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Evidence is however scarce on family caregivers\u2019 psychosocial burden and quality of life in Asian countries including Malaysia. This study describes the baseline data of a telephone-delivered psychoeducational intervention study and examines the determinants of outcome measures (caregiver burden, depressive and anxiety symptoms, quality of life and caregiving self-efficacy) among Malaysian family caregivers to PWD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This was a cross-sectional study originated from the baseline survey of a randomized control trial of 121 family caregivers recruited from lists of PWD who were registered at memory and psychiatry clinics in three tertiary care hospitals in Malaysia. The participants were assessed for caregiver burden by the Zarit Burden Interview, depressive and anxiety symptoms by the Hospital Anxiety and Depression Scale, quality of life by the Control, Autonomy, Self-Realization, and Pleasure Scale, and caregiving self-efficacy by the Revised Scale for Caregiving Self-Efficacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Prevalence of caregiver burden was 69.4%, depressive symptoms 32.2% and anxiety symptoms 32.2%. Family caregivers to PWD having perceived peer support e.g., social\/family\/friend\/significant other supports were less likely to report caregiver burden, depressive and anxiety symptoms, and more likely to report higher levels of quality of life and caregiving self-efficacy. Being married and PWD\u2019s ability to self-care were associated with lesser likelihood of experiencing caregiver burden, depressive and anxiety symptoms. The other determinants of greater probability of reporting better quality of life were caregivers\u2019 employment and having Islamic faith. Marital status (married), PWD\u2019s ability to self-care, spousal relationship with PWD and shared caregiving process were associated with higher likelihood of reporting caregiving self-efficacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Caregiver burden, depressive and anxiety symptoms are prevalent in family caregivers to PWD in Malaysia. Social support and caregiving related factors influence family caregivers\u2019 quality of life and caregiving self-efficacy. Implementing psychoeducational intervention and support in the psychiatry and memory clinics may help improve the psychosocial burden, quality of life and caregiving self-efficacy in family caregivers of PWD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Trial registration<\/jats:title>\n                    <jats:p>ISRCTN14565552 (retrospectively registered).<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12877-024-05221-9","type":"journal-article","created":{"date-parts":[[2024,8,5]],"date-time":"2024-08-05T08:06:40Z","timestamp":1722845200000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":52,"title":["Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study"],"prefix":"10.1186","volume":"24","author":[{"given":"Hashima E.","family":"Nasreen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie","family":"Tyrrell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sofia","family":"Vikstr\u00f6m","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00c5sa","family":"Craftman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Syarifah Amirah Binti","family":"Syed Ahmad","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nora Mat","family":"Zin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karimah Hanim Abd","family":"Aziz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Noorlaili Binti","family":"Mohd Tohit","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mohd Aznan","family":"Md Aris","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zarina Nahar","family":"Kabir","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,8,5]]},"reference":[{"issue":"1","key":"5221_CR1","doi-asserted-by":"publisher","first-page":"86","DOI":"10.1186\/s12877-022-02787-0","volume":"22","author":"AA Hazzan","year":"2022","unstructured":"Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I. 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Participants were informed in detail about the study and the interviews were conducted after obtaining their informed consent.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"All authors declare that there are no personal, organizational, or financial conflicts of interest.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"Hashima E Nasreen, MBBS, MPH, PhD, Associate Professor of Epidemiology, Department of Community Medicine, Faculty of Medicine, International Islamic University Malaysia, Kuantan Campus, Pahang, Malaysia.Marie Tyrrell, Associate Professor, Sophiahemmet H\u00f6gskola, Valhallav\u00e4gen, Stockholm, Sweden.Sofia Vikstr\u00f6m, PhD, Senior Lecturer, Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Stockholm, Sweden.\u00c5sa Craftman, PhD, Senior Lecturer, Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.Syarifah Amirah Binti Syed Ahmad, Candidate for Masters in Medical Science, Department of Community Medicine, Faculty of Medicine, International Islamic University Malaysia, Kuantan Campus, Pahang, Malaysia.Karimah Hanim Abd Aziz, MD, DrPH, Assistant Professor, Department of Community Medicine, Faculty of Medicine, International Islamic University Malaysia, Kuantan Campus, Pahang, Malaysia.Noorlaili Binti Mohd Tohit, MD, MMeD, PhD, Associate Professor, Department of Family Medicine, Universiti Kebangsaan Malaysia, 56000 Bandar Tun Razak, Kuala Lumpur, Malaysia.Nora Mat Zin, MD, MMeD, Associate Professor, Department of Psychoiatry, Faculty of Medicine, International Islamic University Malaysia, Kuantan Campus, Pahang, Malaysia.Mohd Aznan Md Arid, MBBS, MMeD, Professor, Department of Family Medicine, Faculty of Medicine, International Islamic University Malaysia, Kuantan Campus, Pahang, Malaysia.Zarina Nahar Kabir, PhD, Associate Professor of Public Health and Principal Researcher, Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Authors\u2019 information"}}],"article-number":"656"}}