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In Quebec, as in many Western settings, there is no formal mechanism to inform individuals about such use, underscoring the need for practical solutions. This quantitative cross-sectional study assessed whether transparency mechanisms increase trust in the use of health data for research; examined their perceived priority and acceptability; and explored effects across population subgroups.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a cross-sectional telephone survey among 366 adults in Quebec (Canada) selected via stratified random sampling. The sample included a random selection of adult household members based on age. Descriptive statistics, chi-square tests, and exploratory multivariate logistic regressions were performed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>More than half of respondents were unaware that their health data may be used for research. Trust was higher for public-sector than private-sector researchers. Overall, 76% indicated that access to information would increase their trust, particularly younger adults (OR\u2009=\u20091.98, 95% CI: 1.10\u20133.57). Over 90% judged implementing transparency mechanisms within five years as important, with stronger support among those aware of current data use (OR\u2009=\u20094.63, 95% CI: 1.33\u201316.20). A secure website was considered acceptable by 75% of respondents as a transparency mechanism. Individuals with high trust in public-sector researchers (OR: 2.06, 95% CI: 1.08\u20133.94) and younger adults (OR: 2.05, 95% CI: 1.13\u20133.71) were more likely to consider it important. Exploratory analyses suggested that awareness of current data use for research and pre-existing trust predict increased trust in researchers from various public and private organizations if a secure website is implemented.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Providing information through a transparency mechanism, particularly via a secure website, appears acceptable, valued, and potentially effective for increasing trust in the use of health data for research. Our findings support the feasibility of a web-based transparency portal and suggest tailoring communication to demographic, trust and awareness profiles.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12889-026-28232-0","type":"journal-article","created":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T11:37:00Z","timestamp":1783510620000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Operationalizing transparency regarding the use of health data for research: a cross-sectional survey of citizens\u2019 perspectives"],"prefix":"10.1186","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6802-6472","authenticated-orcid":false,"given":"Annabelle","family":"Cumyn","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8482-9443","authenticated-orcid":false,"given":"Jean-Fr\u00e9d\u00e9ric","family":"M\u00e9nard","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-6816-4405","authenticated-orcid":false,"given":"Emmanuel","family":"Bilodeau","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1444-553X","authenticated-orcid":false,"given":"Roxanne","family":"Dault","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-8297-9713","authenticated-orcid":false,"given":"Jean-Philippe","family":"Morissette","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-2582-6071","authenticated-orcid":false,"given":"Marie-Pier","family":"Domingue","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3277-2729","authenticated-orcid":false,"given":"F\u00e9lix Camirand","family":"Lemyre","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3641-817X","authenticated-orcid":false,"given":"Denis","family":"Boutin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9408-0109","authenticated-orcid":false,"given":"Jean-Fran\u00e7ois","family":"Ethier","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,7,8]]},"reference":[{"issue":"6","key":"28232_CR1","doi-asserted-by":"publisher","first-page":"501","DOI":"10.1056\/NEJMp1006114","volume":"363","author":"D Blumenthal","year":"2010","unstructured":"Blumenthal D, Tavenner M. 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