{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T01:48:47Z","timestamp":1785808127679,"version":"3.56.0"},"reference-count":25,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,5,31]],"date-time":"2026-05-31T00:00:00Z","timestamp":1780185600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T00:00:00Z","timestamp":1785801600000},"content-version":"vor","delay-in-days":65,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100018208","name":"Cure JM Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100018208","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Pediatr Rheumatol"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Children with juvenile dermatomyositis (JDM) and juvenile idiopathic arthritis (JIA) have increased rates of anxiety and depression (15\u201365%) when compared to healthy children. Narrative medicine, a group-based intervention that allows patients to reflect on medical experiences, improves patient-reported outcomes with reduces depression rates in adults. Given limited data in pediatric rheumatology, this study assesses feasibility of a patient-targeted narrative medicine intervention and its impact on mental health burden in JDM and JIA.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We prospectively recruited patients ages 6 to 21 with JDM and JIA for a narrative medicine intervention. Participants were divided by diagnosis and age into four narrative medicine groups, with six sessions held over 3 months. Demographic and medical information were collected by chart review. Patients completed pre- and post-intervention questionnaires including Patient-Reported Outcomes Measurement Information System Depression Scale, Generalized Anxiety Disorder-7 (GAD-7), Childhood Attitude Towards Illness Scale, Patient Health Questionnaire-8 (PHQ-8), and CoVID Stress Scale.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Twelve patients with JDM (67% female) and nine with JIA (78% female) participated in the narrative medicine intervention. All patients participated in at least 50% of sessions and 91% participated in at least four of the six sessions. Wilcoxon signed-rank test revealed no statistically significant difference between pre- and post-intervention questionnaires for any scales. Sub-analysis of those with elevated GAD-7 and PHQ-8 pre-intervention showed a trend towards improvement in anxiety (p=0.057) and no change for depression (p=0.171).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Ninety-one percent participated in at least four of the six sessions, demonstrating feasibility. This exploratory study showed trend toward improved anxiety following narrative medicine session participation for those with elevated GAD-7.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s12969-026-01232-5","type":"journal-article","created":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T07:44:43Z","timestamp":1780299883000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Narrative medicine intervention for mental wellbeing in Juvenile Myositis and juvenile idiopathic arthritis"],"prefix":"10.1186","volume":"24","author":[{"given":"Aviya L.","family":"Levy","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Steelquist","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aryn","family":"Bartley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"Unis","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Courtney","family":"Wells","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Dorn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Rosenwasser","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Todd","family":"Edwards","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christian","family":"Lood","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan","family":"Shenoi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,5,31]]},"reference":[{"issue":"8","key":"1232_CR1","doi-asserted-by":"publisher","first-page":"732","DOI":"10.1093\/rheumatology\/34.8.732","volume":"34","author":"DP Symmons","year":"1995","unstructured":"Symmons DP, Sills JA, Davis SM. The incidence of juvenile dermatomyositis: Results from a nation-wide study. Br J Rheumatol. 1995;34(8):732\u20136.","journal-title":"Br J Rheumatol"},{"key":"1232_CR2","doi-asserted-by":"crossref","unstructured":"Lites TD, Foster AL, Boring MA, Fallon EA, Odom EL, Seth PS. Arthritis among children and adolescents aged\u2009<\u200918 years \u2013 United States, 2017\u20132021. Morb Mortal Wkly Rep. 2023;72(29):788\u201392.","DOI":"10.15585\/mmwr.mm7229a3"},{"issue":"85","key":"1232_CR3","first-page":"1","volume":"15","author":"AM Davis","year":"2017","unstructured":"Davis AM, et al. Mental health care for youth with rheumatologic diseases: Bridging the gap. Ped Rheumatol. 2017;15(85):1\u20138.","journal-title":"Ped Rheumatol"},{"issue":"3","key":"1232_CR4","doi-asserted-by":"publisher","first-page":"304","DOI":"10.4103\/injr.injr_127_20","volume":"16","author":"MR Reid","year":"2021","unstructured":"Reid MR, et al. Anxiety and depression in childhood rheumatic conditions: A topical review. Indian J Rheumatol. 2021;16(3):304\u201310.","journal-title":"Indian J Rheumatol"},{"key":"1232_CR5","first-page":"55","volume":"4","author":"TB Rubinstein","year":"2018","unstructured":"Rubinstein TB, et al. Addressing mental health in pediatric rheumatology. Ped Rheumatol. 2018;4:55\u201372.","journal-title":"Ped Rheumatol"},{"issue":"2","key":"1232_CR6","first-page":"413","volume":"42","author":"A Lanis","year":"2024","unstructured":"Lanis A, Alexanderson H, Ardalan K, Edison S, Graham CD, de Groot I, et al. Mental health in paediatric and adult myositis-related diseases: Current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group. Clin Exp Rheumatol. 2024;42(2):413\u201324.","journal-title":"Clin Exp Rheumatol"},{"key":"1232_CR7","doi-asserted-by":"publisher","first-page":"1","DOI":"10.2147\/PRBM.S213587","volume":"13","author":"Y Zhang","year":"2020","unstructured":"Zhang Y, et al. Influence of narrative medicine-based health education combined with an online patient mutual assistance group on the health of patients with inflammatory bowel disease and arthritis. Psych Res Behav Manag. 2020;13:1\u201310.","journal-title":"Psych Res Behav Manag"},{"key":"1232_CR8","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1186\/s12913-016-1474-7","volume":"16","author":"E Gucciardi","year":"2016","unstructured":"Gucciardi E, et al. Designing and delivering facilitated storytelling interventions for chronic disease self management: A scoping review. BMC Health Serv Res. 2016;16:249\u201361.","journal-title":"BMC Health Serv Res"},{"key":"1232_CR9","doi-asserted-by":"publisher","DOI":"10.1016\/j.jped.2021.09.002","author":"L Lindoso","year":"2021","unstructured":"Lindoso L, et al. Physical and mental health impacts during COVID-19 quarantine in adolescents with preexisting chronic immunocompromised conditions. J de Pediatr. 2021. https:\/\/doi.org\/10.1016\/j.jped.2021.09.002.","journal-title":"J de Pediatr"},{"issue":"1","key":"1232_CR10","doi-asserted-by":"publisher","first-page":"1979","DOI":"10.3390\/healthcare10101979","volume":"10","author":"A Lanis","year":"2022","unstructured":"Lanis A, et al. Storytelling of young adults with chronic rheumatologic illnesses: A pilot study. Healthcare. 2022;10(1):1979.","journal-title":"Healthcare"},{"issue":"1","key":"1232_CR11","doi-asserted-by":"publisher","first-page":"e002042","DOI":"10.1136\/rmdopen-2021-002042","volume":"8","author":"A Alongi","year":"2022","unstructured":"Alongi A, et al. Drivers of non-zero physician global scores during periods of inactive disease in juvenile idiopathic arthritis. RMD Open. 2022;8(1):e002042.","journal-title":"RMD Open"},{"issue":"4","key":"1232_CR12","doi-asserted-by":"publisher","first-page":"465","DOI":"10.1002\/acr.20035","volume":"62","author":"LG Rider","year":"2010","unstructured":"Rider LG, et al. Validation of manual muscle testing and a subset of eight muscles (MMT8) for adult and juvenile idiopathic inflammatory myopathies. Arthritis Care Res (Hoboken). 2010;62(4):465\u201372.","journal-title":"Arthritis Care Res (Hoboken)"},{"issue":"5","key":"1232_CR13","doi-asserted-by":"publisher","first-page":"1595","DOI":"10.1002\/art.20179","volume":"50","author":"AM Huber","year":"2004","unstructured":"Huber AM, et al. Validation and clinical significance of the Childhood Myositis Assessment Scale for assessment of muscle function in the juvenile idiopathic inflammatory myopathies. Arthritis Rheum. 2004;50(5):1595\u2013603.","journal-title":"Arthritis Rheum"},{"issue":"4","key":"1232_CR14","doi-asserted-by":"publisher","first-page":"969","DOI":"10.1111\/bjd.13915","volume":"173","author":"CO Anyanwu","year":"2015","unstructured":"Anyanwu CO, et al. Validation of the Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI): Characterizing disease severity and assessing responsiveness to clinical change. Br J Dermatol. 2015;173(4):969\u201374.","journal-title":"Br J Dermatol"},{"key":"1232_CR15","unstructured":"PROMIS Depression Scoring Manual. 2019. https:\/\/www.healthmeasures.net\/images\/PROMIS\/manuals\/PROMIS_Depression_Scoring_Manual.pdf."},{"issue":"11","key":"1232_CR16","doi-asserted-by":"publisher","first-page":"1596","DOI":"10.1007\/s11606-007-0333-y","volume":"22","author":"S Gilbody","year":"2007","unstructured":"Gilbody S, Richards D, Brealey S, Hewitt C. Screening for depression in medical settings with the patient health questionnaire (PHQ): A diagnostic meta-analysis. J Gen Intern Med. 2007;22(11):1596\u2013602.","journal-title":"J Gen Intern Med"},{"issue":"4","key":"1232_CR17","doi-asserted-by":"publisher","first-page":"227","DOI":"10.1177\/104012371702900404","volume":"29","author":"SA Mossman","year":"2017","unstructured":"Mossman SA, Luft MJ, Schroeder HK, Varney ST, Fleck DE, et al. The generalized anxiety disorder 7-item (GAD-7) scale in adolescents with generalized anxiety disorder: Signal detection and validation. Ann Clin Psychiatry. 2017;29(4):227\u2013A234.","journal-title":"Ann Clin Psychiatry"},{"issue":"4","key":"1232_CR18","doi-asserted-by":"publisher","first-page":"567","DOI":"10.1093\/jpepsy\/18.4.467","volume":"18","author":"JK Austin","year":"1993","unstructured":"Austin JK, Huberty TJ. Development of the child attitude towards illness scale. J Pediatr Psychol. 1993;18(4):567\u201380.","journal-title":"J Pediatr Psychol"},{"key":"1232_CR19","doi-asserted-by":"crossref","unstructured":"Zurlo MC, Volta MFCD, Vallone F. COVID-19 student stress questionnaire: Development and validation of a questionnaire to evaluate students\u2019 stressors related to the Coronavirus pandemic lockdown. Front Psychol 2020;11.","DOI":"10.3389\/fpsyg.2020.576758"},{"key":"1232_CR20","doi-asserted-by":"publisher","first-page":"200","DOI":"10.1016\/j.jclinepi.2021.04.002","volume":"137","author":"C Bauer-Staeb","year":"2021","unstructured":"Bauer-Staeb C, et al. Effective dose 50 method as the minimal clinically important difference: Evidence from depression trials. J Clin Epidemiol. 2021;137:200\u20138.","journal-title":"J Clin Epidemiol"},{"key":"1232_CR21","first-page":"1","volume":"00","author":"EL Rappolt","year":"2026","unstructured":"Rappolt EL, et al. Story-based interventions for chronic health conditions in youth: A systematic review and narrative synthesis. J Ped Psychol. 2026;00:1\u201314.","journal-title":"J Ped Psychol"},{"key":"1232_CR22","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1186\/s12913-016-1474-7","volume":"16","author":"E Gucciardi","year":"2016","unstructured":"Gucciardi E, Jean-Pierre N, Karam G, Sidani S. Designing and delivering facilitated storytelling interventions for chronic disease self-management: A scoping review. BMC Health Serv Res. 2016;16:249.","journal-title":"BMC Health Serv Res"},{"key":"1232_CR23","doi-asserted-by":"publisher","first-page":"886","DOI":"10.1037\/hea0001512","volume":"44","author":"MD Haydon","year":"2025","unstructured":"Haydon MD, Stanton AL, Hoyt MA, Bower JE. A randomized controlled trial testing the benefits of prosocial writing in young adult survivors of adolescent and young adult cancer. Health Psychol: Official J Div Health Psychol APA. 2025;44:886\u201397.","journal-title":"Health Psychol: Official J Div Health Psychol APA"},{"issue":"Supplement 1","key":"1232_CR24","first-page":"721","volume":"67","author":"F Rosario","year":"2018","unstructured":"Rosario F, et al. Narrative medicine in diabetes: A randomized trial. Behav Med Clin Nutr Educ Exerc. 2018;67(Supplement 1):721.","journal-title":"Behav Med Clin Nutr Educ Exerc"},{"issue":"4","key":"1232_CR25","doi-asserted-by":"publisher","first-page":"215","DOI":"10.1007\/s10879-014-9292-x","volume":"45","author":"DM Sloan","year":"2015","unstructured":"Sloan DM, et al. Efficacy of narrative writing as an intervention for PTSD: Does the evidence support its use. J Contemp Psychother. 2015;45(4):215\u201325.","journal-title":"J Contemp Psychother"}],"container-title":["Pediatric Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s12969-026-01232-5","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-026-01232-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12969-026-01232-5.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T01:21:47Z","timestamp":1785806507000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s12969-026-01232-5"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,31]]},"references-count":25,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["1232"],"URL":"https:\/\/doi.org\/10.1186\/s12969-026-01232-5","relation":{},"ISSN":["1546-0096"],"issn-type":[{"value":"1546-0096","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,31]]},"assertion":[{"value":"11 August 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 May 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"31 May 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"Ethical Approval was obtained through the SCH Institutional Review Board (STUDY00003804).","order":1,"name":"Ethics","label":"Ethics approval and consent to participate","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","label":"Consent for publication","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no competing interests.","order":3,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"50"}}