{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,20]],"date-time":"2026-01-20T07:06:04Z","timestamp":1768892764943,"version":"3.49.0"},"reference-count":19,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T00:00:00Z","timestamp":1765497600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,1,19]],"date-time":"2026-01-19T00:00:00Z","timestamp":1768780800000},"content-version":"vor","delay-in-days":38,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100014584","name":"Universit\u00e4tsmedizin der Johannes Gutenberg-Universit\u00e4t Mainz","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100014584","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Palliat Care"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>In paediatric palliative care (PPC), expressions related to death range from diffuse thoughts of dying \u201cdeath thoughts\u201d (DT) to explicit articulations of a desire to die \u201cdeath wishes\u201d (DW). These expressions pose significant ethical, clinical, and communicative challenges. Although often conflated in public discourse, DT and DW are conceptually distinct and have different implications for care, communication, and ethical reflection. This survey aimed to investigate how healthcare professionals (HCP) in Germany perceive, differentiate, and respond to these expressions in PPC practice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A nationwide online survey was conducted among multidisciplinary PPC professionals in Germany. The 43-item questionnaire included closed- and open-ended questions, addressing clinical experiences with death-related expressions in minors, professional responses, and institutional handling. Quantitative data were analysed descriptively. Qualitative free-text responses were analysed using a framework-guided hybrid thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 120 HCP participated, including physicians (45%), nurses and social workers (13.3% each), psychologists (9.2%), and chaplains (7.5%). Experiences with DT were reported by 62 of 92 (67.4%) of HCP and DW by 62 of 93 (66.7%). Expressions were most observed in adolescents aged 15\u201318. DT were often reflective or symbolic, while DW tended to be more explicit and associated with suffering. Professional uncertainty was widespread: 49.3% reported feeling unsure about DT, and 57.5% about DW. Only 29.5% reported the presence of institutional guidelines. Still, 63.5% affirmed the clinical relevance of distinguishing DT from DW.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>These findings highlight a pressing need for conceptual clarity, ethical reflection, and institutional support in addressing death-related expressions in PPC. The distinction between DT and DW is clinically and ethically meaningful yet blurred in practice. Targeted training, evidence-based guidelines, and structured, interdisciplinary dialogue are essential to strengthen professionals\u2019 confidence and competence in interpreting and managing these complex and ethically sensitive situations.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12904-025-01973-2","type":"journal-article","created":{"date-parts":[[2025,12,12]],"date-time":"2025-12-12T09:54:00Z","timestamp":1765533240000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Death wishes and death thoughts in paediatric palliative care: a survey of German healthcare professionals"],"prefix":"10.1186","volume":"25","author":[{"given":"Francesca","family":"Alt","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marie A.","family":"Neu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hamideh","family":"Fr\u00fchwein","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claudia","family":"Bozzaro","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J\u00f6rg","family":"Faber","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Norbert W.","family":"Paul","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,12,12]]},"reference":[{"issue":"8","key":"1973_CR1","doi-asserted-by":"publisher","first-page":"795","DOI":"10.1002\/pon.1839","volume":"20","author":"C Monforte-Royo","year":"2011","unstructured":"Monforte-Royo C, et al. The wish to hasten death: a review of clinical studies. Psychooncology. 2011;20(8):795\u2013804.","journal-title":"Psychooncology"},{"issue":"3","key":"1973_CR2","doi-asserted-by":"publisher","first-page":"3594","DOI":"10.21037\/apm-20-381","volume":"10","author":"K Kremeike","year":"2021","unstructured":"Kremeike K, et al. Desire to die\u2019 in palliative care patients-legal framework and recommendations of the National evidence-based guideline on palliative care in Germany. Ann Palliat Med. 2021;10(3):3594\u2013610.","journal-title":"Ann Palliat Med"},{"issue":"5","key":"1973_CR3","doi-asserted-by":"publisher","first-page":"e37117","DOI":"10.1371\/journal.pone.0037117","volume":"7","author":"C Monforte-Royo","year":"2012","unstructured":"Monforte-Royo C, et al. What Lies behind the wish to hasten death? A systematic review and meta-ethnography from the perspective of patients. 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Consequently, the necessity for ethical approval was deemed non-mandatory in accordance with the prevailing regional professional regulations. The present study was conducted in accordance with the ethical standards of the institutional and national research committees, as well as the 1964 Declaration of Helsinki and its subsequent amendments.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"23"}}