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The paucity of literature relating to fathers\u2019 experiences means there is scant evidence to guide those with a remit to support them. Understanding is needed on how fathers cope, accept loss, and grieve, and how notions of fatherhood and masculinity affect men\u2019s experiences and support.<\/jats:p>\n                  <jats:p>This scoping review aims: (a) to provide an in-depth overview of the current state of knowledge around fathers\u2019 experiences of neonatal palliative care; and (b) to understand the ways in which fathers have been engaged as participants in existing research. Seven electronic databases were searched for qualitative studies concerning fathers\u2019 experiences of neonatal palliative care, complimented by manual searches and grey literature searches. A total of 22 studies met the inclusion criteria. Three main analytical themes were identified, arranged temporally following fathers\u2019 experiences from the point of diagnosis to bereavement and beyond: (1) fathers\u2019 experiences of finding out and decision making; (2) fathers experiences in and out of the care environment; and (3) fathers\u2019 experiences of grief and bereavement.<\/jats:p>\n                  <jats:p>This scoping review finds that whilst the existing research provides a useful starting point for understanding fathers\u2019 experiences of neonatal palliative care, there is a need for interdisciplinary research that explores fathers\u2019 experiences in more depth, to inform and improve care and support available to fathers during this difficult time.<\/jats:p>","DOI":"10.1186\/s12904-026-02103-2","type":"journal-article","created":{"date-parts":[[2026,4,17]],"date-time":"2026-04-17T01:52:31Z","timestamp":1776390751000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["What are fathers\u2019 experiences of neonatal-perinatal palliative care? 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