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Children and parents appeared to be more satisfied when healthcare professionals (HCP) use a participatory style in healthcare encounters.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Aim<\/jats:title>\n                <jats:p>To explore how children, adolescents and young adults with Juvenile Idiopathic Arthritis (JIA) and parents of children with JIA view their participation and communication in healthcare encounters with healthcare professionals.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>Using a qualitative study design, participatory workshops were held separately for children and young adults with JIA and parents of children with JIA. The workshop data were analysed with Graneheim and Lundman\u2019s Qualitative Content Analysis resulting in one main theme and two subthemes.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>The theme \u201cFeeling alienated or familiar with healthcare encounters\u201d illuminates how children felt alienated at healthcare encounters if they found the encounters emotionally distressing. Children could withhold information regarding their health and function from both HCPs and their family and friends. The subtheme \u201cDistancing oneself from healthcare\u201d describe why children felt reluctant to engage in the healthcare encounters and experienced difficulty expressing how they really felt. The subtheme \u201cBeing a normal event in life\u201d describe how children felt more comfortable over time engaging with HCPs when they knew what would happen, and felt that HCPs gave them the necessary support they needed to participate.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>Children\u2019s participation in healthcare encounters varied depending if children felt alienated or familiar to the healthcare situations. Children distance themselves and are reluctant to engage in healthcare encounters if they find them emotionally distressing and feel disregarded. Over time, children can become more familiar and at ease with healthcare situations when they feel safe and experience personal and positive encounters. When the children are prepared for the encounter, provided with the space and support they want and receive tailored help they are more enabled to participate.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12969-021-00642-x","type":"journal-article","created":{"date-parts":[[2021,11,2]],"date-time":"2021-11-02T10:04:57Z","timestamp":1635847497000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["How children with juvenile idiopathic arthritis view participation and communication in healthcare encounters: a qualitative study"],"prefix":"10.1186","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0110-0671","authenticated-orcid":false,"given":"Veronica","family":"Lundberg","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catharina","family":"Eriksson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Torbj\u00f6rn","family":"Lind","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Imelda","family":"Coyne","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anncristine","family":"Fjellman-Wiklund","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2021,11,2]]},"reference":[{"key":"642_CR1","doi-asserted-by":"publisher","first-page":"694","DOI":"10.1002\/acr.21609","volume":"64","author":"L Haverman","year":"2012","unstructured":"Haverman L, Grootenhuis MA, van den Berg JM, van Veenendaal M, Dolman KM, Swart JF, Kuijpers TW, van Rossum MA. 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Participation was voluntary and the participants did not need to give a reason for declining. All personal data and information from the workshops were handled and stored according to directions from the Ethical Board. Results are presented on a group level, combining children and young adults with JIA, and parents of children with JIA, so that no individual may be recognised. Written and verbal information about the study was provided and informed consent was obtained from each participant, and from both parents for the children before data collection began.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors have declared that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"156"}}