{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T18:31:16Z","timestamp":1787855476403,"version":"build-2784847793"},"reference-count":34,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,5,17]],"date-time":"2024-05-17T00:00:00Z","timestamp":1715904000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,5,17]],"date-time":"2024-05-17T00:00:00Z","timestamp":1715904000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"NL SUPPORT"},{"name":"Office of Public Engagement, Memorial University of Newfoundland"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Palliat Care"],"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>Indigenous palliative persons and their families often have different values, spiritual traditions, and practices from Western culture and Canadian health systems. Additionally, many healthcare policies and practices have been established without adequate consultation of the Indigenous populations they are meant to serve. This can result in barriers to Innu receiving culturally safe end-of-life care. Innu community leaders from Sheshatshiu, Labrador, have identified a need for further research in this area. The purpose of this study is to: (1) describe the cultural and spiritual practices related to death and dying of the Innu in Sheshatshiu; (2) identify aspects of current end-of-life care delivery that serve and\/or fail to meet the cultural and spiritual needs of the Innu in Sheshatshiu; and (3) explore ways to integrate current end-of-life care delivery practices with Innu cultural and spiritual practices to achieve culturally safer care delivery for the Innu.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>This qualitative patient-oriented research study was co-led by Innu investigators and an Innu advisory committee to conduct semi-structured interviews of 5 healthcare providers and 6 decision-makers serving the community of Sheshatshiu and a focus group of 5 Innu Elders in Sheshatshiu. Data was analyzed thematically from verbatim transcripts. The codebook, preliminary themes, and final themes were all reviewed by Innu community members, and any further input from them was then incorporated. Quotations in this article are attributed to Innu Elders by name at the Elders\u2019 request.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>The findings are described using eight themes, which describe the following: relationships and visitation support a \u201cpeaceful death\u201d; traditional locations of death and dying; the important role of friends and community in providing care; flexibility and communication regarding cultural practices; adequate and appropriate supports and services; culturally-informed policies and leadership; and Innu care providers and patient navigators.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>The Innu in Sheshatshiu have a rich culture that contributes to the health, care, and overall well-being of Innu people approaching end of life. Western medicine is often beneficial in the care that it provides; however, it becomes culturally unsafe when it fails to take Innu cultural and spiritual knowledge and traditions into account.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12904-024-01431-5","type":"journal-article","created":{"date-parts":[[2024,5,17]],"date-time":"2024-05-17T08:01:53Z","timestamp":1715932913000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Patshitinikutau Natukunisha Tshishennuat Uitshuau (a place for Elders to spend their last days in life): a qualitative study about Innu perspectives on end-of-life care"],"prefix":"10.1186","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3800-4440","authenticated-orcid":false,"given":"Russell","family":"Dawe","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jack","family":"Penashue","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Pia","family":"Benuen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anastasia","family":"Qupee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"Pike","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"van Soeren","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carolyn","family":"Sturge Sparkes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mercy","family":"Winsor","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin Harris","family":"Walsh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hiliary","family":"Hasan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathaniel","family":"Pollock","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,5,17]]},"reference":[{"issue":"2","key":"1431_CR1","doi-asserted-by":"publisher","first-page":"209","DOI":"10.1017\/S071498081200013X","volume":"31","author":"S Habjan","year":"2012","unstructured":"Habjan S, Prince H, Kelley ML. 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The Sheshatshiu Innu First Nation Band Council also provided a letter of support for this study. The research team includes an Innu co-primary investigator and two other Innu co-investigators. This team has collaborated to create an Indigenous Research Agreement that described how the research would be conducted in keeping with the First Nations Information Governance Centre\u2019s principles of Ownership, Control, Access, and Possession (OCAP). All aspects of this study were performed in accordance with relevant guidelines and regulations. All study participants provided informed consent. Innu community members made the decisions throughout every stage of this research. Ethical approval was also received from the Labrador-Grenfell Regional Health Authority and the Health Research Ethics Board (HREB) in Newfoundland and Labrador.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Innu Nation.Labrador-Grenfell Regional Health Authority.Newfoundland and Labrador Health Research Ethics Authority (file number 20192163).Sheshatshiu Innu First Nation Band Council (letter of support).","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics\/Institutional Approvals"}},{"value":"Memorial University institutional consent forms include informed consent for publication. The corresponding author has retained these for review upon request. A consent amendment request was approved by the Health Research Ethics Board (HREB) for the Innu Elders, who provided informed verbal consent with verbal translation into Innu-aimun. Verbal consent was deemed to be the most reliable and culturally safer way to ensure informed consent during the research process. The corresponding author has retained the verbal consent script for review upon request.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"This research collaboration is the result of a community partnership between the Innu Nation and Memorial University\u2019s Faculty of Medicine, with support from the Sheshatshiu Innu First Nation (SIFN) Band Council, Memorial University\u2019s Labrador Institute, Labrador-Grenfell Regional Health Authority, and the Department of Health and Community Services, Government of Newfoundland and Labrador. An Innu advisory committee was formed at the beginning of the project to guide all stages of the work.","order":6,"name":"Ethics","group":{"name":"EthicsHeading","label":"Authors\u2019 information"}}],"article-number":"121"}}