{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,14]],"date-time":"2026-11-14T14:28:06Z","timestamp":1794666486061,"version":"4.9.1"},"reference-count":62,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,8,8]],"date-time":"2024-08-08T00:00:00Z","timestamp":1723075200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2024,8,8]],"date-time":"2024-08-08T00:00:00Z","timestamp":1723075200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"funder":[{"DOI":"10.13039\/501100001635","name":"University of Limerick","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001635","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Neurol"],"DOI":"10.1186\/s12883-024-03769-y","type":"journal-article","created":{"date-parts":[[2024,8,8]],"date-time":"2024-08-08T06:03:22Z","timestamp":1723097002000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":14,"title":["Quality of life and living with Parkinson\u2019s disease: a qualitative exploration within an Irish context"],"prefix":"10.1186","volume":"24","author":[{"given":"Irene","family":"Cassidy","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Owen","family":"Doody","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret","family":"Richardson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pauline","family":"Meskell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,8,8]]},"reference":[{"issue":"10291","key":"3769_CR1","doi-asserted-by":"publisher","first-page":"2284","DOI":"10.1016\/S0140-6736(21)00218-X","volume":"397","author":"BR Bloem","year":"2021","unstructured":"Bloem BR, Okun MS, Klein C. Parkinson\u2019s disease. Lancet. 2021;397(10291):2284\u2013303. https:\/\/doi.org\/10.1016\/S0140-6736(21)00218-X.","journal-title":"Lancet"},{"issue":"1","key":"3769_CR2","doi-asserted-by":"publisher","first-page":"47","DOI":"10.1038\/s41572-021-00280-3","volume":"7","author":"D Aarsland","year":"2021","unstructured":"Aarsland D, Batzu L, Halliday GM, Geurtsen GJ, Ballard C, Chaudhuri KR, Weintraub D. Parkinson disease-associated cognitive impairment. Nat Rev Dis Primers. 2021;7(1):47. https:\/\/doi.org\/10.1038\/s41572-021-00280-3.","journal-title":"Nat Rev Dis Primers"},{"issue":"1","key":"3769_CR3","doi-asserted-by":"publisher","first-page":"93","DOI":"10.7861\/clinmedicine.13-1-93","volume":"13","author":"PF Worth","year":"2013","unstructured":"Worth PF. How to treat Parkinson\u2019s disease in 2013. Clin Med. 2013;13(1):93\u20136. https:\/\/doi.org\/10.7861\/clinmedicine.13-1-93.","journal-title":"Clin Med"},{"issue":"11","key":"3769_CR4","doi-asserted-by":"publisher","first-page":"860","DOI":"10.1016\/S1474-4422(17)30331-9","volume":"16","author":"C Blauwendraat","year":"2017","unstructured":"Blauwendraat C, Bandr\u00e9s-Ciga S, Singleton AB. Predicting progression in patients with Parkinson\u2019s disease. Lancet Neurol. 2017;16(11):860\u20132. https:\/\/doi.org\/10.1016\/S1474-4422(17)30331-9.","journal-title":"Lancet Neurol"},{"issue":"10","key":"3769_CR5","doi-asserted-by":"publisher","first-page":"565","DOI":"10.1038\/s41582-019-0244-7","volume":"15","author":"Y Hou","year":"2019","unstructured":"Hou Y, Dan X, Babbar M, Wei Y, Hasselbalch SG, Croteau DL, Bohr VA. Ageing as a risk factor for neurodegenerative disease. Nat Rev Neurol. 2019;15(10):565\u201381. https:\/\/doi.org\/10.1038\/s41582-019-0244-7.","journal-title":"Nat Rev Neurol"},{"key":"3769_CR6","doi-asserted-by":"publisher","first-page":"103923","DOI":"10.1016\/j.ijnurstu.2021.103923","volume":"118","author":"A Haahr","year":"2021","unstructured":"Haahr A, Groos H, S\u00f8rensen D. Striving for normality\u2019 when coping with Parkinson\u2019s disease in everyday life: a meta-synthesis. Int J Nurs Stud. 2021;118:103923. https:\/\/doi.org\/10.1016\/j.ijnurstu.2021.103923.","journal-title":"Int J Nurs Stud"},{"issue":"23","key":"3769_CR7","doi-asserted-by":"publisher","first-page":"6949","DOI":"10.1080\/09638288.2021.1981467","volume":"44","author":"G Wieringa","year":"2022","unstructured":"Wieringa G, Dale M, Eccles FJR. Adjusting to living with Parkinson\u2019s disease; a meta-ethnography of qualitative research. Disabil Rehabil. 2022;44(23):6949\u201368. https:\/\/doi.org\/10.1080\/09638288.2021.1981467.","journal-title":"Disabil Rehabil"},{"issue":"1","key":"3769_CR8","doi-asserted-by":"publisher","first-page":"139","DOI":"10.3233\/JPD-202299","volume":"11","author":"S Rutten","year":"2021","unstructured":"Rutten S, van den Heuvel OA, de Kruif A, Schoonmade LJ, Schumacher EI, Vermunt K, Rutten K. The subjective experience of living with Parkinson\u2019s Disease: a meta-ethnography of qualitative literature. J Parkinson\u2019s Disease. 2021;11(1):139\u201351. https:\/\/doi.org\/10.3233\/JPD-202299.","journal-title":"J Parkinson\u2019s Disease"},{"issue":"4","key":"3769_CR9","doi-asserted-by":"publisher","first-page":"188","DOI":"10.12968\/bjcn.2016.21.4.188","volume":"21","author":"MA Soleimani","year":"2016","unstructured":"Soleimani MA, Bastani F, Negarandeh R, Greysen R. Perceptions of people living with Parkinson\u2019s disease: a qualitative study in Iran. Br J Community Nurs. 2016;21(4):188\u201395. https:\/\/doi.org\/10.12968\/bjcn.2016.21.4.188.","journal-title":"Br J Community Nurs"},{"issue":"2","key":"3769_CR10","doi-asserted-by":"publisher","first-page":"145","DOI":"10.1080\/14737175.2019.1561285","volume":"19","author":"DLM Radder","year":"2019","unstructured":"Radder DLM, de Vries NM, Riksen NP, Diamond SJ, Gross D, Gold DR, Heesakkers J, Henderson E, Hommel ALAJ, Lennaerts HH, Busch J, Dorsey RE, Andrejack J, Bloem BR. Multidisciplinary care for people with Parkinson\u2019s disease: the new kids on the block! Expert Rev Neurother. 2019;19(2):145\u201357. https:\/\/doi.org\/10.1080\/14737175.2019.1561285.","journal-title":"Expert Rev Neurother"},{"issue":"s1","key":"3769_CR11","doi-asserted-by":"publisher","first-page":"S5","DOI":"10.3233\/JPD-202107","volume":"10","author":"J Andrejack","year":"2020","unstructured":"Andrejack J, Mathur S. What people with Parkinson\u2019s Disease want. J Parkinsons Dis. 2020;10(s1):S5\u201310. https:\/\/doi.org\/10.3233\/JPD-202107.","journal-title":"J Parkinsons Dis"},{"issue":"4","key":"3769_CR12","doi-asserted-by":"publisher","first-page":"186","DOI":"10.1177\/0891988719841721","volume":"32","author":"K Marumoto","year":"2019","unstructured":"Marumoto K, Yokoyama K, Inoue T, et al. Inpatient enhanced multidisciplinary care effects on the quality of life for Parkinson disease: a quasi-randomized controlled trial. J Geriatr Psychiatr Neurol. 2019;32(4):186\u201394. https:\/\/doi.org\/10.1177\/0891988719841721.","journal-title":"J Geriatr Psychiatr Neurol"},{"issue":"Suppl 2","key":"3769_CR13","doi-asserted-by":"publisher","first-page":"S299","DOI":"10.1111\/jgs.12198","volume":"61","author":"R Layte","year":"2013","unstructured":"Layte R, Sexton E, Savva G. Quality of life in older age: evidence from an Irish cohort study. J Am Geriatr Soc. 2013;61(Suppl 2):S299\u2013305. https:\/\/doi.org\/10.1111\/jgs.12198.","journal-title":"J Am Geriatr Soc"},{"issue":"3","key":"3769_CR14","doi-asserted-by":"publisher","first-page":"e0213263","DOI":"10.1371\/journal.pone.0213263","volume":"14","author":"KM van Leeuwen","year":"2019","unstructured":"van Leeuwen KM, van Loon MS, van Nes FA, Bosmans JE, de Vet HCW, Ket JCF, Widdershoven GAM, Ostelo RWJG. What does quality of life mean to older adults? A thematic synthesis. PLoS ONE. 2019;14(3):e0213263. https:\/\/doi.org\/10.1371\/journal.pone.0213263.","journal-title":"PLoS ONE"},{"issue":"5","key":"3769_CR15","doi-asserted-by":"publisher","first-page":"551","DOI":"10.4314\/ejhs.v29i5.4","volume":"29","author":"SY Chu","year":"2019","unstructured":"Chu SY, Tan CL. Perception on the quality of life, communication, and life satisfaction among individuals with Parkinson\u2019s and their caregivers. Ethiop J Health Sci. 2019;29(5):551\u20138. https:\/\/doi.org\/10.4314\/ejhs.v29i5.4.","journal-title":"Ethiop J Health Sci"},{"issue":"8","key":"3769_CR16","doi-asserted-by":"publisher","first-page":"2201","DOI":"10.1007\/s10072-020-04328-2","volume":"41","author":"A Shalash","year":"2020","unstructured":"Shalash A, Hamid E, Elrassas H, Abushouk AI, Salem HH. Sexual dysfunction in male patients with Parkinson\u2019s disease: related factors and impact on quality of life. Neurol Sci. 2020;41(8):2201\u20136. https:\/\/doi.org\/10.1007\/s10072-020-04328-2.","journal-title":"Neurol Sci"},{"issue":"25\u201326","key":"3769_CR17","doi-asserted-by":"publisher","first-page":"2490","DOI":"10.3109\/09638288.2011.575527","volume":"33","author":"BL Den Oudsten","year":"2011","unstructured":"Den Oudsten BL, Lucas-Carrasco R, Green AM, Whoqol-Dis G. Perceptions of persons with Parkinson\u2019s disease, family, and professionals on quality of life: an international focus group study. Disabil Rehabil. 2011;33(25\u201326):2490\u2013508. https:\/\/doi.org\/10.3109\/09638288.2011.575527.","journal-title":"Disabil Rehabil"},{"issue":"10","key":"3769_CR18","doi-asserted-by":"publisher","first-page":"1342","DOI":"10.3109\/02699052.2014.916417","volume":"28","author":"L Dauwerse","year":"2014","unstructured":"Dauwerse L, Hendrikx A, Schipper K, Struiksma C, Abma TA. Quality-of-life of patients with Parkinson\u2019s disease. Brain Inj. 2014;28(10):1342\u201352. https:\/\/doi.org\/10.3109\/02699052.2014.916417.","journal-title":"Brain Inj"},{"issue":"1","key":"3769_CR19","doi-asserted-by":"publisher","first-page":"77","DOI":"10.1002\/nur.20362","volume":"33","author":"M Sandelowski","year":"2010","unstructured":"Sandelowski M. What\u2019s in a name? Qualitative description revisited. Res Nurs Health. 2010;33(1):77\u201384. https:\/\/doi.org\/10.1002\/nur.20362.","journal-title":"Res Nurs Health"},{"issue":"1","key":"3769_CR20","doi-asserted-by":"publisher","first-page":"994","DOI":"10.1186\/s12877-022-03612-4","volume":"22","author":"I Cassidy","year":"2022","unstructured":"Cassidy I, Doody O, Meskell P. Exploring factors that influence HRQoL for people living with Parkinson\u2019s in one region of Ireland: a cross-sectional study. BMC Geriatr. 2022;22(1):994. https:\/\/doi.org\/10.1186\/s12877-022-03612-4.","journal-title":"BMC Geriatr"},{"issue":"6","key":"3769_CR21","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349\u201357. https:\/\/doi.org\/10.1093\/intqhc\/mzm042.","journal-title":"Int J Qual Health Care"},{"issue":"12","key":"3769_CR22","doi-asserted-by":"publisher","first-page":"560","DOI":"10.12968\/ijtr.2014.21.12.560","volume":"21","author":"W Darawsheh","year":"2014","unstructured":"Darawsheh W. Reflexivity in research: promoting rigour, reliability, and validity in qualitative research. Int J Therapy Rehabilitation. 2014;21(12):560\u20138. https:\/\/doi.org\/10.12968\/ijtr.2014.21.12.560.","journal-title":"Int J Therapy Rehabilitation"},{"key":"3769_CR23","volume-title":"Successful qualitative research: a practical guide for beginners","author":"V Clarke","year":"2013","unstructured":"Clarke V, Braun V. Successful qualitative research: a practical guide for beginners. London, England: SAGE; 2013."},{"issue":"12","key":"3769_CR24","doi-asserted-by":"publisher","first-page":"e0226916","DOI":"10.1371\/journal.pone.0226916","volume":"14","author":"J Read","year":"2019","unstructured":"Read J, Cable S, L\u00f6fqvist C, Iwarsson S, Bartl G, Schrag A. Experiences of health services and unmet care needs of people with late-stage Parkinson\u2019s in England: a qualitative study. PLoS ONE. 2019;14(12):e0226916. https:\/\/doi.org\/10.1371\/journal.pone.0226916.","journal-title":"PLoS ONE"},{"issue":"1","key":"3769_CR25","doi-asserted-by":"publisher","first-page":"108","DOI":"10.1007\/s00415-014-7524-3","volume":"262","author":"CC Walton","year":"2015","unstructured":"Walton CC, Shine JM, Hall JM, O\u2019Callaghan C, Mowszowski L, Gilat M, Szeto JY, Naismith SL, Lewis SJ. The major impact of freezing of gait on quality of life in Parkinson\u2019s disease. J Neurol. 2015;262(1):108\u201315. https:\/\/doi.org\/10.1007\/s00415-014-7524-3.","journal-title":"J Neurol"},{"issue":"6","key":"3769_CR26","doi-asserted-by":"publisher","first-page":"644","DOI":"10.1016\/j.parkreldis.2015.03.028","volume":"21","author":"M Amboni","year":"2015","unstructured":"Amboni M, Stocchi F, Abbruzzese G, Morgante L, Onofrj M, Ruggieri S, Tinazzi M, Zappia M, Attar M, Colombo D, Simoni L, Ori A, Barone P, Antonini A, DEEP Study Group. Prevalence and associated features of self-reported freezing of gait in Parkinson disease: the DEEP FOG study. Parkinsonism Relat Disord. 2015;21(6):644\u20139. https:\/\/doi.org\/10.1016\/j.parkreldis.2015.03.028.","journal-title":"Parkinsonism Relat Disord"},{"issue":"26","key":"3769_CR27","doi-asserted-by":"publisher","first-page":"2216","DOI":"10.3109\/09638288.2014.898807","volume":"36","author":"B Thordardottir","year":"2014","unstructured":"Thordardottir B, Nilsson MH, Iwarsson S, Haak M. You plan, but you never know, participation among people with various levels of severity of Parkinson\u2019s disease. Disabil Rehabil. 2014;36(26):2216\u201324. https:\/\/doi.org\/10.3109\/09638288.2014.898807.","journal-title":"Disabil Rehabil"},{"issue":"2","key":"3769_CR28","doi-asserted-by":"publisher","first-page":"204","DOI":"10.1002\/mds.27913","volume":"35","author":"M Delgado-Alvarado","year":"2020","unstructured":"Delgado-Alvarado M, Marano M, Santurt\u00fan A, Urtiaga-Gallano A, Tordesillas-Gutierrez D, Infante J. Nonpharmacological, nonsurgical treatments for freezing of gait in Parkinson\u2019s disease: a systematic review. Mov Disord. 2020;35(2):204\u201314. https:\/\/doi.org\/10.1002\/mds.27913.","journal-title":"Mov Disord"},{"issue":"12","key":"3769_CR29","doi-asserted-by":"publisher","first-page":"2151","DOI":"10.1589\/jpts.29.2151","volume":"29","author":"M Ishii","year":"2017","unstructured":"Ishii M, Okuyama K. Characteristics associated with freezing of gait in actual daily living in Parkinson\u2019s disease. J Phys Ther Sci. 2017;29(12):2151\u20136. https:\/\/doi.org\/10.1589\/jpts.29.2151.","journal-title":"J Phys Ther Sci"},{"key":"3769_CR30","doi-asserted-by":"publisher","first-page":"237","DOI":"10.1016\/j.parkreldis.2019.08.002","volume":"66","author":"G Engels","year":"2019","unstructured":"Smith MD, Brazier DE, Henderson EJ. Current perspectives on the assessment and management of gait disorders in Parkinson\u2019s disease. Neuropsychiatr Dis Treat. 2021;17:2965\u201385. https:\/\/doi.org\/10.2147\/NDT.S304567.","journal-title":"Parkinsonism Relat Disord"},{"key":"3769_CR31","doi-asserted-by":"publisher","first-page":"117172","DOI":"10.1016\/j.jns.2020.117172","volume":"419","author":"K Kurihara","year":"2020","unstructured":"Kurihara K, Nakagawa R, Ishido M, Yoshinaga Y, Watanabe J, Hayashi Y, Mishima T, Fujioka S, Tsuboi Y. Impact of motor and nonmotor symptoms in Parkinson disease for the quality of life: the Japanese quality-of-life survey of Parkinson Disease (JAQPAD) study. J Neurol Sci. 2020;419:117172. https:\/\/doi.org\/10.1016\/j.jns.2020.117172.","journal-title":"J Neurol Sci"},{"key":"3769_CR32","doi-asserted-by":"publisher","first-page":"2205","DOI":"10.2147\/NDT.S213917","volume":"15","author":"N Hermanowicz","year":"2019","unstructured":"Hermanowicz N, Jones SA, Hauser RA. Impact of non-motor symptoms in Parkinson\u2019s disease: a PMD Alliance survey. Neuropsychiatr Dis Treat. 2019;15:2205\u201312. https:\/\/doi.org\/10.2147\/NDT.S213917.","journal-title":"Neuropsychiatr Dis Treat"},{"issue":"7","key":"3769_CR33","doi-asserted-by":"publisher","first-page":"916","DOI":"10.1002\/mds.20844","volume":"21","author":"KR Chaudhuri","year":"2006","unstructured":"Chaudhuri KR, Martinez-Martin P, Schapira AH, Stocchi F, Sethi K, Odin P, Brown RG, Koller W, Barone P, MacPhee G, Kelly L, Rabey M, MacMahon D, Thomas S, Ondo W, Rye D, Forbes A, Tluk S, Dhawan V, Bowron A, Williams AJ, Olanow CW. International Multicenter pilot study of the first comprehensive self-completed nonmotor symptoms questionnaire for Parkinson\u2019s disease: the NMSQuest study: nonmotor symptoms and PD. Mov Disord. 2006;21(7):916\u201323. https:\/\/doi.org\/10.1002\/mds.20844.","journal-title":"Mov Disord"},{"issue":"9","key":"3769_CR34","doi-asserted-by":"publisher","first-page":"404","DOI":"10.5694\/mja17.00993","volume":"208","author":"N Titova","year":"2018","unstructured":"Titova N, Chaudhuri KR. Non-motor Parkinson disease: new concepts and personalised management. Med J Aust. 2018;208(9):404\u20139. https:\/\/doi.org\/10.5694\/mja17.00993.","journal-title":"Med J Aust"},{"issue":"2","key":"3769_CR35","doi-asserted-by":"publisher","first-page":"67","DOI":"10.12968\/bjnn.2014.10.2.67","volume":"10","author":"B Magennis","year":"2014","unstructured":"Magennis B, Lynch T, Corry M. Current trends in the medical management of Parkinson\u2019s disease: implications for nursing practice. Br J Neurosci Nurs. 2014;10(2):67\u201374. https:\/\/doi.org\/10.12968\/bjnn.2014.10.2.67.","journal-title":"Br J Neurosci Nurs"},{"issue":"4","key":"3769_CR36","doi-asserted-by":"publisher","first-page":"166","DOI":"10.12968\/bjnn.2015.11.4.166","volume":"11","author":"A Hand","year":"2015","unstructured":"Hand A, Martin A. Assessing quality of life in Parkinson\u2019s: the nurse specialist\u2019s role. Br J Neurosci Nurs. 2015;11(4):166\u20139. https:\/\/doi.org\/10.12968\/bjnn.2015.11.4.166.","journal-title":"Br J Neurosci Nurs"},{"key":"3769_CR37","doi-asserted-by":"publisher","first-page":"90","DOI":"10.1016\/j.gerinurse.2022.05.003","volume":"46","author":"Y Park","year":"2022","unstructured":"So HY, Kim SR, Kim S, Park YS, Jo S, Park KW, et al. Effect of home-based self-management intervention for community-dwelling patients with early Parkinson\u2019s disease: A feasibility study. J Community Health Nurs. 2023;40(2):133\u201346. https:\/\/doi.org\/10.1080\/07370016.2022.2133566. PMID: 36920114.","journal-title":"Geriatr Nurs"},{"issue":"5","key":"3769_CR38","doi-asserted-by":"publisher","first-page":"561","DOI":"10.1177\/1359105316683239","volume":"24","author":"CS Hurt","year":"2019","unstructured":"Hurt CS, Rixon L, Chaudhuri KR, Moss-Morris R, Samuel M, Brown RG. Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson\u2019s disease. J Health Psychol. 2019;24(5):561\u201371. https:\/\/doi.org\/10.1177\/1359105316683239.","journal-title":"J Health Psychol"},{"key":"3769_CR39","doi-asserted-by":"publisher","first-page":"220","DOI":"10.1016\/j.parkreldis.2019.04.014","volume":"64","author":"CS Hurt","year":"2019","unstructured":"Hurt CS, Rixon L, Chaudhuri KR, Moss-Morris R, Samuel M, Brown RG. Barriers to reporting non-motor symptoms to health-care providers in people with Parkinson\u2019s. Parkinsonism Relat Disord. 2019;64:220\u20135. https:\/\/doi.org\/10.1016\/j.parkreldis.2019.04.014.","journal-title":"Parkinsonism Relat Disord"},{"issue":"1","key":"3769_CR40","doi-asserted-by":"publisher","first-page":"83","DOI":"10.1186\/s12955-015-0281-x","volume":"13","author":"L Kadastik-Eerme","year":"2015","unstructured":"Kadastik-Eerme L, Rosenthal M, Paju T, Muldmaa M, Taba P. Health-related quality of life in Parkinson\u2019s disease: a cross-sectional study focusing on non-motor symptoms. Health Qual Life Outcomes. 2015;13(1):83. https:\/\/doi.org\/10.1186\/s12955-015-0281-x.","journal-title":"Health Qual Life Outcomes"},{"issue":"2","key":"3769_CR41","doi-asserted-by":"publisher","first-page":"157","DOI":"10.1007\/s13760-015-0544-7","volume":"116","author":"I Estrada-Bellmann","year":"2016","unstructured":"Estrada-Bellmann I, Camara-Lemarroy CR, Calderon-Hernandez HJ, Rocha-Anaya JJ, Villareal-Velazquez HJ. Non-motor symptoms and quality of life in patients with Parkinson\u2019s disease in Northeastern Mexico. Acta Neurol Belg. 2016;116(2):157\u201361. https:\/\/doi.org\/10.1007\/s13760-015-0544-7.","journal-title":"Acta Neurol Belg"},{"issue":"1","key":"3769_CR42","doi-asserted-by":"publisher","first-page":"29","DOI":"10.1111\/papr.12578","volume":"18","author":"YT Fu","year":"2018","unstructured":"Fu YT, Mao CJ, Ma LJ, Zhang HJ, Wang Y, Li J, Huang JY, Liu JY, Liu CF. Pain correlates with sleep disturbances in Parkinson\u2019s disease patients. Pain Pract. 2018;18(1):29\u201337. https:\/\/doi.org\/10.1111\/papr.12578.","journal-title":"Pain Pract"},{"key":"3769_CR43","doi-asserted-by":"publisher","first-page":"1197","DOI":"10.3389\/fneur.2019.01197","volume":"10","author":"CM S\u00e1nchez-Mart\u00ednez","year":"2019","unstructured":"S\u00e1nchez-Mart\u00ednez CM, Chore\u00f1o-Parra JA, Placencia-\u00c1lvarez N, Nu\u00f1ez-Orozco L, Guadarrama-Ortiz P. Frequency, and dynamics of non-motor symptoms presentation in hispanic patients with Parkinson disease. Front Neurol. 2019;10:1197. https:\/\/doi.org\/10.3389\/fneur.2019.01197.","journal-title":"Front Neurol"},{"issue":"12","key":"3769_CR44","doi-asserted-by":"publisher","first-page":"1419","DOI":"10.1007\/s00702-022-02562-w","volume":"129","author":"P Krause","year":"2022","unstructured":"Krause P, Berking S, Astalosch M, Gr\u00fcnheid R, K\u00fchn AA. Motor and non-motor improvements following short-term multidisciplinary day-clinic care in Parkinson\u00b4s disease. J Neural Transm (Vienna). 2022;129(12):1419\u201326. https:\/\/doi.org\/10.1007\/s00702-022-02562-w.","journal-title":"J Neural Transm (Vienna)"},{"issue":"12","key":"3769_CR45","doi-asserted-by":"publisher","first-page":"772","DOI":"10.12968\/bjon.2019.28.12.772","volume":"28","author":"J Wright","year":"2019","unstructured":"Wright J. Addressing sexuality and intimacy in people living with Parkinson\u2019s during palliative care and at the end of life. Br J Nurs. 2019;28(12):772\u20139. https:\/\/doi.org\/10.12968\/bjon.2019.28.12.772.","journal-title":"Br J Nurs"},{"issue":"2","key":"3769_CR46","doi-asserted-by":"publisher","first-page":"86","DOI":"10.1016\/j.apnr.2014.12.008","volume":"28","author":"C Hellqvist","year":"2015","unstructured":"Hellqvist C, Berter\u00f6 C. Support supplied by Parkinson\u2019s disease specialist nurses to Parkinson\u2019s disease patients and their spouses. Appl Nurs Res. 2015;28(2):86\u201391. https:\/\/doi.org\/10.1016\/j.apnr.2014.12.008.","journal-title":"Appl Nurs Res"},{"issue":"8","key":"3769_CR47","doi-asserted-by":"publisher","first-page":"2581","DOI":"10.3390\/jcm9082581","volume":"9","author":"T Prell","year":"2020","unstructured":"Prell T, Siebecker F, Lorrain M, T\u00f6nges L, Warnecke T, Klucken J, Wellach I, Buhmann C, Wolz M, Lorenzl S, Herbst H, Eggers C, Mai T. Specialized staff for the care of people with Parkinson\u2019s disease in Germany: an overview. J Clin Med. 2020;9(8):2581. https:\/\/doi.org\/10.3390\/jcm9082581.","journal-title":"J Clin Med"},{"issue":"2","key":"3769_CR48","doi-asserted-by":"publisher","first-page":"46","DOI":"10.3390\/geriatrics7020046","volume":"7","author":"E Tenison","year":"2022","unstructured":"Tenison E, James A, Ebenezer L, Henderson EJ. A narrative review of specialist Parkinson\u2019s nurses: evolution, evidence, and expectation. Geriatr (Basel). 2022;7(2):46. https:\/\/doi.org\/10.3390\/geriatrics7020046.","journal-title":"Geriatr (Basel)"},{"issue":"6","key":"3769_CR49","doi-asserted-by":"publisher","first-page":"1807","DOI":"10.3233\/JPD-223215","volume":"12","author":"M van Munster","year":"2022","unstructured":"van Munster M, St\u00fcmpel J, Thieken F, Ratajczak F, Rascol O, Fabbri M, Clemens T, Czabanowska K, Mestre TA, Pedrosa DJ. iCARE-PD consortium. The role of Parkinson nurses for personalizing care in Parkinson\u2019s disease: a systematic review and meta-analysis. J Parkinsons Dis. 2022;12(6):1807\u201331. https:\/\/doi.org\/10.3233\/JPD-223215.","journal-title":"J Parkinsons Dis"},{"issue":"1","key":"3769_CR50","doi-asserted-by":"publisher","first-page":"e13901","DOI":"10.1111\/hex.13901","volume":"27","author":"E O\u2019Shea","year":"2023","unstructured":"O\u2019Shea E, Rukundo A, Foley G, Wilkinson T, Timmons S. Experiences of health service access: a qualitative interview study of people living with Parkinson\u2019s disease in Ireland. Health Expect. 2023;27(1):e13901. https:\/\/doi.org\/10.1111\/hex.13901.","journal-title":"Health Expect"},{"key":"3769_CR51","unstructured":"Oireachtas Committee on the Future of Healthcare. Sl\u00e1intecare Report. Dublin. Houses of the Oireachtas. 2017."},{"key":"3769_CR52","unstructured":"Browne M. Responding to the support & care needs of our older population: shaping an agenda for future action. Report of forum on long-term care for older people. Support and Advocacy Service for Older People (Sage); 2016."},{"key":"3769_CR53","unstructured":"Donnelly S, O\u2019Brien M, Begley E, Brennan J. I\u2019d prefer to stay at home, but I don\u2019t have a choice\u2019: Meeting older people\u2019s preference for care: Policy, but what about practice? University College Dublin. School of Social Policy, Social Work and Social Justice; 2016."},{"key":"3769_CR54","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12877-019-1145-8","volume":"19","author":"K B\u00f6lenius","year":"2019","unstructured":"B\u00f6lenius K, L\u00e4m\u00e5s K, Sandman PO, Lindkvist M, Edvardsson D. Perceptions of self-determination and quality of life among Swedish home care recipients-a cross-sectional study. BMC Geriatr. 2019;19:1\u20139. https:\/\/doi.org\/10.1186\/s12877-019-1145-8.","journal-title":"BMC Geriatr"},{"issue":"1","key":"3769_CR55","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1080\/09638288.2018.1492030","volume":"42","author":"P von Heideken W\u00e5gert","year":"2020","unstructured":"von Heideken W\u00e5gert P, Nyg\u00e5rd S, Cederbom S. Everyday life in older men living alone - a complex view needing a biopsychosocial perspective. Disabil Rehabil. 2020;42(1):44\u201352. https:\/\/doi.org\/10.1080\/09638288.2018.1492030.","journal-title":"Disabil Rehabil"},{"issue":"3","key":"3769_CR56","doi-asserted-by":"publisher","first-page":"518","DOI":"10.1017\/S0144686X17001039","volume":"39","author":"R Barken","year":"2019","unstructured":"Barken R. Independence\u2019 among older people receiving support at home: the meaning of daily care practices. Ageing Soc. 2019;39(3):518\u201340. https:\/\/doi.org\/10.1017\/S0144686X17001039.","journal-title":"Ageing Soc"},{"key":"3769_CR57","volume-title":"Everyday talk: building and reflecting identities","author":"K Tracy","year":"2013","unstructured":"Tracy K, Robles JS. Everyday talk: building and reflecting identities. New York: Guilford Press; 2013."},{"issue":"6","key":"3769_CR58","doi-asserted-by":"publisher","first-page":"583","DOI":"10.1111\/j.1365-2524.2012.01072.x","volume":"20","author":"A Wilde","year":"2012","unstructured":"Wilde A, Glendinning C. If they\u2019re helping me then how can I be independent?\u2019 The perceptions and experience of users of home-care re-ablement services. Health Soc Care Community. 2012;20(6):583\u201390. https:\/\/doi.org\/10.1111\/j.1365-2524.2012.01072.x.","journal-title":"Health Soc Care Community"},{"key":"3769_CR59","doi-asserted-by":"publisher","unstructured":"Sj\u00f6dahl Hammarlund C, Westergren A, \u00c5str\u00f6m I, Edberg AK, Hagell P. The Impact of living with Parkinson\u2019s disease: Balancing within a web of needs and demands. Parkinsons Dis. 2018;2018(4598651). https:\/\/doi.org\/10.1155\/2018\/4598651.","DOI":"10.1155\/2018\/4598651"},{"issue":"3","key":"3769_CR60","doi-asserted-by":"publisher","first-page":"325","DOI":"10.1080\/09687599.2012.654985","volume":"27","author":"P Harpur","year":"2012","unstructured":"Harpur P. From disability to ability: changing the phrasing of the debate. Disabil Soc. 2012;27(3):325\u201337. https:\/\/doi.org\/10.1080\/09687599.2012.654985.","journal-title":"Disabil Soc"},{"issue":"1","key":"3769_CR61","doi-asserted-by":"publisher","first-page":"49","DOI":"10.1037\/a0030272","volume":"23","author":"G Shahar","year":"2013","unstructured":"Shahar G, Lerman SF. The personification of chronic physical illness: its role in adjustment and implications for psychotherapy integration. J Psychother Integr. 2013;23(1):49\u201358. https:\/\/doi.org\/10.1037\/a0030272.","journal-title":"J Psychother Integr"},{"issue":"12","key":"3769_CR62","doi-asserted-by":"publisher","first-page":"1781","DOI":"10.1177\/1049732319851485","volume":"29","author":"J Gardenhire","year":"2019","unstructured":"Gardenhire J, Mullet N, Fife S. Living with Parkinson\u2019s: the process of finding optimism. Qual Health Res. 2019;29(12):1781\u201393. https:\/\/doi.org\/10.1177\/1049732319851485.","journal-title":"Qual Health Res"}],"container-title":["BMC Neurology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12883-024-03769-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12883-024-03769-y\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12883-024-03769-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,8]],"date-time":"2024-08-08T06:03:52Z","timestamp":1723097032000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcneurol.biomedcentral.com\/articles\/10.1186\/s12883-024-03769-y"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8,8]]},"references-count":62,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["3769"],"URL":"https:\/\/doi.org\/10.1186\/s12883-024-03769-y","relation":{},"ISSN":["1471-2377"],"issn-type":[{"value":"1471-2377","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,8,8]]},"assertion":[{"value":"6 March 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"17 July 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 August 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study was conducted according to the guidelines of the Declaration of Helsinki. The research protocol was approved by the University Hospital Research Ethics Committee, Limerick, Ireland which also provided approval to undertake the research. This approval was based on ethical principles including beneficence\/non-maleficence, justice, and autonomy. Consistent with ethical standards, participants were informed of the nature of the study, the researcher\u2019s responsibilities, and their right to decline to partake in the study or withdraw at any time without risk of incurring penalties or prejudicial treatment. All participants provided informed, written consent to participate in the interviews. Research methods were conducted with reference to relevant regulations and study reporting was informed by COREQ guidelines (Additional file ).","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Is not required as all participants are unidentified and there are no individual details reported within the manuscript.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"275"}}