{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,29]],"date-time":"2026-07-29T00:28:30Z","timestamp":1785284910219,"version":"3.55.0"},"reference-count":29,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2019,11,19]],"date-time":"2019-11-19T00:00:00Z","timestamp":1574121600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,11,19]],"date-time":"2019-11-19T00:00:00Z","timestamp":1574121600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Netherlands Ministry of Health, Welfare and Sports"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Public Health"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n<jats:title>Background<\/jats:title>\n<jats:p>People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and less negative consequences increase the likelihood of participation in social activities and of experiencing autonomy in participation.<\/jats:p>\n<\/jats:sec><jats:sec>\n<jats:title>Methods<\/jats:title>\n<jats:p>Survey data of 1681 people with activity limitations participating in a Dutch nationwide panel-study were analyzed by means of logistic and linear regression analyses. Perceptions of the health condition were assessed with the revised Illness Perception Questionnaire (IPQ-R). Social participation was operationalized as doing volunteer work, participating in club activities and meeting friends. Two scales of the Impact on Participation and Autonomy questionnaire were used to assess experienced autonomy regarding participation.<\/jats:p>\n<\/jats:sec><jats:sec>\n<jats:title>Results<\/jats:title>\n<jats:p>People who perceived more personal control over their health condition were more likely to participate in volunteer work (OR\u2009=\u20091.36) and club activities (OR\u2009=\u20091.35). People who believed their condition to be long-lasting were also more likely to do volunteer work (OR\u2009=\u20091.34), whereas people who reported a better understanding of their condition were more likely to frequently meet friends (OR\u2009=\u20091.19). Perceptions of the health condition explained 14% of the variance in experienced autonomy in participation, in addition to the severity of participants\u2019 activity limitations and their age, gender and education level. Especially a belief in more serious consequences, a perception of a long-lasting and less controllable condition, a perception of less understanding of the condition and a greater perceived impact on the emotional state were associated with experiencing less autonomy in participation.<\/jats:p>\n<\/jats:sec><jats:sec>\n<jats:title>Conclusions<\/jats:title>\n<jats:p>People with activity limitations who experience less control over their condition participate less in volunteer work and club activities than people who experience more control. Perceptions of the health condition are just as important to explain differences in participation as the severity of people\u2019s activity limitations and their socio-demographic characteristics. Health and social care professionals should pay attention to people\u2019s perceptions, to help people with activity limitations to participate according to their needs, circumstances, and preferences.<\/jats:p>\n<\/jats:sec>","DOI":"10.1186\/s12889-019-7698-9","type":"journal-article","created":{"date-parts":[[2019,11,19]],"date-time":"2019-11-19T06:03:03Z","timestamp":1574143383000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["People with activity limitations\u2019 perceptions of their health condition and their relationships with social participation and experienced autonomy"],"prefix":"10.1186","volume":"19","author":[{"given":"Tineke","family":"Meulenkamp","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6070-4091","authenticated-orcid":false,"given":"Mieke","family":"Rijken","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mieke","family":"Cardol","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anneke L.","family":"Francke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jany","family":"Rademakers","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2019,11,19]]},"reference":[{"key":"7698_CR1","volume-title":"International classification of functioning, disability and health","author":"World Health Organization","year":"2001","unstructured":"World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001."},{"key":"7698_CR2","doi-asserted-by":"publisher","first-page":"830","DOI":"10.1097\/PHM.0b013e318186b5bd","volume":"87","author":"M Levasseur","year":"2008","unstructured":"Levasseur M, Desrosiers J, St-Cyr Tribble D. Subjective quality-of-life predictors for older adults with physical disabilities. Am J Phys Med Rehabil. 2008;87:830\u201341.","journal-title":"Am J Phys Med Rehabil"},{"key":"7698_CR3","doi-asserted-by":"publisher","first-page":"1445","DOI":"10.1080\/09638280701625534","volume":"30","author":"J Hammel","year":"2008","unstructured":"Hammel J, Magasi S, Heinemann A, Whiteneck G, Bogner J, Rodriguez E. What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil. 2008;30:1445\u201360.","journal-title":"Disabil Rehabil"},{"key":"7698_CR4","doi-asserted-by":"publisher","first-page":"89","DOI":"10.2340\/16501977-0138","volume":"40","author":"A H\u00e4ggstr\u00f6m","year":"2008","unstructured":"H\u00e4ggstr\u00f6m A, Lund ML. The complexity of participation in daily life: a qualitative study of the experiences of persons with acquired brain injury. J Rehabil Med. 2008;40:89\u201395.","journal-title":"J Rehabil Med"},{"key":"7698_CR5","volume-title":"Convention on the rights of persons with disabilities and optional protocol","author":"United Nations","year":"2006","unstructured":"United Nations. Convention on the rights of persons with disabilities and optional protocol. New York: United Nations; 2006."},{"key":"7698_CR6","volume-title":"Disability in Europe: policy, social participation and subjective well-being [dissertation]","author":"MM van Santvoort","year":"2009","unstructured":"van Santvoort MM. Disability in Europe: policy, social participation and subjective well-being [dissertation]. Groningen: University of Groningen; 2009."},{"key":"7698_CR7","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1016\/j.socscimed.2009.04.014","volume":"69","author":"C van Campen","year":"2009","unstructured":"van Campen C, Cardol M. When work and satisfaction with life do not go hand in hand: health barriers and personal resources in the participation of people with chronic physical disabilities. Soc Sci Med. 2009;69:56\u201360.","journal-title":"Soc Sci Med"},{"key":"7698_CR8","doi-asserted-by":"publisher","first-page":"907","DOI":"10.1002\/acr.20141","volume":"62","author":"KA Theis","year":"2010","unstructured":"Theis KA, Murphy L, Hootman JM, Helmick CG, Sacks JJ. Arthritis restricts volunteer participation: prevalence and correlates of volunteer status among adults with arthritis. Arthritis Care Res. 2010;62:907\u201316.","journal-title":"Arthritis Care Res"},{"key":"7698_CR9","doi-asserted-by":"publisher","first-page":"944","DOI":"10.1016\/j.apmr.2012.12.017","volume":"94","author":"TM Meulenkamp","year":"2013","unstructured":"Meulenkamp TM, Cardol M, van der Hoek LS, Francke AL, Rijken M. 2013. Participation of people with physical disabilities: three-year trend and potential for improvement. Arch Phys Med Rehabil. 2013;94:944\u201350.","journal-title":"Arch Phys Med Rehabil"},{"key":"7698_CR10","doi-asserted-by":"publisher","first-page":"27","DOI":"10.1191\/0269215502cr464oa","volume":"16","author":"M Cardol","year":"2002","unstructured":"Cardol M, de Jong BA, van den Bos GA, Beelem A, de Groot IJ, de Haan RJ. Beyond disability: perceived participation in people with a chronic disabling condition. Clin Rehabil. 2002;16:27\u201335.","journal-title":"Clin Rehabil"},{"key":"7698_CR11","volume-title":"Disability studies: an interdisciplinary introduction","author":"D Goodley","year":"2011","unstructured":"Goodley D. Disability studies: an interdisciplinary introduction. London: Sage; 2011."},{"key":"7698_CR12","first-page":"219","volume-title":"Handbook of psychology and health: social psychological aspects of health","author":"H Leventhal","year":"1984","unstructured":"Leventhal H, Nerenz DR, Steele DJ. Illness representations and coping with health threats. In: Baum A, Taylor SE, Singer JK, editors. Handbook of psychology and health: social psychological aspects of health, vol. 4. Hillsdale: Earlbaum; 1984. p. 219\u201352."},{"key":"7698_CR13","doi-asserted-by":"publisher","first-page":"338","DOI":"10.2337\/dc10-1779","volume":"34","author":"E Broadbent","year":"2011","unstructured":"Broadbent E, Donkin L, Stroh JC. Illness and treatment perceptions are associated with adherence to medications, diet, and exercise in diabetic patients. Diabetes Care. 2011;34:338\u201340.","journal-title":"Diabetes Care"},{"issue":"3","key":"7698_CR14","doi-asserted-by":"publisher","first-page":"211","DOI":"10.1016\/j.jpsychores.2013.05.003","volume":"75","author":"R Foxwell","year":"2013","unstructured":"Foxwell R, Morley C, Frizelle D. Illness perceptions, mood and quality of life: a systematic review of coronary heart disease patients. J Psychosom Res. 2013;75(3):211\u201322.","journal-title":"J Psychosom Res"},{"issue":"1","key":"7698_CR15","doi-asserted-by":"publisher","first-page":"2001","DOI":"10.2147\/COPD.S109227","volume":"11","author":"J Tiemensma","year":"2016","unstructured":"Tiemensma J, Gaab E, Voorhaar M, Asijee G, Kaptein AA. Illness perceptions and coping determine quality of life in COPD patients. Int J Chron Obstruct Pulmon Dis. 2016;11(1):2001\u20137.","journal-title":"Int J Chron Obstruct Pulmon Dis"},{"issue":"11","key":"7698_CR16","doi-asserted-by":"publisher","first-page":"1274","DOI":"10.1080\/08870446.2015.1045511","volume":"30","author":"AL van Puffelen","year":"2015","unstructured":"van Puffelen AL, Heijmans MJWM, Rijken M, Rutten GEHM, Nijpels G, Schellevis FG. Illness perceptions and self-care behaviours in the first years of living with type 2 diabetes: does the presence of complications matter? Psychol Health. 2015;30(11):1274\u201387.","journal-title":"Psychol Health"},{"key":"7698_CR17","doi-asserted-by":"publisher","first-page":"1214","DOI":"10.1186\/s12889-015-2544-1","volume":"15","author":"C den Engelsen","year":"2015","unstructured":"den Engelsen C, Vos RC, Rijken M, Rutten GEHM. Comparison of perceptions of obesity among adults with central obesity with and without additional cardiometabolic risk factors and among those who were formally obese, 3 years after screening for central obesity. BMC Public Health. 2015;15:1214.","journal-title":"BMC Public Health"},{"key":"7698_CR18","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1007\/s00420-007-0298-5","volume":"82","author":"CRL Boot","year":"2008","unstructured":"Boot CRL, Heijmans M, van der Gulden JWJ, Rijken M. The role of illness perceptions in labor participation of the chronically ill. Int Arch Occup Environ Health. 2008;82:13\u201320.","journal-title":"Int Arch Occup Environ Health"},{"key":"7698_CR19","doi-asserted-by":"publisher","first-page":"595","DOI":"10.1007\/s00420-010-0506-6","volume":"83","author":"J Hoving","year":"2010","unstructured":"Hoving J, van der Meer M, Volkova A, Frings-Dresen MHW. Illness perceptions and work participation: a systematic review. Int Arch Occup Environ Health. 2010;83:595\u2013605.","journal-title":"Int Arch Occup Environ Health"},{"key":"7698_CR20","doi-asserted-by":"publisher","first-page":"485","DOI":"10.1080\/09638280600841323","volume":"29","author":"GMJ Mars","year":"2007","unstructured":"Mars GMJ, Kempen GIJM, Mesters I, Proot IM, van Eijk JTM. Characteristics of social participation as defined by older adults with a chronic physical illness. Disabil Rehabil. 2007;29:485\u201393.","journal-title":"Disabil Rehabil"},{"key":"7698_CR21","volume-title":"Factsheet. Mensen met lichamelijke of verstandelijke beperkingen","author":"M de Klerk","year":"2012","unstructured":"de Klerk M, Fernee H, Woittiez I, Ras M. Factsheet. Mensen met lichamelijke of verstandelijke beperkingen. Den Haag: Sociaal en Cultureel Planbureau; 2012."},{"key":"7698_CR22","doi-asserted-by":"publisher","first-page":"411","DOI":"10.1191\/026921599668601325","volume":"13","author":"M Cardol","year":"1999","unstructured":"Cardol M, de Haan RJ, van den Bos GAM, de Jong BA, de Groot IJM. The development of a handicap assessment questionnaire: \u2018impact on participation and autonomy\u2019 (IPA). Clin Rehabil. 1999;13:411\u20139.","journal-title":"Clin Rehabil"},{"key":"7698_CR23","first-page":"175","volume":"15","author":"IM Rosenstock","year":"1988","unstructured":"Rosenstock IM, Strecher VJ, Becker MH. Social learning theory and the health belief model. Health Educ Behav. 1988;15:175\u201383.","journal-title":"Health Educ Behav"},{"key":"7698_CR24","volume-title":"SCP-maat voor lichamelijke beperkingen op basis van AVO 2003","author":"M de Klerk","year":"2006","unstructured":"de Klerk M, Iedema J, van Campen C. SCP-maat voor lichamelijke beperkingen op basis van AVO 2003. Den Haag: Sociaal en Cultureel Planbureau; 2006."},{"key":"7698_CR25","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1080\/08870440290001494","volume":"17","author":"R Ross-Morris","year":"2002","unstructured":"Ross-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health. 2002;17:1\u201316.","journal-title":"Psychol Health"},{"key":"7698_CR26","doi-asserted-by":"publisher","first-page":"210","DOI":"10.1053\/apmr.2001.18218","volume":"82","author":"M Cardol","year":"2001","unstructured":"Cardol M, de Haan RJ, de Jong BA, van den Bos GAM, de Groot IJM. Psychometric properties of the \u2018impact on participation and autonomy\u2019 (IPA) questionnaire. Arch Phys Med Rehabil. 2001;82:210\u20136.","journal-title":"Arch Phys Med Rehabil"},{"key":"7698_CR27","doi-asserted-by":"publisher","first-page":"855","DOI":"10.1007\/s10865-016-9762-6","volume":"39","author":"LE van den Akker","year":"2016","unstructured":"van den Akker LE, Beckerman H, Collette EH, Bleijenberg G, Dekker J, Knoop H, de Groot V, et al. The role of appraisal and coping style in relation with societal participation in fatigued patients with multiple sclerosis: a cross-sectional multiple mediator analysis. J Behav Med. 2016;39:855.","journal-title":"J Behav Med"},{"key":"7698_CR28","doi-asserted-by":"publisher","first-page":"152","DOI":"10.1007\/s12160-010-9246-9","volume":"41","author":"H Leventhal","year":"2011","unstructured":"Leventhal H, Leventhal EA, Breland JY. Cognitive science speaks to the \u201ccommon-sense\u201d of chronic illness management. Ann Behav Med. 2011;41:152\u201363.","journal-title":"Ann Behav Med"},{"key":"7698_CR29","doi-asserted-by":"publisher","first-page":"35","DOI":"10.1186\/s12875-018-0720-y","volume":"19","author":"RC Vos","year":"2019","unstructured":"Vos RC, Kasteleyn MJ, Heijmans MJ, de Leeuw E, Schellevis FG, Rijken M, Rutten GE, on behalf of the Diacourse study group. Disentangling the effect of illness perceptions on health status in people with type 2 diabetes after an acute coronary event. BMC Fam Pract. 2019;19:35.","journal-title":"BMC Fam Pract"}],"container-title":["BMC Public Health"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12889-019-7698-9.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1186\/s12889-019-7698-9\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12889-019-7698-9.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,11,18]],"date-time":"2020-11-18T03:58:52Z","timestamp":1605671932000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcpublichealth.biomedcentral.com\/articles\/10.1186\/s12889-019-7698-9"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,11,19]]},"references-count":29,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2019,12]]}},"alternative-id":["7698"],"URL":"https:\/\/doi.org\/10.1186\/s12889-019-7698-9","relation":{},"ISSN":["1471-2458"],"issn-type":[{"value":"1471-2458","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,11,19]]},"assertion":[{"value":"2 March 2018","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"26 September 2019","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"19 November 2019","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The NPCD panel-study was submitted to the Central Committee on Research Involving Human Subjects (CCMO) in the Netherlands, which decided that the panel-study did not fall under the scope of the Medical Research Involving Human Subjects Act (WMO) and as such did not need approval of an Ethical Review Board. Potential panel members received written information about the panel-study and gave informed consent.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"1536"}}