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Following surgical repair, children commonly face ongoing aerodigestive morbidity. To address the limited research in this area, this study explored parents\u2019 experiences managing EA-TEF during early childhood, a time marked by high morbidity, and evolving parenting roles.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>As part of a larger project, five standardized focus groups were conducted with 22 parents of children aged 6\u2009months to 7\u2009years treated at a quaternary pediatric surgical center in U.S. Discussions were audio-recorded, transcribed, and analyzed using inductive manifest content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The 22 parents made 629 unique statements about managing their child\u2019s condition. Two themes emerged. The first theme described parents\u2019 experiences of internal day-to-day responsibilities (303 statements) with two categories; Taking responsibility for the child\u2019s health needs (213 statements) and Challenges and possibilities in understanding the child\u2019s condition\/symptoms (90 statements). The second theme involved engaging with healthcare and community systems to support their child\u2019s health and development (326 statements), with three categories; Navigating and finding health care and community-based support programs (214 statements); Managing the child\u2019s transition into contexts outside home: babysitters, daycare, and school (74 statements), and Defining the role of patient\/peer support (38 statements).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Parents of children with EA-TEF describe facing significant and ongoing responsibilities in managing their child\u2019s aerodigestive health, while navigating complex healthcare, educational and patient\/peer support to ensure their children received adequate support. These findings highlight the need for timely, family-centered healthcare programs that address both medical and psychosocial challenges in early childhood.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s13023-026-04288-4","type":"journal-article","created":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T11:56:45Z","timestamp":1772193405000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Parents\u2019 experiences of condition management in children born with esophageal atresia-tracheoesophageal fistula during their early childhood"],"prefix":"10.1186","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1467-9427","authenticated-orcid":false,"given":"Michaela","family":"Dellenmark-Blom","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lianne","family":"Cole","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rosella","family":"Micalizzi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Bennett","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kaylee","family":"Woods","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren","family":"Cardoni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leah","family":"Frain","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abdimajid","family":"Mohamed","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Yasuda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Ngo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anke","family":"Widenmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Graham","family":"Slater","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Zendejas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,2,27]]},"reference":[{"issue":"3","key":"4288_CR1","doi-asserted-by":"publisher","first-page":"227","DOI":"10.1136\/archdischild-2011-300597","volume":"97","author":"RN Pedersen","year":"2012","unstructured":"Pedersen RN, Calzolari E, Husby S, Garne E. 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