{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T02:14:27Z","timestamp":1792462467096,"version":"4.5.0"},"reference-count":60,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T00:00:00Z","timestamp":1762732800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T00:00:00Z","timestamp":1762732800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"funder":[{"name":"Australian Government Research Training Program Scholarship"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Women's Health"],"DOI":"10.1186\/s12905-025-04045-y","type":"journal-article","created":{"date-parts":[[2025,11,10]],"date-time":"2025-11-10T12:04:45Z","timestamp":1762776285000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Exploring endometriosis community needs to co-create the EndoZone digital health platform: a qualitative research study"],"prefix":"10.1186","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4485-7877","authenticated-orcid":false,"given":"Diksha","family":"Sirohi","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cecilia Hoi Man","family":"Ng","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Niranjan","family":"Bidargaddi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helen","family":"Slater","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa A.","family":"Parker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary Louise","family":"Hull","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"O\u2019Hara","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,11,10]]},"reference":[{"key":"4045_CR1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj-2022-070750","author":"AW Horne","year":"2022","unstructured":"Horne AW, Missmer SA. Pathophysiology, diagnosis, and management of endometriosis. BMJ. 2022. https:\/\/doi.org\/10.1136\/bmj-2022-070750.","journal-title":"BMJ"},{"issue":"1","key":"4045_CR2","doi-asserted-by":"publisher","first-page":"300","DOI":"10.1186\/s13063-022-06204-0","volume":"23","author":"K Schubert","year":"2022","unstructured":"Schubert K, Lohse J, Kalder M, Ziller V, Weise C. Internet-based cognitive behavioral therapy for improving health-related quality of life in patients with endometriosis: study protocol for a randomized controlled trial. Trials. 2022;23(1):300. https:\/\/doi.org\/10.1186\/s13063-022-06204-0.","journal-title":"Trials"},{"key":"4045_CR3","unstructured":"Australian Institute of Health and Welfare. Endometriosis. Cat. no: PHE 357. Last updated: 21 May 2025. [Available from: https:\/\/www.aihw.gov.au\/reports\/chronic-disease\/endometriosis\/contents\/how-common-is-endometriosis]. [accessed; 2025-08-27]."},{"issue":"2","key":"4045_CR4","doi-asserted-by":"publisher","first-page":"366","DOI":"10.1016\/j.fertnstert.2011.05.090","volume":"96","author":"KE Nnoaham","year":"2011","unstructured":"Nnoaham KE, Hummelshoj L, Webster P, d\u2019Hooghe T, de Cicco Nardone F, de Cicco Nardone C, Jenkinson C, Kennedy SH, Zondervan KT, World Endometriosis Research Foundation Global Study of Women\u2019s Health consortium. Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries. Fertil Steril. 2011;96(2):366\u201373. PMID: 21718982.","journal-title":"Fertil Steril"},{"issue":"3","key":"4045_CR5","doi-asserted-by":"publisher","first-page":"265","DOI":"10.1080\/0167482X.2020.1825374","volume":"43","author":"R O\u2019Hara","year":"2022","unstructured":"O\u2019Hara R, Rowe H, Fisher J. Managing endometriosis: a cross-sectional survey of women in Australia. J Psychosom Obstet Gynaecol. 2022;43(3):265\u201372. https:\/\/doi.org\/10.1080\/0167482X.2020.1825374.","journal-title":"J Psychosom Obstet Gynaecol"},{"issue":"1","key":"4045_CR6","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/1472-6874-14-123","volume":"14","author":"M Moradi","year":"2014","unstructured":"Moradi M, Parker M, Sneddon A, Lopez V, Ellwood D. Impact of endometriosis on women\u2019s lives: a qualitative study. BMC Women\u2019s Health. 2014;14(1):1\u20132. https:\/\/doi.org\/10.1186\/1472-6874-14-123.","journal-title":"BMC Women\u2019s Health"},{"issue":"2","key":"4045_CR7","doi-asserted-by":"publisher","first-page":"hoac009","DOI":"10.1093\/hropen\/hoac009","volume":"2022","author":"CM Becker","year":"2022","unstructured":"Becker CM, Bokor A, Heikinheimo O, Horne A, Jansen F, Kiesel L, King K, Kvaskoff M, Nap A, Petersen K, Saridogan E. ESHRE guideline: endometriosis. Hum Reprod Open. 2022;2022(2):hoac009. PMID: 35350465.","journal-title":"Hum Reprod Open"},{"issue":"6","key":"4045_CR8","doi-asserted-by":"publisher","first-page":"625","DOI":"10.1093\/humupd\/dmt027","volume":"19","author":"L Culley","year":"2013","unstructured":"Culley L, Law C, Hudson N, Denny E, Mitchell H, Baumgarten M, Raine-Fenning N. The social and psychological impact of endometriosis on women\u2019s lives: a critical narrative review. Hum Reprod Update. 2013;19(6):625\u201339. PMID: 23884896.","journal-title":"Hum Reprod Update"},{"issue":"1","key":"4045_CR9","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12905-025-03581-x","volume":"25","author":"D Senyel","year":"2025","unstructured":"Senyel D, Boyd JH, Graham M. Informational support for women with endometriosis: a scoping review. BMC Womens Health. 2025;25(1):1\u20131. https:\/\/doi.org\/10.1186\/s12905-025-03581-x.","journal-title":"BMC Womens Health"},{"issue":"4","key":"4045_CR10","doi-asserted-by":"publisher","first-page":"712","DOI":"10.1093\/humrep\/dev335","volume":"31","author":"AM Soliman","year":"2016","unstructured":"Soliman AM, Yang H, Du EX, Kelley C, Winkel C. The direct and indirect costs associated with endometriosis: a systematic literature review. Hum Reprod. 2016;31(4):712\u201322. https:\/\/doi.org\/10.1093\/humrep\/dev335.","journal-title":"Hum Reprod"},{"issue":"3","key":"4045_CR11","doi-asserted-by":"publisher","first-page":"200","DOI":"10.1046\/j.1470-6431.2003.t01-1-00302.x","volume":"27","author":"H Cox","year":"2003","unstructured":"Cox H, Ski CF, Wood R, Sheahan M. Endometriosis, an unknown entity: the consumer\u2019s perspective. Int J Consumer Stud. 2003;27(3):200\u20139. https:\/\/doi.org\/10.1046\/j.1470-6431.2003.t01-1-00302.x.","journal-title":"Int J Consumer Stud"},{"issue":"2","key":"4045_CR12","doi-asserted-by":"publisher","first-page":"135","DOI":"10.1016\/j.jpag.2020.11.007","volume":"34","author":"M Armour","year":"2021","unstructured":"Armour M, Hyman MS, Al-Dabbas M, Parry K, Ferfolja T, Curry C, et al. Menstrual health literacy and management strategies in young women in Australia: a national online survey of young women aged 13\u201325 years. J Pediatr Adolesc Gynecol. 2021;34(2):135\u201343. https:\/\/doi.org\/10.1016\/j.jpag.2020.11.007.","journal-title":"J Pediatr Adolesc Gynecol"},{"issue":"3","key":"4045_CR13","doi-asserted-by":"publisher","first-page":"C29","DOI":"10.1530\/RAF-22-0003","volume":"3","author":"M Armour","year":"2022","unstructured":"Armour M, Avery J, Leonardi M, Van Niekerk L, Druitt ML, Parker MA, Girling JE, McKinnon B, Mikocka-Walus A, Ng CH, O\u2019Hara R. Lessons from implementing the Australian National action plan for endometriosis. Reprod Fertility. 2022;3(3):C29\u201339. https:\/\/doi.org\/10.1530\/RAF-22-0003.","journal-title":"Reprod Fertility"},{"issue":"1","key":"4045_CR14","doi-asserted-by":"publisher","DOI":"10.1080\/07853890.2023.2215537","volume":"55","author":"A Arena","year":"2023","unstructured":"Arena A, Degli Esposti E, Orsini B, Moro E, Del Forno S, Cocchi L, et al. Endometriosis in the time of internet: how web navigation affects women with endometriosis. Ann Med. 2023;55(1):2215537. https:\/\/doi.org\/10.1080\/07853890.2023.2215537.","journal-title":"Ann Med"},{"issue":"5","key":"4045_CR15","doi-asserted-by":"publisher","first-page":"e109","DOI":"10.2196\/jmir.5548","volume":"18","author":"A Shoebotham","year":"2016","unstructured":"Shoebotham A, Coulson NS. Therapeutic affordances of online support group use in women with endometriosis. J Med Internet Res. 2016;18(5):e109. PMID: 27160641.","journal-title":"J Med Internet Res"},{"key":"4045_CR16","doi-asserted-by":"publisher","first-page":"101","DOI":"10.1016\/j.ejogrb.2022.05.020","volume":"274","author":"A Arena","year":"2022","unstructured":"Arena A, Degli Esposti E, Orsini B, Verrelli L, Rodondi G, Lenzi J, Casadio P, Seracchioli R. The social media effect: the impact of fake news on women affected by endometriosis. A prospective observational study. Eur J Obstet Gynecol Reproductive Biology. 2022;274:101\u20135. PMID: 35640437.","journal-title":"Eur J Obstet Gynecol Reproductive Biology"},{"key":"4045_CR17","unstructured":"Welch A. December. Google\u2019s Top Trending Health Questions of 2018. CBS News. 29th 2018. 2018 [Available from: https:\/\/www.cbsnews.com\/news\/top-10-google-trending-health-questions-of-2018\/]. [accessed 2025-02-26]."},{"issue":"3","key":"4045_CR18","doi-asserted-by":"publisher","first-page":"1","DOI":"10.36648\/1791-809X.1000656","volume":"13","author":"F Gkrozou","year":"2019","unstructured":"Gkrozou F, Waters N. A preliminary review of the mHealth apps focused in endometriosis and chronic pelvic pain. Health Sci J. 2019;13(3):1\u20136. https:\/\/doi.org\/10.36648\/1791-809X.1000656.","journal-title":"Health Sci J"},{"issue":"5","key":"4045_CR19","doi-asserted-by":"publisher","first-page":"451","DOI":"10.1016\/j.ajog.2016.11.1007","volume":"216","author":"M Hirsch","year":"2017","unstructured":"Hirsch M, Aggarwal S, Barker C, Davis CJ, Duffy JM. Googling endometriosis: a systematic review of information available on the internet. Am J Obstet Gynecol. 2017;216(5):451\u20138. PMID: 27840143.","journal-title":"Am J Obstet Gynecol"},{"issue":"2","key":"4045_CR20","doi-asserted-by":"publisher","first-page":"86","DOI":"10.1016\/j.ajog.2019.02.033","volume":"221","author":"S As-Sanie","year":"2019","unstructured":"As-Sanie S, Black R, Giudice LC, Valbrun TG, Gupta J, Jones B, Laufer MR, Milspaw AT, Missmer SA, Norman A, Taylor RN. Assessing research gaps and unmet needs in endometriosis. Am J Obstet Gynecol. 2019;221(2):86\u201394. PMID: 30790565.","journal-title":"Am J Obstet Gynecol"},{"key":"4045_CR21","unstructured":"Department of Health Australian Government. National Action Plan for Endometriosis, Canberra. Australia 2018. [Available from: https:\/\/www.health.gov.au\/resources\/publications\/national-action-plan-for-endometriosis?language=en]. [accessed 2025-02-26]."},{"key":"4045_CR22","doi-asserted-by":"publisher","unstructured":"Vargas C, Whelan J, Brimblecombe J, Allendera S. Co-creation, co-design and co-production for public health: a perspective on definitions and distinctions.\u00a0Public Health Res Pract. 2022;32(2). PMID: 35702744. https:\/\/doi.org\/10.17061\/phrp3222211.","DOI":"10.17061\/phrp3222211"},{"issue":"1","key":"4045_CR23","doi-asserted-by":"publisher","first-page":"68","DOI":"10.1186\/s12911-022-01806-9","volume":"22","author":"S Lundell","year":"2022","unstructured":"Lundell S, Toots A, S\u00f6nnerfors P, Halvarsson A, Wadell K. Participatory methods in a digital setting: experiences from the co-creation of an eHealth tool for people with chronic obstructive pulmonary disease. BMC Medical Informatics and Decision Making. 2022;22(1):68. PMID: 35303895.","journal-title":"BMC Med Inform Decis Mak"},{"key":"4045_CR24","unstructured":"Scott Doorley SH, Perry Klebahn K, Segovia, Utley J. Stanford University, Stanford d.school Design Thinking Bootcamp Bootleg 2018 [Available from: https:\/\/dschool.stanford.edu\/resources\/design-thinking-bootleg.] [accessed 2025-02-26]."},{"key":"4045_CR25","unstructured":"Smart J, Australian Institute of Family Studies. Needs assessment. 2019. [Available from: https:\/\/aifs.gov.au\/resources\/practice-guides\/needs-assessment\/] [accessed 2025-07-09]."},{"key":"4045_CR26","unstructured":"Green J, Tones KJ, Cross R, Woodall J. Chapter 5: Information Needs. Health promotion: Planning and strategies. (3rd edition). Publisher: Sage; 2015. pp.211\u2013254."},{"key":"4045_CR27","unstructured":"Virginia Braun, Victoria Clarke. Chapter 10:Ten fundamentals of qualitative research. Success Qualitative Research. Publisher: Sage; 2013. pp. 223\u201345."},{"issue":"6","key":"4045_CR28","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349\u201357. https:\/\/doi.org\/10.1093\/intqhc\/mzm042.","journal-title":"Int J Qual Health Care"},{"issue":"13","key":"4045_CR29","doi-asserted-by":"publisher","first-page":"1753","DOI":"10.1177\/1049732315617444","volume":"26","author":"K Malterud","year":"2016","unstructured":"Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753\u201360. PMID: 26613970.","journal-title":"Qual Health Res"},{"key":"4045_CR30","unstructured":"\u00a0Virginia Braun, Victoria Clarke. Section 1 Before Analysis: A Brief Design Interlude. Thematic Analysis, A Practical Guide. Publisher: Sage; 2022. pp. 25\u20139.\u00a0"},{"key":"4045_CR31","unstructured":"Virginia Braun, Victoria Clarke. Chapter5 Interactive data collection 2: focus groups. Success Qualitative Research: apractical guide for beginners. Publisher: Sage; 2013. pp. 107\u201313."},{"issue":"1","key":"4045_CR32","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1037\/qup0000196","volume":"9","author":"V Braun","year":"2022","unstructured":"Braun V, Clarke V. Conceptual and design thinking for thematic analysis. Qual Psychol. 2022;9(1):3. https:\/\/doi.org\/10.1037\/qup0000196.","journal-title":"Qual Psychol"},{"issue":"3","key":"4045_CR33","doi-asserted-by":"publisher","first-page":"1391","DOI":"10.1007\/s11135-021-01182-y","volume":"56","author":"D Byrne","year":"2022","unstructured":"Byrne D. A worked example of Braun and clarke\u2019s approach to reflexive thematic analysis. Qual Quant. 2022;56(3):1391\u2013412. https:\/\/doi.org\/10.1007\/s11135-021-01182-y.","journal-title":"Qual Quant"},{"issue":"3","key":"4045_CR34","doi-asserted-by":"publisher","first-page":"241","DOI":"10.1080\/0142159X.2022.2057287","volume":"45","author":"FM Olmos-Vega","year":"2023","unstructured":"Olmos-Vega FM, Stalmeijer RE, Varpio L, Kahlke R. A practical guide to reflexivity in qualitative research: AMEE guide 149. Med Teach. 2023;45(3):241. 51.28. PMID: 35389310.","journal-title":"Med Teach"},{"key":"4045_CR35","unstructured":"Virginia Braun and Victoria Clarke, Book title: Thematic Analysis A Practical guide, Publication: 2022 Chapter 1: Getting Ready for your thematic analysis.\u00a0Publisher: Sage; 2022. pp. 13\u20135."},{"key":"4045_CR36","unstructured":"Headspace Incorporation. Headspace 2024 [Available from: https:\/\/www.headspace.com\/home?_stsgnoredir=1] [accessed 2025-02-26]."},{"key":"4045_CR37","unstructured":"Calm. Calm app 2024 [Available from: https:\/\/www.calm.com\/]. [accessed 2025-02-26]."},{"issue":"8","key":"4045_CR38","doi-asserted-by":"publisher","first-page":"1220","DOI":"10.1016\/j.socscimed.2009.07.023","volume":"69","author":"K Seear","year":"2009","unstructured":"Seear K. The etiquette of endometriosis: stigmatisation, menstrual concealment and the diagnostic delay. Soc Sci Med. 2009;69(8):1220\u20137. PMID: 19699572.","journal-title":"Soc Sci Med"},{"issue":"2","key":"4045_CR39","doi-asserted-by":"publisher","first-page":"71","DOI":"10.4103\/ijph.IJPH_135_18","volume":"62","author":"RN Sinha","year":"2018","unstructured":"Sinha RN, Paul B. Menstrual hygiene management in india: the concerns. Indian J Public Health. 2018;62(2):71. 4.33. PMID: 29923527.","journal-title":"Indian J Public Health"},{"issue":"8","key":"4045_CR40","doi-asserted-by":"publisher","first-page":"1667","DOI":"10.1093\/humrep\/dex221","volume":"32","author":"L Culley","year":"2017","unstructured":"Culley L, Law C, Hudson N, Mitchell H, Denny E, Raine-Fenning N. A qualitative study of the impact of endometriosis on male partners. Hum Reprod. 2017;32(8):1667\u201373. PMID: 28637285.","journal-title":"Hum Reprod"},{"key":"4045_CR41","doi-asserted-by":"publisher","unstructured":"Pickett C, Foster WG, Agarwal SK. Current endometriosis care and opportunities for improvement.\u00a0Reprod Fertil. 2023;4(3). PMID: 37402150. https:\/\/doi.org\/10.1530\/RAF-22-0091.","DOI":"10.1530\/RAF-22-0091"},{"issue":"4","key":"4045_CR42","doi-asserted-by":"publisher","first-page":"522","DOI":"10.1177\/1049732308315432","volume":"18","author":"L Manderson","year":"2008","unstructured":"Manderson L, Warren N, Markovic M. Circuit breaking: pathways of treatment seeking for women with endometriosis in Australia. Qual Health Res. 2008;18(4):522\u201334. PMID: 18354050.","journal-title":"Qual Health Res"},{"issue":"11","key":"4045_CR43","doi-asserted-by":"publisher","first-page":"1382","DOI":"10.1111\/j.1471-0528.2008.01878.x","volume":"115","author":"KD Ballard","year":"2008","unstructured":"Ballard KD, Seaman HE, De Vries CS, Wright JT. Can symptomatology help in the diagnosis of endometriosis? Findings from a National case\u2013control study\u2014part 1. BJOG: Int J Obstet Gynecol. 2008;115(11):1382\u201391. PMID: 18715240.","journal-title":"BJOG: Int J Obstet Gynecol"},{"issue":"4","key":"4045_CR44","doi-asserted-by":"publisher","first-page":"482","DOI":"10.1177\/09593535221083846","volume":"32","author":"A Hawkey","year":"2022","unstructured":"Hawkey A, Chalmers KJ, Micheal S, Diezel H, Armour M. A day-to-day struggle: a comparative qualitative study on experiences of women with endometriosis and chronic pelvic pain. Feminism Psychol. 2022;32(4):482\u2013500. https:\/\/doi.org\/10.1177\/09593535221083846.","journal-title":"Feminism Psychol"},{"issue":"7","key":"4045_CR45","doi-asserted-by":"publisher","first-page":"957","DOI":"10.1111\/j.1467-9566.2007.01024.x","volume":"29","author":"E Whelan","year":"2007","unstructured":"Whelan E. No one agrees except for those of Us who have it\u2019: endometriosis patients as an epistemological community. Sociol Health Illn. 2007;29(7):957\u201382. PMID: 18092978.","journal-title":"Sociol Health Illn"},{"issue":"2","key":"4045_CR46","doi-asserted-by":"publisher","first-page":"127","DOI":"10.3163\/1536-5050.99.2.004","volume":"99","author":"DM Neal","year":"2011","unstructured":"Neal DM, McKenzie PJ. Putting the pieces together: endometriosis blogs, cognitive authority, and collaborative information behavior. J Med Libr Assoc. 2011;99(2):127.","journal-title":"J Med Libr Assoc"},{"key":"4045_CR47","doi-asserted-by":"publisher","first-page":"e48243","DOI":"10.2196\/48243","volume":"26","author":"D Sirohi","year":"2024","unstructured":"Sirohi D, Ng CH, Bidargaddi N, Slater H, Parker MA, Hull ML, O\u2019Hara R. High-Quality eHealth websites for information on endometriosis: systematic search. J Med Internet Res. 2024;26:e48243. PMID: 38198205.","journal-title":"J Med Internet Res"},{"issue":"6","key":"4045_CR48","doi-asserted-by":"publisher","first-page":"1216","DOI":"10.1016\/j.rbmo.2022.07.009","volume":"45","author":"KN Khan","year":"2022","unstructured":"Khan KN, Ogawa K, Iwasa K, Kuroboshi H, Okimura H, Koshiba A, et al. A targeted educational programme improves fundamental knowledge of menstrual pain and endometriosis in young women: the endometriosis awareness promotion project. Reprod Biomed Online. 2022;45(6):1216\u201329. PMID: 36241496.","journal-title":"Reprod Biomed Online"},{"issue":"6","key":"4045_CR49","doi-asserted-by":"publisher","first-page":"1048","DOI":"10.1111\/jog.13325","volume":"43","author":"D Ameratunga","year":"2017","unstructured":"Ameratunga D, Flemming T, Angstetra D, Ng SK, Sneddon A. Exploring the impact of endometriosis on partners. J Obstet Gynecol Res. 2017;43(6):1048\u201353. PMID: 28621048.","journal-title":"J Obstet Gynecol Res"},{"key":"4045_CR50","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12905-019-0774-6","volume":"19","author":"R O\u2019Hara","year":"2019","unstructured":"O\u2019Hara R, Rowe H, Fisher J. Self-management in condition-specific health: a systematic review of the evidence among women diagnosed with endometriosis. BMC Womens Health. 2019;19:1\u20139. PMID: 31216998.","journal-title":"BMC Womens Health"},{"key":"4045_CR51","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12906-019-2431-x","volume":"19","author":"M Armour","year":"2019","unstructured":"Armour M, Sinclair J, Chalmers KJ, Smith CA. Self-management strategies amongst Australian women with endometriosis: a national online survey. BMC Complement Altern Med. 2019;19:1\u20138. https:\/\/doi.org\/10.1186\/s12906-019-2431-x.","journal-title":"BMC Complement Altern Med"},{"issue":"1","key":"4045_CR52","doi-asserted-by":"publisher","first-page":"638","DOI":"10.1186\/s12905-023-02794-2","volume":"23","author":"D Sirohi","year":"2023","unstructured":"Sirohi D, Freedman S, Freedman L, Carrigan G, Hey-Cunningham AJ, Hull ML, O\u2019Hara R. Patient experiences of being advised by a healthcare professional to get pregnant to manage or treat endometriosis: a cross-sectional study. BMC Women\u2019s Health. 2023;23(1):638. PMID: 38037049.","journal-title":"BMC Women\u2019s Health"},{"key":"4045_CR53","doi-asserted-by":"publisher","unstructured":"Leonardi M, Horne AW, Vincent K, Sinclair J, Sherman KA, Ciccia D, Condous G, Johnson NP, Armour M. Self-management strategies to consider to combat endometriosis symptoms during the COVID-19 pandemic. Hum Reprod Open. 2020(2):hoaa028. PMID: 32509977. https:\/\/doi.org\/10.1093\/hropen\/hoaa028.","DOI":"10.1093\/hropen\/hoaa028"},{"key":"4045_CR54","unstructured":"Citizen Endo. Challenges #1 Results 2017 [Available from: https:\/\/citizen-endo.medium.com\/challenge-1-results-88b62abd96b]. [accessed: 2025-02-26]."},{"key":"4045_CR55","unstructured":"QENDO. What It Cost Me. Endo in the Outback 2021 [Available from: https:\/\/www.qendo.org.au\/blog\/what-it-cost-me-endo-in-the-outback]. [accessed: 2025-02-26]."},{"issue":"5","key":"4045_CR56","doi-asserted-by":"publisher","first-page":"701","DOI":"10.1111\/ajo.13524","volume":"62","author":"K van den Haspel","year":"2022","unstructured":"van den Haspel K, Reddington C, Healey M, Li R, Dior U, Cheng C. The role of social media in management of individuals with endometriosis: A cross-sectional study. Aust N Z J Obstet Gynaecol. 2022;62(5):701\u20136. PMID: 35435253.","journal-title":"Aust N Z J Obstet Gynaecol"},{"key":"4045_CR57","doi-asserted-by":"publisher","unstructured":"Edgley K, Horne AW, Saunders PT, Tsanas A. Symptom tracking in endometriosis using digital technologies: Knowns, unknowns, and future prospects. Cell Reports Medicine. 2023;4(9). PMID: 37729869. https:\/\/doi.org\/10.1016\/j.xcrm.2023.101192.","DOI":"10.1016\/j.xcrm.2023.101192"},{"key":"4045_CR58","doi-asserted-by":"publisher","unstructured":"Bohr A, Memarzadeh K. The rise of artificial intelligence in healthcare applications. Artificial Intelligence in Healthcare. Academic Press. 2020 Jan 1 (pp. 25\u201360). https:\/\/doi.org\/10.1016\/B978-0-12-818438-7.00002-2","DOI":"10.1016\/B978-0-12-818438-7.00002-2"},{"key":"4045_CR59","doi-asserted-by":"publisher","first-page":"e37549","DOI":"10.2196\/37549","volume":"7","author":"AF Howard","year":"2023","unstructured":"Howard AF, Noga H, Parmar G, Kennedy L, Aragones S, Bassra R, Gelfer L, Lopez de Arbina E, Sutherland J, Allaire C, Oliffe JL. Web-based digital storytelling for endometriosis and pain: qualitative pilot study. JMIR Formative Res. 2023;7:e37549. PMID: 36917164.","journal-title":"JMIR Formative Res"},{"key":"4045_CR60","unstructured":"EndoZone, A digital health platform for endometriosis Australia. 2022 [Available from: https:\/\/www.endozone.com.au] . [accessed; 2025-03-15]."}],"container-title":["BMC Women's Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12905-025-04045-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12905-025-04045-y\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12905-025-04045-y.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,11]],"date-time":"2025-11-11T18:16:33Z","timestamp":1762884993000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcwomenshealth.biomedcentral.com\/articles\/10.1186\/s12905-025-04045-y"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11,10]]},"references-count":60,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["4045"],"URL":"https:\/\/doi.org\/10.1186\/s12905-025-04045-y","relation":{},"ISSN":["1472-6874"],"issn-type":[{"value":"1472-6874","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,11,10]]},"assertion":[{"value":"14 March 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"12 September 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"10 November 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"This study was conducted in accordance with the Australian National Statement on Ethical Conduct in Human Research and the Australian Code for the Responsible Conduct of Research, 2018, which is informed by and aligned with the Declaration of Helsinki. Ethics approval was granted by the University of Adelaide Human Research Ethics Committee (Approval number: H-2020-013). Informed consent to participate in the study was obtained from all participants.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"547"}}