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The increasing incidence and prevalence of chronic conditions associated with later life have made care needs more complex and resource intensive. Parkinson\u2019s is one such example of a progressive condition characterised by a host of motor and non-motor symptoms, which results in increasing disability over time and, therefore, care requirements and resources. The experience of older persons experiencing progressive disability, and the impact on family care, is under-reported in Kenya and across Africa.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This paper reports an ethnographic study on the lived experiences of older persons with Parkinson\u2019s (aged 60 and older) and their families living in urban and rural Kenya, drawing on interview material and observations involving 45 people with Parkinson\u2019s and 23 family caregivers to explore the experiences of receiving and providing care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The paper explores care provision and receipt in the context of ageing with Parkinson\u2019s as a progressive movement disorder, demonstrating the resilience and adaptability of older adults and their caregivers. Structural, cultural and community processes situate the individual experiences of PwP and family caregivers, who navigate taboos and tensions in reciprocity and resources to make care work. These experiences have implications for who takes on the caring role, and the resulting adaptations, reconfigurations and emerging forms of care that families enact, including unconventional co-residence.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Older people with Parkinson\u2019s described contending with the progressive nature of Parkinson\u2019s and the erosion of independence, while informal caregivers reported the physical, emotional and financial burden of caregiving. Care work was becoming more difficult, yet families in this study demonstrated adaptability, resilience and enduring obligation to enact and reciprocate care. This study emphasises the need to strengthen, support and sustain community-based approaches to care for older people in Kenya, and elsewhere in Africa. This need is particularly acute as the population rapidly grows and ages, and more older people age with, and into, disability.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12877-026-08051-z","type":"journal-article","created":{"date-parts":[[2026,7,27]],"date-time":"2026-07-27T02:45:21Z","timestamp":1785120321000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Family and community care for older persons with Parkinson\u2019s disease in Kenya: a qualitative, ethnographic study"],"prefix":"10.1186","volume":"26","author":[{"given":"Natasha","family":"Fothergill-Misbah","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,7,27]]},"reference":[{"issue":"11","key":"8051_CR1","doi-asserted-by":"publisher","first-page":"939","DOI":"10.1016\/S1474-4422(18)30295-3","volume":"17","author":"ER Dorsey","year":"2018","unstructured":"Dorsey ER, Elbaz A, Nichols E, Abd-Allah F, Abdelalim A, Adsuar JC, et al. 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Pseudonyms are used for all participant quotes. Research was conducted in accordance with the Declaration of Helsinki, and in line with the Ethical Guidelines of the Association of Social Anthropologists of the UK and Commonwealth, the professional body overseeing anthropological research. Ethical approval for this ethnographic study was granted by Kenya Medical Research Institute (KEMRI) Scientific Ethics Review Unit (SERU) (Reference: NON-KEMRI 609), Kenyatta National Hospital \u2013 University of Nairobi Ethics and Research Committee (KNH-UoN ERC) (Reference: P451\/06\/2018) and by Newcastle University Faculty of Medical Sciences Research Ethics Committee in the UK (Application No. 1293\/14933\/2017).","order":1,"name":"Ethics","label":"Ethics approval and consent to participate","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","label":"Consent for publication","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no competing interests.","order":3,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"1330"}}