{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,2]],"date-time":"2026-11-02T16:36:46Z","timestamp":1793637406823,"version":"4.5.1"},"reference-count":29,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T00:00:00Z","timestamp":1714953600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T00:00:00Z","timestamp":1714953600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Brain Foundation"},{"name":"Lundbeck Australia"},{"DOI":"10.13039\/501100021529","name":"Prince of Wales Hospital Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100021529","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Headache Pain"],"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>There are no robust population-based Australian data on prevalence and attributed burden of migraine and medication-overuse headache (MOH) data. In this pilot cross-sectional study, we aimed to capture the participation rate, preferred response method, and acceptability of self-report questionnaires to inform the conduct of a future nationwide migraine\/MOH epidemiological study.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>We developed a self-report questionnaire, available in hard-copy and online, including modules from the Headache-Attributed Restriction, Disability, Social Handicap and Impaired Participation (HARDSHIP) questionnaire, the Eq.\u00a05D (quality of life), and enquiry into treatment gaps. Study invitations were mailed to 20,000 randomly selected households across Australia\u2019s two most populous states. The household member who most recently had a birthday and was aged\u2009\u2265\u200918 years was invited to participate, and could do so by returning a hard-copy questionnaire via reply-paid mail, or by entering responses directly into an online platform.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>The participation rate was 5.0% (<jats:italic>N<\/jats:italic>\u2009=\u20091,000). Participants\u2019 median age was 60 years (IQR 44\u201371 years), and 64.7% (<jats:italic>n<\/jats:italic>\u2009=\u2009647) were female. Significantly more responses were received from areas with relatively older populations and middle-level socioeconomic status. Hard copy was the more commonly chosen response method (<jats:italic>n<\/jats:italic>\u2009=\u2009736). Females and younger respondents were significantly more likely to respond online than via hard-copy.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>This pilot study indicates that alternative methodology is needed to achieve satisfactory engagement in a future nationwide migraine\/MOH epidemiological study, for example through inclusion of migraine screening questions in well-resourced, interview-based national health surveys that are conducted regularly by government agencies. Meanwhile, additional future research directions include defining and addressing treatment gaps to improve migraine awareness, and minimise under-diagnosis and under-treatment.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s10194-024-01773-8","type":"journal-article","created":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T12:02:00Z","timestamp":1714996920000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Australian Headache Epidemiology Data (AHEAD): a pilot study to assess sampling and engagement methodology for a nationwide population-based survey"],"prefix":"10.1186","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8958-3844","authenticated-orcid":false,"given":"Emma","family":"Foster","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1888-6917","authenticated-orcid":false,"given":"Zhibin","family":"Chen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7704-7067","authenticated-orcid":false,"given":"Claire E","family":"Wakefield","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0625-3522","authenticated-orcid":false,"given":"Zanfina","family":"Ademi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8543-7767","authenticated-orcid":false,"given":"Elspeth","family":"Hutton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1882-4337","authenticated-orcid":false,"given":"Timothy J","family":"Steiner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4346-0790","authenticated-orcid":false,"given":"Alessandro S","family":"Zagami","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,5,6]]},"reference":[{"key":"1773_CR1","unstructured":"G. B. D. Headache collaborators. Global, regional, and national burden of migraine and tension-type headache, 1990\u20132016: a systematic analysis for the global burden of Disease Study 2016. Lancet Neurol. (2018) ;17(11):954\u2013976"},{"issue":"10258","key":"1773_CR2","doi-asserted-by":"publisher","first-page":"1204","DOI":"10.1016\/S0140-6736(20)30925-9","volume":"396","author":"T Vos","year":"2020","unstructured":"Vos T, Lim SS, Abbafati C, Abbas KM, Abbasi M, Abbasifard M et al (2020) Global burden of 369 diseases and injuries in 204 countries and territories, 1990\u20132019: a systematic analysis for the global burden of Disease Study 2019. Lancet 396(10258):1204\u20131222","journal-title":"Lancet"},{"key":"1773_CR3","unstructured":"Britt H, Miller GC, Henderson J, Charles J, Valenti L, Harrison C et al (2012) General practice activity in Australia 2011-12. Sydney"},{"issue":"1","key":"1773_CR4","doi-asserted-by":"publisher","first-page":"50","DOI":"10.1111\/j.1440-1754.1990.tb02379.x","volume":"26","author":"NJ King","year":"1990","unstructured":"King NJ, Sharpley CF (1990) Headache activity in children and adolescents. J Paediatr Child Health 26(1):50\u201354","journal-title":"J Paediatr Child Health"},{"issue":"3","key":"1773_CR5","doi-asserted-by":"publisher","first-page":"253","DOI":"10.1111\/j.1440-1754.1994.tb00628.x","volume":"30","author":"IA Wilkinson","year":"1994","unstructured":"Wilkinson IA, Halliday JA, Henry RL, Hankin RG, Hensley MJ (1994) Headache and asthma. J Paediatr Child Health 30(3):253\u2013256","journal-title":"J Paediatr Child Health"},{"issue":"5","key":"1773_CR6","doi-asserted-by":"publisher","first-page":"627","DOI":"10.1111\/j.1445-5994.1998.tb00659.x","volume":"28","author":"P Mitchell","year":"1998","unstructured":"Mitchell P, Wang JJ, Currie J, Cumming RG, Smith W (1998) Prevalence and vascular associations with migraine in older australians. Aust N Z J Med 28(5):627\u2013632","journal-title":"Aust N Z J Med"},{"key":"1773_CR7","volume-title":"National Health Survey: first results, 2017-18","author":"Australian Bureau of Statistics","year":"2018","unstructured":"Australian Bureau of Statistics (2018) National Health Survey: first results, 2017-18. ABS, Canberra"},{"key":"1773_CR8","unstructured":"Australian Institute of Health (2016) and Welfare. Australia\u2019s heatlh 2016. Canberra"},{"issue":"10","key":"1773_CR9","doi-asserted-by":"publisher","first-page":"2291","DOI":"10.1111\/head.13969","volume":"60","author":"S Tu","year":"2020","unstructured":"Tu S, Liew D, Ademi Z, Owen AJ, Zomer E (2020) The Health and Productivity Burden of migraines in Australia. Headache 60(10):2291\u20132303","journal-title":"Headache"},{"key":"1773_CR10","doi-asserted-by":"publisher","first-page":"5","DOI":"10.1186\/1129-2377-15-5","volume":"15","author":"LJ Stovner","year":"2014","unstructured":"Stovner LJ, Al Jumah M, Birbeck GL, Gururaj G, Jensen R, Katsarava Z et al (2014) The methodology of population surveys of headache prevalence, burden and cost: principles and recommendations from the global campaign against Headache. J Headache Pain 15:5","journal-title":"J Headache Pain"},{"issue":"1","key":"1773_CR11","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1186\/1129-2377-15-3","volume":"15","author":"TJ Steiner","year":"2014","unstructured":"Steiner TJ, Gururaj G, Andree C, Katsarava Z, Ayzenberg I, Yu SY et al (2014) Diagnosis, prevalence estimation and burden measurement in population surveys of headache: presenting the HARDSHIP questionnaire. J Headache Pain 15(1):3","journal-title":"J Headache Pain"},{"issue":"4","key":"1773_CR12","doi-asserted-by":"publisher","first-page":"399","DOI":"10.1055\/s-0042-1756490","volume":"81","author":"D Wei","year":"2023","unstructured":"Wei D, Wong LP, Loganathan T, Tang RR, Chang Y, Zhou HN et al (2023) Validation studies on migraine diagnostic tools for use in nonclinical settings: a systematic review. Arq Neuropsiquiatr 81(4):399\u2013412","journal-title":"Arq Neuropsiquiatr"},{"issue":"9","key":"1773_CR13","doi-asserted-by":"publisher","first-page":"1082","DOI":"10.1177\/0333102409354323","volume":"30","author":"C Andree","year":"2010","unstructured":"Andree C, Vaillant M, Barre J, Katsarava Z, Lainez JM, Lair ML et al (2010) Development and validation of the EUROLIGHT questionnaire to evaluate the burden of primary headache disorders in Europe. Cephalalgia 30(9):1082\u20131100","journal-title":"Cephalalgia"},{"issue":"1","key":"1773_CR14","doi-asserted-by":"publisher","first-page":"12","DOI":"10.1186\/s10194-018-0837-3","volume":"19","author":"TJ Steiner","year":"2018","unstructured":"Steiner TJ, Lipton RB, Lifting The Burden (2018) The global campaign against H. The headache-attributed Lost Time (HALT) indices: measures of burden for clinical management and population-based research. J Headache Pain 19(1):12","journal-title":"J Headache Pain"},{"issue":"1","key":"1773_CR15","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1111\/j.1526-4610.2012.02265.x","volume":"53","author":"RB Lipton","year":"2013","unstructured":"Lipton RB, Serrano D, Holland S, Fanning KM, Reed ML, Buse DC (2013) Barriers to the diagnosis and treatment of migraine: effects of sex, income, and headache features. Headache 53(1):81\u201392","journal-title":"Headache"},{"issue":"5","key":"1773_CR16","doi-asserted-by":"publisher","first-page":"821","DOI":"10.1111\/head.12774","volume":"56","author":"DW Dodick","year":"2016","unstructured":"Dodick DW, Loder EW, Manack Adams A, Buse DC, Fanning KM, Reed ML et al (2016) Assessing barriers to Chronic Migraine Consultation, diagnosis, and treatment: results from the chronic migraine epidemiology and outcomes (CaMEO) study. Headache 56(5):821\u2013834","journal-title":"Headache"},{"key":"1773_CR17","unstructured":"Institute for Health Metrics and Evaluation, Results Tool GBD, Seattle (2015) WA: University of Washington; [ http:\/\/ghdx.healthdata.org\/gbd-results-tool"},{"key":"1773_CR18","doi-asserted-by":"publisher","first-page":"103208","DOI":"10.1016\/j.jbi.2019.103208","volume":"95","author":"PA Harris","year":"2019","unstructured":"Harris PA, Taylor R, Minor BL, Elliott V, Fernandez M, O\u2019Neal L et al (2019) The REDCap consortium: building an international community of software platform partners. J Biomed Inf 95:103208","journal-title":"J Biomed Inf"},{"issue":"2","key":"1773_CR19","doi-asserted-by":"publisher","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","volume":"42","author":"PA Harris","year":"2009","unstructured":"Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG (2009) Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inf 42(2):377\u2013381","journal-title":"J Biomed Inf"},{"key":"1773_CR20","unstructured":"Australian Bureau of Statistics 2021 Census All persons QuickStats 2021 [ https:\/\/www.abs.gov.au\/census\/find-census-data\/quickstats\/2021\/AUS"},{"issue":"1","key":"1773_CR21","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1186\/s10194-022-01402-2","volume":"23","author":"LJ Stovner","year":"2022","unstructured":"Stovner LJ, Hagen K, Linde M, Steiner TJ (2022) The global prevalence of headache: an update, with analysis of the influences of methodological factors on prevalence estimates. J Headache Pain 23(1):34","journal-title":"J Headache Pain"},{"issue":"5","key":"1773_CR22","doi-asserted-by":"publisher","first-page":"541","DOI":"10.1007\/s10194-011-0356-y","volume":"12","author":"C Andree","year":"2011","unstructured":"Andree C, Stovner LJ, Steiner TJ, Barre J, Katsarava Z, Lainez JM et al (2011) The Eurolight project: the impact of primary headache disorders in Europe. Description of methods. J Headache Pain 12(5):541\u2013549","journal-title":"J Headache Pain"},{"key":"1773_CR23","unstructured":"Australian Longitudinal Study on Women\u2019s Health Recruitment methods 2020 [ https:\/\/alswh.org.au\/for-data-users\/study-design\/recruitment-methods\/"},{"issue":"1","key":"1773_CR24","doi-asserted-by":"publisher","first-page":"230","DOI":"10.1186\/s12874-019-0868-8","volume":"19","author":"MG Smith","year":"2019","unstructured":"Smith MG, Witte M, Rocha S, Basner M (2019) Effectiveness of incentives and follow-up on increasing survey response rates and participation in field studies. BMC Med Res Methodol 19(1):230","journal-title":"BMC Med Res Methodol"},{"key":"1773_CR25","unstructured":"Australian Government My Health Record, 2023 [ https:\/\/www.digitalhealth.gov.au\/initiatives-and-programs\/my-health-record"},{"key":"1773_CR26","doi-asserted-by":"publisher","first-page":"634","DOI":"10.1186\/s13104-015-1616-8","volume":"8","author":"L Mellish","year":"2015","unstructured":"Mellish L, Karanges EA, Litchfield MJ, Schaffer AL, Blanch B, Daniels BJ et al (2015) The Australian Pharmaceutical benefits Scheme data collection: a practical guide for researchers. BMC Res Notes 8:634","journal-title":"BMC Res Notes"},{"issue":"1","key":"1773_CR27","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1186\/1129-2377-14-11","volume":"14","author":"A Straube","year":"2013","unstructured":"Straube A, Aicher B, Forderreuther S, Eggert T, Koppel J, Moller S et al (2013) Period prevalence of self-reported headache in the general population in Germany from 1995\u20132005 and 2009: results from annual nationwide population-based cross-sectional surveys. J Headache Pain 14(1):11","journal-title":"J Headache Pain"},{"key":"1773_CR28","unstructured":"Survey businesswireTNS 75% of Americans Will Never Answer Calls from Unknown Numbers 2022 [ https:\/\/www.businesswire.com\/news\/home\/20220726005226\/en\/TNS-Survey-75-of-Americans-Will-Never-Answer-Calls-from-Unknown-Numbers"},{"issue":"2","key":"1773_CR29","doi-asserted-by":"publisher","first-page":"122","DOI":"10.1111\/head.14259","volume":"62","author":"RB Lipton","year":"2022","unstructured":"Lipton RB, Nicholson RA, Reed ML, Araujo AB, Jaffe DH, Faries DE et al (2022) Diagnosis, consultation, treatment, and impact of migraine in the US: results of the OVERCOME (US) study. Headache 62(2):122\u2013140","journal-title":"Headache"}],"container-title":["The Journal of Headache and Pain"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s10194-024-01773-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s10194-024-01773-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s10194-024-01773-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,5,6]],"date-time":"2024-05-06T12:02:11Z","timestamp":1714996931000},"score":1,"resource":{"primary":{"URL":"https:\/\/thejournalofheadacheandpain.biomedcentral.com\/articles\/10.1186\/s10194-024-01773-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,5,6]]},"references-count":29,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["1773"],"URL":"https:\/\/doi.org\/10.1186\/s10194-024-01773-8","relation":{},"ISSN":["1129-2377"],"issn-type":[{"value":"1129-2377","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,5,6]]},"assertion":[{"value":"4 March 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"15 April 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"6 May 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"This study was approved by the Alfred Health Human Research Ethics Committee (HREC: 87013), protocol date: 5 October 2022. This study used an \u2018opt in\u2019 approach, where it was implied that, by participating in the study, people were consenting to take part.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"EF and\/or her institution reports grants from Brain Foundation (Australia); LivaNova (USA); Lundbeck (Australia); Monash Partners STAR Clinician Fellowship; Sylvia and Charles Viertel Charitable Foundation; The Royal Australian College of Physicians Fellows Research Establishment Fellowship.ZC was supported by the National Health and Medical Research Council of Australia Early Career Fellowship (GNT1156444) and has received grants from the Monash University. His institution has received research funding from UCB Pharma, outside the submitted work.CW is supported by an NHMRC Investigator Grant (APP2008300).ZA reports no disclosures relating to this study.EH reports no disclosures relating to this study. She has served on advisory boards for Sanofi-Genzyme, Novartis, Teva, Eli Lilly, Allergan and Lundbeck, and been involved in clinical trials sponsored by Novartis, Allergan, Lundbeck, Teva, Xalud, Cerecin, and has received payment for educational presentations from Allergan, Teva, Eli Lilly and Novartis. TJS is Director and Trustee of <i>Lifting The Burden<\/i>, a UK-registered non-governmental organization conducting the Global Campaign against Headache in official relations with the World Health Organization. He is associate editor of The Journal of Headache and Pain. He reports no other disclosures relating to this study.ASZ reports research grants from the Prince of Wales Hospital Foundation and from Lundbeck for the funding of this pilot study.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"71"}}