{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T21:44:07Z","timestamp":1792446247188,"version":"4.5.0"},"reference-count":27,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2018,9,20]],"date-time":"2018-09-20T00:00:00Z","timestamp":1537401600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["PAF-107535"],"award-info":[{"award-number":["PAF-107535"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Rheumatol"],"published-print":{"date-parts":[[2018,12]]},"DOI":"10.1186\/s12969-018-0273-6","type":"journal-article","created":{"date-parts":[[2018,9,20]],"date-time":"2018-09-20T11:20:18Z","timestamp":1537442418000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["\u201cI just want to get better\u201d: experiences of children and youth with juvenile idiopathic arthritis in a home-based exercise intervention"],"prefix":"10.1186","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1260-5405","authenticated-orcid":false,"given":"Joanie","family":"Sims-Gould","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Douglas L.","family":"Race","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather","family":"Macdonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin M.","family":"Houghton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ciar\u00e1n M.","family":"Duffy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lori B.","family":"Tucker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heather A.","family":"McKay","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2018,9,20]]},"reference":[{"issue":"2","key":"273_CR1","first-page":"126","volume":"100","author":"CJ Caspersen","year":"1985","unstructured":"Caspersen CJ, Powell KE, Christenson GM. Physical activity, exercise, and physical fitness: definitions and distinctions for health-related research. Public Health Rep. 1985;100(2):126\u201331.","journal-title":"Public Health Rep"},{"issue":"5","key":"273_CR2","doi-asserted-by":"publisher","first-page":"1018","DOI":"10.1016\/j.apmr.2016.09.135","volume":"98","author":"S Cavallo","year":"2017","unstructured":"Cavallo S, Brosseau L, Toupin-April K, Wells GA, Smith CA, Pugh AG, et al. Ottawa panel evidence-based clinical practice guidelines for structured physical activity in the management of juvenile idiopathic arthritis. Arch Phys Med Rehabil. 2017;98(5):1018\u201341.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"273_CR3","doi-asserted-by":"publisher","first-page":"178-193.e1","DOI":"10.1016\/j.apmr.2017.05.030","volume":"99","author":"Gregor Kuntze","year":"2018","unstructured":"Kuntze G, Nesbitt C, Whittaker JL, Nettel-Aguirre A, Toomey C, Esau S, et al. Exercise therapy in juvenile idiopathic arthritis: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2018;99(1):178\u2013193.e1. \n                    https:\/\/doi.org\/10.1016\/j.apmr.2017.05.030\n                    \n                  . Epub 2017 Jul 18","journal-title":"Archives of Physical Medicine and Rehabilitation"},{"issue":"3","key":"273_CR4","first-page":"287","volume":"44","author":"T Takken","year":"2008","unstructured":"Takken T, Van Brussel M, Engelbert RH, Van Der Net J, Kuis W, Helders PJ. Exercise therapy in juvenile idiopathic arthritis: a Cochrane review. Eur J Phys Rehabil Med. 2008;44(3):287\u201397.","journal-title":"Eur J Phys Rehabil Med"},{"issue":"8","key":"273_CR5","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1177\/030802260907200806","volume":"72","author":"R De Monte","year":"2009","unstructured":"De Monte R, Rodger S, Jones F, Broderick S. Living with juvenile idiopathic arthritis: children's experiences of participating in home exercise programmes. Br J Occup Ther. 2009;72(8):357\u201365.","journal-title":"Br J Occup Ther"},{"issue":"6","key":"273_CR6","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1177\/030802260907200603","volume":"72","author":"F Jones","year":"2009","unstructured":"Jones F, Rodger S, Broderick S, De Monte R. Living with juvenile idiopathic arthritis: parents' experiences of treatment regimens and home exercise programmes. Br J Occup Ther. 2009;72(6):249\u201358.","journal-title":"Br J Occup Ther"},{"issue":"6 (Suppl. 3)","key":"273_CR7","doi-asserted-by":"publisher","first-page":"S311","DOI":"10.1139\/apnm-2016-0151","volume":"41","author":"MS Tremblay","year":"2016","unstructured":"Tremblay MS, Carson V, Chaput J-P, Connor Gorber S, Dinh T, Duggan M, et al. Canadian 24-Hour Movement Guidelines for Children and Youth: An Integration of Physical Activity, Sedentary Behaviour, and Sleep. Appl Physiol Nutr Metab. 2016;41(6 (Suppl. 3)):S311\u2013S27.","journal-title":"Appl Physiol Nutr Metab"},{"issue":"1","key":"273_CR8","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1177\/1525822X05279903","volume":"18","author":"G Guest","year":"2006","unstructured":"Guest G, Bunce A, Johnson L. How many interviews are enough? Field Methods. 2006;18(1):59\u201382.","journal-title":"Field Methods"},{"issue":"3\u20134","key":"273_CR9","doi-asserted-by":"publisher","first-page":"327","DOI":"10.1007\/s10464-008-9165-0","volume":"41","author":"JA Durlak","year":"2008","unstructured":"Durlak JA, DuPre EP. Implementation matters: a review of research on the influence of implementation on program outcomes and the factors affecting implementation. Am J Community Psychol. 2008;41(3\u20134):327\u201350.","journal-title":"Am J Community Psychol"},{"key":"273_CR10","unstructured":"Houghton KM, Macdonald HM, McKay HA, Guzman J, Duffy C, Tucker L. Feasibility and Safety of a 6-month Exercise Program to Increase Bone and Muscle Strength in Children with Juvenile Idiopathic Arthritis. (In Press)."},{"issue":"2","key":"273_CR11","doi-asserted-by":"publisher","first-page":"167","DOI":"10.1016\/j.pedhc.2016.07.002","volume":"31","author":"J Pagano-Therrien","year":"2017","unstructured":"Pagano-Therrien J, Sullivan-Bolyai S. Research participation decision-making among youth and parents of youth with chronic health conditions. J Pediatr Health Care. 2017;31(2):167\u201377.","journal-title":"J Pediatr Health Care"},{"issue":"7","key":"273_CR12","doi-asserted-by":"publisher","first-page":"e67352","DOI":"10.1371\/journal.pone.0067352","volume":"8","author":"K Woolfall","year":"2013","unstructured":"Woolfall K, Shilling V, Hickey H, Smyth RL, Sowden E, Williamson PR, et al. Parents\u2019 agendas in Paediatric clinical trial recruitment are different from researchers\u2019 and often remain unvoiced: a qualitative study. PLoS One. 2013;8(7):e67352.","journal-title":"PLoS One"},{"issue":"4","key":"273_CR13","doi-asserted-by":"publisher","first-page":"248","DOI":"10.1177\/1367493516632616","volume":"20","author":"DL Race","year":"2016","unstructured":"Race DL, Sims-Gould J, Tucker LB, Duffy CM, Feldman DE, Gibbon M, et al. \u2018it might hurt, but you have to push through the pain\u2019: perspectives on physical activity from children with juvenile idiopathic arthritis and their parents. J Child Health Care. 2016;20(4):248\u201356.","journal-title":"J Child Health Care"},{"key":"273_CR14","doi-asserted-by":"publisher","first-page":"184","DOI":"10.1016\/j.ypmed.2016.05.029","volume":"89","author":"R Li","year":"2016","unstructured":"Li R, Sit CH, Jane JY, Duan JZ, Fan TC, McKenzie TL, et al. Correlates of physical activity in children and adolescents with physical disabilities: a systematic review. Prev Med. 2016;89:184\u201393.","journal-title":"Prev Med"},{"issue":"5","key":"273_CR15","doi-asserted-by":"publisher","first-page":"963","DOI":"10.1097\/00005768-200005000-00014","volume":"32","author":"JF Sallis","year":"2000","unstructured":"Sallis JF, Prochaska JJ, Taylor WC. A review of correlates of physical activity of children and adolescents. Med Sci Sports Exerc. 2000;32(5):963\u201375.","journal-title":"Med Sci Sports Exerc"},{"key":"273_CR16","doi-asserted-by":"publisher","first-page":"507","DOI":"10.2147\/PPA.S25308","volume":"5","author":"V Bregnballe","year":"2011","unstructured":"Bregnballe V, Schiotz PO, Boisen KA, Pressler T, Thastum M. Barriers to adherence in adolescents and young adults with cystic fibrosis: a questionnaire study in young patients and their parents. Patient Prefer Adherence. 2011;5:507\u201315.","journal-title":"Patient Prefer Adherence"},{"issue":"5","key":"273_CR17","doi-asserted-by":"publisher","first-page":"305","DOI":"10.1097\/NNR.0b013e3182a03503","volume":"62","author":"MB Happ","year":"2013","unstructured":"Happ MB, Hoffman LA, Higgins LW, DiVirgilio D, Orenstein DM. Parent and child perceptions of a self-regulated, home-based exercise program for children with cystic fibrosis. Nurs Res. 2013;62(5):305\u201314.","journal-title":"Nurs Res"},{"issue":"2","key":"273_CR18","doi-asserted-by":"publisher","first-page":"57","DOI":"10.1016\/j.physio.2003.09.001","volume":"90","author":"NF Taylor","year":"2004","unstructured":"Taylor NF, Dodd KJ, McBurney H, Graham HK. Factors influencing adherence to a home-based strength-training programme for young people with cerebral palsy. Physiother. 2004;90(2):57\u201363.","journal-title":"Physiother"},{"issue":"4","key":"273_CR19","doi-asserted-by":"publisher","first-page":"728","DOI":"10.1016\/j.rasd.2008.03.001","volume":"2","author":"A Solish","year":"2008","unstructured":"Solish A, Perry A. Parents\u2019 involvement in their children's behavioral intervention programs: parent and therapist perspectives. Res Autism Spectr Disord. 2008;2(4):728\u201338.","journal-title":"Res Autism Spectr Disord"},{"issue":"3","key":"273_CR20","doi-asserted-by":"publisher","first-page":"478","DOI":"10.1249\/01.MSS.0000155391.62733.A7","volume":"37","author":"RK Dishman","year":"2005","unstructured":"Dishman RK, Motl RW, Saunders R, Felton G, Ward DS, Dowda M, et al. Enjoyment mediates effects of a school-based physical-activity intervention. Med Sci Sports Exerc. 2005;37(3):478\u201387.","journal-title":"Med Sci Sports Exerc"},{"issue":"3","key":"273_CR21","doi-asserted-by":"publisher","first-page":"193","DOI":"10.1037\/h0087141","volume":"33","author":"JJ Annesi","year":"2001","unstructured":"Annesi JJ. Effects of music, television, and a combination entertainment system on distraction, exercise adherence, and physical output in adults. Can J Behav Sci. 2001;33(3):193\u2013202.","journal-title":"Can J Behav Sci"},{"issue":"8","key":"273_CR22","doi-asserted-by":"publisher","first-page":"1023","DOI":"10.1038\/sj.ijo.0802052","volume":"26","author":"I De Bourdeaudhuij","year":"2002","unstructured":"De Bourdeaudhuij I, Crombez G, Deforche B, Vinaimont F, Debode P, Bouckaert J. Effects of distraction on treadmill running time in severely obese children and adolescents. Int J Obes. 2002;26(8):1023.","journal-title":"Int J Obes"},{"issue":"1","key":"273_CR23","doi-asserted-by":"publisher","first-page":"7","DOI":"10.1186\/1546-0096-11-7","volume":"11","author":"E Sandstedt","year":"2013","unstructured":"Sandstedt E, Fasth A, Eek MN, Beckung E. Muscle strength, physical fitness and well-being in children and adolescents with juvenile idiopathic arthritis and the effect of an exercise programme: a randomized controlled trial. Pediatr Rheumatol Online J. 2013;11(1):7.","journal-title":"Pediatr Rheumatol Online J"},{"issue":"7","key":"273_CR24","doi-asserted-by":"publisher","first-page":"303","DOI":"10.1177\/030802260306600704","volume":"66","author":"J Hackett","year":"2003","unstructured":"Hackett J. Perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis: what are the implications for occupational therapy? Br J Occup Ther. 2003;66(7):303\u201310.","journal-title":"Br J Occup Ther"},{"issue":"2","key":"273_CR25","doi-asserted-by":"publisher","first-page":"73","DOI":"10.1503\/cmaj.081231","volume":"182","author":"A Kitson","year":"2010","unstructured":"Kitson A, Straus SE. The knowledge-to-action cycle: identifying the gaps. CMAJ. 2010;182(2):73\u20137.","journal-title":"CMAJ"},{"issue":"2","key":"273_CR26","first-page":"10","volume":"2","author":"HA McKay","year":"2017","unstructured":"McKay HA, Sims-Gould J, Nettlefold L, Hoy CL, Bauman AE. Implementing and evaluating an older adult physical activity model at scale: framework for action. Transl J Am Coll Sports Med. 2017;2(2):10\u20139.","journal-title":"Transl J Am Coll Sports Med"},{"key":"273_CR27","doi-asserted-by":"publisher","first-page":"95","DOI":"10.1016\/j.ypmed.2014.12.034","volume":"72","author":"P-J Naylor","year":"2015","unstructured":"Naylor P-J, Nettlefold L, Race D, Hoy C, Ashe MC, Wharf Higgins J, et al. Implementation of school based physical activity interventions: a systematic review. Prev Med. 2015;72:95\u2013115.","journal-title":"Prev Med"}],"container-title":["Pediatric Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-018-0273-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1186\/s12969-018-0273-6\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-018-0273-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,9,19]],"date-time":"2019-09-19T19:08:47Z","timestamp":1568920127000},"score":1,"resource":{"primary":{"URL":"https:\/\/ped-rheum.biomedcentral.com\/articles\/10.1186\/s12969-018-0273-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,9,20]]},"references-count":27,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2018,12]]}},"alternative-id":["273"],"URL":"https:\/\/doi.org\/10.1186\/s12969-018-0273-6","relation":{},"ISSN":["1546-0096"],"issn-type":[{"value":"1546-0096","type":"electronic"}],"subject":[],"published":{"date-parts":[[2018,9,20]]},"assertion":[{"value":"20 June 2018","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"5 September 2018","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"20 September 2018","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"This study was approved by the University of British Columbia Children\u2019s and Women\u2019s Research Ethics Board (H14\u201301572). All children gave their assent following parental consent to participate.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"We have consent from both the participants and their parents\/legal guardians. The quotes are anonymized and pseudonyms are used.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"We have no competing interests to declare.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Publisher\u2019s Note"}}],"article-number":"59"}}