{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,9,20]],"date-time":"2024-09-20T04:17:29Z","timestamp":1726805849675},"reference-count":40,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,9,19]],"date-time":"2024-09-19T00:00:00Z","timestamp":1726704000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2024,9,19]],"date-time":"2024-09-19T00:00:00Z","timestamp":1726704000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"funder":[{"name":"Sanofi"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Infect Dis"],"DOI":"10.1186\/s12879-024-09860-6","type":"journal-article","created":{"date-parts":[[2024,9,19]],"date-time":"2024-09-19T09:02:13Z","timestamp":1726736533000},"update-policy":"http:\/\/dx.doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Follow-up care experience of patients with invasive meningococcal disease and their family caregivers: a qualitative study"],"prefix":"10.1186","volume":"24","author":[{"given":"Alexiane","family":"Baloche","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pierrick","family":"Bedouch","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Florence","family":"Carrouel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laurent","family":"Argaud","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karine","family":"Kolev","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Guillaume","family":"Mortamet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carole","family":"Schwebel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"G\u00e9rard","family":"Mick","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claude","family":"Dussart","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,9,19]]},"reference":[{"key":"9860_CR1","unstructured":"WHO. Meningococcus. In: Overview: Vaccine Preventable Diseases Surveillance Standards. edn.; 2018 15."},{"issue":"6","key":"9860_CR2","doi-asserted-by":"publisher","first-page":"1563","DOI":"10.1007\/s11136-004-7706-z","volume":"14","author":"I Koomen","year":"2005","unstructured":"Koomen I, Raat H, Jennekens-Schinkel A, Grobbee DE, Roord JJ, van Furth M. Academic and behavioral limitations and health-related quality of life in school-age survivors of bacterial meningitis. Qual Life Res. 2005;14(6):1563\u201372.","journal-title":"Qual Life Res"},{"issue":"6","key":"9860_CR3","doi-asserted-by":"publisher","first-page":"3031","DOI":"10.1007\/s12325-022-02149-7","volume":"39","author":"X Duval","year":"2022","unstructured":"Duval X, Taha MK, Lamaury I, Escaut L, Gueit I, Manchon P, Tubiana S, Hoen B. Group cs: one-year sequelae and quality of life in adults with meningococcal meningitis: lessons from the COMBAT Multicentre prospective study. Adv Ther. 2022;39(6):3031\u201341.","journal-title":"Adv Ther"},{"issue":"9","key":"9860_CR4","doi-asserted-by":"publisher","first-page":"774","DOI":"10.1016\/S1474-4422(12)70180-1","volume":"11","author":"RM Viner","year":"2012","unstructured":"Viner RM, Booy R, Johnson H, Edmunds WJ, Hudson L, Bedford H, Kaczmarski E, Rajput K, Ramsay M, Christie D. Outcomes of invasive meningococcal serogroup B disease in children and adolescents (MOSAIC): a case-control study. Lancet Neurol. 2012;11(9):774\u201383.","journal-title":"Lancet Neurol"},{"issue":"2","key":"9860_CR5","doi-asserted-by":"publisher","first-page":"596","DOI":"10.1097\/01.CCM.0000299740.65484.CA","volume":"36","author":"CM Buysse","year":"2008","unstructured":"Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Surviving meningococcal septic shock: health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge. Crit Care Med. 2008;36(2):596\u2013602.","journal-title":"Crit Care Med"},{"issue":"3","key":"9860_CR6","doi-asserted-by":"publisher","first-page":"220","DOI":"10.1080\/13638490400022246","volume":"8","author":"TR Ehrlich","year":"2005","unstructured":"Ehrlich TR, Von Rosenstiel IA, Grootenhuis MA, Gerrits AI, Bos AP. Long-term psychological distress in parents of child survivors of severe meningococcal disease. Pediatr Rehabil. 2005;8(3):220\u20134.","journal-title":"Pediatr Rehabil"},{"key":"9860_CR7","unstructured":"WHO. Defeating meningitis by 2030: a global road map. World Health Organization; 2021."},{"issue":"6","key":"9860_CR8","doi-asserted-by":"publisher","first-page":"405","DOI":"10.1016\/j.medmal.2019.03.009","volume":"49","author":"B Hoen","year":"2019","unstructured":"Hoen B, Varon E, de Debroucker T, Fantin B, Grimprel E, Wolff M, Duval X. Expert, reviewing g: management of acute community-acquired bacterial meningitis (excluding newborns). Long version with arguments. Med Mal Infect. 2019;49(6):405\u201341.","journal-title":"Med Mal Infect"},{"issue":"3","key":"9860_CR9","doi-asserted-by":"publisher","first-page":"e502","DOI":"10.1542\/peds.2008-0581","volume":"123","author":"J Borg","year":"2009","unstructured":"Borg J, Christie D, Coen PG, Booy R, Viner RM. Outcomes of meningococcal disease in adolescence: prospective, matched-cohort study. Pediatrics. 2009;123(3):e502\u2013509.","journal-title":"Pediatrics"},{"issue":"4","key":"9860_CR10","doi-asserted-by":"publisher","first-page":"177","DOI":"10.1016\/j.medmal.2016.02.009","volume":"46","author":"C Briand","year":"2016","unstructured":"Briand C, Levy C, Baumie F, Joao L, Bechet S, Carbonnelle E, Grimprel E, Cohen R, Gaudelus J, de Pontual L. Outcomes of bacterial meningitis in children. Med Mal Infect. 2016;46(4):177\u201387.","journal-title":"Med Mal Infect"},{"key":"9860_CR11","doi-asserted-by":"publisher","first-page":"954","DOI":"10.1186\/1471-2458-13-954","volume":"13","author":"LJ Clark","year":"2013","unstructured":"Clark LJ, Glennie L, Audrey S, Hickman M, Trotter CL. The health, social and educational needs of children who have survived meningitis and septicaemia: the parents\u2019 perspective. BMC Public Health. 2013;13:954.","journal-title":"BMC Public Health"},{"issue":"3","key":"9860_CR12","doi-asserted-by":"publisher","first-page":"e126","DOI":"10.1111\/apa.12112","volume":"102","author":"F Sweeney","year":"2013","unstructured":"Sweeney F, Viner RM, Booy R, Christie D. Parents\u2019 experiences of support during and after their child\u2019s diagnosis of meningococcal disease. Acta Paediatr. 2013;102(3):e126\u2013130.","journal-title":"Acta Paediatr"},{"issue":"6","key":"9860_CR13","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349\u201357.","journal-title":"Int J Qual Health Care"},{"key":"9860_CR14","unstructured":"DeJonckheere MA-O, Vaughn LM. Semistructured interviewing in primary care research: a balance of relationship and rigour. (2305\u20136983 (Print))."},{"issue":"1","key":"9860_CR15","doi-asserted-by":"publisher","first-page":"12","DOI":"10.3961\/jpmph.22.451","volume":"56","author":"J Pyo","year":"2023","unstructured":"Pyo J, Lee W, Choi EY, Jang SG, Ock M. Qualitative Research in Healthcare: necessity and characteristics. J Prev Med Public Health. 2023;56(1):12\u201320.","journal-title":"J Prev Med Public Health"},{"issue":"3","key":"9860_CR16","first-page":"12","volume":"12","author":"R Chafe","year":"2017","unstructured":"Chafe R. The Value of Qualitative Description in Health Services and Policy Research. Healthc Policy. 2017;12(3):12\u20138.","journal-title":"Healthc Policy"},{"issue":"2","key":"9860_CR17","doi-asserted-by":"publisher","first-page":"39","DOI":"10.7748\/nr2011.01.18.2.39.c8283","volume":"18","author":"J Smith","year":"2011","unstructured":"Smith J, Bekker H, Cheater F. Theoretical versus pragmatic design in qualitative research. Nurse Res. 2011;18(2):39\u201351.","journal-title":"Nurse Res"},{"key":"9860_CR18","doi-asserted-by":"crossref","first-page":"233339361774228","DOI":"10.1177\/2333393617742282","volume":"4","author":"C Bradshaw","year":"2017","unstructured":"Bradshaw C, Atkinson S, Doody O. Employing a qualitative description Approach in Health Care Research. Glob Qual Nurs Res. 2017;4:2333393617742282.","journal-title":"Glob Qual Nurs Res"},{"key":"9860_CR19","doi-asserted-by":"publisher","first-page":"26152","DOI":"10.3402\/qhw.v9.26152","volume":"9","author":"V Braun","year":"2014","unstructured":"Braun V, Clarke V. What can thematic analysis offer health and wellbeing researchers? Int J Qual Stud Health Well-being. 2014;9:26152.","journal-title":"Int J Qual Stud Health Well-being"},{"key":"9860_CR20","doi-asserted-by":"crossref","first-page":"233339361559767","DOI":"10.1177\/2333393615597674","volume":"2","author":"MJ McIntosh","year":"2015","unstructured":"McIntosh MJ, Morse JM. Situating and constructing diversity in Semi-structured interviews. Glob Qual Nurs Res. 2015;2:2333393615597674.","journal-title":"Glob Qual Nurs Res"},{"key":"9860_CR21","first-page":"22","volume":"12","author":"S Ruslin, Mashuri","year":"2022","unstructured":"Ruslin, Mashuri S, Sarib M, Rasak A, Alhabsyi F, Syam H. Semi-structured interview: a methodological reflection on the development of a qualitative research instrument in Educational studies. IOSR J Res Method Educ. 2022;12:22\u20139.","journal-title":"IOSR J Res Method Educ"},{"issue":"30","key":"9860_CR22","doi-asserted-by":"publisher","first-page":"73","DOI":"10.1002\/ev.1427","volume":"1986","author":"YS Lincoln","year":"1986","unstructured":"Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Dir Program Evaluation. 1986;1986(30):73\u201384.","journal-title":"New Dir Program Evaluation"},{"key":"9860_CR23","unstructured":"Forero RA-O, Nahidi S, De Costa J, Mohsin M, Fitzgerald G, Gibson N, McCarthy S, Aboagye-Sarfo P. Application of four-dimension criteria to assess rigour of qualitative research in emergency medicine. (1472\u20136963 (Electronic))."},{"key":"9860_CR24","doi-asserted-by":"publisher","first-page":"233372142412615","DOI":"10.1177\/23337214241261534","volume":"10","author":"EA Boateng","year":"2024","unstructured":"Boateng EA, Agyapomah R, Amankwaa I, Dzomeku VM, Peprah LO. Perspectives of Family caregivers on Healthcare provided to older adults with hypertension and\/or diabetes Mellitus in Ghana. Gerontol Geriatr Med. 2024;10:23337214241261534.","journal-title":"Gerontol Geriatr Med"},{"issue":"3","key":"9860_CR25","doi-asserted-by":"publisher","first-page":"36","DOI":"10.7748\/nr.2017.e1509","volume":"24","author":"S McInnes","year":"2017","unstructured":"McInnes S, Peters K, Bonney A, Halcomb E. An exemplar of naturalistic inquiry in general practice research. Nurse Res. 2017;24(3):36\u201341.","journal-title":"Nurse Res"},{"issue":"1","key":"9860_CR26","doi-asserted-by":"publisher","first-page":"120","DOI":"10.1080\/13814788.2017.1375092","volume":"24","author":"I Korstjens","year":"2018","unstructured":"Korstjens I, Moser A. Series: practical guidance to qualitative research. Part 4: trustworthiness and publishing. Eur J Gen Pract. 2018;24(1):120\u20134.","journal-title":"Eur J Gen Pract"},{"issue":"1","key":"9860_CR27","doi-asserted-by":"publisher","first-page":"e0228020","DOI":"10.1371\/journal.pone.0228020","volume":"15","author":"L Huang","year":"2020","unstructured":"Huang L, Heuer OD, Janssen S, Hackl D, Schmedt N. Clinical and economic burden of invasive meningococcal disease: evidence from a large German claims database. PLoS ONE. 2020;15(1):e0228020.","journal-title":"PLoS ONE"},{"issue":"3","key":"9860_CR28","doi-asserted-by":"publisher","first-page":"1607","DOI":"10.1007\/s40121-021-00468-w","volume":"10","author":"C Weil-Olivier","year":"2021","unstructured":"Weil-Olivier C, Taha MK, Emery C, Bouee S, Beck E, Aris E, Loncle-Provot V, Nachbaur G, Pribil C. Healthcare Resource Consumption and cost of Invasive Meningococcal Disease in France: a study of the National Health Insurance Database. Infect Dis Ther. 2021;10(3):1607\u201323.","journal-title":"Infect Dis Ther"},{"issue":"37","key":"9860_CR29","doi-asserted-by":"publisher","first-page":"4791","DOI":"10.1016\/j.vaccine.2014.05.069","volume":"32","author":"B Wang","year":"2014","unstructured":"Wang B, Haji Ali Afzali H, Marshall H. The inpatient costs and hospital service use associated with invasive meningococcal disease in South Australian children. Vaccine. 2014;32(37):4791\u20138.","journal-title":"Vaccine"},{"issue":"4","key":"9860_CR30","doi-asserted-by":"publisher","first-page":"e0267786","DOI":"10.1371\/journal.pone.0267786","volume":"17","author":"L Huang","year":"2022","unstructured":"Huang L, Fievez S, Goguillot M, Marie L, Benard S, Elkaim A, Tin Tin Htar M. A database study of clinical and economic burden of invasive meningococcal disease in France. PLoS ONE. 2022;17(4):e0267786.","journal-title":"PLoS ONE"},{"issue":"1","key":"9860_CR31","doi-asserted-by":"publisher","first-page":"96","DOI":"10.4161\/hv.7.1.13692","volume":"7","author":"KL Davis","year":"2011","unstructured":"Davis KL, Misurski D, Miller JM, Bell TJ, Bapat B. Cost of acute hospitalization and post-discharge follow-up care for meningococcal disease in the US. Hum Vaccin. 2011;7(1):96\u2013101.","journal-title":"Hum Vaccin"},{"issue":"2","key":"9860_CR32","doi-asserted-by":"publisher","first-page":"78","DOI":"10.1111\/j.1362-1017.2005.00080.x","volume":"10","author":"C Haines","year":"2005","unstructured":"Haines C. Parents\u2019 experiences of living through their child\u2019s suffering from and surviving severe meningococcal disease. Nurs Crit Care. 2005;10(2):78\u201389.","journal-title":"Nurs Crit Care"},{"key":"9860_CR33","doi-asserted-by":"publisher","first-page":"525","DOI":"10.3917\/dunod.bruch.2014.01.0525","volume-title":"Psychologie De La sant\u00e9","author":"M Bruchon-Schweitzer","year":"2014","unstructured":"Bruchon-Schweitzer M, Boujut \u00c9. Les mod\u00e8les en psychologie de la sant\u00e9: un \u00e9tat des lieux. Psychologie De La sant\u00e9. edn. Paris: Dunod; 2014. pp. 525\u201342."},{"issue":"2","key":"9860_CR34","doi-asserted-by":"publisher","first-page":"228","DOI":"10.1016\/j.pec.2005.07.006","volume":"62","author":"A Hummelinck","year":"2006","unstructured":"Hummelinck A, Pollock K. Parents\u2019 information needs about the treatment of their chronically ill child: a qualitative study. Patient Educ Couns. 2006;62(2):228\u201334.","journal-title":"Patient Educ Couns"},{"key":"9860_CR35","unstructured":"Cacioppo JT, Cacioppo S, Petty RE. The neuroscience of persuasion: A review with an emphasis on issues and opportunities. (1747\u2009\u2013\u20090927 (Electronic))."},{"issue":"4","key":"9860_CR36","doi-asserted-by":"publisher","first-page":"421","DOI":"10.1007\/s40121-018-0213-2","volume":"7","author":"KJ Olbrich","year":"2018","unstructured":"Olbrich KJ, Muller D, Schumacher S, Beck E, Meszaros K, Koerber F. Systematic review of Invasive Meningococcal Disease: Sequelae and Quality of Life Impact on patients and their caregivers. Infect Dis Ther. 2018;7(4):421\u201338.","journal-title":"Infect Dis Ther"},{"issue":"1","key":"9860_CR37","doi-asserted-by":"publisher","first-page":"1078","DOI":"10.1186\/s12889-022-13342-2","volume":"22","author":"J Shen","year":"2022","unstructured":"Shen J, Begum N, Ruiz-Garcia Y, Martinon-Torres F, Bekkat-Berkani R, Meszaros K. Range of invasive meningococcal disease sequelae and health economic application - a systematic and clinical review. BMC Public Health. 2022;22(1):1078.","journal-title":"BMC Public Health"},{"key":"9860_CR38","doi-asserted-by":"crossref","unstructured":"Wisemantel M, Maple M, Massey P, Osbourn M, Kohlhagen J. Psychosocial challenges of Invasive Meningococcal Disease for Children and their families. Australian Social Work 2018, 71(4).","DOI":"10.1080\/0312407X.2018.1492624"},{"issue":"7","key":"9860_CR39","doi-asserted-by":"publisher","first-page":"e047465","DOI":"10.1136\/bmjopen-2020-047465","volume":"11","author":"E Scanferla","year":"2021","unstructured":"Scanferla E, Gorwood P, Fasse L. Familial experience of acute bacterial meningitis in children: a transversal qualitative study using interpretative phenomenological analysis. BMJ Open. 2021;11(7):e047465.","journal-title":"BMJ Open"},{"key":"9860_CR40","doi-asserted-by":"crossref","unstructured":"McMillan M, McDonough J, Angliss M, Buttery J, Saunders L, Mathew SM, Shaw D, Gordon D, Warner MS, Nelson R et al. Exploring the Health-Related Quality of Life and the lived experience of adolescents following invasive meningococcal disease. Healthc (Basel) 2024, 12(11).","DOI":"10.3390\/healthcare12111075"}],"container-title":["BMC Infectious Diseases"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12879-024-09860-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12879-024-09860-6\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12879-024-09860-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,19]],"date-time":"2024-09-19T09:03:01Z","timestamp":1726736581000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcinfectdis.biomedcentral.com\/articles\/10.1186\/s12879-024-09860-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,9,19]]},"references-count":40,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["9860"],"URL":"https:\/\/doi.org\/10.1186\/s12879-024-09860-6","relation":{},"ISSN":["1471-2334"],"issn-type":[{"value":"1471-2334","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,9,19]]},"assertion":[{"value":"2 February 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"2 September 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"19 September 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study protocol was approved by the Ethics Committee of University of Lyon, France (ref: 2022-06-23-002) on 7th September 2022. All participants received written and oral information about the study and gave written consent to participate.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Consent for publication was obtained as part of the informed consent for the study, although our study does not publish identifiable data of the participants.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"1002"}}