{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T05:06:20Z","timestamp":1784091980803,"version":"3.55.0"},"reference-count":60,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T00:00:00Z","timestamp":1778112000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T00:00:00Z","timestamp":1784073600000},"content-version":"vor","delay-in-days":69,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"funder":[{"DOI":"10.13039\/501100001734","name":"Copenhagen University","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100001734","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Health Qual Life Outcomes"],"DOI":"10.1186\/s12955-026-02544-6","type":"journal-article","created":{"date-parts":[[2026,5,12]],"date-time":"2026-05-12T08:05:45Z","timestamp":1778573145000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Validation of the ICECAP-O for assessing wellbeing in people with mild dementia in Denmark"],"prefix":"10.1186","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3849-4563","authenticated-orcid":false,"given":"Emma Kj\u00e6r","family":"Pedersen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2322-8000","authenticated-orcid":false,"given":"Laila","family":"\u00d8ksnebjerg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8128-2294","authenticated-orcid":false,"given":"T. Rune","family":"Nielsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,5,7]]},"reference":[{"issue":"1","key":"2544_CR1","doi-asserted-by":"publisher","first-page":"24","DOI":"10.1192\/apt.7.1.24","volume":"7","author":"CD McCullagh","year":"2001","unstructured":"McCullagh CD, Craig D, McIlroy SP, Passmore AP. Risk factors for dementia [article]. Adv Psychiatr Treat. 2001;7(1):24\u201331. https:\/\/doi.org\/10.1192\/apt.7.1.24.","journal-title":"Adv Psychiatr Treat"},{"key":"2544_CR2","unstructured":"Danish Dementia Research Center. Danish Dementia Research [Internet]. 2023 Jun 26 [cited 2024 Jun 19]. Available from: https:\/\/videnscenterfordemens.dk\/en\/incidence-dementia-denmark."},{"key":"2544_CR3","unstructured":"World Health Organization. Dementia: a public health priority [Internet]. 1st ed. Geneva: World Health Organization; 2012. Available from: https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/hypertension."},{"issue":"4","key":"2544_CR4","doi-asserted-by":"publisher","first-page":"393","DOI":"10.1080\/13607863.2017.1423031","volume":"23","author":"O McDermott","year":"2019","unstructured":"McDermott O, Charlesworth G, Hogervorst E, Stoner C, Moniz-Cook E, Spector A, et al. Psychosocial interventions for people with dementia: a synthesis of systematic reviews [article]. Aging Ment Health. 2019;23(4):393\u2013403. https:\/\/doi.org\/10.1080\/13607863.2017.1423031. PubMed PMID: 29338323.","journal-title":"Aging Ment Health"},{"key":"2544_CR5","doi-asserted-by":"publisher","unstructured":"Dickinson C, Dow J, Gibson G, Hayes L, Robalino S, Robinson L. Psychosocial intervention for carers of people with dementia: What components are most effective and when? A systematic review of systematic reviews [article]. Int Psychogeriatr. 2017;29(1):31\u201343. https:\/\/doi.org\/10.1017\/S1041610216001447. PubMed PMID: 27666669.","DOI":"10.1017\/S1041610216001447"},{"issue":"12","key":"2544_CR6","doi-asserted-by":"publisher","first-page":"2845","DOI":"10.1111\/jan.13362","volume":"73","author":"P Clarkson","year":"2017","unstructured":"Clarkson P, Hughes J, Xie C, Larbey M, Roe B, Giebel CM, et al. Overview of systematic reviews: Effective home support in dementia care, components and impacts\u2014Stage 1, psychosocial interventions for dementia [article]. J Adv Nurs. 2017;73(12):2845\u201363. https:\/\/doi.org\/10.1111\/jan.13362. PubMed PMID: 28621017.","journal-title":"J Adv Nurs"},{"issue":"3","key":"2544_CR7","doi-asserted-by":"publisher","first-page":"e12455","DOI":"10.1002\/trc2","volume":"10","author":"CW Zhu","year":"2024","unstructured":"Zhu CW, Sano M. Meaningful benefit of disease-modifying treatment: Evaluating changes in health\u2010related resource use [article]. Alzheimer\u2019s & dementia: translational research &. Clin interventions. 2024;10(3):e12455\u2013n. https:\/\/doi.org\/10.1002\/trc2.12455. PubMed PMID: 39086734.","journal-title":"Clin interventions"},{"issue":"6","key":"2544_CR8","doi-asserted-by":"publisher","first-page":"1056","DOI":"10.1111\/hex.12799","volume":"21","author":"L \u00d8ksnebjerg","year":"2018","unstructured":"\u00d8ksnebjerg L, Diaz-Ponce A, Gove D, Moniz\u2010Cook E, Mountain G, Chattat R, et al. Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan\u2010European consultation [article]. Health Expect. 2018;21(6):1056\u201365. https:\/\/doi.org\/10.1111\/hex.12799. PubMed PMID: 29920881.","journal-title":"Health Expect"},{"issue":"1","key":"2544_CR9","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1186\/s12955-020-01440-x","volume":"18","author":"C Clarke","year":"2020","unstructured":"Clarke C, Woods B, Moniz-Cook E, Mountain G, \u00d8ksnebjerg L, Chattat R, et al. Measuring the well-being of people with dementia: a conceptual scoping review [article]. Health Qual Life Outcomes. 2020;18(1):249\u201314. https:\/\/doi.org\/10.1186\/s12955-020-01440-x. PubMed PMID: 32709238.","journal-title":"Health Qual Life Outcomes"},{"issue":"6","key":"2544_CR10","first-page":"481","volume":"11","author":"L Volicer","year":"2007","unstructured":"Volicer L. Goals of care in advanced dementia: Quality of life, dignity and comfort [article]. J Nutr Health Aging. 2007;11(6):481\u2013481. PubMed PMID: 17985063.","journal-title":"J Nutr Health Aging"},{"issue":"8","key":"2544_CR11","doi-asserted-by":"publisher","first-page":"1245","DOI":"10.1017\/S1041610216000417","volume":"28","author":"P Missotten","year":"2016","unstructured":"Missotten P, Dupuis G, Adam S. Dementia-specific quality of life instruments: a conceptual analysis [article]. Int Psychogeriatr. 2016;28(8):1245\u201362. 10. 1017\/S1041610216000417 PubMed PMID: 27001706.","journal-title":"Int Psychogeriatr"},{"issue":"1","key":"2544_CR12","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1080\/13607863.2014.915923","volume":"19","author":"A Bowling","year":"2015","unstructured":"Bowling A, Rowe G, Adams S, Sands P, Samsi K, Crane M, et al. Quality of life in dementia: a systematically conducted narrative review of dementia-specific measurement scales [article]. Aging Ment Health. 2015;19(1):13\u201331. https:\/\/doi.org\/10.1080\/13607863.2014.915923. PubMed PMID: 24881888.","journal-title":"Aging Ment Health"},{"key":"2544_CR13","doi-asserted-by":"crossref","unstructured":"Makai P. Quality of life of nursing home residents with dementia: validation of the German version of the ICECAP-O. PLoS One. 2014;9(3).","DOI":"10.1371\/journal.pone.0092016"},{"key":"2544_CR14","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1080\/17439760.2023.2257640","volume":"19","author":"L van Zyl","year":"2023","unstructured":"van Zyl L, Dik B, Donaldson S, Klibert J, Di Blasi Z, Wingerden J, et al. Positive organisational psychology 2.0: Embracing the technological revolution. J Posit Psychol. 2023;19:1\u201313. https:\/\/doi.org\/10.1080\/17439760.2023.2257640.","journal-title":"J Posit Psychol"},{"key":"2544_CR15","doi-asserted-by":"crossref","unstructured":"\u00d8ksnebjerg L, Woods B, Rytter CV, Ruth K, Gustafsson M, Ringk\u00f8bing SP, et al. Self-management and cognitive rehabilitation in early stage dementia: merging methods to promote coping and adoption of assistive technology: a pilot study; 2020.","DOI":"10.1080\/13607863.2019.1625302"},{"key":"2544_CR16","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-011-9997-1","author":"P Makai","year":"2012","unstructured":"MakaiP, Brouwer WB, Koopmanschap MA, Nieboer AP. Capabilities and quality of life in Dutch psycho-geriatric nursing homes: an exploratory study using a proxy version of the ICECAP-O. Qual Life Res. 2012 Jun;21(5):801-12. 10.1007\/s11136-011-9997-1. Epub 2011 Sep 6. PMID: 21894489; PMCID: PMC3348451. https:\/\/doi.org\/10.1007\/s11136-011-9997-1."},{"key":"2544_CR17","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-008-9372-z","author":"J Coast","year":"2008","unstructured":"CoastJ, Peters TJ, Natarajan L, Sproston K, Flynn T. An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Qual Life Res. 2008 Sep;17(7):967-76. 10.1007\/s11136-008-9372-z. Epub 2008 Jul 12. PMID: 18622721. https:\/\/doi.org\/10.1007\/s11136-008-9372-z."},{"issue":"8","key":"2544_CR18","doi-asserted-by":"publisher","first-page":"1891","DOI":"10.1016\/j.socscimed.2005.08.023","volume":"62","author":"I Grewal","year":"2006","unstructured":"Grewal I, Lewis J, Flynn T, Brown J, Bond J, Coast J. Developing attributes for a generic quality of life measure for older people: Preferences or capabilities? Soc Sci Med. 2006;62(8):1891\u2013901. https:\/\/doi.org\/10.1016\/j.socscimed.2005.08.023.","journal-title":"Soc Sci Med"},{"issue":"2","key":"2544_CR19","doi-asserted-by":"publisher","first-page":"547","DOI":"10.1007\/s11136-019-02331-5","volume":"29","author":"AW Holst-Kristensen","year":"2020","unstructured":"Holst-Kristensen AW, Fonager K, Pedersen KM. Test\u2013retest reliability of ICECAP-A in the adult Danish population [article]. Qual Life Res. 2020;29(2):547\u201357. https:\/\/doi.org\/10.1007\/s11136-019-02331-5. PubMed PMID: 31628645.","journal-title":"Qual Life Res"},{"issue":"5","key":"2544_CR20","doi-asserted-by":"publisher","first-page":"874","DOI":"10.1016\/j.socscimed.2008.05.015","volume":"67","author":"J Coast","year":"2008","unstructured":"Coast J, Flynn TN, Natarajan L, Sproston K, Lewis J, Louviere JJ, et al. Valuing the ICECAP capability index for older people [article]. Soc Sci Med. 2008;67(5):874\u201382. https:\/\/doi.org\/10.1016\/j.socscimed.2008.05.015. PubMed PMID: 18572295.","journal-title":"Soc Sci Med"},{"key":"2544_CR21","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-019-02114-y","author":"L Proud","year":"2019","unstructured":"Proud L, McLoughlin C, Kinghorn P. ICECAP-O, the current state of play: a systematic review of studies reporting the psychometric properties and use of the instrument over the decade since its publication. Qual Life Res. 2019 Jun;28(6):1429-1439. doi: 10.1007\/s11136-019-02114-y. Epub 2019 Jan 21. PMID: 30666550; PMCID: PMC6522451. https:\/\/doi.org\/10.1007\/s11136-019-02114-y"},{"issue":"1","key":"2544_CR22","doi-asserted-by":"publisher","first-page":"237","DOI":"10.1007\/s11136-019-02317-3","volume":"29","author":"M Perry-Duxbury","year":"2020","unstructured":"Perry-Duxbury M, van Exel J, Brouwer W, Sk\u00f6ldunger A, Gon\u00e7alves-Pereira M, Irving K, et al. A validation study of the ICECAP-O in informal carers of people with dementia from eight European Countries [article]. Qual Life Res. 2020;29(1):237\u201351. https:\/\/doi.org\/10.1007\/s11136-019-02317-3. PubMed PMID: 31595452.","journal-title":"Qual Life Res"},{"key":"2544_CR23","doi-asserted-by":"publisher","first-page":"24","DOI":"10.1016\/j.zefq.2021.02","volume":"162","author":"A Stephan","year":"2021","unstructured":"Stephan A, Marques MJ, Bieber A, Machado AS, Balsinha C, Handels R, et al. Self- and proxy-rating of the ICECAP-O for people with dementia: A cross-sectional linguistic validation study in Germany and Portugal [article]. Z Evid Fortbild Qual Gesundhwes. 2021;162:24\u201331. https:\/\/doi.org\/10.1016\/j.zefq.2021.02.008. PubMed PMID: 33811016.","journal-title":"Z Evid Fortbild Qual Gesundhwes"},{"issue":"1","key":"2544_CR24","doi-asserted-by":"publisher","first-page":"e0169354","DOI":"10.1371\/journal.pone.0169354","volume":"12","author":"CM Sarabia-Cobo","year":"2017","unstructured":"Sarabia-Cobo CM, Par\u00e1s-Bravo P, Amo-Seti\u00e9n FJ, Alconero-Camarero AR, S\u00e1enz-Jal\u00f3n M, Torres-Manrique B, et al. Validation of the Spanish Version of the ICECAP-O for Nursing Home Residents with Dementia [article]. PLoS ONE. 2017;12(1):e0169354\u20130169354. https:\/\/doi.org\/10.1371\/journal.pone.0169354. PubMed PMID: 28068375.","journal-title":"PLoS ONE"},{"key":"2544_CR25","doi-asserted-by":"publisher","unstructured":"Bibi I, Polman R, Nyman SR. Reliability of the ICECAP-O Quality of Life Scale With Community-Dwelling People With Dementia [article]. Gerontol Geriatr Med. 2022;8:23337214221086800. https:\/\/doi.org\/10.1177\/23337214221086802. PubMed PMID: 35340365.","DOI":"10.1177\/23337214221086802"},{"key":"2544_CR26","doi-asserted-by":"publisher","unstructured":"Nyman SR, Casey C, Polman R. Psychometric Properties of the ICECAP-O Quality of Life Measurement Tool When Self-reported by Community-dwelling Older People With Mild and Moderate Dementia [article]. Alzheimer Dis Assoc Disord. 2021;35(4):356\u20139. https:\/\/doi.org\/10.1097\/WAD.0000000000000430. PubMed PMID: 33443874.","DOI":"10.1097\/WAD.0000000000000430"},{"issue":"1","key":"2544_CR27","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12955-020-01425","volume":"18","author":"L Engel","year":"2020","unstructured":"Engel L, Bucholc J, Mihalopoulos C, Mulhern B, Ratcliffe J, Yates M, et al. A qualitative exploration of the content and face validity of preference-based measures within the context of dementia [article]. Health Qual Life Outcomes. 2020;18(1):1\u201319. https:\/\/doi.org\/10.1186\/s12955-020-01425-. w PubMed PMID: 32527264.","journal-title":"Health Qual Life Outcomes"},{"key":"2544_CR28","doi-asserted-by":"publisher","unstructured":"Hasselbalch SG, Andersen BB, Ejlerskov P, Frederiksen KS, Nielsen JE, Nielsen TR, et al. The Danish Dementia Research Centre: integrating patient care, clinical research, and national educational services. J Alzheimer\u2019s Dis. 2025;13872877251365196. https:\/\/doi.org\/10.1177\/13872877251365195. PubMed PMID: 40776623.","DOI":"10.1177\/13872877251365195"},{"issue":"1","key":"2544_CR29","doi-asserted-by":"publisher","first-page":"14","DOI":"10.1186\/s12955-026-02477-0","volume":"24","author":"EK Pedersen","year":"2026","unstructured":"Pedersen EK, \u00d8ksnebjerg L, Waldemar G, Janbek J, Nielsen A, Nielsen TR. Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia [article]. Health Qual Life Outcomes. 2026;24(1):14. https:\/\/doi.org\/10.1186\/s12955-026-02477-0. PubMed PMID: 41612321.","journal-title":"Health Qual Life Outcomes"},{"issue":"3","key":"2544_CR30","doi-asserted-by":"publisher","first-page":"167","DOI":"10.1159\/000376585","volume":"84","author":"CW Topp","year":"2015","unstructured":"Topp CW, \u00d8stergaard SD, S\u00f8ndergaard S, Bech P. The WHO-5 Well-Being Index: A Systematic Review of the Literature [article]. Psychother Psychosom. 2015;84(3):167\u201376. https:\/\/doi.org\/10.1159\/000376585. PubMed PMID: 25831962.","journal-title":"Psychother Psychosom"},{"issue":"9","key":"2544_CR31","doi-asserted-by":"publisher","first-page":"893","DOI":"10.1034\/j.1399-6576.1999.430906","volume":"43","author":"P Bech","year":"1999","unstructured":"Bech P. Health-related quality of life measurements in the assessment of pain clinic results [article]. Acta Anaesthesiol Scand. 1999;43(9):893\u20136. https:\/\/doi.org\/10.1034\/j.1399-6576.1999.430906.x. PubMed PMID: 10522736.","journal-title":"Acta Anaesthesiol Scand"},{"issue":"3\u20134","key":"2544_CR32","doi-asserted-by":"publisher","first-page":"119","DOI":"10.1159\/000488484","volume":"46","author":"CR Stoner","year":"2018","unstructured":"Stoner CR, Orrell M, Spector A. Psychometric Properties and Factor Analysis of the Engagement and Independence in Dementia Questionnaire (EID-Q) [article]. Dement Geriatr Cogn Disord. 2018;46(3\u20134):119\u201327. https:\/\/doi.org\/10.1159\/000488484. PubMed PMID: 30179862.","journal-title":"Dement Geriatr Cogn Disord"},{"issue":"10","key":"2544_CR33","doi-asserted-by":"publisher","first-page":"1727","DOI":"10.1007\/s11136-011-9903","volume":"20","author":"M Herdman","year":"2011","unstructured":"Herdman M, Gudex C, Lloyd A, Janssen M, Kind P, Parkin D, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) [article]. Qual Life Res. 2011;20(10):1727\u201336. https:\/\/doi.org\/10.1007\/s11136-011-9903-. x PubMed PMID: 21479777.","journal-title":"Qual Life Res"},{"issue":"2","key":"2544_CR34","doi-asserted-by":"publisher","first-page":"127","DOI":"10.1007\/s40258-017-0310-5","volume":"15","author":"NJ Devlin","year":"2017","unstructured":"Devlin NJ, Brooks R. EQ-5D and the EuroQol Group: Past, Present and Future [article]. Appl Health Econ Health Policy. 2017;15(2):127\u201337. https:\/\/doi.org\/10.1007\/s40258-017-0310-5. PubMed PMID: 28194657.","journal-title":"Appl Health Econ Health Policy"},{"key":"2544_CR35","doi-asserted-by":"crossref","unstructured":"Rabin R, De Charro F. EQ-5D: a measure of health status from the EuroQol Group: health-related quality of life in clinical studies. In: Annals of Medicine (Helsinki). Basingstoke: Taylor & Francis; 2001. pp. 337\u201343.","DOI":"10.3109\/07853890109002087"},{"issue":"3","key":"2544_CR36","doi-asserted-by":"publisher","first-page":"977","DOI":"10.1007\/s11136-013-0537-z","volume":"23","author":"Y Feng","year":"2014","unstructured":"Feng Y, Parkin D, Devlin NJ. Assessing the performance of the EQ-VAS in the NHS PROMs programme [article]. Qual Life Res. 2014;23(3):977\u201389. https:\/\/doi.org\/10.1007\/s11136-013-0537-z. PubMed PMID: 24081873.","journal-title":"Qual Life Res"},{"key":"2544_CR37","doi-asserted-by":"publisher","unstructured":"Jensen CE, S\u00f8rensen SS, Gudex C. et al. The Danish EQ-5D-5L Value Set: A Hybrid Model Using cTTO and DCE Data. Appl Health Econ Health Policy 19, 579\u2013591 (2021) https:\/\/doi.org\/10.1007\/s40258-021-00639-3J.","DOI":"10.1007\/s40258-021-00639-3J"},{"key":"2544_CR38","unstructured":"University of Bristiol. Frequently asked questions - how should I calculate the scores for the measures? [Internet]. Available from: https:\/\/www.bristol.ac.uk\/population-health-sciences\/projects\/icecap\/frequently-asked-questions\/."},{"issue":"5","key":"2544_CR39","doi-asserted-by":"publisher","first-page":"708","DOI":"10.1016\/j.jval.2012.02","volume":"15","author":"B van Hout","year":"2012","unstructured":"van Hout B, Janssen MF, Feng YS, Kohlmann T, Busschbach J, Golicki D, et al. Interim Scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L Value Sets [article]. Value health. 2012;15(5):708\u201315. https:\/\/doi.org\/10.1016\/j.jval.2012.02.008. PubMed PMID: 22867780.","journal-title":"Value health"},{"key":"2544_CR40","author":"EuroQol - a","year":"1990","unstructured":"EuroQol - a new facility for the measurement of health-related quality of life. Health policy (Amsterdam). 1990;16(3):199\u2013208. PubMed PMID: 10109801. https:\/\/pubmed.ncbi.nlm.nih.gov\/10109801\/"},{"issue":"1","key":"2544_CR41","doi-asserted-by":"publisher","first-page":"72","DOI":"10.1186\/s12877-017-0468-6","volume":"17","author":"CR Stoner","year":"2017","unstructured":"Stoner CR, Orrell M, Long M, Csipke E, Spector A. The development and preliminary psychometric properties of two positive psychology outcome measures for people with dementia: the PPOM and the EID-Q [article]. BMC Geriatr. 2017;17(1):72. https:\/\/doi.org\/10.1186\/s12877-017-0468-6. PubMed PMID: 28327088.","journal-title":"BMC Geriatr"},{"key":"2544_CR42","doi-asserted-by":"crossref","unstructured":"Stoner CR, Orrell M, Spector A. The Engagement and Independence in Dementia Questionnaire (EID-Q) interview and scoring procedure [Internet]. 2018. Report. Available from: https:\/\/www.ucl.ac.uk\/international-cognitive-stimulation-therapy\/sites\/international_cognitive_stimulation_therapy\/files\/eid-q_stoner_orrell_spector_2018.pdf.","DOI":"10.1159\/000488484"},{"key":"2544_CR43","unstructured":"World Health Organization. The World Health Organization-Five Well-Being Index (WHO-5). Geneva. Report; 2024."},{"issue":"6","key":"2544_CR44","doi-asserted-by":"publisher","first-page":"673","DOI":"10.1159\/000500445","volume":"65","author":"L \u00d8ksnebjerg","year":"2019","unstructured":"\u00d8ksnebjerg L, Woods B, Waldemar G. Designing the ReACT App to Support Self-Management of People with Dementia: An Iterative User-Involving Process [article]. Gerontol (Basel). 2019;65(6):673\u201385. https:\/\/doi.org\/10.1159\/000500445. PubMed PMID: 31266031.","journal-title":"Gerontol (Basel)"},{"issue":"2","key":"2544_CR45","doi-asserted-by":"publisher","first-page":"268","DOI":"10.1111\/j.1365-2753.2010.01434.x","volume":"17","author":"VD Sousa","year":"2011","unstructured":"Sousa VD, Rojjanasrirat W. Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: a clear and user-friendly guideline. J Eval Clin Pract. 2011;17(2):268\u201374. https:\/\/doi.org\/10.1111\/j.1365-2753.2010.01434.x.","journal-title":"J Eval Clin Pract"},{"key":"2544_CR46","unstructured":"Hopkins W. A new view of statistics: Effect magnitudes [Internet]. 2002 [cited 2025 Jul 11]. Available from: http:\/\/www.sportsci.org\/resource\/stats\/effectmag.html."},{"issue":"1","key":"2544_CR47","doi-asserted-by":"publisher","first-page":"57","DOI":"10.1186\/1477-7525-11-57","volume":"11","author":"P Makai","year":"2013","unstructured":"Makai P, Koopmanschap MA, Brouwer WB, Nieboer AA. A validation of the ICECAP-O in a population of post-hospitalized older people in the Netherlands [article]. Health Qual Life Outcomes. 2013;11(1):57\u201357. https:\/\/doi.org\/10.1186\/1477-7525-11-57. PubMed PMID: 23566342.","journal-title":"Health Qual Life Outcomes"},{"key":"2544_CR48","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-020-02542-1","author":"P Baji","year":"2020","unstructured":"Baji P, Farkas M, Dobos \u00c1, Zrubka Z, Gul\u00e1csi L, Brodszky V, et al. Capability of well-being: validation of the Hungarian version of the ICECAP-A and ICECAP-O questionnaires and population normative data. Qual Life Res. 2020;29(10):2863\u201374. PubMed PMID: 32468403. https:\/\/doi.org\/10.1007\/s11136-020-02542-1"},{"issue":"3","key":"2544_CR49","doi-asserted-by":"publisher","first-page":"91","DOI":"10.1016\/j.tjem.2018","volume":"18","author":"H Akoglu","year":"2018","unstructured":"Akoglu H. User\u2019s guide to correlation coefficients [article]. Turk J Emerg Med. 2018;18(3):91\u20133. https:\/\/doi.org\/10.1016\/j.tjem.2018. 08.001 PubMed PMID: 30191186.","journal-title":"Turk J Emerg Med"},{"key":"2544_CR50","doi-asserted-by":"publisher","DOI":"10.4324\/9781315545899","volume-title":"IBM SPSS Statistics 23 Step by Step: A Simple Guide and Reference [book]. Fourteenth edition","author":"D George","year":"2016","unstructured":"George D, Mallery P. IBM SPSS Statistics 23 Step by Step: A Simple Guide and Reference [book]. Fourteenth edition. New York: Routledge; 2016. https:\/\/doi.org\/10.4324\/9781315545899."},{"issue":"12","key":"2544_CR51","doi-asserted-by":"publisher","first-page":"3459","DOI":"10.1007\/s11136-022-03182-3","volume":"31","author":"A Joelson","year":"2022","unstructured":"Joelson A, Nerelius F, Sigmundsson FG, Karlsson J. The minimal important change for the EQ VAS based on the SF-36 health transition item: observations from 25772 spine surgery procedures [article]. Qual Life Res. 2022;31(12):3459\u201366. https:\/\/doi.org\/10.1007\/s11136-022-03182-3. PubMed PMID: 35821173.","journal-title":"Qual Life Res"},{"issue":"6","key":"2544_CR52","doi-asserted-by":"publisher","first-page":"760","DOI":"10.1016\/j.jval.2020.01.022","volume":"23","author":"B Michalowsky","year":"2020","unstructured":"Michalowsky B, Xie F, Kohlmann T, Gr\u00e4ske J, W\u00fcbbeler M, Thyrian JR, et al. Acceptability and Validity of the EQ-5D in Patients Living With Dementia. Value Health. 2020;23(6):760\u20137. https:\/\/doi.org\/10.1016\/j.jval.2020.01.022.","journal-title":"Value Health"},{"issue":"2","key":"2544_CR53","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1016\/j.jcm.2016","volume":"15","author":"TK Koo","year":"2016","unstructured":"Koo TK, Li MY. A Guideline of Selecting and Reporting Intraclass Correlation Coefficients for Reliability Research [article]. J Chiropr Med. 2016;15(2):155\u201363. https:\/\/doi.org\/10.1016\/j.jcm.2016. 02.012 PubMed PMID: 27330520.","journal-title":"J Chiropr Med"},{"issue":"1","key":"2544_CR54","doi-asserted-by":"publisher","first-page":"65","DOI":"10.1186\/1471-2318-12-65","volume":"12","author":"JC Davis","year":"2012","unstructured":"Davis JC, Bryan S, McLeod R, Rogers J, Khan K, Liu-Ambrose T. Exploration of the association between quality of life, assessed by the EQ-5D and ICECAP-O, and falls risk, cognitive function and daily function, in older adults with mobility impairments [article]. BMC Geriatr. 2012;12(1):65\u201365. https:\/\/doi.org\/10.1186\/1471-2318-12-65. PubMed PMID: 23095570.","journal-title":"BMC Geriatr"},{"issue":"3","key":"2544_CR55","doi-asserted-by":"publisher","first-page":"667","DOI":"10.1007\/s11482-013-9264-4","volume":"9","author":"J Horwood","year":"2014","unstructured":"Horwood J, Sutton E, Coast J. Evaluating the Face Validity of the ICECAP-O Capabilities Measure: A Think Aloud Study with Hip and Knee Arthroplasty Patients [article]. Appl Res Qual Life. 2014;9(3):667\u201382. https:\/\/doi.org\/10.1007\/s11482-013-9264-4.","journal-title":"Appl Res Qual Life"},{"issue":"1","key":"2544_CR56","doi-asserted-by":"publisher","first-page":"6496","DOI":"10.4081\/hpr.2018.6496","volume":"6","author":"S Gustafsson","year":"2018","unstructured":"Gustafsson S, H\u00f6rder H, Ottenvall Hammar I, Skoog I. Face and content validity and acceptability of the Swedish ICECAP-O capability measure: cognitive interviews with 70-year-old persons [article]. Health Psychol Res. 2018;6(1):6496. https:\/\/doi.org\/10.4081\/hpr.2018.6496. PubMed PMID: 30596153.","journal-title":"Health Psychol Res"},{"key":"2544_CR57","doi-asserted-by":"publisher","first-page":"117716","DOI":"10.1016\/j.socscimed.2025.117716","volume":"366","author":"I Kinchin","year":"2025","unstructured":"Kinchin I, Boland E, Leroi I, Coast J. Through Their Eyes: Defining \u2018good life\u2019 in dementia for health economics and outcomes research [article]. Soc Sci Med. 2025;366:117716. https:\/\/doi.org\/10.1016\/j.socscimed.2025.117716. PubMed PMID: 39837081.","journal-title":"Soc Sci Med"},{"key":"2544_CR58","doi-asserted-by":"crossref","unstructured":"\u00d8ksnebjerg L, Woods B, Waldemar G. Designing the ReACT app to support self-management of people with dementia: an iterative user-involving process; 2019.","DOI":"10.1159\/000500445"},{"issue":"1","key":"2544_CR59","doi-asserted-by":"publisher","first-page":"201","DOI":"10.1186\/s12913-015-0862-8","volume":"15","author":"KM van Leeuwen","year":"2015","unstructured":"van Leeuwen KM, Jansen APD, Muntinga ME, Bosmans JE, Westerman MJ, van Tulder MW, et al. Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Serv Res. 2015;15(1):201. https:\/\/doi.org\/10.1186\/s12913-015-0862-8.","journal-title":"BMC Health Serv Res"},{"issue":"4","key":"2544_CR60","doi-asserted-by":"publisher","first-page":"30","DOI":"10.3390\/soc6040030","volume":"6","author":"H H\u00f6rder","year":"2016","unstructured":"H\u00f6rder H, Gustafsson S, Rydberg T, Skoog I, Waern MA, Cross-Cultural. Adaptation of the ICECAP-O: Test\u2013Retest Reliability and Item Relevance in Swedish 70-Year-Olds [article]. Soc (Basel). 2016;6(4):30. https:\/\/doi.org\/10.3390\/soc6040030.","journal-title":"Soc (Basel)"}],"container-title":["Health and Quality of Life Outcomes"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12955-026-02544-6","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12955-026-02544-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12955-026-02544-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T04:28:29Z","timestamp":1784089709000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s12955-026-02544-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,7]]},"references-count":60,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["2544"],"URL":"https:\/\/doi.org\/10.1186\/s12955-026-02544-6","relation":{"references":[{"id-type":"doi","id":"10.1007\/s11136-011-9997-1","asserted-by":"subject"},{"id-type":"doi","id":"10.1007\/s11136-008-9372-z","asserted-by":"subject"},{"id-type":"doi","id":"10.1007\/s11136-019-02114","asserted-by":"subject"},{"id-type":"doi","id":"10.1016\/0168-8510","asserted-by":"subject"},{"id-type":"doi","id":"10.1007\/s11136-020-02542-1","asserted-by":"subject"}]},"ISSN":["1477-7525"],"issn-type":[{"value":"1477-7525","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,7]]},"assertion":[{"value":"17 November 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"27 April 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"7 May 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"According to Danish law, this study did not require approval from the Danish Health Research Ethics Committee because it did not involve invasive procedures or biological material. We have registered the research project at the Capital Region Committee on Health Research Ethics (P-2020-1167). All participants provided written informed consent to participation in the research project.","order":1,"name":"Ethics","label":"Ethics approval and consent to participate","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no competing interests.","order":2,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"94"}}