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To date, content and information quality of YouTube videos on sarcoidosis has not been studied. The aim of our study was to investigate the content and quality of information on sarcoidosis provided by YouTube videos.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Of the first 200 results under the search term \u201csarcoidosis,\u201d all English-language videos with content directed at patients were included. Two independent investigators assessed the content of the videos based on 25 predefined key features (content score with 0\u201325 points), as well as reliability and quality (HONCode score with 0\u20138 points, DISCERN score with 1\u20135 points). Misinformation contained in the videos was described qualitatively.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The majority of the 85 included videos were from an academic or governmental source (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200963, 74%), and median time since upload was 33 months (IQR 10\u201355). Median video duration was 8\u00a0min (IQR 3\u201313) and had a median of 2,044 views (IQR 504\u2009\u2212\u200913,203). Quality assessment suggested partially sufficient information: mean HONCode score was 4.4 (SD 0.9) with 91% of videos having a medium quality HONCode evaluation. Mean DISCERN score was 2.3 (SD 0.5). Video content was generally poor with a mean of 10.5 points (SD 0.6). Frequently absent key features included information on the course of disease (6%), presence of substantial geographical variation (7%), and importance of screening for extrapulmonary manifestations (11%). HONCode scores were higher in videos from academic or governmental sources (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.003), particularly regarding \u201ctransparency of sponsorship\u201d (\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.001). DISCERN and content scores did not differ by video category.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Most YouTube videos present incomplete information reflected in a poor content score, especially regarding screening for extrapulmonary manifestations. Quality was partially sufficient with higher scores in videos from academic or governmental sources, but often missing references and citing specific evidence. Improving patient access to trustworthy and up to date information is needed.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12931-024-02956-2","type":"journal-article","created":{"date-parts":[[2024,9,9]],"date-time":"2024-09-09T11:04:10Z","timestamp":1725879850000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Is YouTube a sufficient source of information on Sarcoidosis?"],"prefix":"10.1186","volume":"25","author":[{"given":"Katharina","family":"Buschulte","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"El-Hadi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philipp","family":"H\u00f6ger","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claudia","family":"Ganter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marlies","family":"Wijsenbeek","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicolas","family":"Kahn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katharina","family":"Kriegsmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gillian C.","family":"Goobie","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christopher J.","family":"Ryerson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Markus","family":"Polke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Franziska","family":"Trudzinski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Kreuter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,9,9]]},"reference":[{"key":"2956_CR1","doi-asserted-by":"publisher","unstructured":"Belperio JA, Shaikh F, Lynch JP 3 et al. rd,. Diagnosis and Treatment of Pulmonary Sarcoidosis: A Review. JAMA. 2022;327(9):856\u2013867. https:\/\/doi.org\/10.1001\/jama.2022.1570. PMID: 35230389.","DOI":"10.1001\/jama.2022.1570"},{"issue":"8","key":"2956_CR2","doi-asserted-by":"publisher","first-page":"e26","DOI":"10.1164\/rccm.202002-0251ST","volume":"201","author":"ED Crouser","year":"2020","unstructured":"Crouser ED, Maier LA, Wilson KC, et al. Diagnosis and detection of Sarcoidosis. An official American thoracic Society Clinical Practice Guideline. Am J Respir Crit Care Med. 2020;201(8):e26\u201351. https:\/\/doi.org\/10.1164\/rccm.202002-0251ST.","journal-title":"Am J Respir Crit Care Med"},{"key":"2956_CR3","doi-asserted-by":"publisher","unstructured":"Patel DC, Valeyre D. Advanced pulmonary sarcoidosis. Curr Opin Pulm Med. 2020;26(5):574\u2013581. https:\/\/doi.org\/10.1097\/MCP.0000000000000705. 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