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The aim of this study was to describe the psychosocial and demographic characteristics of a population with advanced COPD in a stable phase of the disease.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This study was cross-sectional based on a prospective observational cohort. The following questionnaires were administered: Chronic Respiratory Disease Questionnaire (CRQ), The COPD Assessment Test (CAT), The Hospital and Anxiety and Depression Scale (HADS), The Medical Research Council dyspnoea scale (MRC), and self-rate general health.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>We included 242 patients with advanced COPD from a Danish pulmonary outpatient clinic. Their mean FEV<jats:sub>1<\/jats:sub>was 38% (\u00b112.7) and 19% were treated with long term oxygen. The mean CRQ domain score was CRQ-dyspnea 4.21 (\u00b11.4), CRQ-Mastery 4.88 (\u00b11.3), CRQ-Emotional 4.81 (\u00b11.2), CRQ-Fatigue 3.93 (\u00b11.3). The mean CAT-score was 18.4 (\u00b1 6.7), and 44% had a CAT score\u2009&gt;\u200920. The mean score on the subscale for anxiety (HADS-A) and depression (HADS-D) was 5.07 (\u00b13.9) and 5.77 (\u00b13.9), respectively. Thirty percent self-rated their health as bad or very bad and 19.8% were current smokers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study describes the characteristics of a population with advanced COPD in a stable phase of their disease. Our results illustrate how the population although treated in an outpatient structure already focusing on palliative needs, still live with unmet palliative needs and impaired quality of life.<\/jats:p><\/jats:sec>","DOI":"10.1186\/s12904-020-00593-2","type":"journal-article","created":{"date-parts":[[2020,6,18]],"date-time":"2020-06-18T11:02:59Z","timestamp":1592478179000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Characteristics and health related quality of life in a population with advanced chronic obstructive pulmonary disease, a cross-sectional study"],"prefix":"10.1186","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4407-0225","authenticated-orcid":false,"given":"D. 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Pulm Med. 2014;2014:973858.","journal-title":"Pulm Med"}],"container-title":["BMC Palliative Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12904-020-00593-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12904-020-00593-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12904-020-00593-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,2]],"date-time":"2023-10-02T15:02:49Z","timestamp":1696258969000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcpalliatcare.biomedcentral.com\/articles\/10.1186\/s12904-020-00593-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,6,18]]},"references-count":51,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2020,12]]}},"alternative-id":["593"],"URL":"https:\/\/doi.org\/10.1186\/s12904-020-00593-2","relation":{},"ISSN":["1472-684X"],"issn-type":[{"value":"1472-684X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,6,18]]},"assertion":[{"value":"2 September 2019","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"15 June 2020","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"18 June 2020","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"Patients were informed about the study in writing as well as verbally, and only included when they provided written consent for their participation. Patients were informed that they could withdraw from the study at any time and with no implications for their future treatment. Those who left the study for other reasons than death where kindly asked for permission to use their previous data.Furthermore the study was approved by the Chief Executives at Nordsj\u00e6llands Hospitals\u2019 Department of Pulmonary and Infectious Diseases in Denmark. The Ethics Committee () in Denmark, the Biomedical Research Ethics Committee System Act was questioned, and they decided that the study was not required to report (H-17001509). All patients\u2019 data were handled and stored in accordance with the Danish Data Protection Agency (05204, NOH-2017-001).","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"84"}}