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The ICECAP-Supportive Care Measure (ICECAP-SCM), a seven attribute measure (1.<jats:italic>Choice<\/jats:italic>, 2.<jats:italic>Love and affection<\/jats:italic>, 3.<jats:italic>Physical suffering<\/jats:italic>, 4.<jats:italic>Emotional suffering<\/jats:italic>, 5.<jats:italic>Dignity<\/jats:italic>, 6.<jats:italic>Being supported<\/jats:italic>, 7.<jats:italic>Preparation<\/jats:italic>) developed for use in economic evaluation of end-of-life interventions, has face validity and is feasible to use. This study aimed to assess the construct validity and responsiveness of the ICECAP-SCM in hospice inpatient and outpatient settings.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A secondary analysis of data collated from two studies, one focusing on palliative care day services and the other on constipation management, undertaken in the same national hospice organisation across three UK hospices, was conducted. Other quality of life and wellbeing outcome measures used were the EQ-5D-5L, McGill Quality of Life Questionnaire \u2013 Expanded (MQOL-E), Patient Health Questionnaire-2 (PHQ-2) and Palliative Outcomes Scale Symptom list (POS-S). The construct validity of the ICECAP-SCM was assessed, following hypotheses generation, by calculating correlations between: (i) its domains and the domains of other outcome measures, (ii) its summary score and the other measures\u2019 domains, (iii) its summary score and the summary scores of the other measures. The responsiveness of the ICECAP-SCM was assessed using anchor-based methods to understand change over time. Statistical analysis consisted of Spearman and Pearson correlations for construct validity and paired t-tests for the responsiveness analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Sixty-eight participants were included in the baseline analysis. Five strong correlations were found with ICECAP-SCM attributes and items on the other measures: four with the<jats:italic>Emotional suffering<\/jats:italic>attribute (<jats:italic>Anxiety\/depression<\/jats:italic>on EQ-5D-5L,<jats:italic>Psychological<\/jats:italic>and<jats:italic>Burden<\/jats:italic>on MQOL-E and<jats:italic>Feeling down, depressed or hopeless<\/jats:italic>on PHQ-2), and one with<jats:italic>Physical suffering<\/jats:italic>(<jats:italic>Weakness or lack of energy<\/jats:italic>on POS-S). ICECAP-SCM attributes and scores were most strongly associated with the MQOL-E measure (0.73 correlation coefficient between summary scores). The responsiveness analysis (<jats:italic>n<\/jats:italic>\u00a0=\u200936) showed the ICECAP-SCM score was responsive to change when anchored to changes on the MQOL-E over time (<jats:italic>p<\/jats:italic>\u00a0&lt;\u20090.05).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study provides initial evidence of construct validity and responsiveness of the ICECAP-SCM in hospice settings and suggests its potential for use in end-of-life care research.<\/jats:p><\/jats:sec>","DOI":"10.1186\/s12904-022-01012-4","type":"journal-article","created":{"date-parts":[[2022,7,8]],"date-time":"2022-07-08T09:03:45Z","timestamp":1657271025000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["An analysis of the construct validity and responsiveness of the ICECAP-SCM capability wellbeing measure in a palliative care hospice setting"],"prefix":"10.1186","volume":"21","author":[{"given":"Gareth","family":"Myring","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paul Mark","family":"Mitchell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"W. 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BMJ Support Palliat Care. 2019;9(4):e37.","journal-title":"BMJ Support Palliat Care"}],"container-title":["BMC Palliative Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12904-022-01012-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12904-022-01012-4\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12904-022-01012-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,9,28]],"date-time":"2024-09-28T19:43:22Z","timestamp":1727552602000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcpalliatcare.biomedcentral.com\/articles\/10.1186\/s12904-022-01012-4"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,7,8]]},"references-count":36,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2022,12]]}},"alternative-id":["1012"],"URL":"https:\/\/doi.org\/10.1186\/s12904-022-01012-4","relation":{},"ISSN":["1472-684X"],"issn-type":[{"value":"1472-684X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,7,8]]},"assertion":[{"value":"30 June 2021","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"24 June 2022","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 July 2022","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Approval was obtained from The Office of Research Ethics Committee Northern Ireland (reference: 18\/NI\/0074), NHS Health Research Authority West Midlands - Solihull Research Ethics Committee (reference: 17\/WM\/0100), Ulster University, and Research Governance Groups at each site. Written informed consent was provided by all participants prior to joining the study. Data collection was done in accordance with the Declaration of Helsinki \u2013 ethical principles for medical research involving human participants.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"JC led the development of the ICECAP-SCM. All other authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"121"}}