0173316","DOI":"10.1371\/journal.pone.0173316","volume":"12","author":"AE Brabers","year":"2017","unstructured":"Brabers AE, Rademarkers JJ, Groenewegen PP, van Dijk L, de Jong JD. What role does health literacy play in patients\u2019 involvement in medical decision-making? PLoS ONE. 2017;12(3):e0173316. https:\/\/doi.org\/10.1371\/journal.pone.0173316.","journal-title":"PLoS ONE"},{"key":"2907_CR21","unstructured":"National Guideline Alliance (UK). Endometriosis: diagnosis and management. London, National Institute for Health and Care Excellence (UK): 2017 Sep. (NICE Guideline, No. 73.) 7, Information and support. Available from: https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK536056\/"},{"issue":"4","key":"2907_CR22","doi-asserted-by":"publisher","first-page":"992","DOI":"10.1177\/1460458215602939","volume":"22","author":"MA Clarke","year":"2016","unstructured":"Clarke MA, Moore JL, Steege LM, Koopman RJ, Belden JL, Canfield S. Health information needs, sources, and barriers of primary care patients to achieve patient-centered care: a literature review. Health Inf J. 2016;22(4):992\u20131016. https:\/\/doi.org\/10.1177\/1460458215602939.","journal-title":"Health Inf J"},{"issue":"1","key":"2907_CR23","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1016\/j.jbi.2004.01.003","volume":"37","author":"AW Kushniruk","year":"2004","unstructured":"Kushniruk AW, Patel VL. Cognitive and usability engineering methods for the evaluation of clinical information systems. J Biomed Inf. 2004;37(1):56\u201376. https:\/\/doi.org\/10.1016\/j.jbi.2004.01.003.","journal-title":"J Biomed Inf"},{"key":"2907_CR24","volume-title":"Campaign report","author":"H Noga","year":"2022","unstructured":"Noga H, Lett S, Parmar K, Sutherland J, Orr N, Coxson R, Allaire C, Howard AF, Yong P, Sex. Campaign report. Pain & Endometriosis: Vancouver, BC: University of British Columbia; 2022."},{"issue":"1","key":"2907_CR25","doi-asserted-by":"publisher","first-page":"e31317","DOI":"10.2196\/31317","volume":"9","author":"A Abdulai","year":"2022","unstructured":"Abdulai A, Howard A, Yong P, Noga H, Parmar G, Currie L. Developing an Educational website for Women with endometriosis-Associated Dyspareunia: Usability and Stigma Analysis. JMIR Hum Factors. 2022;9(1):e31317. https:\/\/doi.org\/10.2196\/31317. https:\/\/humanfactors.jmir.org\/2022\/1\/e31317.","journal-title":"JMIR Hum Factors"},{"issue":"6","key":"2907_CR26","doi-asserted-by":"publisher","first-page":"754","DOI":"10.1111\/acem.12692","volume":"22","author":"F Birnbaum","year":"2015","unstructured":"Birnbaum F, Lewis D, Rosen RK, Ranney ML. Patient engagement and the design of digital health. Acad Emerg Med. 2015;22(6):754\u20136. https:\/\/doi.org\/10.1111\/acem.12692.","journal-title":"Acad Emerg Med"},{"issue":"1","key":"2907_CR27","doi-asserted-by":"publisher","first-page":"51","DOI":"10.1186\/s12911-017-0433-5","volume":"17","author":"I Nota","year":"2017","unstructured":"Nota I, Drossaert CHC, Melissant HC, Taal E, Vonkeman HE, Haagsma CJ, van de Laar MAFJ. Development of a web-based patient decision aid for initiating disease modifying anti-rheumatic drugs using user-centered design methods. BMC Med Inf Decis Mak. 2017;17(1):51. https:\/\/doi.org\/10.1186\/s12911-017-0433-5.","journal-title":"BMC Med Inf Decis Mak"},{"issue":"1","key":"2907_CR28","doi-asserted-by":"publisher","first-page":"67","DOI":"10.1007\/s11764-009-0108-z","volume":"4","author":"DK Mayer","year":"2010","unstructured":"Mayer DK, Ratichek S, Berhe H, Stewart S, McTavish F, Gustafson D, et al. Development of a health-related website for parents of children receiving hematopoietic stem cell transplant: HSCT-CHESS. J Cancer Surviv. 2010;4(1):67\u201373. https:\/\/doi.org\/10.1007\/s11764-009-0108-z.","journal-title":"J Cancer Surviv"},{"key":"2907_CR29","doi-asserted-by":"publisher","unstructured":"Stinson JN, Lalloo C, Harris L, Isaac L, Campbell F, Brown S, Ruskin D, Gordon A, Galonski M, Pink LR, Buckley N, Henry JL, White M, Karim A. iCanCope with Pain\u2122: user-centered design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs. Pain Res Manag 2014 Sep-Oct;19(5):257\u201365. https:\/\/doi.org\/10.1155\/2014\/935278","DOI":"10.1155\/2014\/935278"},{"key":"2907_CR30","doi-asserted-by":"publisher","unstructured":"\u200b\u200bMetzemaekers J, Slotboom S, Sampat J, Vermolen P, Smeets MJGH, Elske van den Akker-van, Marle M, Maas J, Bakker EC, Nijkamp M, Both S, Jansen FW. Crossroad decisions in deep endometriosis treatment options: a qualitative study among patients. Fertil Steril. 2021;115(3):702\u2013714. https:\/\/doi.org\/10.1016\/j.fertnstert.2020.06.041","DOI":"10.1016\/j.fertnstert.2020.06.041"},{"issue":"10","key":"2907_CR31","doi-asserted-by":"publisher","first-page":"3641","DOI":"10.3390\/ijerph17103641","volume":"17","author":"D Warzecha","year":"2020","unstructured":"Warzecha D, Szymusik I, Wielgos M, Pietrzak B. The impact of endometriosis on the quality of life and the incidence of Depression-A Cohort Study. Int J Environ Res Public Health. 2020;17(10):3641. https:\/\/doi.org\/10.3390\/ijerph17103641.","journal-title":"Int J Environ Res Public Health"},{"key":"2907_CR32","doi-asserted-by":"publisher","unstructured":"Abdulai AF, Howard FA, Currie LM. Stigmatizing and De-stigmatizing properties of web apps for sexual health-related conditions: a scoping review. Int J Sex Health. 2021;Ahead\u2013of\u2013print:1\u201316. https:\/\/doi.org\/10.1080\/19317611.2021.1949655.","DOI":"10.1080\/19317611.2021.1949655"},{"key":"2907_CR33","doi-asserted-by":"publisher","first-page":"80","DOI":"10.1186\/s12890-018-0633-5","volume":"18","author":"KLM Hester","year":"2018","unstructured":"Hester KLM, Newton J, Rapley T, De Soyza A. Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes. BMC Pulm Med. 2018;18:80\u201380. https:\/\/doi.org\/10.1186\/s12890-018-0633-5.","journal-title":"BMC Pulm Med"},{"key":"2907_CR34","doi-asserted-by":"publisher","first-page":"j3453","DOI":"10.1136\/bmj.j3453","volume":"358","author":"S Staniszewska","year":"2017","unstructured":"Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, Altman DG, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453. https:\/\/doi.org\/10.1136\/bmj.j3453.","journal-title":"BMJ"}],"container-title":["BMC Medical Informatics and Decision Making"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12911-025-02907-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12911-025-02907-x\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12911-025-02907-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,2,13]],"date-time":"2025-02-13T07:48:25Z","timestamp":1739432905000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcmedinformdecismak.biomedcentral.com\/articles\/10.1186\/s12911-025-02907-x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2,13]]},"references-count":34,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["2907"],"URL":"https:\/\/doi.org\/10.1186\/s12911-025-02907-x","relation":{"has-preprint":[{"id-type":"doi","id":"10.21203\/rs.3.rs-1946310\/v1","asserted-by":"object"}]},"ISSN":["1472-6947"],"issn-type":[{"value":"1472-6947","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,2,13]]},"assertion":[{"value":"9 August 2022","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"30 January 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 February 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"There were five phases of the website development process. Informed participant consent for Phase 1 and Phase 3 of the project was waived by the University of British Columbia, Children\u2019s and Women\u2019s Research Ethics Board. The landscape analysis in Phase 2 did not require approval by an institutional research ethics board because we completed an analysis of online information that is publicly available. Approval for the usability testing in Phase 4\u00a0A was granted by the University of British Columbia, Children\u2019s and Women\u2019s Research Ethics Board (H19-03556). Approval for the qualitative interviews in Phase 4B was granted by the University of British Columbia, Children\u2019s and Women\u2019s Research Ethics Board (H19-03507). We obtained informed consent from all participants in Phase 4\u00a0A and Phase 4B. We did not require approval from a research ethics board to complete Phase 5 because we did not collect any data during the revisions and launch of the website. All methods in this research project were carried out in accordance with the guidelines and regulations in the Declaration of Helsinki.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"We did not need to obtain consent from the patient partners, clinicians, allied healthcare staff and researchers that are on our team because we did not collect any personal data. We obtained informed consent from all participants in Phase 4\u00a0A and Phase 4B. We have taken screenshots of our website to create Table\u00a0\n                      \n                      , which includes stock images of people. We did not need informed consent from the people in those images since they are stock images and we own the website. The copyright information of the Pelvic Pain and Endometriosis website can be found here: Registration number: 1186614 - Canadian Copyright Database - Canadian Copyright Database - Canadian Intellectual Property Office - Intellectual property and copyright - Innovation, Science and Economic Development Canada.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"One of the authors (CA) has financial affiliations with Abbive. The other authors do not have any conflicts of interest.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"79"}}