{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T17:11:33Z","timestamp":1789665093617,"version":"4.0.1"},"reference-count":83,"publisher":"Springer Science and Business Media LLC","issue":"1","funder":[{"name":"European Organisation for Research and Treatment of Cancer (BE) Quality of Life Group","award":["(Survivorship 001\/ 2008)"],"award-info":[{"award-number":["(Survivorship 001\/ 2008)"]}]},{"name":"Fonds Cancer"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Health Qual Life Outcomes"],"published-print":{"date-parts":[[2017,1]]},"DOI":"10.1186\/s12955-017-0670-4","type":"journal-article","created":{"date-parts":[[2017,5,11]],"date-time":"2017-05-11T10:24:15Z","timestamp":1494498255000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":22,"title":["International evaluation of the psychometrics of health-related quality of life questionnaires for use among long-term survivors of testicular and prostate cancer"],"prefix":"10.1186","volume":"15","author":[{"name":"for the European Organisation for Research and Treatment of Cancer Quality of Life Group","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke","family":"van Leeuwen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Genito-Urinary Cancers Group and Radiation Oncology Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"and the NCRN Testis Clinical Studies Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacobien M.","family":"Kieffer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fabio","family":"Efficace","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sophie D.","family":"Foss\u00e5","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michel","family":"Bolla","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laurence","family":"Collette","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marc","family":"Colombel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ugo","family":"De Giorgi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bernhard","family":"Holzner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lonneke V.","family":"van de Poll-Franse","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hendrik","family":"van Poppel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeff","family":"White","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ronald","family":"de Wit","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Osanto","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neil K.","family":"Aaronson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2017,5,11]]},"reference":[{"key":"670_CR1","doi-asserted-by":"crossref","first-page":"773","DOI":"10.1016\/S1470-2045(07)70245-0","volume":"8","author":"F Berrino","year":"2007","unstructured":"Berrino F, De Angelis R, Sant M, Rosso S, Bielska-Lasota M, Coebergh JW, Santaquilani M. Survival for eight major cancers and all cancers combined for European adults diagnosed in 1995\u201399: results of the EUROCARE-4 study. Lancet Oncol. 2007;8:773\u201383.","journal-title":"Lancet Oncol"},{"key":"670_CR2","doi-asserted-by":"crossref","first-page":"691","DOI":"10.1002\/pon.1208","volume":"16","author":"JR Bloom","year":"2007","unstructured":"Bloom JR, Petersen DM, Kang SH. Multi-dimensional quality of life among long-term (5+ years) adult cancer survivors. Psychooncology. 2007;16:691\u2013706.","journal-title":"Psychooncology"},{"key":"670_CR3","doi-asserted-by":"crossref","first-page":"307","DOI":"10.1002\/ijc.20713","volume":"114","author":"C Nord","year":"2005","unstructured":"Nord C, Mykletun A, Thorsen L, Bjor\u00f8 T, Foss\u00e5 SD. Self-reported health and use of health care services in long-term cancer survivors. Int J Cancer. 2005;114:307\u201316.","journal-title":"Int J Cancer"},{"key":"670_CR4","doi-asserted-by":"crossref","first-page":"89","DOI":"10.1002\/pon.606","volume":"11","author":"JR Bloom","year":"2002","unstructured":"Bloom JR. Surviving and thriving? Psychooncology. 2002;11:89\u201392.","journal-title":"Psychooncology"},{"key":"670_CR5","doi-asserted-by":"crossref","first-page":"306","DOI":"10.1002\/pon.955","volume":"15","author":"GT Deimling","year":"2006","unstructured":"Deimling GT, Bowman KF, Sterns S, Wagner LJ, Kahana B. Cancer-related health worries and psychological distress among older adult, long-term cancer survivors. Psychooncology. 2006;15:306\u201320.","journal-title":"Psychooncology"},{"key":"670_CR6","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1200\/JCO.2002.20.1.73","volume":"20","author":"F Joly","year":"2002","unstructured":"Joly F, H\u00e9ron JF, Kalusinski L, Bottet P, Brune D, Allouache N, Mac\u00e9-Lesec\u2019h J, Cou\u00ebtte JE, P\u00e9ny J, Henry-Amar M. Quality of life in long-term survivors of testicular cancer: a population-based case-control study. J Clin Oncol. 2002;20:73\u201380.","journal-title":"J Clin Oncol"},{"key":"670_CR7","doi-asserted-by":"crossref","first-page":"1692","DOI":"10.1200\/JCO.2010.32.4590","volume":"29","author":"RA Nout","year":"2011","unstructured":"Nout RA, van de Poll-Franse LV, Lybeert ML, Warlam-Rodenhuis CC, Jobsen JJ, Mens JW, Lutgens LC, Pras B, Van Putten WL, Creutzberg CL. Long-term outcome and quality of life of patients with endometrial carcinoma treated with or without pelvic radiotherapy in the post operative radiation therapy in endometrial carcinoma 1 (PORTEC-1) trial. J Clin Oncol. 2011;29:1692\u2013700.","journal-title":"J Clin Oncol"},{"key":"670_CR8","doi-asserted-by":"crossref","first-page":"407","DOI":"10.1002\/pon.963","volume":"15","author":"BJ Zebrack","year":"2006","unstructured":"Zebrack BJ, Ganz PA, Bernaards CA, Petersen L, Abraham L. Assessing the impact of cancer: development of a new instrument for long-term survivors. Psychooncology. 2006;15:407\u201321.","journal-title":"Psychooncology"},{"key":"670_CR9","doi-asserted-by":"crossref","first-page":"2219","DOI":"10.1007\/s11136-015-0958-y","volume":"24","author":"E O\u2019Leary","year":"2015","unstructured":"O\u2019Leary E, Drummond FJ, Gavin A, Kinnear H, Sharp L. Psychometric evaluation of the EORTC QLQ-PR25 questionnaire in assessing health-related quality of life in prostate cancer survivors: a curate\u2019s egg. Qual Life Res. 2015;24:2219\u201330.","journal-title":"Qual Life Res"},{"key":"670_CR10","doi-asserted-by":"crossref","first-page":"1629","DOI":"10.1200\/JCO.2001.19.6.1629","volume":"19","author":"R Wit De","year":"2001","unstructured":"De Wit R, Roberts JT, Wilkinson PM, De Mulder PH, Mead GM, Foss SD, Cook P, De Prijck L, Stenning S, Collette L. Equivalence of three or four cycles of bleomycin, etoposide, and cisplatin chemotherapy and of a 3- or 5-day schedule in good-prognosis germ cell cancer: a randomized study of the European Organization for Research and Treatment of Cancer Genitourinary Tract Cancer Cooperative Group and the Medical Research Council. J Clin Oncol. 2001;19:1629\u201340.","journal-title":"J Clin Oncol"},{"key":"670_CR11","doi-asserted-by":"crossref","first-page":"572","DOI":"10.1016\/S0140-6736(05)67101-2","volume":"366","author":"M Bolla","year":"2005","unstructured":"Bolla M, Van Poppel H, Collette L, Van Cangh P, Vekemans K, Da Pozzo L, De Reijke TM, Verbaeys A, Bosset JF, Van Velthoven R, et al. Postoperative radiotherapy after radical prostatectomy: a randomised controlled trial (EORTC trial 22911). Lancet. 2005;366:572\u20138.","journal-title":"Lancet"},{"key":"670_CR12","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1007\/978-0-387-68265-5_9","volume-title":"Cancer survivorship: today and tomorrow","author":"SD Foss\u00e5","year":"2007","unstructured":"Foss\u00e5 SD, Travis LB, Dahl AA. Medical and psychosocial issues in testicular cancer survivors. In: Ganz PA, editor. Cancer survivorship: today and tomorrow. New York: Springer; 2007. p. 101\u201313."},{"key":"670_CR13","doi-asserted-by":"crossref","first-page":"1206","DOI":"10.1016\/S0140-6736(14)61396-9","volume":"385","author":"M Quaresma","year":"2015","unstructured":"Quaresma M, Coleman MP, Rachet B. 40-year trends in an index of survival for all cancers combined and survival adjusted for age and sex for each cancer in England and Wales, 1971\u20132011: a population-based study. Lancet. 2015;385:1206\u201318.","journal-title":"Lancet"},{"key":"670_CR14","volume-title":"GLOBOCAN 2012 v1.0, Cancer Incidence and Mortality Worldwide: IARC CancerBase No. 11 [internet]","author":"J Ferlay","year":"2013","unstructured":"Ferlay J, Soerjomataram I, Ervik M, Dikshit R, Eser S, Mathers C, Rebelo M, Parkin DM, Forman D, Bray F. GLOBOCAN 2012 v1.0, Cancer Incidence and Mortality Worldwide: IARC CancerBase No. 11 [internet]. Lion: International Agency for Research on Cancer; 2013."},{"key":"670_CR15","volume-title":"What are the key statistics about prostate cancer?","author":"AC Society","year":"2008","unstructured":"Society AC. What are the key statistics about prostate cancer? 2008."},{"key":"670_CR16","doi-asserted-by":"crossref","first-page":"480","DOI":"10.1080\/02841860601166958","volume":"46","author":"M Bryd\u00f8y","year":"2007","unstructured":"Bryd\u00f8y M, Foss\u00e5 SD, Dahl O, Bjor\u00f8 T. Gonadal dysfunction and fertility problems in cancer survivors. Acta Oncol. 2007;46:480\u20139.","journal-title":"Acta Oncol"},{"key":"670_CR17","doi-asserted-by":"crossref","first-page":"193","DOI":"10.1016\/j.urolonc.2005.03.004","volume":"23","author":"AA Dahl","year":"2005","unstructured":"Dahl AA, Mykletun A, Foss\u00e5 SD. Quality of life in survivors of testicular cancer. Urol Oncol. 2005;23:193\u2013200.","journal-title":"Urol Oncol"},{"key":"670_CR18","doi-asserted-by":"crossref","first-page":"2202","DOI":"10.1038\/sj.bjc.6601421","volume":"89","author":"MJ Fegg","year":"2003","unstructured":"Fegg MJ, Gerl A, Vollmer TC, Gruber U, Jost C, Meiler S, Hiddemann W. Subjective quality of life and sexual functioning after germ-cell tumour therapy. Br J Cancer. 2003;89:2202\u20136.","journal-title":"Br J Cancer"},{"key":"670_CR19","doi-asserted-by":"crossref","first-page":"503","DOI":"10.1016\/S0094-0143(05)70040-9","volume":"25","author":"G Grossfeld","year":"1998","unstructured":"Grossfeld G, Small E. Long-term side effects of treatment for testis cancer. Urol Clin North Am. 1998;25:503\u201315.","journal-title":"Urol Clin North Am"},{"key":"670_CR20","doi-asserted-by":"crossref","first-page":"200","DOI":"10.1038\/sj.bjc.6602677","volume":"93","author":"RA Huddart","year":"2005","unstructured":"Huddart RA, Norman A, Moynihan C, Horwich A, Parker C, Nicholls E, Dearnaley DP. Fertility, gonadal and sexual function in survivors of testicular cancer. Br J Cancer. 2005;93:200\u20137.","journal-title":"Br J Cancer"},{"key":"670_CR21","doi-asserted-by":"crossref","first-page":"529","DOI":"10.1111\/j.1538-7836.2006.01804.x","volume":"4","author":"JW Blom","year":"2006","unstructured":"Blom JW, Vanderschoot JP, Oostindier MJ, Osanto S, Van der Meer FJ, Rosendaal FR. Incidence of venous thrombosis in a large cohort of 66,329 cancer patients: results of a record linkage study. J Thromb Haemost. 2006;4:529\u201335.","journal-title":"J Thromb Haemost"},{"key":"670_CR22","first-page":"1193","volume":"13","author":"C Stava","year":"2005","unstructured":"Stava C, Beck M, Schultz PN, Vassilopoulou-Sellin R. Hearing loss among cancer survivors. Oncol Rep. 2005;13:1193\u20139.","journal-title":"Oncol Rep"},{"key":"670_CR23","doi-asserted-by":"crossref","first-page":"2779","DOI":"10.1200\/JCO.2008.18.5181","volume":"27","author":"HS Haugnes","year":"2009","unstructured":"Haugnes HS, Aass N, Fossa SD, Dahl O, Brydoy M, Aasebo U, Wilsgaard T, Bremnes RM. Pulmonary function in long-term survivors of testicular cancer. J Clin Oncol. 2009;27:2779\u201386.","journal-title":"J Clin Oncol"},{"key":"670_CR24","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1016\/j.pec.2005.12.009","volume":"64","author":"J Fleer","year":"2006","unstructured":"Fleer J, Sleijfer D, Hoekstra H, Tuinman M, Klip E, Hoekstra-Weebers J. Objective and subjective predictors of cancer-related stress symptoms in testicular cancer survivors. Patient Educ Couns. 2006;64:142\u201350.","journal-title":"Patient Educ Couns"},{"key":"670_CR25","doi-asserted-by":"crossref","first-page":"1107","DOI":"10.1200\/JCO.2003.02.075","volume":"21","author":"SD Foss\u00e5","year":"2003","unstructured":"Foss\u00e5 SD, De Wit R, Roberts JT, Wilkinson PM, De Mulder PH, Mead GM, Cook P, De Prijck L, Stenning S, Aaronson NK, et al. Quality of life in good prognosis patients with metastatic germ cell cancer: a prospective study of the European Organization for Research and Treatment of Cancer Genitourinary Group\/Medical Research Council Testicular Cancer Study Group (30941\/TE20). J Clin Oncol. 2003;21:1107\u201318.","journal-title":"J Clin Oncol"},{"key":"670_CR26","doi-asserted-by":"crossref","first-page":"1249","DOI":"10.1200\/JCO.2003.08.163","volume":"21","author":"SD Foss\u00e5","year":"2003","unstructured":"Foss\u00e5 SD, Dahl AA, Loge JH. Fatigue, anxiety, and depression in long-term survivors of testicular cancer. J Clin Oncol. 2003;21:1249\u201354.","journal-title":"J Clin Oncol"},{"key":"670_CR27","doi-asserted-by":"crossref","first-page":"580","DOI":"10.1002\/pon.1437","volume":"18","author":"T Skaali","year":"2009","unstructured":"Skaali T, Foss\u00e5 SD, Bremnes R, Dahl O, Haaland CF, Hauge ER, Klepp ON, Oldenburg J, Wist E, Dahl AA. Fear of recurrence in long-term testicular cancer survivors. Psychooncology. 2009;18:580\u20138.","journal-title":"Psychooncology"},{"key":"670_CR28","doi-asserted-by":"crossref","first-page":"476","DOI":"10.1007\/s00520-004-0646-x","volume":"12","author":"J Fleer","year":"2004","unstructured":"Fleer J, Hoekstra HJ, Sleijfer DT, Hoekstra-Weebers JE. Quality of life of survivors of testicular germ cell cancer: a review of the literature. Support Care Cancer. 2004;12:476\u201386.","journal-title":"Support Care Cancer"},{"key":"670_CR29","doi-asserted-by":"crossref","first-page":"587","DOI":"10.1016\/S0022-5347(05)65989-7","volume":"166","author":"MS Litwin","year":"2001","unstructured":"Litwin MS, Melmed GY, Nakazon T. Life after radical prostatectomy: a longitudinal study. J Urol. 2001;166:587\u201392.","journal-title":"J Urol"},{"key":"670_CR30","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1093\/gerona\/58.1.M82","volume":"58","author":"M Hewitt","year":"2003","unstructured":"Hewitt M, Rowland JH, Yancik R. Cancer survivors in the United States: age, health, and disability. J Gerontol A Biol Sci Med Sci. 2003;58:82\u201391.","journal-title":"J Gerontol A Biol Sci Med Sci"},{"key":"670_CR31","doi-asserted-by":"crossref","first-page":"1250","DOI":"10.1056\/NEJMoa074311","volume":"358","author":"MG Sanda","year":"2008","unstructured":"Sanda MG, Dunn RL, Michalski J, Sandler HM, Northouse L, Hembroff L, Lin X, Greenfield TK, Litwin MS, Saigal CS, et al. Quality of life and satisfaction with outcome among prostate-cancer survivors. N Engl J Med. 2008;358:1250\u201361.","journal-title":"N Engl J Med"},{"key":"670_CR32","doi-asserted-by":"crossref","first-page":"674","DOI":"10.1002\/cncr.11085","volume":"97","author":"F Baker","year":"2003","unstructured":"Baker F, Haffer SC, Denniston M. Health-related quality of life of cancer and noncancer patients in Medicare managed care. Cancer. 2003;97:674\u201381.","journal-title":"Cancer"},{"key":"670_CR33","doi-asserted-by":"crossref","first-page":"559","DOI":"10.1016\/j.urology.2005.09.006","volume":"67","author":"SA Arredondo","year":"2006","unstructured":"Arredondo SA, Elkin EP, Marr PL, Latini DM, DuChane J, Litwin MS, Carroll PR. Impact of comorbidity on health-related quality of life in men undergoing radical prostatectomy: data from CaPSURE. Urology. 2006;67:559\u201365.","journal-title":"Urology"},{"key":"670_CR34","doi-asserted-by":"crossref","first-page":"1992","DOI":"10.1016\/j.juro.2007.01.138","volume":"177","author":"SD Ramsey","year":"2007","unstructured":"Ramsey SD, Zeliadt SB, Hall IJ, Ekwueme DU, Penson DF. On the importance of race, socioeconomic status and comorbidity when evaluating quality of life in men with prostate cancer. J Urol. 2007;177:1992\u20139.","journal-title":"J Urol"},{"key":"670_CR35","doi-asserted-by":"crossref","first-page":"1362","DOI":"10.1016\/j.juro.2007.11.086","volume":"179","author":"LV Poll-Franse Van de","year":"2008","unstructured":"Van de Poll-Franse LV, Kwan L, Reiter RE, Lee SP, Litwin MS. The influence of cardiovascular disease on health related quality of life in men with prostate cancer: a 4-year followup study. J Urol. 2008;179:1362\u20137.","journal-title":"J Urol"},{"key":"670_CR36","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1016\/j.ijrobp.2008.04.004","volume":"73","author":"F Mols","year":"2009","unstructured":"Mols F, Korfage IJ, Vingerhoets AJ, Kil PJ, Coebergh JW, Essink-Bot ML, Van de Poll-Franse LV. Bowel, urinary, and sexual problems among long-term prostate cancer survivors: a population-based study. Int J Radiat Oncol Biol Phys. 2009;73:30\u20138.","journal-title":"Int J Radiat Oncol Biol Phys"},{"key":"670_CR37","doi-asserted-by":"crossref","first-page":"1653","DOI":"10.1097\/01.ju.0000061964.49961.55","volume":"169","author":"DF Penson","year":"2003","unstructured":"Penson DF, Litwin MS, Aaronson NK. Health related quality of life in men with prostate cancer. J Urol. 2003;169:1653\u201361.","journal-title":"J Urol"},{"key":"670_CR38","doi-asserted-by":"crossref","first-page":"2128","DOI":"10.1002\/cncr.21865","volume":"106","author":"TO Blank","year":"2006","unstructured":"Blank TO, Bellizzi KM. After prostate cancer: predictors of well-being among long-term prostate cancer survivors. Cancer. 2006;106:2128\u201335.","journal-title":"Cancer"},{"key":"670_CR39","doi-asserted-by":"crossref","first-page":"622","DOI":"10.1016\/0090-4295(93)90524-E","volume":"42","author":"F Fowler","year":"1993","unstructured":"Fowler F, Barry M, Lu-yao G, Roman A, Wasson J, Wennberg J. Patient-re ported complications and follow-up treatment after radical prostatectomy : The national medicare experience: 1988\u20131990 (updated June 1993). Urology. 1993;42:622\u20138.","journal-title":"Urology"},{"key":"670_CR40","doi-asserted-by":"crossref","first-page":"582","DOI":"10.1007\/s00066-004-1254-x","volume":"180","author":"RM Galalae","year":"2004","unstructured":"Galalae RM, Loch T, Riemer B, Rzehak P, Kuchler T, Kimmig B, Kovacs G. Health-related quality of life measurement in long-term survivors and outcome following radical radiotherapy for localized prostate cancer. Strahlenther Onkol. 2004;180:582\u20139.","journal-title":"Strahlenther Onkol"},{"key":"670_CR41","doi-asserted-by":"crossref","first-page":"1977","DOI":"10.1002\/(SICI)1097-0142(19970515)79:10<1977::AID-CNCR20>3.0.CO;2-R","volume":"79","author":"CL Shrader-Bogen","year":"1997","unstructured":"Shrader-Bogen CL, Kjellberg JL, McPherson CP, Murray CL. Quality of life and treatment outcomes: prostate carcinoma patients\u2019 perspectives after prostatectomy or radiation therapy. Cancer. 1997;79:1977\u201386.","journal-title":"Cancer"},{"key":"670_CR42","doi-asserted-by":"crossref","first-page":"490","DOI":"10.1080\/02841860701218642","volume":"46","author":"LH Aksnes","year":"2007","unstructured":"Aksnes LH, Bruland \u00d8S. Some musculo-skeletal sequelae in cancer survivors. Acta Oncol. 2007;46:490\u20136.","journal-title":"Acta Oncol"},{"key":"670_CR43","doi-asserted-by":"crossref","unstructured":"Van Leeuwen M, Efficace F, Fossa SD, Bolla M, De Giorgi U, de Wit R, Holzner B, van de Poll-Franse LV, van Poppel H, White J, et al. Recruiting long-term survivors of European Organisation for Research and Treatment of Cancer phase III clinical trials into quality of life studies: Challenges and opportunities. Eur J Cancer. 2014;50:1957\u201363.","DOI":"10.1016\/j.ejca.2014.04.018"},{"key":"670_CR44","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1097\/00005650-199303000-00006","volume":"31","author":"CA McHorney","year":"1993","unstructured":"McHorney CA, Ware Jr JE, Raczek AE. The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993;31:247\u201363.","journal-title":"Med Care"},{"key":"670_CR45","doi-asserted-by":"crossref","first-page":"365","DOI":"10.1093\/jnci\/85.5.365","volume":"85","author":"NK Aaronson","year":"1993","unstructured":"Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, Filiberti A, Flechtner H, Fleishman SB, De Haes JC. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365\u201376.","journal-title":"J Natl Cancer Inst"},{"key":"670_CR46","doi-asserted-by":"crossref","first-page":"2418","DOI":"10.1016\/j.ejca.2008.07.030","volume":"44","author":"G Andel Van","year":"2008","unstructured":"Van Andel G, Bottomley A, Foss\u00e5 SD, Efficace F, Coens C, Guerif S, Kynaston H, Gontero P, Thalmann G, Akdas A, et al. An international field study of the EORTC QLQ-PR25: a questionnaire for assessing the health-related quality of life of patients with prostate cancer. Eur J Cancer. 2008;44:2418\u201324.","journal-title":"Eur J Cancer"},{"key":"670_CR47","doi-asserted-by":"crossref","first-page":"369","DOI":"10.1007\/s11136-012-0147-1","volume":"22","author":"B Holzner","year":"2013","unstructured":"Holzner B, Efficace F, Basso U, Johnson CD, Aaronson NK, Arraras JI, Smith AB, Chow E, Oberguggenberger AS, Bottomley A, et al. Cross-cultural development of an EORTC questionnaire to assess health-related quality of life in patients with testicular cancer: the EORTC QLQ-TC26. Qual Life Res. 2013;22:369\u201378.","journal-title":"Qual Life Res"},{"key":"670_CR48","doi-asserted-by":"crossref","first-page":"1530","DOI":"10.1093\/jnci\/djn340","volume":"100","author":"CM Crespi","year":"2008","unstructured":"Crespi CM, Ganz PA, Petersen L, Castillo A, Caan B. Refinement and psychometric evaluation of the impact of cancer scale. J Natl Cancer Inst. 2008;100:1530\u201341.","journal-title":"J Natl Cancer Inst"},{"key":"670_CR49","doi-asserted-by":"crossref","first-page":"871","DOI":"10.1002\/ijc.22739","volume":"121","author":"F Mols","year":"2007","unstructured":"Mols F, Helfenrath KA, Vingerhoets AJ, Coebergh JW, Van de Poll-Franse LV. Increased health care utilization among long-term cancer survivors compared to the average Dutch population: a population-based study. Int J Cancer. 2007;121:871\u20137.","journal-title":"Int J Cancer"},{"key":"670_CR50","volume-title":"User\u2019s guide for the QPSNordic-ADW Nordic questionnaire for monitoring the age diverse workforce","author":"K Pahkin","year":"2008","unstructured":"Pahkin K, Bj\u00f6rklund C, Mykletun RJ, Furunes T, Gard G, Lindstr\u00f6m K. User\u2019s guide for the QPSNordic-ADW Nordic questionnaire for monitoring the age diverse workforce. Copenhagen: Nordic Council of Ministers; 2008."},{"key":"670_CR51","volume-title":"EORTC quality of life group translation procedure","author":"L Dewolf","year":"2009","unstructured":"Dewolf L, Koller M, Velikova G, Johnson C, Scott N, Bottomley A. EORTC quality of life group translation procedure. Brussels: EORTC Quality of Life Group; 2009."},{"key":"670_CR52","volume-title":"EORTC QLQ-C30 Scoring Manual","author":"PM Fayers","year":"2001","unstructured":"Fayers PM, Aaronson NK, Bjordal K, Groenvold M, Curran D, Bottomley A, on behalf of the EORTC QLG. EORTC QLQ-C30 Scoring Manual. 3rd ed. Brussels: EORTC; 2001.","edition":"3"},{"key":"670_CR53","volume-title":"SF-36 health survey manual and interpretation guide","author":"JE Ware","year":"1994","unstructured":"Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 health survey manual and interpretation guide. Boston: New England Medical Center, The Health Institute; 1994."},{"key":"670_CR54","doi-asserted-by":"crossref","first-page":"S15","DOI":"10.1053\/apmr.2000.20619","volume":"81","author":"EM Andresen","year":"2000","unstructured":"Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil. 2000;81:S15\u201320.","journal-title":"Arch Phys Med Rehabil"},{"key":"670_CR55","doi-asserted-by":"crossref","unstructured":"Cronbach CJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16:297.","DOI":"10.1007\/BF02310555"},{"key":"670_CR56","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1037\/0033-2909.112.1.155","volume":"112","author":"J Cohen","year":"1992","unstructured":"Cohen J. A power primer. Psychol Bull. 1992;112:155\u20139.","journal-title":"Psychol Bull"},{"key":"670_CR57","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1093\/intqhc\/10.4.311","volume":"10","author":"J Sitzia","year":"1998","unstructured":"Sitzia J, Wood N. Response rate in patient satisfaction research: an analysis of 210 published studies. Int J Qual Health Care. 1998;10:311\u20137.","journal-title":"Int J Qual Health Care"},{"key":"670_CR58","doi-asserted-by":"crossref","first-page":"e79179","DOI":"10.1371\/journal.pone.0079179","volume":"8","author":"NA Koloski","year":"2013","unstructured":"Koloski NA, Jones M, Eslick G, Talley NJ. Predictors of response rates to a long term follow-up mail out survey. PLoS One. 2013;8:e79179.","journal-title":"PLoS One"},{"key":"670_CR59","first-page":"147","volume":"15","author":"E Wood","year":"2006","unstructured":"Wood E, Nosko A, Desmarais S, Ross C, Irvine C. Online and traditional paper-and-pencil survey administration: examining experimenter presence, sensitive material and long surveys. Can J Hum Sex. 2006;15:147\u201355.","journal-title":"Can J Hum Sex"},{"key":"670_CR60","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1097\/00005650-199401000-00004","volume":"32","author":"CA McHorney","year":"1994","unstructured":"McHorney CA, Ware Jr JE, Lu JF, Sherbourne CD. The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care. 1994;32:40\u201366.","journal-title":"Med Care"},{"key":"670_CR61","doi-asserted-by":"crossref","first-page":"667","DOI":"10.1016\/j.ejca.2010.11.004","volume":"47","author":"LV Poll-Franse Van de","year":"2011","unstructured":"Van de Poll-Franse LV, Mols F, Gundy CM, Creutzberg CL, Nout RA, Verdonck-de Leeuw IM, Taphoorn MJ, Aaronson NK. Normative data for the EORTC QLQ-C30 and EORTC-sexuality items in the general Dutch population. Eur J Cancer. 2011;47:667\u201375.","journal-title":"Eur J Cancer"},{"key":"670_CR62","doi-asserted-by":"crossref","first-page":"1345","DOI":"10.1016\/S0959-8049(00)00447-0","volume":"37","author":"R Schwarz","year":"2001","unstructured":"Schwarz R, Hinz A. Reference data for the quality of life questionnaire EORTC QLQ-C30 in the general German population. Eur J Cancer. 2001;37:1345\u201351.","journal-title":"Eur J Cancer"},{"key":"670_CR63","doi-asserted-by":"crossref","first-page":"1149","DOI":"10.1016\/S0895-4356(98)00106-1","volume":"51","author":"B Gandek","year":"1998","unstructured":"Gandek B, Ware Jr JE, Aaronson NK, Alonso J, Apolone G, Bjorner J, Brazier J, Bullinger M, Fukuhara S, Kaasa S, et al. Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol. 1998;51:1149\u201358.","journal-title":"J Clin Epidemiol"},{"key":"670_CR64","doi-asserted-by":"crossref","first-page":"3355","DOI":"10.1007\/s00520-013-1909-1","volume":"21","author":"B Muzzatti","year":"2013","unstructured":"Muzzatti B, Flaiban C, Romito F, Cormio C, Annunziata MA. The Impact of Cancer Scale (IOC) in Italian long-term cancer survivors: adaptation and psychometric evaluation. Support Care Cancer. 2013;21:3355\u201362.","journal-title":"Support Care Cancer"},{"key":"670_CR65","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1186\/s12955-015-0301-x","volume":"13","author":"M Blanchin","year":"2015","unstructured":"Blanchin M, Dauchy S, Cano A, Bredart A, Aaronson NK, Hardouin JB. Validation of the French translation-adaptation of the impact of cancer questionnaire version 2 (IOCv2) in a breast cancer survivor population. Health Qual Life Outcomes. 2015;13:110.","journal-title":"Health Qual Life Outcomes"},{"key":"670_CR66","doi-asserted-by":"crossref","first-page":"1258","DOI":"10.1002\/pon.3131","volume":"22","author":"S Oerlemans","year":"2013","unstructured":"Oerlemans S, Smith SK, Crespi CM, Zimmerman S, van de Poll-Franse LV, Ganz PA. Assessing the impact of cancer among Dutch non-Hodgkin lymphoma survivors compared with their American counterparts: a cross-national study. Psychooncology. 2013;22:1258\u201365.","journal-title":"Psychooncology"},{"key":"670_CR67","doi-asserted-by":"crossref","first-page":"60","DOI":"10.1097\/00000446-200603003-00021","volume":"106","author":"MT Knobf","year":"2006","unstructured":"Knobf MT. Reproductive and hormonal sequelae of chemotherapy in women. Premature menopause and impaired fertility can result, effects that are especially disturbing to young women. Am J Nurs. 2006;106:60\u20135.","journal-title":"Am J Nurs"},{"key":"670_CR68","doi-asserted-by":"crossref","first-page":"1849","DOI":"10.1200\/JCO.2004.04.173","volume":"22","author":"CH Kroenke","year":"2004","unstructured":"Kroenke CH, Rosner B, Chen WY, Kawachi I, Colditz GA, Holmes MD. Functional impact of breast cancer by age at diagnosis. J Clin Oncol. 2004;22:1849\u201356.","journal-title":"J Clin Oncol"},{"key":"670_CR69","doi-asserted-by":"crossref","first-page":"1768","DOI":"10.1002\/(SICI)1097-0142(19991101)86:9<1768::AID-CNCR19>3.0.CO;2-O","volume":"86","author":"LB Wenzel","year":"1999","unstructured":"Wenzel LB, Fairclough DL, Brady MJ, Cella D, Garrett KM, Kluhsman BC, Crane LA, Marcus AC. Age-related differences in the quality of life of breast carcinoma patients after treatment. Cancer. 1999;86:1768\u201374.","journal-title":"Cancer"},{"key":"670_CR70","doi-asserted-by":"crossref","first-page":"4184","DOI":"10.1200\/JCO.2003.04.196","volume":"21","author":"PA Ganz","year":"2003","unstructured":"Ganz PA, Greendale GA, Petersen L, Kahn B, Bower JE. Breast cancer in younger women: reproductive and late health effects of treatment. J Clin Oncol. 2003;21:4184\u201393.","journal-title":"J Clin Oncol"},{"key":"670_CR71","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1007\/s11764-014-0419-6","volume":"9","author":"FJ Drummond","year":"2015","unstructured":"Drummond FJ, Kinnear H, O\u2019Leary E, Donnelly, Gavin A, Sharp L. Long-term health-related quality of life of prostate cancer survivors varies by primary treatment. Results from the PiCTure (Prostate Cancer Treatment, your experience) study. J Cancer Surviv. 2015;9:361\u201372.","journal-title":"J Cancer Surviv"},{"key":"670_CR72","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1001\/archdermatol.2010.433","volume":"147","author":"C Holterhues","year":"2011","unstructured":"Holterhues C, Cornish D, Van de Poll-Franse LV, Krekels G, Koedijk F, Kuijpers D, Coebergh JW, Nijsten T. Impact of melanoma on patients\u2019 lives among 562 survivors: a Dutch population-based study. Arch Dermatol. 2011;147:177\u201385.","journal-title":"Arch Dermatol"},{"key":"670_CR73","doi-asserted-by":"crossref","first-page":"1459","DOI":"10.1007\/s11136-011-0053-y","volume":"21","author":"AA Dahl","year":"2012","unstructured":"Dahl AA, Gudbergsson SB, Dorum A, Fossa SD, Liavaag AH, Sorebo O. \u201cThe impact of cancer scale\u201d version 1: psychometric testing of the Norwegian translation in a heterogeneous sample of cancer survivors. Qual Life Res. 2012;21:1459\u201370.","journal-title":"Qual Life Res"},{"key":"670_CR74","doi-asserted-by":"crossref","first-page":"790","DOI":"10.1111\/bjh.12698","volume":"164","author":"A Korszun","year":"2014","unstructured":"Korszun A, Sarker SJ, Chowdhury K, Clark C, Greaves P, Johnson R, Kingston J, Levitt G, Matthews J, White P, et al. Psychosocial factors associated with impact of cancer in longterm haematological cancer survivors. Br J Haematol. 2014;164:790\u2013803.","journal-title":"Br J Haematol"},{"key":"670_CR75","doi-asserted-by":"crossref","first-page":"1163","DOI":"10.1007\/s00520-008-0407-3","volume":"16","author":"SB Gudbergsson","year":"2008","unstructured":"Gudbergsson SB, Foss\u00e5 SD, Dahl AA. A study of work changes due to cancer in tumor-free primary-treated cancer patients. A NOCWO study. Support Care Cancer. 2008;16:1163\u201371.","journal-title":"Support Care Cancer"},{"key":"670_CR76","doi-asserted-by":"crossref","first-page":"138","DOI":"10.1002\/pon.1204","volume":"17","author":"JF Steiner","year":"2008","unstructured":"Steiner JF, Cavender TA, Nowels CT, Beaty BL, Bradley CJ, Fairclough DL, Main DS. The impact of physical and psychosocial factors on work characteristics after cancer. Psychooncology. 2008;17:138\u201347.","journal-title":"Psychooncology"},{"key":"670_CR77","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1007\/s11764-008-0059-9","volume":"2","author":"SB Gudbergsson","year":"2008","unstructured":"Gudbergsson SB, Foss\u00e5 SD, Dahl AA. Is cancer survivorship associated with reduced work engagement? A NOCWO Study. J Cancer Surviv. 2008;2:159\u201368.","journal-title":"J Cancer Surviv"},{"key":"670_CR78","first-page":"S53","volume":"23","author":"JF Fries","year":"2005","unstructured":"Fries JF, Bruce B, Cella D. The promise of PROMIS: using item response theory to improve assessment of patient-reported outcomes. Clin Exp Rheumatol. 2005;23:S53\u20137.","journal-title":"Clin Exp Rheumatol"},{"key":"670_CR79","doi-asserted-by":"crossref","first-page":"479","DOI":"10.1007\/s11136-010-9770-x","volume":"20","author":"MA Petersen","year":"2011","unstructured":"Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, et al. Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 physical functioning dimension. Qual Life Res. 2011;20:479\u201390.","journal-title":"Qual Life Res"},{"key":"670_CR80","doi-asserted-by":"crossref","first-page":"1352","DOI":"10.1016\/j.ejca.2010.02.011","volume":"46","author":"MA Petersen","year":"2010","unstructured":"Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, et al. Development of computerised adaptive testing (CAT) for the EORTC QLQ-C30 dimensions - general approach and initial results for physical functioning. Eur J Cancer. 2010;46:1352\u20138.","journal-title":"Eur J Cancer"},{"key":"670_CR81","doi-asserted-by":"crossref","first-page":"2452","DOI":"10.1002\/cncr.21907","volume":"106","author":"LS Elting","year":"2006","unstructured":"Elting LS, Cooksley C, Bekele BN, Frumovitz M, Avritscher EBC, Sun C, Bodurka DC. Generalizability of cancer clinical trial results. Cancer. 2006;106:2452\u20138.","journal-title":"Cancer"},{"key":"670_CR82","doi-asserted-by":"crossref","first-page":"dju002","DOI":"10.1093\/jnci\/dju002","volume":"106","author":"JM Unger","year":"2014","unstructured":"Unger JM, Barlow WE, Martin DP, Ramsey SD, Leblanc M, Etzioni R, Hershman DL. Comparison of survival outcomes among cancer patients treated in and out of clinical trials. J Natl Cancer Inst. 2014;106:dju002.","journal-title":"J Natl Cancer Inst"},{"key":"670_CR83","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1016\/S0895-4356(00)00305-X","volume":"54","author":"DA Braunholtz","year":"2001","unstructured":"Braunholtz DA, Edwards SJL, Lilford RJ. Are randomized clinical trials good for us (in the short term)? Evidence for a \u201ctrial effect\u201d. J Clin Epidemiol. 2001;54:217\u201324.","journal-title":"J Clin Epidemiol"}],"container-title":["Health and Quality of Life Outcomes"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12955-017-0670-4.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,5,11]],"date-time":"2017-05-11T10:24:36Z","timestamp":1494498276000},"score":1,"resource":{"primary":{"URL":"http:\/\/hqlo.biomedcentral.com\/articles\/10.1186\/s12955-017-0670-4"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,1]]},"references-count":83,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2017,1]]}},"alternative-id":["670"],"URL":"https:\/\/doi.org\/10.1186\/s12955-017-0670-4","relation":{},"ISSN":["1477-7525"],"issn-type":[{"value":"1477-7525","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,1]]},"article-number":"97"}}