{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,8]],"date-time":"2025-12-08T22:03:07Z","timestamp":1765231387277,"version":"3.37.3"},"reference-count":85,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T00:00:00Z","timestamp":1732752000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T00:00:00Z","timestamp":1732752000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100001734","name":"Copenhagen University","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001734","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Public Health"],"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>We aimed to investigate how self-reported physical and cognitive limitations (challenges), self-efficacy, and social support interacted with life satisfaction in adolescents and young adults with congenital heart disease (CHD) or acquired heart disease, among whom life satisfaction may be impaired.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>\u201cAdolescence with Heart Disease\u201d was a cross-sectional, nationwide survey of patients with CHD or early acquired heart disease aged 15\u201325. Structural equation modeling was used to test the implied latent variable mediation model between the main outcome of interest (life satisfaction) and challenges, social support, and self-efficacy. The correlation factors between life satisfaction and the latent variables with 95% confidence intervals (CIs) were calculated.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>A total of 1691 patients were included: 72% had CHD, 52% were females, the median age at response was 20\u00a0years [interquartile range: 18;23], and 69% reported high life satisfaction. In the univariate models, high life satisfaction was significantly associated with low challenges (-0.5 [CI: -0.6;-0.5]), high self-efficacy (0.8 [CI: 0.7; 0.8]), and high social support (0.4 [CI: 0.3; 0.5]). In the multivariate model, only self-efficacy remained significantly associated with life satisfaction (0.8 [CI: 0.7; 0.9]). Furthermore, there was a significant negative covariance between challenges and both self-efficacy (-0.67) and social support (-0.4), while the two latter variables had a positive covariance (0.55).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>In adolescents with heart disease, high life satisfaction was associated with high levels of self-efficacy. High levels of self-efficacy and social support attenuated the association between physical and cognitive challenges and life satisfaction. In this group that may face higher challenges than their peers, future interventions should aim to increase their self-efficacy to improve their life satisfaction, potentially through promoting social support.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12889-024-20758-5","type":"journal-article","created":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T14:28:35Z","timestamp":1732804115000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Determinants of life satisfaction in adolescents with congenital or acquired heart disease:\u00a0a nationwide cross-sectional study"],"prefix":"10.1186","volume":"24","author":[{"given":"Mohamad","family":"El-Chouli","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sidsel Marie Bernt","family":"J\u00f8rgensen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Daniel M\u00f8lager","family":"Christensen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Isabella","family":"Drachmann","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas Steen Gyldenstierne","family":"Sehested","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Morten Winther","family":"Malmborg","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sandra","family":"Chamat-Hedemand","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Sindet-Pedersen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lars","family":"Idorn","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gunnar Hilmar","family":"Gislason","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas Alexander","family":"Gerds","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan Ish\u00f8y","family":"Michelsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nina F\u00f8ns","family":"Johnsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,11,28]]},"reference":[{"key":"20758_CR1","doi-asserted-by":"publisher","first-page":"1082","DOI":"10.1542\/peds.105.5.1082","volume":"105","author":"WT Mahle","year":"2000","unstructured":"Mahle WT, Clancy RR, Moss EM, Gerdes M, Jobes DR, Wernovsky G. Neurodevelopmental Outcome and Lifestyle Assessment in School-Aged and Adolescent Children With Hypoplastic Left Heart Syndrome. Pediatrics. 2000;105:1082\u20139.","journal-title":"Pediatrics"},{"key":"20758_CR2","doi-asserted-by":"publisher","first-page":"239","DOI":"10.1080\/08870440108405502","volume":"16","author":"M Fekkes","year":"2001","unstructured":"Fekkes M, Kamphuis RP, Ottenkamp J, Verrips E, Vogels T, Kamphuis M, et al. Health-related quality of life in young adults with minor congenital heart disease. Psychol Health. 2001;16:239\u201350.","journal-title":"Psychol Health"},{"key":"20758_CR3","doi-asserted-by":"publisher","first-page":"193","DOI":"10.1016\/j.ahj.2004.08.025","volume":"150","author":"AH Kovacs","year":"2005","unstructured":"Kovacs AH, Sears SF, Saidi AS. Biopsychosocial experiences of adults with congenital heart disease: Review of the literature. Am Heart J. 2005;150:193\u2013201.","journal-title":"Am Heart J"},{"key":"20758_CR4","doi-asserted-by":"publisher","first-page":"255","DOI":"10.1007\/s00246-006-0013-4","volume":"28","author":"CL Brosig","year":"2007","unstructured":"Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS. Psychosocial Outcomes for Preschool Children and Families After Surgery for Complex Congenital Heart Disease. Pediatr Cardiol. 2007;28:255\u201362.","journal-title":"Pediatr Cardiol"},{"key":"20758_CR5","doi-asserted-by":"publisher","first-page":"197","DOI":"10.1016\/j.ijcard.2015.07.045","volume":"199","author":"PC Kahr","year":"2015","unstructured":"Kahr PC, Radke RM, Orwat S, Baumgartner H, Diller G-P. Analysis of associations between congenital heart defect complexity and health-related quality of life using a meta-analytic strategy. Int J Cardiol. 2015;199:197\u2013203.","journal-title":"Int J Cardiol"},{"key":"20758_CR6","doi-asserted-by":"publisher","DOI":"10.1038\/s41569-022-00749-y","author":"A Liu","year":"2022","unstructured":"Liu A, Diller G-P, Moons P, Daniels CJ, Jenkins KJ, Marelli A. Changing epidemiology of congenital heart disease: effect on outcomes and quality of care in adults. Nat Rev Cardiol. 2022. https:\/\/doi.org\/10.1038\/s41569-022-00749-y.","journal-title":"Nat Rev Cardiol"},{"key":"20758_CR7","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.120.019552","volume":"10","author":"P Moons","year":"2021","unstructured":"Moons P, Skogby S, Bratt E, Z\u00fchlke L, Marelli A, Goossens E. Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and Meta-Analysis. J Am Heart Assoc. 2021;10: e019552.","journal-title":"J Am Heart Assoc"},{"key":"20758_CR8","doi-asserted-by":"publisher","first-page":"1765","DOI":"10.1111\/apa.14876","volume":"108","author":"P Moons","year":"2019","unstructured":"Moons P, Luyckx K. Quality-of-life research in adult patients with congenital heart disease: current status and the way forward. Acta Paediatr. 2019;108:1765\u201372.","journal-title":"Acta Paediatr"},{"key":"20758_CR9","doi-asserted-by":"publisher","first-page":"407","DOI":"10.1097\/00149831-200606000-00017","volume":"13","author":"P Moons","year":"2006","unstructured":"Moons P, Deyk KV, Bleser LD, Marquet K, Raes E, Geest SD, et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil. 2006;13:407\u201313.","journal-title":"Eur J Cardiovasc Prev Rehabil"},{"key":"20758_CR10","doi-asserted-by":"publisher","first-page":"1573","DOI":"10.1007\/s11136-004-7707-y","volume":"14","author":"KJ Zullig","year":"2005","unstructured":"Zullig KJ, Valois RF, Huebner ES, Drane JW. Adolescent health-related quality of life and perceived satisfaction with life. Qual Life Res. 2005;14:1573\u201384.","journal-title":"Qual Life Res"},{"key":"20758_CR11","doi-asserted-by":"publisher","first-page":"137","DOI":"10.1080\/17439760701756946","volume":"3","author":"W Pavot","year":"2008","unstructured":"Pavot W, Diener E. The Satisfaction With Life Scale and the emerging construct of life satisfaction. J Posit Psychol. 2008;3:137\u201352.","journal-title":"J Posit Psychol"},{"key":"20758_CR12","doi-asserted-by":"publisher","first-page":"169","DOI":"10.1007\/s11136-010-9741-2","volume":"20","author":"M Vigl","year":"2011","unstructured":"Vigl M, Niggemeyer E, Hager A, Schwedler G, Kropf S, Bauer U. The importance of socio-demographic factors for the quality of life of adults with congenital heart disease. Qual Life Res. 2011;20:169\u201377.","journal-title":"Qual Life Res"},{"key":"20758_CR13","doi-asserted-by":"publisher","first-page":"169","DOI":"10.1177\/2047487313514017","volume":"22","author":"B Eslami","year":"2015","unstructured":"Eslami B, Macassa G, Sundin \u00d6, Khankeh HR, Soares JJ. Quality of life and life satisfaction among adults with and without congenital heart disease in a developing country. Eur J Prev Cardiol. 2015;22:169\u201379.","journal-title":"Eur J Prev Cardiol"},{"key":"20758_CR14","doi-asserted-by":"publisher","first-page":"2237","DOI":"10.1016\/j.jacc.2016.03.477","volume":"67","author":"S Apers","year":"2016","unstructured":"Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, et al. Quality of Life of Adults With Congenital Heart Disease in 15 Countries. J Am Coll Cardiol. 2016;67:2237\u201345.","journal-title":"J Am Coll Cardiol"},{"key":"20758_CR15","doi-asserted-by":"publisher","first-page":"473","DOI":"10.1017\/S1047951112002351","volume":"23","author":"T Fteropoulli","year":"2013","unstructured":"Fteropoulli T, Stygall J, Cullen S, Deanfield J, Newman SP. Quality of life of adult congenital heart disease patients: a systematic review of the literature. Cardiol Young. 2013;23:473\u201385.","journal-title":"Cardiol Young"},{"key":"20758_CR16","doi-asserted-by":"publisher","first-page":"35","DOI":"10.1007\/s11136-004-0611-7","volume":"14","author":"M Rose","year":"2005","unstructured":"Rose M, K\u00f6hler K, K\u00f6hler F, Sawitzky B, Fliege H, Klapp BF. Determinants of the quality of life of patients with congenital heart disease. Qual Life Res. 2005;14:35\u201343.","journal-title":"Qual Life Res"},{"key":"20758_CR17","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1136\/hrt.2010.200709","volume":"97","author":"C-A Chen","year":"2011","unstructured":"Chen C-A, Liao S-C, Wang J-K, Chang C-I, Chiu I-S, Chen Y-S, et al. Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences. Heart. 2011;97:38\u201343.","journal-title":"Heart"},{"key":"20758_CR18","doi-asserted-by":"publisher","first-page":"79","DOI":"10.1007\/s00246-017-1730-6","volume":"39","author":"MM Ernst","year":"2018","unstructured":"Ernst MM, Marino BS, Cassedy A, Piazza-Waggoner C, Franklin RC, Brown K, et al. Biopsychosocial Predictors of Quality of Life Outcomes in Pediatric Congenital Heart Disease. Pediatr Cardiol. 2018;39:79\u201388.","journal-title":"Pediatr Cardiol"},{"key":"20758_CR19","doi-asserted-by":"publisher","first-page":"1132","DOI":"10.1007\/s00246-011-0039-0","volume":"32","author":"FM Teixeira","year":"2011","unstructured":"Teixeira FM, Coelho RM, Proen\u00e7a C, Silva AM, Vieira D, Vaz C, et al. Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease. Pediatr Cardiol. 2011;32:1132\u20138.","journal-title":"Pediatr Cardiol"},{"key":"20758_CR20","doi-asserted-by":"crossref","unstructured":"Farzinfar B, Abtahi S, Ordoubadi MS. Comparison of Life Satisfaction in Patients with Congenital Heart Diseases. Zahedan J Res Med Sci.\u00a02019;21:e87994.","DOI":"10.5812\/zjrms.87994"},{"key":"20758_CR21","doi-asserted-by":"publisher","first-page":"2710","DOI":"10.1161\/CIRCULATIONAHA.106.179568","volume":"114","author":"REW Kavey","year":"2006","unstructured":"Kavey REW, Allada V, Daniels SR, Hayman LL, McCrindle BW, Newburger JW, et al. Cardiovascular Risk Reduction in High-Risk Pediatric Patients. Circulation. 2006;114:2710\u201338.","journal-title":"Circulation."},{"key":"20758_CR22","doi-asserted-by":"publisher","first-page":"e603","DOI":"10.1161\/CIR.0000000000000618","volume":"139","author":"SD de Ferranti","year":"2019","unstructured":"de Ferranti SD, Steinberger J, Ameduri R, Baker A, Gooding H, Kelly AS, et al. Cardiovascular Risk Reduction in High-Risk Pediatric Patients: A Scientific Statement From the American Heart Association. Circulation. 2019;139:e603\u201334.","journal-title":"Circulation"},{"key":"20758_CR23","doi-asserted-by":"publisher","first-page":"442","DOI":"10.1007\/s11936-008-0036-7","volume":"10","author":"G Serwer","year":"2008","unstructured":"Serwer G. Ventricular arrhythmia in children: Diagnosis and management. Curr Treat Options Cardio Med. 2008;10:442\u20137.","journal-title":"Curr Treat Options Cardio Med"},{"key":"20758_CR24","doi-asserted-by":"publisher","first-page":"211","DOI":"10.1007\/s12098-010-0276-x","volume":"78","author":"KR Jat","year":"2011","unstructured":"Jat KR, Lodha R, Kabra SK. Arrhythmias in Children. Indian J Pediatr. 2011;78:211\u20138.","journal-title":"Indian J Pediatr"},{"key":"20758_CR25","unstructured":"Michelsen SI, Lund L, J\u00f8rgensen A, Tj\u00f8rnh\u00f8j-Thomsen T, Holmberg T. Ungdomslivet med en hjertesygdom. SIF, University of Southern Denmark. 2021. https:\/\/www.sdu.dk\/da\/sif\/rapporter\/2021\/ungdomslivet_med_en_hjertesygdom. Accessed 13 Feb 2023."},{"key":"20758_CR26","doi-asserted-by":"publisher","first-page":"449","DOI":"10.2147\/CLEP.S91125","volume":"7","author":"M Schmidt","year":"2015","unstructured":"Schmidt M, Schmidt SAJ, Sandegaard JL, Ehrenstein V, Pedersen L, S\u00f8rensen HT. The Danish National Patient Registry: a review of content, data quality, and research potential. Clin Epidemiol. 2015;7:449\u201390.","journal-title":"Clin Epidemiol"},{"issue":"7 Suppl","key":"20758_CR27","doi-asserted-by":"publisher","first-page":"30","DOI":"10.1177\/1403494811401482","volume":"39","author":"E Lynge","year":"2011","unstructured":"Lynge E, Sandegaard JL, Rebolj M. The Danish National Patient Register. Scand J Public Health. 2011;39(7 Suppl):30\u20133.","journal-title":"Scand J Public Health"},{"issue":"7 Suppl","key":"20758_CR28","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1177\/1403494810394717","volume":"39","author":"HW Kildemoes","year":"2011","unstructured":"Kildemoes HW, S\u00f8rensen HT, Hallas J. The Danish National Prescription Registry. Scand J Public Health. 2011;39(7 Suppl):38\u201341.","journal-title":"Scand J Public Health"},{"key":"20758_CR29","doi-asserted-by":"publisher","first-page":"467","DOI":"10.1016\/j.techfore.2005.09.002","volume":"73","author":"J Landeta","year":"2006","unstructured":"Landeta J. Current validity of the Delphi method in social sciences. Technol Forecast Soc Chang. 2006;73:467\u201382.","journal-title":"Technol Forecast Soc Chang"},{"key":"20758_CR30","doi-asserted-by":"crossref","unstructured":"Willis GB. Cognitive Interviewing: A Tool for Improving Questionnaire Design. New York: Sage; 2005.","DOI":"10.4135\/9781412983655"},{"key":"20758_CR31","doi-asserted-by":"publisher","first-page":"51","DOI":"10.1093\/ehjqcco\/qcx031","volume":"4","author":"C Bredy","year":"2018","unstructured":"Bredy C, Ministeri M, Kempny A, Alonso-Gonzalez R, Swan L, Uebing A, et al. New York Heart Association (NYHA) classification in adults with congenital heart disease: relation to objective measures of exercise and outcome. European Heart Journal - Quality of Care and Clinical Outcomes. 2018;4:51\u20138.","journal-title":"European Heart Journal - Quality of Care and Clinical Outcomes"},{"key":"20758_CR32","doi-asserted-by":"publisher","first-page":"120","DOI":"10.1186\/s12877-020-01516-9","volume":"20","author":"M Wuorela","year":"2020","unstructured":"Wuorela M, Lavonius S, Salminen M, Vahlberg T, Viitanen M, Viikari L. Self-rated health and objective health status as predictors of all-cause mortality among older people: a prospective study with a 5-, 10-, and 27-year follow-up. BMC Geriatr. 2020;20:120.","journal-title":"BMC Geriatr"},{"key":"20758_CR33","doi-asserted-by":"publisher","first-page":"547","DOI":"10.1111\/cch.12207","volume":"41","author":"AF Klassen","year":"2015","unstructured":"Klassen AF, Grant C, Barr R, Brill H, de Kraus Camargo O, Ronen GM, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015;41:547\u201358.","journal-title":"Child Care Health Dev."},{"key":"20758_CR34","doi-asserted-by":"publisher","first-page":"1047","DOI":"10.1007\/s11205-013-0507-4","volume":"119","author":"KA Levin","year":"2014","unstructured":"Levin KA, Currie C. Reliability and Validity of an Adapted Version of the Cantril Ladder for Use with Adolescent Samples. Soc Indic Res. 2014;119:1047\u201363.","journal-title":"Soc Indic Res"},{"key":"20758_CR35","doi-asserted-by":"publisher","unstructured":"J\u00f8rgensen SE, Thygesen LC, Andersen A, Due P, Michelsen SI. Parental Illness and Life Satisfaction among Young People: A Cross-Sectional Study of the Importance of School Factors.\u00a0Int J Environ Res Public Health. 2022;19(5):2719. https:\/\/doi.org\/10.3390\/ijerph19052719.","DOI":"10.3390\/ijerph19052719"},{"key":"20758_CR36","doi-asserted-by":"publisher","first-page":"977","DOI":"10.1007\/s11205-015-0861-5","volume":"125","author":"\u00d6 Cikrikci","year":"2016","unstructured":"Cikrikci \u00d6, Odaci H. The Determinants of Life Satisfaction Among Adolescents: The Role of Metacognitive Awareness and Self-Efficacy. Soc Indic Res. 2016;125:977\u201390.","journal-title":"Soc Indic Res"},{"key":"20758_CR37","doi-asserted-by":"publisher","first-page":"222","DOI":"10.1111\/scs.12624","volume":"33","author":"UK Moksnes","year":"2019","unstructured":"Moksnes UK, Eilertsen MEB, Ringdal R, Bj\u00f8rnsen HN, Rannestad T. Life satisfaction in association with self-efficacy and stressor experience in adolescents \u2013 self-efficacy as a potential moderator. Scand J Caring Sci. 2019;33:222\u201330.","journal-title":"Scand J Caring Sci."},{"key":"20758_CR38","volume":"5","author":"FS \u00c7akar","year":"2012","unstructured":"\u00c7akar FS. The Relationship between the Self-efficacy and Life Satisfaction of Young Adults. Int Educ Stud. 2012;5: p123.","journal-title":"Int Educ Stud"},{"key":"20758_CR39","doi-asserted-by":"publisher","first-page":"1807","DOI":"10.1016\/j.paid.2007.05.018","volume":"43","author":"GM Vecchio","year":"2007","unstructured":"Vecchio GM, Gerbino M, Pastorelli C, Del Bove G, Caprara GV. Multi-faceted self-efficacy beliefs as predictors of life satisfaction in late adolescence. Personality Individ Differ. 2007;43:1807\u201318.","journal-title":"Personality Individ Differ"},{"key":"20758_CR40","doi-asserted-by":"publisher","first-page":"85","DOI":"10.1016\/j.adolescence.2019.07.011","volume":"75","author":"F-H Jhang","year":"2019","unstructured":"Jhang F-H. Life satisfaction trajectories of junior high school students in poverty: Exploring the role of self-efficacy and social support. J Adolesc. 2019;75:85\u201397.","journal-title":"J Adolesc"},{"key":"20758_CR41","unstructured":"Pisinger V, Thorsted A, Jezek AH, J\u00f8rgensen A, Christensen AI, Thygesen LC. UNG19: Sundhed og trivsel p\u00e5 gymnasiale uddannelser 2019. SIF, University of Southern Denmark. 2019. https:\/\/www.sdu.dk\/da\/sif\/rapporter\/2019\/ung19_trivsel_og_sundhed_paa_gymnasielle_uddannelser. Accessed 10 Feb 2023."},{"key":"20758_CR42","doi-asserted-by":"publisher","first-page":"37","DOI":"10.1108\/JPMH-10-2014-0041","volume":"15","author":"L Nielsen","year":"2016","unstructured":"Nielsen L, Stewart-Brown S, Vinther-Larsen M, Meilstrup C, Holstein BE, Koushede V. High and low levels of positive mental health: are there socioeconomic differences among adolescents? J Public Ment Health. 2016;15:37\u201349.","journal-title":"J Public Ment Health"},{"key":"20758_CR43","unstructured":"Lund L, Michelsen SI, Due P, Andersen A. Trivsel og hverdagsliv blandt b\u00f8rn og unge med kronisk sygdom. SIF, University of Southern Denmark. 2019. https:\/\/www.sdu.dk\/da\/sif\/rapporter\/2019\/trivsel_og_hverdagsliv_blandt_boern_og_unge_med_kronisk_sygdom. Accessed 10 Feb 2023."},{"key":"20758_CR44","unstructured":"Nielsen L, Hinrichsen C, Santini ZI, Koushede V. M\u00e5ling af mental sundhed: En baggrundsrapport for sp\u00f8rgeskemaunders\u00f8gelsen Danskernes Trivsel 2016. SIF, University of Southern Denmark. 2017. https:\/\/www.sdu.dk\/da\/sif\/rapporter\/2017\/maaling+af+mental+sundhed. Accessed 10 Feb 2023."},{"key":"20758_CR45","unstructured":"Larsen AF, Saraiva C\u00e2mara Leme A, Simonsen M. Pupil Well-being in Danish Primary and Lower Secondary Schools. Pupil Well-being in Danish Primary and Lower Secondary Schools. 2020."},{"key":"20758_CR46","unstructured":"Trivselsm\u00e5ling 2024 - Undervisningsmilj\u00f8 - GRUNDSKOLE | Emu.dk. 2024. https:\/\/emu.dk\/grundskole\/undervisningsmiljoe\/trivselsmaaling-2024. Accessed 6 Sep 2024."},{"key":"20758_CR47","unstructured":"Madsen KR. Skoleb\u00f8rnsunders\u00f8gelsen 2022. Skoleb\u00f8rnsunders\u00f8gelsen 2022. https:\/\/www.sdu.dk\/sif\/-\/media\/images\/sif\/udgivelser\/2023\/skoleboernsundersoegelsen_2022_v2.pdf. Accessed 6 Sep 2024."},{"key":"20758_CR48","doi-asserted-by":"publisher","first-page":"1","DOI":"10.18637\/jss.v048.i02","volume":"48","author":"Y Rosseel","year":"2012","unstructured":"Rosseel Y. lavaan: An R Package for Structural Equation Modeling. J Stat Softw. 2012;48:1\u201336.","journal-title":"J Stat Softw"},{"key":"20758_CR49","doi-asserted-by":"publisher","unstructured":"Dellborg M, Giang KW, Eriksson P, Liden H, Fedchenko M, Ahnfelt A, et al. Adults With Congenital Heart Disease: Trends in Event-Free Survival Past Middle Age. Circulation. 2023;147(12):930\u201338.\u00a0https:\/\/doi.org\/10.1161\/CIRCULATIONAHA.122.060834.","DOI":"10.1161\/CIRCULATIONAHA.122.060834"},{"key":"20758_CR50","doi-asserted-by":"publisher","first-page":"4153","DOI":"10.1093\/eurheartj\/ehaa701","volume":"41","author":"H Baumgartner","year":"2020","unstructured":"Baumgartner H, De Backer J. The ESC Clinical Practice Guidelines for the Management of Adult Congenital Heart Disease 2020. Eur Heart J. 2020;41:4153\u20134.","journal-title":"Eur Heart J"},{"key":"20758_CR51","first-page":"e637","volume":"139","author":"KK Stout","year":"2019","unstructured":"Stout KK, Daniels CJ, Aboulhosn JA, Bozkurt B, Broberg CS, Colman JM, et al. 2018 AHA\/ACC Guideline for the Management of Adults With Congenital Heart Disease: Executive Summary: A Report of the American College of Cardiology\/American Heart Association Task Force on Clinical Practice Guidelines. Circulation. 2019;139:e637\u201397.","journal-title":"Circulation"},{"key":"20758_CR52","doi-asserted-by":"publisher","first-page":"474","DOI":"10.1161\/CIRCULATIONAHA.115.017226","volume":"133","author":"J Videb\u00e6k","year":"2016","unstructured":"Videb\u00e6k J, Laursen HB, Olsen M, H\u00f8fsten DE, Johnsen SP. Long-Term Nationwide Follow-Up Study of Simple Congenital Heart Disease Diagnosed in Otherwise Healthy Children. Circulation. 2016;133:474\u201383.","journal-title":"Circulation"},{"key":"20758_CR53","doi-asserted-by":"publisher","first-page":"829","DOI":"10.1001\/jamacardio.2018.2009","volume":"3","author":"R Lytzen","year":"2018","unstructured":"Lytzen R, Vejlstrup N, Bjerre J, Petersen OB, Leenskjold S, Dodd JK, et al. Live-Born Major Congenital Heart Disease in Denmark: Incidence, Detection Rate, and Termination of Pregnancy Rate From 1996 to 2013. JAMA Cardiol. 2018;3:829\u201337.","journal-title":"JAMA Cardiol"},{"key":"20758_CR54","doi-asserted-by":"publisher","first-page":"765","DOI":"10.1080\/08870446.2012.759223","volume":"28","author":"P Steca","year":"2013","unstructured":"Steca P, Greco A, Monzani D, Politi A, Gestra R, Ferrari G, et al. How does illness severity influence depression, health satisfaction and life satisfaction in patients with cardiovascular disease? The mediating role of illness perception and self-efficacy beliefs. Psychol Health. 2013;28:765\u201383.","journal-title":"Psychol Health"},{"key":"20758_CR55","volume":"2013","author":"R Cataldo","year":"2013","unstructured":"Cataldo R, John J, Chandran L, Pati S, Shroyer ALW. Impact of Physical Activity Intervention Programs on Self-Efficacy in Youths: A Systematic Review. International Scholarly Research Notices. 2013;2013: 586497.","journal-title":"International Scholarly Research Notices"},{"key":"20758_CR56","doi-asserted-by":"publisher","first-page":"22","DOI":"10.1177\/1049731512459967","volume":"23","author":"MH Morton","year":"2013","unstructured":"Morton MH, Montgomery P. Youth Empowerment Programs for Improving Adolescents\u2019 Self-Efficacy and Self-Esteem: A Systematic Review. Res Soc Work Pract. 2013;23:22\u201333.","journal-title":"Res Soc Work Pract"},{"key":"20758_CR57","doi-asserted-by":"publisher","first-page":"92","DOI":"10.1093\/rheumatology\/kei114","volume":"45","author":"MJ Cross","year":"2006","unstructured":"Cross MJ, March LM, Lapsley HM, Byrne E, Brooks PM. Patient self-efficacy and health locus of control: relationships with health status and arthritis-related expenditure. Rheumatology. 2006;45:92\u20136.","journal-title":"Rheumatology"},{"key":"20758_CR58","doi-asserted-by":"publisher","first-page":"37","DOI":"10.1111\/j.1099-0860.2000.tb00149.x","volume":"14","author":"R Gilligan","year":"2000","unstructured":"Gilligan R. Adversity, resilience and young people: the protective value of positive school and spare time experiences. Child Soc. 2000;14:37\u201347.","journal-title":"Child Soc"},{"key":"20758_CR59","unstructured":"Reivich K. Promoting self-efficacy in youth. Communiqu\u00e9. 2010;39:1 & 16\u201317."},{"key":"20758_CR60","doi-asserted-by":"publisher","first-page":"513","DOI":"10.1001\/archpediatrics.2011.79","volume":"165","author":"H Rhee","year":"2011","unstructured":"Rhee H, Belyea MJ, Hunt JF, Brasch J. Effects of a Peer-Led Asthma Self-management Program for Adolescents. Arch Pediatr Adolesc Med. 2011;165:513\u20139.","journal-title":"Arch Pediatr Adolesc Med"},{"key":"20758_CR61","doi-asserted-by":"publisher","first-page":"120","DOI":"10.1016\/j.jadohealth.2016.08.022","volume":"60","author":"LE Crosby","year":"2017","unstructured":"Crosby LE, Joffe NE, Peugh J, Ware RE, Britto MT. Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease. J Adolesc Health. 2017;60:120\u20133.","journal-title":"J Adolesc Health"},{"key":"20758_CR62","doi-asserted-by":"publisher","first-page":"280","DOI":"10.1016\/j.yebeh.2010.04.019","volume":"18","author":"JL Wagner","year":"2010","unstructured":"Wagner JL, Smith G, Ferguson P, van Bakergem K, Hrisko S. Pilot study of an integrated cognitive-behavioral and self-management intervention for youth with epilepsy and caregivers: Coping Openly and Personally with Epilepsy (COPE). Epilepsy Behav. 2010;18:280\u20135.","journal-title":"Epilepsy Behav"},{"key":"20758_CR63","doi-asserted-by":"crossref","unstructured":"Sippel LM, Pietrzak RH, Charney DS, Mayes LC, Southwick SM. How does social support enhance resilience in the trauma-exposed individual? Ecol Soc. 2015;20(4):10.","DOI":"10.5751\/ES-07832-200410"},{"issue":"Pt 1","key":"20758_CR64","doi-asserted-by":"publisher","first-page":"17","DOI":"10.1111\/j.2044-8341.1988.tb02763.x","volume":"61","author":"DC Ganster","year":"1988","unstructured":"Ganster DC, Victor B. The impact of social support on mental and physical health. Br J Med Psychol. 1988;61(Pt 1):17\u201336.","journal-title":"Br J Med Psychol"},{"key":"20758_CR65","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1016\/j.ejcnurse.2004.12.003","volume":"4","author":"P Claessens","year":"2005","unstructured":"Claessens P, Moons P, de Casterl\u00e9 BD, Cannaerts N, Budts W, Gewillig M. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs. 2005;4:3\u201310.","journal-title":"Eur J Cardiovasc Nurs"},{"key":"20758_CR66","doi-asserted-by":"publisher","first-page":"187","DOI":"10.1097\/JCN.0b013e3182498677","volume":"28","author":"D Overgaard","year":"2013","unstructured":"Overgaard D, King C, Christensen RF, Schrader A-M, Adamsen L. Living With Half a Heart\u2014Experiences of Young Adults With Single Ventricle Physiology: A Qualitative Study. J Cardiovasc Nurs. 2013;28:187\u201396.","journal-title":"J Cardiovasc Nurs"},{"key":"20758_CR67","doi-asserted-by":"publisher","first-page":"127","DOI":"10.1007\/s10597-013-9599-1","volume":"50","author":"MM Nijs","year":"2014","unstructured":"Nijs MM, Bun CJE, Tempelaar WM, de Wit NJ, Burger H, Plevier CM, et al. Perceived School Safety is Strongly Associated with Adolescent Mental Health Problems. Community Ment Health J. 2014;50:127\u201334.","journal-title":"Community Ment Health J"},{"key":"20758_CR68","doi-asserted-by":"publisher","first-page":"335","DOI":"10.1016\/j.jadohealth.2020.12.139","volume":"69","author":"SE J\u00f8rgensen","year":"2021","unstructured":"J\u00f8rgensen SE, Thygesen LC, Michelsen SI, Due P, Bidstrup PE, H\u00f8eg BL, et al. Why Do Some Adolescents Manage Despite Parental Illness? Identifying Promotive Factors. J Adolesc Health. 2021;69:335\u201341.","journal-title":"J Adolesc Health"},{"key":"20758_CR69","doi-asserted-by":"publisher","first-page":"475","DOI":"10.1177\/1474515113477955","volume":"12","author":"S Apers","year":"2013","unstructured":"Apers S, Moons P, Goossens E, Luyckx K, Gewillig M, Bogaerts K, et al. Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease. Eur J Cardiovasc Nurs. 2013;12:475\u201383.","journal-title":"Eur J Cardiovasc Nurs"},{"key":"20758_CR70","doi-asserted-by":"publisher","first-page":"36","DOI":"10.1159\/000333112","volume":"120","author":"D Overgaard","year":"2011","unstructured":"Overgaard D, Schrader A-M, Lisby KH, King C, Christensen RF, Jensen HF, et al. Patient-Reported Outcomes in Adult Survivors with Single-Ventricle Physiology. Cardiology. 2011;120:36\u201342.","journal-title":"Cardiology"},{"key":"20758_CR71","doi-asserted-by":"publisher","first-page":"526","DOI":"10.1017\/S1047951114000304","volume":"25","author":"J Bertoletti","year":"2015","unstructured":"Bertoletti J, Marx GC, Hattge SP, Pellanda LC. Health-related quality of life in adolescents with congenital heart disease. Cardiol Young. 2015;25:526\u201332.","journal-title":"Cardiol Young"},{"key":"20758_CR72","doi-asserted-by":"publisher","first-page":"804","DOI":"10.1016\/j.ijcard.2015.09.116","volume":"202","author":"JL Jackson","year":"2016","unstructured":"Jackson JL, Hassen L, Gerardo GM, Vannatta K, Daniels CJ. Medical factors that predict quality of life for young adults with congenital heart disease: What matters most? Int J Cardiol. 2016;202:804\u20139.","journal-title":"Int J Cardiol"},{"key":"20758_CR73","doi-asserted-by":"publisher","first-page":"3158","DOI":"10.1111\/jocn.14864","volume":"28","author":"SCY So","year":"2019","unstructured":"So SCY, Li WHC, Ho KY. The impact of congenital heart disease on the psychological well-being and quality of life of Hong Kong Chinese adolescents: A cross-sectional study. J Clin Nurs. 2019;28:3158\u201367.","journal-title":"J Clin Nurs"},{"key":"20758_CR74","doi-asserted-by":"publisher","first-page":"313","DOI":"10.1097\/PSY.0b013e318051542c","volume":"69","author":"M Cohen","year":"2007","unstructured":"Cohen M, Mansoor D, Langut H, Lorber A. Quality of Life, Depressed Mood, and Self-Esteem in Adolescents With Heart Disease. Psychosom Med. 2007;69:313\u20138.","journal-title":"Psychosom Med"},{"key":"20758_CR75","doi-asserted-by":"publisher","first-page":"551","DOI":"10.1007\/s11205-012-0110-0","volume":"113","author":"JM Cramm","year":"2013","unstructured":"Cramm JM, Strating MMH, Roebroeck ME, Nieboer AP. The Importance of General Self-Efficacy for the Quality of Life of Adolescents with Chronic Conditions. Soc Indic Res. 2013;113:551\u201361.","journal-title":"Soc Indic Res"},{"key":"20758_CR76","doi-asserted-by":"publisher","first-page":"867","DOI":"10.1002\/pon.800","volume":"13","author":"NE Langeveld","year":"2004","unstructured":"Langeveld NE, Grootenhuis MA, Vo\u00fbte PA, de Haan RJ, van den Bos C. Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psycho-Oncology. 2004;13:867\u201381.","journal-title":"Psycho-Oncology."},{"key":"20758_CR77","doi-asserted-by":"publisher","first-page":"977","DOI":"10.1016\/S0277-9536(98)00411-0","volume":"48","author":"GL Albrecht","year":"1999","unstructured":"Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med. 1999;48:977\u201388.","journal-title":"Soc Sci Med"},{"key":"20758_CR78","doi-asserted-by":"publisher","first-page":"5337","DOI":"10.3390\/ijerph18105337","volume":"18","author":"J Wahlstr\u00f6m","year":"2021","unstructured":"Wahlstr\u00f6m J, L\u00e5ftman SB, Modin B, L\u00f6fstedt P. Psychosocial Working Conditions in School and Life Satisfaction among Adolescents in Sweden: A Cross-Sectional Study. Int J Environ Res Public Health. 2021;18:5337.","journal-title":"Int J Environ Res Public Health"},{"key":"20758_CR79","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1186\/s40798-018-0152-1","volume":"4","author":"SJ te Velde","year":"2018","unstructured":"te Velde SJ, Lankhorst K, Zwinkels M, Verschuren O, Takken T, de Groot J, et al. Associations of sport participation with self-perception, exercise self-efficacy and quality of life among children and adolescents with a physical disability or chronic disease\u2014a cross-sectional study. Sports Med - Open. 2018;4:38.","journal-title":"Sports Med - Open"},{"key":"20758_CR80","unstructured":"Fodboldskolen. B\u00f8rneklubben. https:\/\/lokal.hjerteforeningen.dk\/boerneklubben\/landsdaekkede-aktiviteter\/fodboldskolen\/. Accessed 25 Aug 2024."},{"key":"20758_CR81","doi-asserted-by":"publisher","first-page":"9","DOI":"10.1080\/08964289.2013.855159","volume":"41","author":"A Greco","year":"2015","unstructured":"Greco A, Steca P, Pozzi R, Monzani D, Malfatto G, Parati G. The Influence of Illness Severity on Health Satisfaction in Patients with Cardiovascular Disease: The Mediating Role of Illness Perception and Self-Efficacy Beliefs. Behav Med. 2015;41:9\u201317.","journal-title":"Behav Med"},{"key":"20758_CR82","doi-asserted-by":"publisher","first-page":"343","DOI":"10.1097\/NCC.0000000000000433","volume":"40","author":"H-T Pan","year":"2017","unstructured":"Pan H-T, Wu L-M, Wen S-H. Quality of Life and Its Predictors Among Children and Adolescents With Cancer. Cancer Nurs. 2017;40:343\u201351.","journal-title":"Cancer Nurs"},{"key":"20758_CR83","doi-asserted-by":"publisher","first-page":"4045","DOI":"10.3390\/cancers13164045","volume":"13","author":"KA Miller","year":"2021","unstructured":"Miller KA, Stal J, Gallagher P, Weng Z, Freyer DR, Kaslander JN, et al. Time from Diagnosis and Correlates of Health-Related Quality of Life among Young Adult Colorectal Cancer Survivors. Cancers. 2021;13:4045.","journal-title":"Cancers"},{"key":"20758_CR84","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.h1286","volume":"350","author":"P Sedgwick","year":"2015","unstructured":"Sedgwick P. Bias in observational study designs: cross sectional studies. BMJ. 2015;350: h1286.","journal-title":"BMJ"},{"key":"20758_CR85","volume-title":"Encyclopedia of Research Design","author":"N Salkind","year":"2023","unstructured":"Salkind N. Encyclopedia of Research Design. Thousand Oaks: SAGE Publications, Inc.; 2023."}],"container-title":["BMC Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12889-024-20758-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12889-024-20758-5\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12889-024-20758-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T16:02:57Z","timestamp":1732809777000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcpublichealth.biomedcentral.com\/articles\/10.1186\/s12889-024-20758-5"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11,28]]},"references-count":85,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["20758"],"URL":"https:\/\/doi.org\/10.1186\/s12889-024-20758-5","relation":{},"ISSN":["1471-2458"],"issn-type":[{"type":"electronic","value":"1471-2458"}],"subject":[],"published":{"date-parts":[[2024,11,28]]},"assertion":[{"value":"13 October 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 November 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 November 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study followed all national ethical guidelines. All experimental protocols were registered at and approved by the Data Protection Agency at the University of Southern Denmark (J.nr. 10.254). The Danish Heart Foundation and the University of Southern Denmark committed to a data transfer agreement to permit data analysis by the Danish Heart Foundation.All the potential participants in the Adolescence with Heart Disease Study received written information about the survey, that their data would be handled confidentially in a protected data environment and that the survey results would always be presented as aggregated data to ensure anonymity. Informed consent was obtained from all the participants and legal guardians for the study.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflicts of interests"}}],"article-number":"3319"}}