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However, existing care models often lack a holistic perspective on patients' entire journey from diagnosis to long-term survival.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study employs patient journey mapping to systematically analyze the comprehensive health management needs of allo-HSCT patients throughout their entire treatment cycle.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We adopted a descriptive qualitative design. Semi-structured interviews were conducted with 16 allo-HSCT patients between November and December 2025. Interview data were analyzed using inductive content analysis. Interview data were analyzed using conventional inductive content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The patient treatment process was delineated into four distinct phases\u2014screening and evaluation, transplantation, maintenance therapy, and long-term follow-up\u2014with a total of 31 themes identified across three dimensions: task execution, emotional states, and pain point management. The symptom burden shifted dynamically throughout the treatment trajectory: psychological distress and decisional paralysis dominated the screening phase, escalating into concurrent acute physical symptoms during transplantation, and eventually transitioning to persistent functional decline driven by chronic graft-versus-host disease in long-term survivorship. Emotional experiences followed a parallel trajectory\u2014from intense information needs and guilt in the screening phase, to profound isolation and emotional ambivalence during transplantation, and finally to a complex interplay of resilience and helplessness in the face of lasting sequelae during recovery. Across all phases, systemic pain points consistently centered on fragmented care transitions, a persistent misalignment between information provision and patients' evolving needs, a lack of sustainable support for lifelong self-management, and the compounding impact of financial strain and social role loss.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The patient journey map constructed in this study offers a visual framework for understanding the holistic care needs of allo-HSCT patients across the entire trajectory and pinpoints four critical intervention nodes. Based on these findings, we recommend implementing phase-tailored health education aligned with patients' evolving cognitive needs, integrating routine financial toxicity screening into standard care pathways, strengthening structured transitional support at discharge, and establishing long-term survivorship programs that encompass vocational rehabilitation and peer support networks. These evidence-informed strategies can facilitate the transition from fragmented, event-driven care to integrated, patient-centered care across the entire transplant continuum.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12913-026-15348-7","type":"journal-article","created":{"date-parts":[[2026,8,13]],"date-time":"2026-08-13T07:40:07Z","timestamp":1786606807000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Mapping the health management journey of allogeneic hematopoietic stem cell transplantation: a qualitative study"],"prefix":"10.1186","volume":"26","author":[{"given":"Jiang","family":"Nan","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wu","family":"ZuXia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zhao","family":"XiaoMin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tang","family":"XueMei","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jiang","family":"ShanWen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cheng","family":"Qing","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tu","family":"MeiJuan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,8,13]]},"reference":[{"key":"15348_CR1","doi-asserted-by":"crossref","unstructured":"Bader CS, Killian S, Iliopoulou BP, et al. 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