{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,24]],"date-time":"2026-02-24T09:10:23Z","timestamp":1771924223739,"version":"3.50.1"},"reference-count":65,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,1,21]],"date-time":"2025-01-21T00:00:00Z","timestamp":1737417600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2025,1,21]],"date-time":"2025-01-21T00:00:00Z","timestamp":1737417600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Syst Rev"],"DOI":"10.1186\/s13643-024-02722-x","type":"journal-article","created":{"date-parts":[[2025,1,21]],"date-time":"2025-01-21T09:23:04Z","timestamp":1737451384000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Measurement properties of the Traumatic Brain Injury Quality of Life (TBI-QoL) and Spinal Cord Injury Quality of Life (SCI-QoL) measurement systems: a systematic review"],"prefix":"10.1186","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5419-5817","authenticated-orcid":false,"given":"Rebecca","family":"Ataman","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rehab","family":"Alhasani","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Line","family":"Auneau-Enjalbert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2404-7949","authenticated-orcid":false,"given":"Adria","family":"Quigley","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1944-0650","authenticated-orcid":false,"given":"Henry Ukachukwu","family":"Michael","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5172-6790","authenticated-orcid":false,"given":"Sara","family":"Ahmed","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2025,1,21]]},"reference":[{"key":"2722_CR1","doi-asserted-by":"publisher","first-page":"46","DOI":"10.1016\/j.math.2005.02.003","volume":"11","author":"D Abrams","year":"2006","unstructured":"Abrams D, Davidson M, Harrick J, Harcourt P, Zylinski M, Clancy J. Monitoring the change: current trends in outcome measure usage in physiotherapy. Man Ther. 2006;11:46\u201353.","journal-title":"Man Ther"},{"key":"2722_CR2","unstructured":"Law M, Baum C, Dunn W. Measuring occupational performance: Supporting best practice in occupational therapy. Thorofare, NJ: Slack Incorporated ;2005."},{"issue":"8","key":"2722_CR3","doi-asserted-by":"publisher","first-page":"1889","DOI":"10.1007\/s11136-012-0344-y","volume":"22","author":"BB Reeve","year":"2013","unstructured":"Reeve BB, Wyrwich KW, Wu AW, Velikova G, Terwee CB, Snyder CF, Lyons JC. ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Quality of life research. 2013;22(8):1889\u2013905. https:\/\/doi.org\/10.1007\/s11136-012-0344-y.","journal-title":"Quality of life research"},{"issue":"11","key":"2722_CR4","doi-asserted-by":"publisher","first-page":"1179","DOI":"10.1016\/j.jclinepi.2010.04.011","volume":"63","author":"D Cella","year":"2010","unstructured":"Cella D, Riley W, Stone A, Rothrock N, Reeve B, Yount S, Cook K. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005\u20132008. J Clin Epidemiol. 2010;63(11):1179\u201394. https:\/\/doi.org\/10.1016\/j.jclinepi.2010.04.011.","journal-title":"J Clin Epidemiol"},{"issue":"3","key":"2722_CR5","doi-asserted-by":"publisher","first-page":"475","DOI":"10.1007\/s11136-011-9958-8","volume":"21","author":"RC Gershon","year":"2012","unstructured":"Gershon RC, Lai JS, Bode R, Choi S, Moy C, Bleck T, Cella D. Neuro-QOL: Quality of life item banks for adults with neurological disorders: Item development and calibrations based upon clinical and general population testing. Qual Life Res. 2012;21(3):475\u201386. https:\/\/doi.org\/10.1007\/s11136-011-9958-8.","journal-title":"Qual Life Res"},{"issue":"3","key":"2722_CR6","doi-asserted-by":"publisher","first-page":"257","DOI":"10.1179\/2045772315Y.0000000023","volume":"38","author":"DS Tulsky","year":"2015","unstructured":"Tulsky DS, Kisala PA, Victorson D, Tate DG, Heinemann AW, Charlifue S, Bombardier CH. Overview of the spinal cord injury\u2013quality of life (SCI-QOL) measurement system. J Spinal Cord Med. 2015;38(3):257\u201369.","journal-title":"J Spinal Cord Med"},{"issue":"5","key":"2722_CR7","doi-asserted-by":"publisher","first-page":"281","DOI":"10.1097\/HTR.0000000000000531","volume":"34","author":"DS Tulsky","year":"2019","unstructured":"Tulsky DS, Kisala PA. An overview of the traumatic brain injury\u2013quality of life (TBI-QoL) measurement system. J Head Trauma Rehabil. 2019;34(5):281\u20138.","journal-title":"J Head Trauma Rehabil"},{"issue":"1","key":"2722_CR8","doi-asserted-by":"publisher","first-page":"40","DOI":"10.1097\/HTR.0000000000000131","volume":"31","author":"DS Tulsky","year":"2016","unstructured":"Tulsky DS, Kisala PA, Victorson D, Carlozzi N, Bushnik T, Sherer M, Englander J. TBI-QOL: Development and calibration of item banks to measure patient reported outcomes following traumatic brain injury. J Head Trauma Rehabil. 2016;31(1):40\u201351. https:\/\/doi.org\/10.1097\/HTR.0000000000000131.","journal-title":"J Head Trauma Rehabil"},{"issue":"10","key":"2722_CR9","doi-asserted-by":"publisher","first-page":"S12","DOI":"10.1016\/j.apmr.2011.04.025","volume":"29","author":"D Amtmann","year":"2011","unstructured":"Amtmann D, Cook K, Johnson K, Cella D. The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research. Arch Phys Med Rehabil. 2011;29(10):S12\u20139. https:\/\/doi.org\/10.1016\/j.apmr.2011.04.025.","journal-title":"Arch Phys Med Rehabil"},{"issue":"10(suppl)","key":"2722_CR10","doi-asserted-by":"publisher","first-page":"S52","DOI":"10.1016\/j.apmr.2010.12.046","volume":"92","author":"N Carlozzi","year":"2011","unstructured":"Carlozzi N, Tulsky D, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10(suppl)):S52\u201360.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"2722_CR11","doi-asserted-by":"publisher","first-page":"105","DOI":"10.1016\/j.apmr.2014.08.021","volume":"96","author":"NE Carlozzi","year":"2015","unstructured":"Carlozzi NE, Kratz AL, Sander AM, Chiaravalloti ND, Brickell TA, Lange RT, Tulsky DS. Health-related quality of life in caregivers of individuals with traumatic brain injury: development of a conceptual model. Arch Phys Med Rehabil. 2015;96(1):105\u201313.","journal-title":"Arch Phys Med Rehabil"},{"issue":"10","key":"2722_CR12","doi-asserted-by":"publisher","first-page":"S44","DOI":"10.1016\/j.apmr.2011.04.024","volume":"92","author":"DS Tulsky","year":"2011","unstructured":"Tulsky DS, Kisala PA, Victorson D, Tate D, Heinemann AW, Amtmann D, Cella D. Developing a contemporary patient-reported outcomes measure for spinal cord injury. Arch Phys Med Rehabil. 2011;92(10):S44\u201351.","journal-title":"Arch Phys Med Rehabil"},{"issue":"3","key":"2722_CR13","first-page":"315","volume":"11","author":"PA Kisala","year":"2010","unstructured":"Kisala PA, Tulsky D. Opportunities for CAT applications in medical rehabilitation: development of targeted item banks. J Appl Meas. 2010;11(3):315\u201330.","journal-title":"J Appl Meas"},{"issue":"2","key":"2722_CR14","doi-asserted-by":"publisher","first-page":"147","DOI":"10.1080\/02699052.2022.2042601","volume":"36","author":"TF Bergquist","year":"2022","unstructured":"Bergquist TF, Moessner AM, Mandrekar J, Ransom JE, Dernbach NL, Kendall KS, Brown AW. CONNECT: a pragmatic clinical trial testing a remotely provided linkage to service coordination after hospitalization for TBI. Brain Inj. 2022;36(2):147\u201355.","journal-title":"Brain Inj"},{"key":"2722_CR15","doi-asserted-by":"publisher","first-page":"106102","DOI":"10.1016\/j.cct.2020.106102","volume":"96","author":"AM Spungen","year":"2020","unstructured":"Spungen AM, Bauman WA, Biswas K, Jones KM, Snodgrass AJ, Goetz LL, Asselin PK. The design of a randomized control trial of exoskeletal-assisted walking in the home and community on quality of life in persons with chronic spinal cord injury. Contemp Clin Trials. 2020;96:106102. https:\/\/doi.org\/10.1016\/j.cct.2020.106102.","journal-title":"Contemp Clin Trials"},{"key":"2722_CR16","doi-asserted-by":"crossref","unstructured":"Basch, E. Patient-reported outcomes\u2014harnessing patients\u2019 voices to improve clinical care. New England J Med. 2017;376(2):105\u20138.","DOI":"10.1056\/NEJMp1611252"},{"issue":"1","key":"2722_CR17","doi-asserted-by":"publisher","first-page":"52","DOI":"10.1097\/HTR.0000000000000089","volume":"31","author":"PA Toyinbo","year":"2016","unstructured":"Toyinbo PA, Vanderploeg RD, Donnell AJ, Mutolo SA, Cook KF, Kisala PA, Tulsky DS. Development and initial validation of military deployment-related TBI quality-of-life item banks. J Head Trauma Rehabil. 2016;31(1):52\u201361. https:\/\/doi.org\/10.1097\/HTR.0000000000000089.","journal-title":"J Head Trauma Rehabil"},{"issue":"1","key":"2722_CR18","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1310\/sci18-00019","volume":"25","author":"MA Choukou","year":"2019","unstructured":"Choukou MA, Best KL, Craven BC, Hitzig SL. Identifying and classifying quality of life tools for assessing neurogenic bowel dysfunction after spinal cord injury. Topics Spinal Cord Injury Rehabil. 2019;25(1):1\u201322. https:\/\/doi.org\/10.1310\/sci18-00019.","journal-title":"Topics Spinal Cord Injury Rehabil"},{"issue":"5","key":"2722_CR19","doi-asserted-by":"publisher","first-page":"1147","DOI":"10.1007\/s11136-018-1798-3","volume":"27","author":"CAC Prinsen","year":"2018","unstructured":"Prinsen CAC, Mokkink LB, Bouter LM, Alonso J, Patrick DL, de Vet HCW, Terwee CB. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018;27(5):1147\u201357. https:\/\/doi.org\/10.1007\/s11136-018-1798-3.","journal-title":"Qual Life Res"},{"issue":"1","key":"2722_CR20","doi-asserted-by":"publisher","first-page":"106","DOI":"10.1186\/s41687-024-00743-7","volume":"8","author":"R Ataman","year":"2024","unstructured":"Ataman R, Alhasani R, Auneau-Enjalbert L, Quigley A, Michael HU, Ahmed S. The psychometric properties of the Quality of Life in Neurological Disorders (Neuro-QoL) measurement system in neurorehabilitation populations: a systematic review. J Patient-Reported Outcomes. 2024;8(1):106. https:\/\/doi.org\/10.1186\/s41687-024-00743-7.","journal-title":"J Patient-Reported Outcomes"},{"issue":"4","key":"2722_CR21","doi-asserted-by":"publisher","first-page":"264","DOI":"10.7326\/0003-4819-151-4-200908180-00135","volume":"151","author":"D Moher","year":"2009","unstructured":"Moher D, Liberati A, Tetzlaff J, Altman DG, Altman D, Antes G, Tugwell P. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Internal Med. 2009;151(4):264\u20139. https:\/\/doi.org\/10.7326\/0003-4819-151-4-200908180-00135.","journal-title":"Ann Internal Med"},{"issue":"8","key":"2722_CR22","doi-asserted-by":"publisher","first-page":"1115","DOI":"10.1007\/s11136-009-9528-5","volume":"18","author":"C Terwee","year":"2009","unstructured":"Terwee C, Jansma E, Riphagen I, de Vet HC. Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments. Qual Health Res. 2009;18(8):1115\u201323. https:\/\/doi.org\/10.1007\/s11136-009-9528-5.","journal-title":"Qual Health Res"},{"issue":"3","key":"2722_CR23","doi-asserted-by":"publisher","first-page":"240","DOI":"10.3163\/1536-5050.104.3.014","volume":"104","author":"WM Bramer","year":"2016","unstructured":"Bramer WM, Giustini D, De Jong GB, Holland L, Bekhuis T. De-duplication of database search results for systematic reviews in endnote. J Med Libr Assoc. 2016;104(3):240\u20133. https:\/\/doi.org\/10.3163\/1536-5050.104.3.014.","journal-title":"J Med Libr Assoc"},{"issue":"1","key":"2722_CR24","doi-asserted-by":"publisher","first-page":"22","DOI":"10.1186\/1471-2288-10-22","volume":"10","author":"LB Mokkink","year":"2010","unstructured":"Mokkink LB, Terwee CB, Knol DL, Stratford PW, Alonso J, Patrick DL, De Vet HC. The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Med Res Methodol. 2010;10(1):22. https:\/\/doi.org\/10.1186\/1471-2288-10-22.","journal-title":"BMC Med Res Methodol"},{"issue":"1","key":"2722_CR25","doi-asserted-by":"publisher","first-page":"34","DOI":"10.1016\/j.jclinepi.2006.03.012","volume":"60","author":"CB Terwee","year":"2007","unstructured":"Terwee CB, Bot SDM, de Boer MR, van der Windt DAWM, Knol DL, Dekker J, de Vet HCW. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34\u201342. https:\/\/doi.org\/10.1016\/j.jclinepi.2006.03.012.","journal-title":"J Clin Epidemiol"},{"key":"2722_CR26","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511996214","volume-title":"Measurement in medicine: a practical guide","author":"HCW De Vet","year":"2011","unstructured":"De Vet HCW, Terwee CB, Mokkink LB, Knol DL. Measurement in medicine: a practical guide. Cambridge, UK: Cambridge University Press; 2011."},{"issue":"1","key":"2722_CR27","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12874-020-01179-5","volume":"20","author":"LB Mokkink","year":"2020","unstructured":"Mokkink LB, Boers M, Van Der Vleuten CPM, Bouter LM, Alonso J, Patrick DL, Terwee CB. COSMIN Risk of Bias tool to assess the quality of studies on reliability or measurement error of outcome measurement instruments\u202f: a Delphi study. BMC Med Res Methodol. 2020;20(1):1\u201313. https:\/\/doi.org\/10.1186\/s12874-020-01179-5.","journal-title":"BMC Med Res Methodol"},{"issue":"7650","key":"2722_CR28","doi-asserted-by":"publisher","first-page":"924","DOI":"10.1136\/bmj.39489.470347.ad","volume":"336","author":"GH Guyatt","year":"2008","unstructured":"Guyatt GH, Oxman AD, Vist GE, Kunz R, Falck-Ytter Y, Alonso-Coello P, Sch\u00fcnemann HJ. GRADE: An emerging consensus on rating quality of evidence and strength of recommendations. BMJ. 2008;336(7650):924\u20136. https:\/\/doi.org\/10.1136\/bmj.39489.470347.ad.","journal-title":"BMJ"},{"issue":"1","key":"2722_CR29","doi-asserted-by":"publisher","first-page":"1349","DOI":"10.1007\/s00586-022-07190-2","volume":"31","author":"EMJR Brouwers","year":"2022","unstructured":"Brouwers EMJR, Terwee CB, Roorda LD, Hosman AF, van de Meent H, Bartels RHMA. Dutch-Flemish translation and cross-cultural adaption of the Spinal Cord Injury-Quality of Life (SCI-QOL) short forms. Eur Spine J. 2022;31(1):1349\u201357.","journal-title":"Eur Spine J"},{"issue":"1","key":"2722_CR30","doi-asserted-by":"publisher","first-page":"62","DOI":"10.1097\/HTR.0000000000000149","volume":"31","author":"RT Lange","year":"2016","unstructured":"Lange RT, Brickell TA, Bailie JM, Tulsky DS, French LM. Clinical utility and psychometric properties of the Traumatic Brain Injury Quality of Life Scale (TBI-QOL) in US military service members. J Head Trauma Rehabil. 2016;31(1):62\u201378.","journal-title":"J Head Trauma Rehabil"},{"issue":"1","key":"2722_CR31","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1016\/j.apmr.2019.07.015","volume":"101","author":"AW Heinemann","year":"2020","unstructured":"Heinemann AW, Kisala PA, Boulton AJ, Sherer M, Sander AM, Chiaravalloti N, Tulsky DS. Development and calibration of the TBI-QOL ability to participate in social roles and activities and TBI-QOL satisfaction with social roles and activities item banks and short forms. Arch Phys Med Rehabil. 2020;101(1):20\u201332.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"2722_CR32","doi-asserted-by":"publisher","first-page":"33","DOI":"10.1016\/j.apmr.2019.08.469","volume":"101","author":"PA Kisala","year":"2020","unstructured":"Kisala PA, Tulsky DS, Boulton AJ, Heinemann AW, Victorson D, Sherer M, Hanks R. Development and psychometric characteristics of the TBI-QOL Independence item bank and short form and the TBI-QOL Asking for Help Scale. Arch Phys Med Rehabil. 2020;101(1):33\u201342.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"2722_CR33","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1016\/j.apmr.2019.07.019","volume":"101","author":"NE Carlozzi","year":"2020","unstructured":"Carlozzi NE, Kisala PA, Boulton AJ, Roth E, Kratz AL, Sherer M, Tulsky DS. Measuring pain in TBI: development of the TBI-QOL pain interference item bank and short form. Arch Phys Med Rehabil. 2020;101(1):11\u20139.","journal-title":"Arch Phys Med Rehabil"},{"issue":"5","key":"2722_CR34","doi-asserted-by":"publisher","first-page":"298","DOI":"10.1097\/HTR.0000000000000532","volume":"34","author":"DS Tulsky","year":"2019","unstructured":"Tulsky DS, Tyner CE, Boulton AJ, Kisala PA, Heinemann AW, Roth EJ, Carlozzi NE. Development of the TBI-QOL headache pain item bank and short form. J Head Trauma Rehabil. 2019;34(5):298\u2013307.","journal-title":"J Head Trauma Rehabil"},{"issue":"5","key":"2722_CR35","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1097\/HTR.0000000000000530","volume":"34","author":"PA Kisala","year":"2019","unstructured":"Kisala PA, Bushnik T, Boulton AJ, Hanks RA, Kolakowsky-Hayner SA, Tulsky DS. Measuring fatigue in TBI: development of the TBI-QOL fatigue item bank and short form. J Head Trauma Rehabil. 2019;34(5):289\u201397.","journal-title":"J Head Trauma Rehabil"},{"issue":"5","key":"2722_CR36","doi-asserted-by":"publisher","first-page":"308","DOI":"10.1097\/HTR.0000000000000520","volume":"34","author":"NE Carlozzi","year":"2019","unstructured":"Carlozzi NE, Tyner CE, Kisala PA, Boulton AJ, Sherer M, Chiaravalloti N, Tulsky DS. Measuring self-reported cognitive function following TBI: development of the TBI-QOL executive function and cognition-general concerns item banks. J Head Trauma Rehabil. 2019;34(5):308\u201325.","journal-title":"J Head Trauma Rehabil"},{"issue":"1","key":"2722_CR37","doi-asserted-by":"publisher","first-page":"43","DOI":"10.1016\/j.apmr.2018.05.036","volume":"101","author":"CE Tyner","year":"2020","unstructured":"Tyner CE, Boulton AJ, Sherer M, Kisala PA, Glutting JJ, Tulsky DS. Development of composite scores for the TBI-QOL. Arch Phys Med Rehabil. 2020;101(1):43\u201353.","journal-title":"Arch Phys Med Rehabil"},{"issue":"3","key":"2722_CR38","doi-asserted-by":"publisher","first-page":"318","DOI":"10.1002\/jts.22480","volume":"33","author":"RT Lange","year":"2020","unstructured":"Lange RT, French LM, Lippa SM, Bailie JM, Brickell TA. Posttraumatic stress disorder is a stronger predictor of long-term neurobehavioral outcomes than traumatic brain injury severity. J Trauma Stress. 2020;33(3):318\u201329.","journal-title":"J Trauma Stress"},{"issue":"1","key":"2722_CR39","doi-asserted-by":"publisher","first-page":"62","DOI":"10.1016\/j.apmr.2017.04.016","volume":"101","author":"M Sherer","year":"2020","unstructured":"Sherer M, Poritz JM, Tulsky D, Kisala P, Leon-Novelo L, Ngan E. Conceptual structure of health-related quality of life for persons with traumatic brain injury: confirmatory factor analysis of the TBI-QOL. Arch Phys Med Rehabil. 2020;101(1):62\u201371.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"2722_CR40","doi-asserted-by":"publisher","first-page":"54","DOI":"10.1016\/j.apmr.2017.11.018","volume":"101","author":"JM Poritz","year":"2020","unstructured":"Poritz JM, Sherer M, Kisala PA, Tulsky D, Leon-Novelo L, Ngan E. Responsiveness of the traumatic brain injury\u2013quality of life (TBI-QOL) measurement system. Arch Phys Med Rehabil. 2020;101(1):54\u201361.","journal-title":"Arch Phys Med Rehabil"},{"issue":"16","key":"2722_CR41","doi-asserted-by":"publisher","first-page":"763311","DOI":"10.3389\/fnhum.2022.763311","volume":"4","author":"CE Tyner","year":"2022","unstructured":"Tyner CE, Kisala PA, Boulton AJ, Sherer M, Chiaravalloti ND, Sander AM, Tulsky DS. Responsiveness of the traumatic brain injury quality of life cognition banks in recent brain injury. Front Hum Neurosci. 2022;4(16):763311. https:\/\/doi.org\/10.3389\/fnhum.2022.763311.","journal-title":"Front Hum Neurosci"},{"issue":"5","key":"2722_CR42","doi-asserted-by":"publisher","first-page":"326","DOI":"10.1097\/HTR.0000000000000528","volume":"34","author":"ML Cohen","year":"2019","unstructured":"Cohen ML, Kisala PA, Boulton AJ, Carlozzi NE, Cook CV, Tulsky DS. Development and psychometric characteristics of the TBI-QOL communication item bank. J Head Trauma Rehabil. 2019;34(5):326\u201339.","journal-title":"J Head Trauma Rehabil"},{"issue":"3","key":"2722_CR43","doi-asserted-by":"publisher","first-page":"356","DOI":"10.1179\/2045772315Y.0000000024","volume":"38","author":"H Bertisch","year":"2015","unstructured":"Bertisch H, Kalpakjian CZ, Kisala PA, Tulsky DS. Measuring positive affect and well-being after spinal cord injury: development and psychometric characteristics of the SCI-QOL Positive Affect and Well-being bank and short form. J Spinal Cord Med. 2015;38(3):356\u201365.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR44","doi-asserted-by":"publisher","first-page":"347","DOI":"10.1179\/2045772315Y.0000000015","volume":"38","author":"CZ Kalpakjian","year":"2015","unstructured":"Kalpakjian CZ, Tulsky DS, Kisala PA, Bombardier CH. Measuring grief and loss after spinal cord injury: development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form. J Spinal Cord Med. 2015;38(3):347\u201355.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR45","doi-asserted-by":"publisher","first-page":"303","DOI":"10.1179\/2045772315Y.0000000017","volume":"38","author":"PA Kisala","year":"2015","unstructured":"Kisala PA, Tulsky DS, Choi SW, Kirshblum SC. Development and psychometric characteristics of the SCI-QOL pressure ulcers scale and short form. J Spinal Cord Med. 2015;38(3):303\u201314.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR46","doi-asserted-by":"publisher","first-page":"270","DOI":"10.1179\/2045772315Y.0000000034","volume":"38","author":"DS Tulsky","year":"2015","unstructured":"Tulsky DS, Kisala PA, Victorson D, Choi SW, Gershon R, Heinemann AW, Cella D. Methodology for the development and calibration of the SCI-QOL item banks. J Spinal Cord Med. 2015;38(3):270\u201387.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR47","doi-asserted-by":"publisher","first-page":"366","DOI":"10.1179\/2045772315Y.0000000016","volume":"38","author":"D Victorson","year":"2015","unstructured":"Victorson D, Tulsky DS, Kisala PA, Kalpakjian CZ, Weiland B, Choi SW. Measuring resilience after spinal cord injury: development, validation and psychometric characteristics of the SCI-QOL Resilience item bank and short form. J Spinal Cord Med. 2015;38(3):366\u201376.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR48","doi-asserted-by":"publisher","first-page":"315","DOI":"10.1179\/2045772315Y.0000000029","volume":"38","author":"PA Kisala","year":"2015","unstructured":"Kisala PA, Tulsky DS, Kalpakjian CZ, Heinemann AW, Pohlig RT, Carle A, Choi SW. Measuring anxiety after spinal cord injury: Development and psychometric characteristics of the SCI-QOL anxiety item bank and linkage with GAD-7. J Spinal Cord Med. 2015;38(3):315\u201325.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR49","doi-asserted-by":"publisher","first-page":"288","DOI":"10.1179\/2045772315Y.0000000030","volume":"38","author":"DS Tulsky","year":"2015","unstructured":"Tulsky DS, Kisala PA, Tate DG, Spungen AM, Kirshblum SC. Development and psychometric characteristics of the SCI-QOL bladder management difficulties and bowel management difficulties item banks and short forms and the SCI-QOL bladder complications scale. J Spinal Cord Med. 2015;38(3):288\u2013302.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR50","doi-asserted-by":"publisher","first-page":"335","DOI":"10.1179\/2045772315Y.0000000020","volume":"38","author":"DS Tulsky","year":"2015","unstructured":"Tulsky DS, Kisala PA, Kalpakjian CZ, Bombardier CH, Pohlig RT, Heinemann AW, Choi SW. Measuring depression after spinal cord injury: Development and psychometric characteristics of the SCI-QOL depression item bank and linkage with PHQ-9. J Spinal Cord Med. 2015;38(3):335\u201346.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR51","doi-asserted-by":"publisher","first-page":"326","DOI":"10.1179\/2045772315Y.0000000022","volume":"38","author":"PA Kisala","year":"2015","unstructured":"Kisala PA, Victorson D, Pace N, Heinemann AW, Choi SW, Tulsky DS. Measuring psychological trauma after spinal cord injury: development and psychometric characteristics of the SCI-QOL psychological trauma item bank and short form. J Spinal Cord Med. 2015;38(3):326\u201334.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR52","doi-asserted-by":"publisher","first-page":"386","DOI":"10.1179\/1079026815Z.000000000410","volume":"38","author":"PA Kisala","year":"2015","unstructured":"Kisala PA, Tulsky DS, Pace N, Victorson D, Choi SW, Heinemann AW. Measuring stigma after spinal cord injury: development and psychometric characteristics of the SCI-QOL Stigma item bank and short form. J Spinal Cord Med. 2015;38(3):386\u201396.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR53","doi-asserted-by":"publisher","first-page":"377","DOI":"10.1179\/2045772315Y.0000000014","volume":"38","author":"CZ Kalpakjian","year":"2015","unstructured":"Kalpakjian CZ, Tate DG, Kisala PA, Tulsky DS. Measuring self-esteem after spinal cord injury: development, validation and psychometric characteristics of the SCI-QOL Self-esteem item bank and short form. J Spinal Cord Med. 2015;38(3):377\u201385.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR54","doi-asserted-by":"publisher","first-page":"267","DOI":"10.1080\/10790268.2017.1279805","volume":"41","author":"ML Cohen","year":"2018","unstructured":"Cohen ML, Kisala PA, Dyson-Hudson TA, Tulsky DS. Measuring pain phenomena after spinal cord injury: development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools. J Spinal Cord Med. 2018;41(3):267\u201380.","journal-title":"J Spinal Cord Med"},{"issue":"3","key":"2722_CR55","doi-asserted-by":"publisher","first-page":"927","DOI":"10.1007\/s11136-021-02981-4","volume":"31","author":"D Kuzu","year":"2022","unstructured":"Kuzu D, Kallen MA, Kalpakjian CZ, Kratz AL. Psychometric properties of the spinal cord injury-quality of life (SCI-QOL) Resilience item bank in a sample with spinal cord injury and chronic pain. Qual Life Res. 2022;31(3):927\u201336.","journal-title":"Qual Life Res"},{"issue":"1","key":"2722_CR56","doi-asserted-by":"publisher","first-page":"59","DOI":"10.1016\/j.apmr.2023.10.002","volume":"105","author":"D Kuzu","year":"2024","unstructured":"Kuzu D, Kallen MA, Kratz AL. Psychometric properties of the spinal cord injury-quality of life (SCI-QOL) resilience short form in a sample with spinal cord injury. Arch Phys Med Rehabil. 2024;105(1):59\u201366. https:\/\/doi.org\/10.1016\/j.apmr.2023.10.002.","journal-title":"Arch Phys Med Rehabil"},{"issue":"8","key":"2722_CR57","doi-asserted-by":"publisher","first-page":"1075","DOI":"10.1111\/j.1524-4733.2009.00603.x","volume":"12","author":"M Rothman","year":"2009","unstructured":"Rothman M, Burke L, Erickson P, Leidy NK, Patrick DL, Petrie CD. Use of Existing Patient-Reported Outcome (PRO) Instruments and their modification: the ISPOR good research practices for evaluating and documenting content validity for the use of existing instruments and their modification PRO task force report. Value in Health. 2009;12(8):1075\u201383. https:\/\/doi.org\/10.1111\/j.1524-4733.2009.00603.x.","journal-title":"Value in Health"},{"issue":"5","key":"2722_CR58","doi-asserted-by":"publisher","first-page":"623","DOI":"10.1016\/j.jval.2023.01.001","volume":"26","author":"P O\u2019Donohoe","year":"2023","unstructured":"O\u2019Donohoe P, Reasner DS, Kovacs SM, Byrom B, Eremenco S, Barsdorf AI, Coons SJ. Updated recommendations on evidence needed to support measurement comparability among modes of data collection for patient-reported outcome measures: a good practices report of an ISPOR task force. Value Health. 2023;26(5):623\u201333. https:\/\/doi.org\/10.1016\/j.jval.2023.01.001.","journal-title":"Value Health"},{"issue":"1","key":"2722_CR59","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1186\/s41687-020-0176-4","volume":"4","author":"J Hanmer","year":"2020","unstructured":"Hanmer J, Jensen RE, Rothrock N. A reporting checklist for HealthMeasures\u2019 patient-reported outcomes: ASCQ-Me, Neuro-QoL, NIH Toolbox, and PROMIS. J Patient-Reported Outcomes. 2020;4(1):21. https:\/\/doi.org\/10.1186\/s41687-020-0176-4.","journal-title":"J Patient-Reported Outcomes"},{"key":"2722_CR60","unstructured":"PROMIS. PROMIS Adult Profile Instruments. 2021. Retrieved from https:\/\/staging.healthmeasures.net\/images\/PROMIS\/manuals\/PROMIS_Adult_Profile_Scoring_Manual.pdf."},{"issue":"7","key":"2722_CR61","doi-asserted-by":"publisher","first-page":"1289","DOI":"10.1016\/j.apmr.2011.11.022","volume":"93","author":"KF Cook","year":"2012","unstructured":"Cook KF, Bamer AM, Amtmann D, Molton IR, Jensen MP. Six patient-reported outcome measurement information system short form measures have negligible age- or diagnosis-related differential item functioning in individuals with disabilities. Arch Phys Med Rehabil. 2012;93(7):1289\u201391. https:\/\/doi.org\/10.1016\/j.apmr.2011.11.022.","journal-title":"Arch Phys Med Rehabil"},{"issue":"1","key":"2722_CR62","doi-asserted-by":"publisher","first-page":"139","DOI":"10.1007\/s11136-016-1363-x","volume":"26","author":"KF Cook","year":"2017","unstructured":"Cook KF, Kallen MA, Bombardier C, Bamer AM, Choi SW, Kim J, Amtmann D. Do measures of depressive symptoms function differently in people with spinal cord injury versus primary care patients: the CES-D, PHQ-9, and PROMIS\u00ae-D. Qual Life Res. 2017;26(1):139\u201348. https:\/\/doi.org\/10.1007\/s11136-016-1363-x.","journal-title":"Qual Life Res"},{"issue":"7","key":"2722_CR63","doi-asserted-by":"publisher","first-page":"2223","DOI":"10.1007\/s11136-022-03114-1","volume":"31","author":"SD Patrick","year":"2022","unstructured":"Patrick SD, Sanders G, Boulton AJ, Tulsky DS. Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury. Qual Life Res. 2022;31(7):2223\u201333. https:\/\/doi.org\/10.1007\/s11136-022-03114-1.","journal-title":"Qual Life Res"},{"issue":"5","key":"2722_CR64","doi-asserted-by":"publisher","first-page":"435","DOI":"10.1037\/hea0000685","volume":"38","author":"PA Kisala","year":"2019","unstructured":"Kisala PA, Boulton AJ, Cohen ML, Slavin MD, Jette AM, Charlifue S, Tulsky DS. Interviewer- versus self-administration of PROMIS\u00ae measures for adults with traumatic injury. Health Psychol. 2019;38(5):435\u201344. https:\/\/doi.org\/10.1037\/hea0000685.","journal-title":"Health Psychol"},{"issue":"12","key":"2722_CR65","doi-asserted-by":"publisher","first-page":"2113","DOI":"10.1016\/j.apmr.2016.05.021","volume":"97","author":"AW Heinemann","year":"2016","unstructured":"Heinemann AW, Miskovic A, Semik P, Wong A, Dashner J, Baum C, Gray DB. Measuring environmental factors: unique and overlapping international classification of functioning, disability and health coverage of 5 instruments. Arch Phys Med Rehabil. 2016;97(12):2113\u201322. https:\/\/doi.org\/10.1016\/j.apmr.2016.05.021.","journal-title":"Arch Phys Med Rehabil"}],"container-title":["Systematic Reviews"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13643-024-02722-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s13643-024-02722-x\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s13643-024-02722-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,1,21]],"date-time":"2025-01-21T21:12:55Z","timestamp":1737493975000},"score":1,"resource":{"primary":{"URL":"https:\/\/systematicreviewsjournal.biomedcentral.com\/articles\/10.1186\/s13643-024-02722-x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1,21]]},"references-count":65,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["2722"],"URL":"https:\/\/doi.org\/10.1186\/s13643-024-02722-x","relation":{},"ISSN":["2046-4053"],"issn-type":[{"value":"2046-4053","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1,21]]},"assertion":[{"value":"13 July 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 November 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"21 January 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare that they have no competing interests.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"18"}}