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QoL in youth was assessed via 10-item KIDSCREEN (KIDSCREEN-10) self- and proxy-reported questionnaires. The scores ranged from 0 to 100, with higher scores indicating better QoL. Depression screening was performed via the Center for Epidemiological Studies Depression Scale for Children for youths (CES-DC screen positive: score\u2009&gt;\u200915) and WHO-5 Well-being Index for parents\/caregivers (WHO-5 screen positive: score\u2009\u2264\u200950).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The mean self- and proxy-reported normalized KIDSCREEN-10 scores were 64.2 (standard deviation [SD] 11.4) and 66.1 (11.5), respectively. More caregivers overestimated (self-reported minus proxy-reported score\u2009&lt;\u2009\u2212\u00a00.5*SD self-reported score) than underestimated (self-reported minus proxy-reported score\u2009&gt;\u20090.5*SD self-reported score) youths\u2019 QoL (37% versus 23%, p\u2009&lt;\u20090.001). Youths who screened positive for depression (18%) were at higher risk of their QoL being overestimated and lower risk of their QoL being underestimated by caregivers than youths who screened negative for depression (RR<jats:sub>Overestimation<\/jats:sub>1.30 [95% CI 1.10\u20131.52], RR<jats:sub>Underestimation<\/jats:sub>0.27 [0.15\u20130.50]). Caregivers who screened positive for depression (28%) overestimated the QoL of their children less often and underestimated the QoL of their children more often than caregivers who screened negative for depression (RR<jats:sub>Overestimation<\/jats:sub>0.73 [0.60\u20130.89], RR<jats:sub>Underestimation<\/jats:sub>1.41 [1.14\u20131.75]).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Caregivers often over- or underestimated their children\u2019s QoL. Positive screens for depression among both youths and caregivers contributed to the observed differences between self- and caregiver-reported QoL.<\/jats:p><\/jats:sec>","DOI":"10.1186\/s13098-022-00809-w","type":"journal-article","created":{"date-parts":[[2022,3,9]],"date-time":"2022-03-09T12:03:34Z","timestamp":1646827414000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["Overestimation and underestimation of youths\u2019 health-related quality of life are associated with youth and caregiver positive screens for depression: results of a population-based study among youths with longstanding type 1 diabetes"],"prefix":"10.1186","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5281-6023","authenticated-orcid":false,"given":"Anna","family":"Stahl-Pehe","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvia","family":"Selinski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"B\u00e4chle","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katty","family":"Castillo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karin","family":"Lange","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Reinhard W.","family":"Holl","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joachim","family":"Rosenbauer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2022,3,9]]},"reference":[{"key":"809_CR1","volume-title":"Global IDF\/ISPAD guideline for diabetes in childhood and adolescence","author":"International Diabetes Federation","year":"2011","unstructured":"International Diabetes Federation. 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