{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,30]],"date-time":"2026-03-30T03:58:19Z","timestamp":1774843099893,"version":"3.50.1"},"reference-count":17,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2023,7,7]],"date-time":"2023-07-07T00:00:00Z","timestamp":1688688000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2023,7,7]],"date-time":"2023-07-07T00:00:00Z","timestamp":1688688000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100007277","name":"Icahn School of Medicine at Mount Sinai","doi-asserted-by":"publisher","award":["Pediatric Scholar Award"],"award-info":[{"award-number":["Pediatric Scholar Award"]}],"id":[{"id":"10.13039\/100007277","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Rheumatol"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Resilience has been shown to be associated with better psychological outcomes and ability to cope with negative and traumatic events in the healthcare setting. Therefore, in this study, we aimed to evaluate resilience and its association with disease activity and health-related quality of life (HRQOL) in children with Systemic Lupus Erythematosus (SLE) and Juvenile Idiopathic Arthritis (JIA).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Patients with diagnoses of SLE or JIA were recruited. We collected: demographic data, medical history and physical examination, physician and patient global health assessments, Patient Reported Outcome Measurement Information System questionnaires, Connor Davidson Resilience Scale 10 (CD-RISC 10), Systemic Lupus Erythematosus Disease Activity Index, and clinical Juvenile Arthritis Disease Activity Score 10. Descriptive statistics were calculated, and PROMIS raw scores were converted to T-scores. Spearman\u2019s correlations were performed, with statistical significance set to p\u2009&lt;\u20090.05. 47 study subjects were recruited. The average CD-RISC 10 score in SLE was 24.4, and in JIA was 25.2. In children with SLE, CD-RISC 10 was correlated with disease activity and inversely correlated with anxiety. In children with JIA, resilience was inversely associated with fatigue, and positively correlated with mobility and peer relationships.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>In children with SLE and JIA, resilience is lower than in the general population. Further, our results suggest that interventions to increase resilience may improve the HRQOL of children with rheumatic disease. Ongoing study of the importance of resilience in this population, as well as interventions to increase resilience, will be an important area of future research in children with SLE and JIA.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12969-023-00854-3","type":"journal-article","created":{"date-parts":[[2023,7,7]],"date-time":"2023-07-07T04:02:25Z","timestamp":1688702545000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Resilience and its associations in children with Systemic Lupus Erythematosus and Juvenile Idiopathic Arthritis"],"prefix":"10.1186","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8634-9443","authenticated-orcid":false,"given":"Rebecca","family":"Trachtman","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Samuels","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emma","family":"Wojtal","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brian M","family":"Feldman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2023,7,7]]},"reference":[{"issue":"6","key":"854_CR1","doi-asserted-by":"publisher","first-page":"e20182988","DOI":"10.1542\/peds.2018-2988","volume":"143","author":"CK Blackwell","year":"2019","unstructured":"Blackwell CK, Elliott AJ, Ganiban J, et al. General Health and Life satisfaction in children with chronic illness. Pediatrics. 2019;143(6):e20182988.","journal-title":"Pediatrics"},{"issue":"2","key":"854_CR2","doi-asserted-by":"publisher","first-page":"320","DOI":"10.1037\/0022-3514.86.2.320","volume":"86","author":"MM Tugade","year":"2004","unstructured":"Tugade MM, Fredrickson BL. Resilient individuals use positive emotions to Bounce back from negative emotional experiences. J Pers Soc Psychol. 2004;86(2):320\u201333.","journal-title":"J Pers Soc Psychol"},{"issue":"2","key":"854_CR3","doi-asserted-by":"publisher","first-page":"e20193845","DOI":"10.1542\/peds.2019-3845","volume":"147","author":"P Jack","year":"2021","unstructured":"Jack P, Shonkoff W, Boyce T, et al. Leveraging the Biology of Adversity and Resilience to Transform Pediatric Practice. Pediatrics. 2021;147(2):e20193845.","journal-title":"Pediatrics"},{"issue":"19","key":"854_CR4","doi-asserted-by":"publisher","first-page":"3909","DOI":"10.1002\/cncr.31666","volume":"124","author":"AR Rosenberg","year":"2018","unstructured":"Rosenberg AR, Bradford MC, McCauley E, et al. Promoting resilience in adolescents and young adults with cancer: results from the PRISM randomized controlled trial. Cancer. 2018;124(19):3909\u201317.","journal-title":"Cancer"},{"issue":"6","key":"854_CR5","doi-asserted-by":"publisher","first-page":"1905","DOI":"10.3390\/ijerph17061905","volume":"17","author":"T Verma","year":"2020","unstructured":"Verma T, Rohan J. Examination of Transition Readiness, Medication Adherence, and Resilience in Pediatric Chronic illness populations: a pilot study. Int J Environ Res Public Health. 2020;17(6):1905.","journal-title":"Int J Environ Res Public Health"},{"key":"854_CR6","doi-asserted-by":"publisher","first-page":"118","DOI":"10.1016\/j.jpeds.2019.03.006","volume":"210","author":"S Gmuca","year":"2019","unstructured":"Gmuca S, Xiao R, Urquhart A, et al. The role of patient and parental resilience in adolescents with Chronic Musculoskeletal Pain. J Pediatr. 2019;210:118\u2013126e2.","journal-title":"J Pediatr"},{"issue":"7","key":"854_CR7","doi-asserted-by":"publisher","first-page":"1051","DOI":"10.1177\/09612033211004722","volume":"30","author":"C Mendoza-Pinto","year":"2021","unstructured":"Mendoza-Pinto C, Garc\u00eda-Carrasco M, Campos-Rivera S, et al. Medication adherence is influenced by resilience in patients with systemic lupus erythematosus. Lupus. 2021;30(7):1051\u20137.","journal-title":"Lupus"},{"key":"854_CR8","doi-asserted-by":"publisher","first-page":"1","DOI":"10.2174\/1874312920140127001","volume":"8","author":"DAP Faria","year":"2014","unstructured":"Faria DAP, Revoredo LS, Vilar MJ, et al. Resilience and treatment adhesion in patients with systemic lupus erythematosus. Open Rheumatol J. 2014;8:1\u20138.","journal-title":"Open Rheumatol J"},{"issue":"6","key":"854_CR9","doi-asserted-by":"publisher","first-page":"1120","DOI":"10.1093\/pm\/pny181","volume":"20","author":"M Beeckman","year":"2019","unstructured":"Beeckman M, Hughes S, Van Ryckeghem D, et al. Resilience factors in children with juvenile idiopathic arthritis and their parents: the role of child and parent psychological flexibility. Pain Med. 2019;20(6):1120\u201331.","journal-title":"Pain Med"},{"issue":"4","key":"854_CR10","first-page":"279","volume":"43","author":"FM Osaku","year":"2018","unstructured":"Osaku FM, Fraga MM, Aires PP, et al. SLICC classification criteria for juvenile systemic lupus erythematosus: a cross sectional study. Acta Reumatologica Portuguesa. 2018;43(4):279\u201383.","journal-title":"Acta Reumatologica Portuguesa"},{"key":"854_CR11","first-page":"390","volume":"31","author":"RE Petty","year":"2004","unstructured":"Petty RE, Southwood TR, Manners P, et al. International League of Associations for Rheumatology. International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol. 2004;31:390\u20132.","journal-title":"J Rheumatol"},{"issue":"9","key":"854_CR12","doi-asserted-by":"publisher","first-page":"2195","DOI":"10.1007\/s11136-015-0953-3","volume":"24","author":"DA DeWalt","year":"2015","unstructured":"DeWalt DA, Gross HE, Gipson DS, et al. PROMIS(\u00ae) pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions. 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Arth Care Res 2011;63(11):S112-117.","DOI":"10.1002\/acr.20623"},{"issue":"5","key":"854_CR15","doi-asserted-by":"publisher","first-page":"658","DOI":"10.1002\/art.24516","volume":"61","author":"A Consolaro","year":"2009","unstructured":"Consolaro A, Ruperto N, Bazso A, et al. Development and validation of a composite disease activity score for juvenile idiopathic arthritis. Arth Rheum. 2009;61(5):658\u201366.","journal-title":"Arth Rheum"},{"issue":"19","key":"854_CR16","doi-asserted-by":"publisher","first-page":"3909","DOI":"10.1002\/cncr.31666","volume":"124","author":"A Rosenberg","year":"2018","unstructured":"Rosenberg A, Bradford M, McCauley E, et al. Promoting resilience in adolescents and young adults with cancer: results from the PRISM randomized controlled trial. Cancer. 2018;124(19):3909\u201317.","journal-title":"Cancer"},{"issue":"1","key":"854_CR17","doi-asserted-by":"publisher","first-page":"118","DOI":"10.1080\/07347332.2019.1656317","volume":"38","author":"N Lau","year":"2020","unstructured":"Lau N, Yi-Frazier JP, Bona K, Baker KS, McCauley E, Rosenberg AR. Distress and resilience among adolescents and young adults with cancer and their mothers: an exploratory analysis. J Psychosoc Oncol. 2020;38(1):118\u201324.","journal-title":"J Psychosoc Oncol"}],"container-title":["Pediatric Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-023-00854-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12969-023-00854-3\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-023-00854-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,7,7]],"date-time":"2023-07-07T04:13:08Z","timestamp":1688703188000},"score":1,"resource":{"primary":{"URL":"https:\/\/ped-rheum.biomedcentral.com\/articles\/10.1186\/s12969-023-00854-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,7,7]]},"references-count":17,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2023,12]]}},"alternative-id":["854"],"URL":"https:\/\/doi.org\/10.1186\/s12969-023-00854-3","relation":{"has-preprint":[{"id-type":"doi","id":"10.21203\/rs.3.rs-2827800\/v1","asserted-by":"object"}]},"ISSN":["1546-0096"],"issn-type":[{"value":"1546-0096","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,7,7]]},"assertion":[{"value":"19 April 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"1 July 2023","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"7 July 2023","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"This study was approved by the Icahn School of Medicine at Mount Sinai Internal Review Board.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"67"}}