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The provision of remote care to a terminally ill patient is associated with specific challenges and burdens. In the German context, research is lacking on the specific experiences and needs of caregivers in end-of-life situations who are geographically distanced from their relative. Thus, the overarching goal of the proposed study is to detail the specifics of long-distance caregiving at the end of life in Germany, determining the role played by physical distance in shaping end-of-life caregiving and identifying the needs of long-distance caregivers in this situation.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>The exploratory qualitative study will be guided by an inductive logic, drawing on one-time semi-structured interviews. To uncover the multiplicity of caregiving experiences, long-distance caregivers of both patients receiving early palliative care and patients at a very advanced stage of disease will be included. The study will be divided into five phases: (1) preparation and pretest, (2) data collection and primary analysis, (3) data analysis and interpretation, (4) advisory board workshop and (5) conclusions and recommendations.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Discussion<\/jats:title>\n                <jats:p>The study will aim at generating valuable insight regarding the experiences and needs of family caregivers of end-of-life patients. This is particularly relevant, given that families are becoming increasingly geographically dispersed. As this trend continues, it will challenge traditional models of family care and shed light on novel caregiving issues that will need to be addressed through social and health policy.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Trial registration<\/jats:title>\n                <jats:p>The study was prospectively registered in the German Clinical Trials Register (Deutsches Register Klinischer Studien) (Registration N\u00b0 DRKS00024164; date of registration: January 25, 2021), and is searchable under the International Clinical Trials Registry Platform Search Portal of the World Health Organization, under the German Clinical Trials Register number.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12904-022-00967-8","type":"journal-article","created":{"date-parts":[[2022,5,12]],"date-time":"2022-05-12T02:02:53Z","timestamp":1652320973000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Long-distance caregiving at the end of life: a protocol for an exploratory qualitative study in Germany"],"prefix":"10.1186","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2602-9277","authenticated-orcid":false,"given":"Franziska A.","family":"Herbst","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nils","family":"Schneider","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Stiel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2022,5,12]]},"reference":[{"key":"967_CR1","unstructured":"Statistisches Bundesamt (Destatis). 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Prior to initiating data collection, a project team member will explain the nature and purpose of the project, the methods used to maintain confidentiality and the need to audio record the interview\/expert meeting, and present the informed consent form. Furthermore, participating LD caregivers will be asked to confirm that they understand the procedures to their full satisfaction. They will also be encouraged to ask any questions they may have, at any point in the procedure. A project team member will be available to answer these questions. Interviews will take place only after participants sign the consent form. All participation will be voluntarily, and under no circumstances will coercion be applied to obtain informed consent. Participants may terminate their participation in the project at any time, without providing a reason. In the event that a participant experiences significant discomfort or distress during the interview, the interview will be terminated and, if the participant agrees, continued at a later time. In addition, staff from the Institute for General Practice and Palliative Care at Hannover Medical School will provide support resources.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"69"}}