{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,2]],"date-time":"2026-07-02T08:49:56Z","timestamp":1782982196904,"version":"3.54.5"},"reference-count":59,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,3,10]],"date-time":"2025-03-10T00:00:00Z","timestamp":1741564800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,3,10]],"date-time":"2025-03-10T00:00:00Z","timestamp":1741564800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100007837","name":"Universit\u00e4t Bremen","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100007837","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Med Inform Decis Mak"],"abstract":"<jats:title>Abstract<\/jats:title>\n          <jats:sec>\n            <jats:title>Background<\/jats:title>\n            <jats:p>Many patients with cancer want to be involved in healthcare decisions. For adequate participation, awareness of one\u2019s own desires and preferences and sufficient knowledge about medical measures are indispensable. In order to support patient participation, a decision guide for patients with cancer was developed as part of a larger project called TARGET, which specifically aims to improve the care of patients with rare cancer.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Methods<\/jats:title>\n            <jats:p>The development of the decision guide took place from 08.2022 to 03.2023. The decision guide is a single component of a complex intervention that aims to facilitate decision support in cancer care for patients. For the development, existing development and evaluation studies of Question Prompt Lists (QPLs) were identified through systematic literature searches in the MEDLINE via PubMed, PsycInfo, and CINAHL databases. The decision guide was pre-tested for feasibility, usability, completeness and acceptance with the target groups through guided individual interviews. Sociodemographic data were collected anonymously. An expert review was conducted. The verbatim transcribed interviews were analysed using content analysis according to Kuckartz with MAXQDA. The guide has been iteratively optimized based on the results.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results<\/jats:title>\n            <jats:p>A generic decision guide for patients with cancer for diagnostic or treatment decisions was developed in both PDF web-based formats, based on the Ottawa Personal Decision Guide. It was supplemented with decision-related questions from QPLs for patients with cancer. The pre-test comprised seven expert reviews of (psych)oncologists and experts in evidence-based health information and ten interviews with cancer patients (<jats:italic>n<\/jats:italic>\u2009=\u20097), family relatives (<jats:italic>n<\/jats:italic>\u2009=\u20092), and one caregiver. The results were coded into nine main categories. The results indicated a good feasibility, usability and acceptability of the guide. The tool was perceived as comprehensive and appropriate. Individual elements were identified as modifiable for better comprehensibility. The target audience appreciated the decision guide as a good support option.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusion<\/jats:title>\n            <jats:p>The decision guide is potentially a useful support option for patients with cancer facing medical decisions in their further course of treatment. In the TARGET project, it will be made available to patients and can be supplemented with decision coaching. Further steps for implementation into healthcare structures are necessary.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Clinical trial number<\/jats:title>\n            <jats:p>Not applicable.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1186\/s12911-025-02960-6","type":"journal-article","created":{"date-parts":[[2025,3,10]],"date-time":"2025-03-10T16:32:05Z","timestamp":1741624325000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Development of a generic decision guide for patients in oncology: a qualitative interview study"],"prefix":"10.1186","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0009-0001-9607-7808","authenticated-orcid":false,"given":"Lia","family":"Schilling","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0938-1343","authenticated-orcid":false,"given":"Jana","family":"Kaden","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabel","family":"B\u00e1n","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4704-4401","authenticated-orcid":false,"given":"Birte","family":"Berger-H\u00f6ger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"on behalf of the TARGET group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,3,10]]},"reference":[{"key":"2960_CR1","unstructured":"Bundesministerium f\u00fcr Gesundheit. Nationaler Krebsplan: Handlungsfelder, Ziele, Umsetzungsempfehlungen [National Cancer Plan: Fields of action, goals, recommendations for implementation]; 2017 [cited 2023 Jun 15]. Available from: https:\/\/www.bundesgesundheitsministerium.de\/fileadmin\/Dateien\/5_Publikationen\/Praevention\/Broschueren\/Broschuere_Nationaler_Krebsplan.pdf"},{"key":"2960_CR2","doi-asserted-by":"publisher","first-page":"40","DOI":"10.1016\/j.zefq.2022.04.026","volume":"172","author":"P Grabbe","year":"2022","unstructured":"Grabbe P, Gschwendtner KM, Gaisser A, Kludt E, Wild B, Eich W, et al. Preferred and perceived participation roles of oncological patients in medical decision-making: results of a survey among users of the German Cancer information service. Z Evid Fortbild Qual Gesundhwes. 2022;172:40\u20138. cited 2022 Nov 8.","journal-title":"Z Evid Fortbild Qual Gesundhwes"},{"key":"2960_CR3","doi-asserted-by":"publisher","unstructured":"Brom L, Hopmans W, Pasman HRW, Timmermans DRM, Widdershoven GAM, Onwuteaka-Philipsen BD. Congruence between patients\u2019 preferred and perceived participation in medical decision-making: a review of the literature. BMC Medical Informatics and Decision Making. 2014;14(1):25. Available from: https:\/\/bmcmedinformdecismak.biomedcentral.com\/articles\/https:\/\/doi.org\/10.1186\/1472-6947-14-25","DOI":"10.1186\/1472-6947-14-25"},{"key":"2960_CR4","first-page":"CD006732","volume":"7","author":"F L\u00e9gar\u00e9","year":"2018","unstructured":"L\u00e9gar\u00e9 F, Adekpedjou R, Stacey D, Turcotte S, Kryworuchko J, Graham ID, et al. Interventions for increasing the use of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2018;7:CD006732.","journal-title":"Cochrane Database Syst Rev"},{"key":"2960_CR5","doi-asserted-by":"crossref","unstructured":"L\u00e9gar\u00e9 F, Thompson-Leduc P. Twelve myths about shared decision making. Patient Educ Couns. 2014;96(3):281\u20136. Available from: https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0738399114002699","DOI":"10.1016\/j.pec.2014.06.014"},{"key":"2960_CR6","first-page":"CD001431","volume":"4","author":"D Stacey","year":"2017","unstructured":"Stacey D, L\u00e9gar\u00e9 F, Lewis K, Barry MJ, Bennett CL, Eden KB, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2017;4:CD001431.","journal-title":"Cochrane Database Syst Rev"},{"issue":"1","key":"2960_CR7","first-page":"CD001431","volume":"1","author":"D Stacey","year":"2024","unstructured":"Stacey D, Lewis KB, Smith M, Carley M, Volk R, Douglas EE, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2024;1(1):CD001431.","journal-title":"Cochrane Database Syst Rev"},{"key":"2960_CR8","first-page":"CD013385","volume":"11","author":"J Jull","year":"2021","unstructured":"Jull J, K\u00f6pke S, Smith M, Carley M, Finderup J, Rahn AC, et al. Decision coaching for people making healthcare decisions. Cochrane Database Syst Rev. 2021;11:CD013385.","journal-title":"Cochrane Database Syst Rev"},{"issue":"5","key":"2960_CR9","first-page":"CD013822","volume":"5","author":"P Riganti","year":"2024","unstructured":"Riganti P, Ruiz Yanzi MV, Escobar Liquitay CM, Sgarbossa NJ, Alarcon-Ruiz CA, Kopitowski KS, et al. Shared decision-making for supporting women\u2019s decisions about breast cancer screening. Cochrane Database Syst Rev. 2024;5(5):CD013822.","journal-title":"Cochrane Database Syst Rev"},{"issue":"3","key":"2960_CR10","doi-asserted-by":"publisher","first-page":"291","DOI":"10.1016\/j.pec.2013.10.031","volume":"94","author":"N Joseph-Williams","year":"2014","unstructured":"Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns. 2014;94(3):291\u2013309.","journal-title":"Patient Educ Couns"},{"key":"2960_CR11","doi-asserted-by":"crossref","unstructured":"Keij SM, van Duijn-Bakker N, Stiggelbout AM, Pieterse AH. What makes a patient ready for Shared Decision Making? A qualitative study. Patient Educ Couns. 2021;104(3):571\u20137. Available from: https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0738399120304626","DOI":"10.1016\/j.pec.2020.08.031"},{"issue":"1","key":"2960_CR12","doi-asserted-by":"publisher","first-page":"74","DOI":"10.1186\/s13012-021-01142-y","volume":"16","author":"A Waddell","year":"2021","unstructured":"Waddell A, Lennox A, Spassova G, Bragge P. Barriers and facilitators to shared decision-making in hospitals from policy to practice: a systematic review. Implement Sci. 2021;16(1):74.","journal-title":"Implement Sci"},{"issue":"2","key":"2960_CR13","doi-asserted-by":"publisher","first-page":"197","DOI":"10.2217\/cer.13.91","volume":"3","author":"C Charles","year":"2014","unstructured":"Charles C, Gafni A. The vexing problem of defining the meaning, role and measurement of values in treatment decision-making. J Comp Eff Res. 2014;3(2):197\u2013209.","journal-title":"J Comp Eff Res"},{"issue":"5","key":"2960_CR14","doi-asserted-by":"publisher","first-page":"681","DOI":"10.1016\/S0277-9536(96)00221-3","volume":"44","author":"C Charles","year":"1997","unstructured":"Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681\u201392.","journal-title":"Soc Sci Med"},{"key":"2960_CR15","doi-asserted-by":"crossref","unstructured":"Josfeld L, Keinki C, Pammer C, Zomorodbakhsch B, H\u00fcbner J. Cancer patients\u2019 perspective on shared decision-making and decision aids in oncology. J Cancer Res Clin Oncol 2021.","DOI":"10.1007\/s00432-021-03579-6"},{"issue":"8","key":"2960_CR16","doi-asserted-by":"publisher","first-page":"746","DOI":"10.1007\/s00761-020-00782-x","volume":"26","author":"U Goerling","year":"2020","unstructured":"Goerling U, Rohrmoser A, R\u00fcter G, Pichler T, Westphalen CB, Herschbach P. Herausforderungen der pr\u00e4zisionsonkologie f\u00fcr patient und onkologe [Challenges of precision oncology for patients and oncologists]. Onkologe. 2020;26(8):746\u201351.","journal-title":"Onkologe"},{"issue":"3","key":"2960_CR17","doi-asserted-by":"publisher","first-page":"379","DOI":"10.1177\/0272989X20911870","volume":"40","author":"D Stacey","year":"2020","unstructured":"Stacey D, L\u00e9gar\u00e9 F, Boland L, Lewis KB, Loiselle M-C, Hoefel L, et al. 20th anniversary Ottawa decision support framework: part 3 overview of systematic reviews and updated framework. Med Decis Mak. 2020;40(3):379\u201398.","journal-title":"Med Decis Mak"},{"issue":"7","key":"2960_CR18","doi-asserted-by":"publisher","first-page":"938","DOI":"10.1177\/0272989X21997330","volume":"41","author":"AC Rahn","year":"2021","unstructured":"Rahn AC, Jull J, Boland L, Finderup J, Loiselle M-C, Smith M, et al. Guidance and\/or decision coaching with patient decision aids: scoping reviews to inform the international patient decision aid standards (IPDAS). Med Decis Mak. 2021;41(7):938\u201353.","journal-title":"Med Decis Mak"},{"issue":"Suppl 2","key":"2960_CR19","doi-asserted-by":"publisher","first-page":"S11","DOI":"10.1186\/1472-6947-13-S2-S11","volume":"13","author":"D Stacey","year":"2013","unstructured":"Stacey D, Kryworuchko J, Belkora J, Davison BJ, Durand M-A, Eden KB, et al. Coaching and guidance with patient decision aids: A review of theoretical and empirical evidence. BMC Med Inf Decis Mak. 2013;13(Suppl 2):S11.","journal-title":"BMC Med Inf Decis Mak"},{"issue":"7565","key":"2960_CR20","doi-asserted-by":"publisher","first-page":"417","DOI":"10.1136\/bmj.38926.629329.AE","volume":"333","author":"G Elwyn","year":"2006","unstructured":"Elwyn G, O\u2019Connor A, Stacey D, Volk R, Edwards A, Coulter A, et al. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006;333(7565):417.","journal-title":"BMJ"},{"issue":"8","key":"2960_CR21","doi-asserted-by":"publisher","first-page":"857","DOI":"10.1200\/JCO.2011.37.7952","volume":"30","author":"R Brown","year":"2012","unstructured":"Brown R, Butow P, Wilson-Genderson M, Bernhard J, Ribi K, Juraskova I. Meeting the decision-making preferences of patients with breast cancer in oncology consultations: impact on decision-related outcomes. JCO. 2012;30(8):857\u201362.","journal-title":"JCO"},{"key":"2960_CR22","first-page":"1","volume-title":"Gesundheitskompetenz","author":"B Berger-H\u00f6ger","year":"2020","unstructured":"Berger-H\u00f6ger B, Isselhard A, Stock S, Kautz-Freimuth S. Unterst\u00fctzung informierter entscheidungen in der onkologie [Supporting informed decisions in oncology]. In: Rathmann K, Dadaczynski K, Okan O, Messer M, editors. Gesundheitskompetenz. Berlin, Heidelberg: Springer Berlin Heidelberg; 2020. pp. 1\u201312. (Springer Reference Pflege \u2013 Therapie \u2013 Gesundheit)."},{"key":"2960_CR23","doi-asserted-by":"crossref","unstructured":"Damodaran S, Berger MF, Roychowdhury S. Clinical tumor sequencing: opportunities and challenges for precision cancer medicine. Am Soc Clin Oncol Educ Book 2015:e175\u201382.","DOI":"10.14694\/EdBook_AM.2015.35.e175"},{"key":"2960_CR24","doi-asserted-by":"crossref","unstructured":"Skivington K, Matthews L, Simpson SA, Craig P, Baird J, Blazeby JM et al. A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance. BMJ. 2021;374:n2061. Available from: https:\/\/www.bmj.com\/content\/374\/bmj.n2061","DOI":"10.1136\/bmj.n2061"},{"key":"2960_CR25","doi-asserted-by":"publisher","first-page":"204","DOI":"10.1186\/s13063-015-0709-y","volume":"16","author":"R M\u00f6hler","year":"2015","unstructured":"M\u00f6hler R, K\u00f6pke S, Meyer G. Criteria for reporting the development and evaluation of complex interventions in healthcare: revised guideline (CReDECI 2). Trials. 2015;16:204.","journal-title":"Trials"},{"issue":"6","key":"2960_CR26","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349\u201357.","journal-title":"Int J Qual Health Care"},{"key":"2960_CR27","doi-asserted-by":"publisher","first-page":"e49731","DOI":"10.2196\/49731","volume":"12","author":"J Hinneburg","year":"2023","unstructured":"Hinneburg J, Zacher S, Berger-H\u00f6ger B, Berger-Th\u00fcrmel K, Kratzer V, Steckelberg A, et al. Enhancing transsectoral interdisciplinary Patient-Centered care for patients with rare cancers: protocol for a mixed methods process evaluation. JMIR Res Protoc. 2023;12:e49731.","journal-title":"JMIR Res Protoc"},{"key":"2960_CR28","doi-asserted-by":"crossref","unstructured":"Brown R, Butow PN, Boyer MJ, Tattersall MH. Promoting patient participation in the cancer consultation: evaluation of a prompt sheet and coaching in question-asking. Br J Cancer. 1999;80(1):242\u20138. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/10390003\/","DOI":"10.1038\/sj.bjc.6690346"},{"issue":"6","key":"2960_CR29","doi-asserted-by":"publisher","first-page":"715","DOI":"10.1200\/JCO.2006.06.7827","volume":"25","author":"JM Clayton","year":"2007","unstructured":"Clayton JM, Butow PN, Tattersall MHN, Devine RJ, Simpson JM, Aggarwal G, et al. Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care. J Clin Oncol. 2007;25(6):715\u201323.","journal-title":"J Clin Oncol"},{"key":"2960_CR30","doi-asserted-by":"crossref","unstructured":"Arthur J, Yennurajalingam S, Williams J, Tanco K, Liu D, Stephen S et al. Development of a Question Prompt Sheet for Cancer Patients Receiving Outpatient Palliative Care. Journal of palliative medicine. 2016;19(8):883\u20137. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/27175461\/","DOI":"10.1089\/jpm.2015.0545"},{"key":"2960_CR31","doi-asserted-by":"crossref","unstructured":"Yeh JC, Cheng MJ, Chung CH, Smith TJ. Using a question prompt list as a communication aid in advanced cancer care. J Oncol Pract. 2014;10(3):e137-41. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/24594680\/","DOI":"10.1200\/JOP.2013.001295"},{"issue":"8","key":"2960_CR32","doi-asserted-by":"publisher","first-page":"842","DOI":"10.1200\/JCO.2016.68.5651","volume":"35","author":"RA Rodenbach","year":"2017","unstructured":"Rodenbach RA, Brandes K, Fiscella K, Kravitz RL, Butow PN, Walczak A, et al. Promoting End-of-Life discussions in advanced cancer: effects of patient coaching and question prompt lists. JCO. 2017;35(8):842\u201351.","journal-title":"JCO"},{"key":"2960_CR33","unstructured":"O\u2018Connor AM, Stacey D, Jacobsen MJ. Ottawa Personal Decision Guide.: Ottawa Hospital Research Institute & University of Ottawa; 2015 [cited 2022 Jan 9]. Available from: https:\/\/decisionaid.ohri.ca\/docs\/das\/OPDG.pdf"},{"key":"2960_CR34","unstructured":"Kuckartz U. Qualitative Inhaltsanalyse: Methoden, Praxis, Computerunterst\u00fctzung [Qualitative content analysis: methods, practice, computer support]. 3., \u00fcberarbeitete Auflage. Weinheim, Basel: Beltz Juventa; 2016. (Grundlagentexte Methoden). Available from: http:\/\/www.content-select.com\/index.php?id=bib_view&ean=9783779943860"},{"key":"2960_CR35","doi-asserted-by":"crossref","unstructured":"Barton E, Moore TF, Hamel L, Penner L, Albrecht T, Eggly S. The influence of a question prompt list on patient-oncologist information exchange in an African-American population. Patient Educ Couns. 2020; 103(3):505\u201313. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/31585820\/","DOI":"10.1016\/j.pec.2019.09.020"},{"key":"2960_CR36","doi-asserted-by":"crossref","unstructured":"Berger Z, Tung M, Yesantharao P, Zhou A, Blackford A, Smith TJ et al. Feasibility and perception of a question prompt list in outpatient cancer care. Journal of patient-reported outcomes. 2019;3(1):53. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/31418088\/","DOI":"10.1186\/s41687-019-0145-y"},{"key":"2960_CR37","doi-asserted-by":"crossref","unstructured":"Tsai PS, Wang CC, Lan YH, Tsai HW, Hsiao CY, Wu JC et al. Effectiveness of question prompt lists in patients with breast cancer: A randomized controlled trial. Patient Educ Couns. 2022;105(9):2984\u201394. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/35697559\/","DOI":"10.1016\/j.pec.2022.05.016"},{"key":"2960_CR38","doi-asserted-by":"crossref","unstructured":"Eggly S, Hamel LM, Foster TS, Albrecht TL, Chapman R, Harper FWK et al. Randomized trial of a question prompt list to increase patient active participation during interactions with black patients and their oncologists. Patient Educ Couns. 2017;100(5):818\u201326. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/28073615\/","DOI":"10.1016\/j.pec.2016.12.026"},{"key":"2960_CR39","doi-asserted-by":"crossref","unstructured":"Butow PN, Dunn SM, Tattersall MH, Jones QJ. Patient participation in the cancer consultation: evaluation of a question prompt sheet. Annals of oncology: official journal of the European Society for Medical Oncology. 1994;5(3):199\u2013204. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/8186168\/","DOI":"10.1093\/oxfordjournals.annonc.a058793"},{"key":"2960_CR40","doi-asserted-by":"crossref","unstructured":"Walczak A, Mazer B, Butow PN, Tattersall MH, Clayton JM, Davidson PM et al. A question prompt list for patients with advanced cancer in the final year of life: development and cross-cultural evaluation. Palliat Med. 2013;27(8):779\u201388. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/23630055\/","DOI":"10.1177\/0269216313483659"},{"key":"2960_CR41","doi-asserted-by":"crossref","unstructured":"Henselmans I, van Laarhoven HWM, van Maarschalkerweerd P, de Haes HCJM, Dijkgraaf MGW, Sommeijer DW et al. Effect of a Skills Training for Oncologists and a Patient Communication Aid on Shared Decision Making About Palliative Systemic Treatment: A Randomized Clinical Trial. Oncologist. 2020;25(3):e578-e588. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/32162796\/","DOI":"10.1634\/theoncologist.2019-0453"},{"key":"2960_CR42","doi-asserted-by":"crossref","unstructured":"Moloczij N, Krishnasamy M, Butow P, Hack TF, Stafford L, Jefford M et al. Barriers and facilitators to the implementation of audio-recordings and question prompt lists in cancer care consultations: A qualitative study. Patient Educ Couns. 2017;100(6):1083\u201391. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/28117193\/","DOI":"10.1016\/j.pec.2017.01.005"},{"key":"2960_CR43","doi-asserted-by":"crossref","unstructured":"Clayton J, Butow P, Tattersall M, Chye R, Noel M, Davis JM et al. Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients. Br J Cancer. 2003;89(11):2069\u201377. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/14647140\/","DOI":"10.1038\/sj.bjc.6601380"},{"key":"2960_CR44","doi-asserted-by":"crossref","unstructured":"Brown RF, Shuk E, Leighl N, Butow P, Ostroff J, Edgerson S et al. Enhancing decision making about participation in cancer clinical trials: development of a question prompt list. Support Care Cancer. 2011;19(8):1227\u201338. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/20593202\/","DOI":"10.1007\/s00520-010-0942-6"},{"key":"2960_CR45","doi-asserted-by":"crossref","unstructured":"Shirai Y, Fujimori M, Ogawa A, Yamada Y, Nishiwaki Y, Ohtsu A et al. Patients\u2019 perception of the usefulness of a question prompt sheet for advanced cancer patients when deciding the initial treatment: a randomized, controlled trial. Psycho-oncology. 2012;21(7):706\u201313. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/21425387\/","DOI":"10.1002\/pon.1955"},{"key":"2960_CR46","doi-asserted-by":"crossref","unstructured":"Smets EM, van Heijl M, van Wijngaarden AK, Henselmans I, van Berge Henegouwen MI. Addressing patients\u2019 information needs: a first evaluation of a question prompt sheet in the pretreatment consultation for patients with esophageal cancer. Diseases of the esophagus: official journal of the International Society for Diseases of the Esophagus. 2012;25(6):512\u20139. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/22054056\/","DOI":"10.1111\/j.1442-2050.2011.01274.x"},{"key":"2960_CR47","doi-asserted-by":"crossref","unstructured":"Bruera E, Sweeney C, Willey J, Palmer JL, Tolley S, Rosales M et al. Breast cancer patient perception of the helpfulness of a prompt sheet versus a general information sheet during outpatient consultation: a randomized, controlled trial. Journal of pain and symptom management. 2003;25(5):412\u20139. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/12727038\/","DOI":"10.1016\/S0885-3924(02)00686-3"},{"key":"2960_CR48","doi-asserted-by":"crossref","unstructured":"Glynne-Jones R, Ostler P, Lumley-Graybow S, Chait I, Hughes R, Grainger J et al. Can I look at my list? An evaluation of a \u2019prompt sheet\u2019 within an oncology outpatient clinic. Clinical oncology (Royal College of Radiologists (Great Britain)). 2006;18(5):395\u2013400. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/16817331\/","DOI":"10.1016\/j.clon.2006.01.005"},{"issue":"4","key":"2960_CR49","doi-asserted-by":"publisher","first-page":"273","DOI":"10.1272\/jnms.JNMS.2021_88-401","volume":"88","author":"J Kumi Chubachi","year":"2021","unstructured":"Kumi Chubachi J, Umihara A, Yoshikawa S, Nakamichi S, Takeuchi M, Matsumoto, et al. Evaluation of a tool that enables Cancer patients to participate in the Decision-Making process during treatment selection. J Nippon Med School. 2021;88(4):273\u201382.","journal-title":"J Nippon Med School"},{"key":"2960_CR50","unstructured":"LimeSurvey. Umfragen erstellen: LimeSurvey: Kostenloses Umfrage-Tool [Create surveys: LimeSurvey: Free survey tool]; 2025 [cited 2025 Jan 28]. Available from: https:\/\/www.limesurvey.org\/de"},{"key":"2960_CR51","unstructured":"National Institute for Health and Care Excellence. Shared decision making: NICE guideline; 2017 [cited 2024 Oct 29]. Available from: https:\/\/www.nice.org.uk\/guidance\/ng197\/resources\/shared-decision-making-pdf-66142087186885"},{"issue":"1","key":"2960_CR52","doi-asserted-by":"publisher","first-page":"54","DOI":"10.1177\/0272989X13491463","volume":"34","author":"A Ferron Parayre","year":"2014","unstructured":"Ferron Parayre A, Labrecque M, Rousseau M, Turcotte S, L\u00e9gar\u00e9 F. Validation of SURE, a four-item clinical checklist for detecting decisional conflict in patients. Med Decis Mak. 2014;34(1):54\u201362.","journal-title":"Med Decis Mak"},{"key":"2960_CR53","doi-asserted-by":"publisher","first-page":"238","DOI":"10.1016\/j.jclinepi.2017.06.010","volume":"89","author":"S D\u00e9cary","year":"2017","unstructured":"D\u00e9cary S, Dion M, Rivest L-P, Renaud J-S, Robitaille H, L\u00e9gar\u00e9 F. Decisional conflict screening for a diversity of primary care decisions. Are we SURE yet? J Clin Epidemiol. 2017;89:238\u20139.","journal-title":"J Clin Epidemiol"},{"key":"2960_CR54","unstructured":"Krebsinformationsdienst DK, Krebsinformationsdienst DKFZ. Informationen zu Krebs: [Cancer Information Service, DKFZ: Information on cancer] Krebsinformationsdienst, Deutsches Krebsforschungszentrum; 2023 [cited 2023 Nov 10]. Available from: https:\/\/www.krebsinformationsdienst.de\/"},{"key":"2960_CR55","unstructured":"Deutsche Krebshilfe| Helfen. Forschen. Informieren [Help. Research. Inform]; 2023 [cited 2023 Nov 10]. Available from: https:\/\/www.krebshilfe.de\/"},{"key":"2960_CR56","unstructured":"Gemeinsamer Bundesauschuss. Beschluss des innovationsausschusses beim gemeinsamen Bundesauschuss Gem\u00e4\u00df \u00a7 92b Absatz 3 SGB V zum abgeschlossenen projekt MAKING SDM A REALITY [Decision of the Innovation Committee at the Joint Federal Committee pursuant to Section 92b (3) SGB V on the completed MAKING SDM A REALITY project] (01NVF17009); 2023 [cited 2023 May 2]."},{"key":"2960_CR57","unstructured":"L\u00fchnen J, Albrecht M, M\u00fchlhauser I, Steckelberg A. Leitlinie evidenzbasierte Gesundheitsinformation [Guideline on evidence-based health information]. Hamburg 2017."},{"issue":"4","key":"2960_CR58","doi-asserted-by":"publisher","first-page":"1404","DOI":"10.1111\/hex.13783","volume":"26","author":"JU Ramlakhan","year":"2023","unstructured":"Ramlakhan JU, Dhanani S, Berta WB, Gagliardi AR. Optimizing the design and implementation of question prompt lists to support person-centred care: A scoping review. Health Expect. 2023;26(4):1404\u201317.","journal-title":"Health Expect"},{"key":"2960_CR59","doi-asserted-by":"crossref","unstructured":"Terrasson J, Rault A, Dolbeault S, Br\u00e9dart A. Question prompt lists to improve communication between cancer patients and healthcare professionals. Current opinion in oncology. 2022;34(4):265\u20139. Available from: https:\/\/pubmed.ncbi.nlm.nih.gov\/35730518\/","DOI":"10.1097\/CCO.0000000000000840"}],"container-title":["BMC Medical Informatics and Decision Making"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12911-025-02960-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12911-025-02960-6\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12911-025-02960-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,10]],"date-time":"2025-03-10T16:32:20Z","timestamp":1741624340000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcmedinformdecismak.biomedcentral.com\/articles\/10.1186\/s12911-025-02960-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,3,10]]},"references-count":59,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["2960"],"URL":"https:\/\/doi.org\/10.1186\/s12911-025-02960-6","relation":{},"ISSN":["1472-6947"],"issn-type":[{"value":"1472-6947","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,3,10]]},"assertion":[{"value":"29 August 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"3 March 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"10 March 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study was approved by the Ethics Committee of the German Society for Nursing Science (Deutsche Gesellschaft f\u00fcr Pflegewissenschaft e.V.) (Nr. 22\u2013029). The study was performed in accordance with the Declaration of Helsinki. The study information included information about aims of the study, data collection and management and the study team. Participants were given a description of the study and written informed consent was obtained from all participants prior to the interviews.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"125"}}