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The administrative database contained no identifiers for patients receiving PEoLC or their caregivers. Confidentiality was preserved throughout the study. An alpha-numeric code was assigned to interview participants. Findings are presented in aggregate form and by groups to avoid identification. All interview participants signed an information and consent form. They were free to withdraw from the study at any time, without consequences or reprisals. Regular check-ins were made during the interviews to ensure that patients receiving PEoLC and caregivers wished to continue. Data collection was flexible, adapting to the needs, schedules and limitations of participants. Interviews were shortened when necessary to ensure well-being and promote equitable participation for participants, especially as some participants were frailer due to illness or end-of-life.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"197"}}