{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,7]],"date-time":"2026-07-07T16:27:41Z","timestamp":1783441661977,"version":"3.54.6"},"reference-count":10,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2023,8,25]],"date-time":"2023-08-25T00:00:00Z","timestamp":1692921600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2023,8,25]],"date-time":"2023-08-25T00:00:00Z","timestamp":1692921600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Eat Disord"],"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Whether or not to define \u2018terminal anorexia nervosa\u2019 has been a hotly debated topic in the eating disorders field recently. Being able to have open scientific debate on important topics such as this is essential for the progress of our field\u2014but needs to be undertaken respectfully, allowing all perspectives to be heard. My personal perspective on this topic comes from being a researcher who sees individuals with anorexia nervosa (AN) across all stages of illness and recovery, as well as having had a loved one die from AN. Although I disagree with the terminology of \u2018terminal AN\u2019 and believe that establishing criteria has the potential to cause harm, I strongly believe in showing compassion to individuals with AN across all illness stages, including those who may wish to seek end-of-life care. This is a complex issue that our field requires guidance on, and we need to work in genuine collaboration with individuals with lived experience of AN to figure out how to appropriately approach end-of-life care when it is warranted.<\/jats:p>","DOI":"10.1186\/s40337-023-00872-2","type":"journal-article","created":{"date-parts":[[2023,8,25]],"date-time":"2023-08-25T04:01:53Z","timestamp":1692936113000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["The importance of terminology, lived experience inclusion and scientific discussion regarding end-of-life care in anorexia nervosa: a response to Gaudiani et al."],"prefix":"10.1186","volume":"11","author":[{"given":"Andrea","family":"Phillipou","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2023,8,25]]},"reference":[{"issue":"1","key":"872_CR1","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1186\/s40337-022-00548-3","volume":"10","author":"JL Gaudiani","year":"2022","unstructured":"Gaudiani JL, Bogetz A, Yager J. Terminal anorexia nervosa: three cases and proposed clinical characteristics. J Eat Disord. 2022;10(1):23.","journal-title":"J Eat Disord"},{"issue":"1","key":"872_CR2","doi-asserted-by":"publisher","first-page":"107","DOI":"10.1186\/s40337-023-00823-x","volume":"11","author":"A Asaria","year":"2023","unstructured":"Asaria A. \u201cTerminal anorexia\u201d: a lived experience perspective. J Eat Disord. 2023;11(1):107.","journal-title":"J Eat Disord"},{"issue":"2","key":"872_CR3","doi-asserted-by":"publisher","first-page":"146","DOI":"10.1016\/S2215-0366(22)00400-X","volume":"10","author":"J Downs","year":"2023","unstructured":"Downs J, Ayton A, Collins L, Baker S, Missen H, Ibrahim A. Untreatable or unable to treat? Creating more effective and accessible treatment for long-standing and severe eating disorders. Lancet Psychiatry. 2023;10(2):146\u201354.","journal-title":"Lancet Psychiatry"},{"issue":"1","key":"872_CR4","doi-asserted-by":"publisher","first-page":"2","DOI":"10.1186\/s40337-022-00729-0","volume":"11","author":"R Elwyn","year":"2023","unstructured":"Elwyn R. A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope. J Eat Disord. 2023;11(1):2.","journal-title":"J Eat Disord"},{"issue":"1","key":"872_CR5","doi-asserted-by":"publisher","first-page":"66","DOI":"10.1186\/s40337-023-00791-2","volume":"11","author":"SL Sharpe","year":"2023","unstructured":"Sharpe SL, Adams M, Smith EK, Urban B, Silverstein S. Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of \u201cterminal\u201d anorexia nervosa. J Eat Disord. 2023;11(1):66.","journal-title":"J Eat Disord"},{"issue":"6","key":"872_CR6","doi-asserted-by":"publisher","first-page":"501","DOI":"10.1177\/0004867418814958","volume":"53","author":"A Phillipou","year":"2019","unstructured":"Phillipou A, Beilharz F. Should we shed the weight criterion for anorexia nervosa? Aust N Z J Psychiatry. 2019;53(6):501\u20132.","journal-title":"Aust N Z J Psychiatry"},{"issue":"1","key":"872_CR7","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1177\/0004867417722640","volume":"52","author":"A Phillipou","year":"2018","unstructured":"Phillipou A, Castle DJ, Rossell SL. Anorexia nervosa: eating disorder or body image disorder? Aust N Z J Psychiatry. 2018;52(1):13\u20134.","journal-title":"Aust N Z J Psychiatry"},{"issue":"12","key":"872_CR8","doi-asserted-by":"publisher","first-page":"1145","DOI":"10.1177\/0004867419849487","volume":"53","author":"A Phillipou","year":"2019","unstructured":"Phillipou A, Musi\u0107 S, Rossell SL. A biopsychosocial proposal to progress the field of anorexia nervosa. Aust N Z J Psychiatry. 2019;53(12):1145\u20137.","journal-title":"Aust N Z J Psychiatry"},{"issue":"7","key":"872_CR9","doi-asserted-by":"publisher","first-page":"755","DOI":"10.1177\/0004867420924474","volume":"54","author":"A Phillipou","year":"2020","unstructured":"Phillipou A, Musi\u0107 S, Rossell SL. Refeeding is not a treatment for the underlying symptoms of anorexia nervosa. Aust N Z J Psychiatry. 2020;54(7):755\u20137.","journal-title":"Aust N Z J Psychiatry"},{"issue":"2","key":"872_CR10","doi-asserted-by":"publisher","first-page":"17085","DOI":"10.4088\/JCP.15m10393","volume":"78","author":"KT Eddy","year":"2017","unstructured":"Eddy KT, Tabri N, Thomas JJ, Murray HB, Keshaviah A, Hastings E, et al. Recovery from anorexia nervosa and bulimia nervosa at 22-year follow-up. J Clin Psychiatry. 2017;78(2):17085.","journal-title":"J Clin Psychiatry"}],"container-title":["Journal of Eating Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40337-023-00872-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40337-023-00872-2\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40337-023-00872-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,11,20]],"date-time":"2023-11-20T06:37:54Z","timestamp":1700462274000},"score":1,"resource":{"primary":{"URL":"https:\/\/jeatdisord.biomedcentral.com\/articles\/10.1186\/s40337-023-00872-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,8,25]]},"references-count":10,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2023,12]]}},"alternative-id":["872"],"URL":"https:\/\/doi.org\/10.1186\/s40337-023-00872-2","relation":{},"ISSN":["2050-2974"],"issn-type":[{"value":"2050-2974","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,8,25]]},"assertion":[{"value":"20 July 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"17 August 2023","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 August 2023","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The author declares that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"145"}}