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Sensitive data were protected by maintaining the Akershus University Hospital code of conduct in respect of storing data only within specified permitted access drives and using encrypted hardware. Raw data (videotapes) were only available to JN, JG, JM, and PG by administrative permission granted by the CEO of Akershus University Hospital.All participants were provided with information about the study prior to giving their written consent. Considering that the project involved informing patients about medications and risks related to a later stage of their disease, we involved an ethicist and a patient representative to discuss how to handle the possibility of this causing worry or emotional reactions. 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