{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T17:11:28Z","timestamp":1791565888409,"version":"4.3.4"},"reference-count":25,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,2,2]],"date-time":"2026-02-02T00:00:00Z","timestamp":1769990400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2026,2,2]],"date-time":"2026-02-02T00:00:00Z","timestamp":1769990400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Eat Disord"],"DOI":"10.1186\/s40337-025-01519-0","type":"journal-article","created":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T23:02:11Z","timestamp":1769986931000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["The importance of learning from people with lived experiences of eating disorders"],"prefix":"10.1186","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-8320-2955","authenticated-orcid":false,"given":"Alykhan","family":"Asaria","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,2,2]]},"reference":[{"issue":"1","key":"1519_CR1","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1186\/s40337-024-01145-2","volume":"13","author":"A Asaria","year":"2025","unstructured":"Asaria A. Improving eating disorder care for underserved groups: a lived experience and quality improvement perspective. J Eat Disord. 2025a;13(1):11.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR2","doi-asserted-by":"publisher","first-page":"238","DOI":"10.1186\/s40337-025-01384-x","volume":"13","author":"A Asaria","year":"2025","unstructured":"Asaria A. Broad considerations for improving eating disorder care: a lived experience and quality improvement perspective. J Eat Disord. 2025b;13(1):238.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR3","doi-asserted-by":"publisher","first-page":"222","DOI":"10.1186\/s40337-023-00935-4","volume":"11","author":"A Asaria","year":"2023","unstructured":"Asaria A. 'Terminal anorexia\u2019: a lived experience perspective on the proposed criteria. J Eat Disord. 2023b;11(1):222.","journal-title":"J Eat Disord"},{"key":"1519_CR4","unstructured":"Oxford University Press. Oxford English Dictionary [No Publication Date]. https:\/\/www.oed.com\/search\/dictionary\/?scope=Entries%26q=epistemology"},{"issue":"1","key":"1519_CR5","doi-asserted-by":"publisher","first-page":"e301807","DOI":"10.1136\/bmjment-2025-301807","volume":"28","author":"J Downs","year":"2025","unstructured":"Downs J. Beyond the methodological binary: coproduction as the third pillar of mental health science. BMJ Ment Health. 2025;28(1):e301807.","journal-title":"BMJ Ment Health"},{"issue":"1","key":"1519_CR6","doi-asserted-by":"publisher","first-page":"187","DOI":"10.1186\/s40337-024-01126-5","volume":"12","author":"L Cobbaert","year":"2024","unstructured":"Cobbaert L, Millichamp AR, Elwyn R, Silverstein S, Schweizer K, Thomas E, et al. Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review. J Eat Disord. 2024;12(1):187.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR7","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1186\/s40337-024-01176-9","volume":"13","author":"J Downs","year":"2025","unstructured":"Downs J, Adams M, Federici A, Sharpe S, Ayton A. Equity in eating disorders: a dialectical approach to stigma, expertise, and the coproduction of knowledge. J Eat Disord. 2025;13(1):31.","journal-title":"J Eat Disord"},{"key":"1519_CR8","doi-asserted-by":"crossref","unstructured":"Miller AE, Hotte-Meunier A, Bain T, Macdonald EP, Steiger H, Racine SE. A qualitative study of the lived treatment experiences of women with an eating disorder and comorbid borderline personality disorder. Int J Eat Disord. 2025; 58: 860-7.","DOI":"10.1002\/eat.24390"},{"issue":"1","key":"1519_CR9","doi-asserted-by":"publisher","first-page":"143","DOI":"10.1186\/s40337-025-01342-7","volume":"13","author":"M Hawley","year":"2025","unstructured":"Hawley M, O\u2019Neill J, Dorland J, Richards S, Kinney S, Court A, et al. Restraint for nasogastric tube feeding in young people with anorexia nervosa or atypical anorexia nervosa: a retrospective audit. J Eat Disord. 2025;13(1):143.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR10","doi-asserted-by":"publisher","first-page":"33","DOI":"10.1186\/s40337-025-01215-z","volume":"13","author":"KS Thomas","year":"2025","unstructured":"Thomas KS, Keating J, Ross AA, Cooper K, Jones CRG. Avoidant\/restrictive food intake disorder (ARFID) symptoms in gender diverse adults and their relation to autistic traits, ADHD traits, and sensory sensitivities. J Eat Disord. 2025;13(1):33.","journal-title":"J Eat Disord"},{"issue":"3","key":"1519_CR11","doi-asserted-by":"publisher","first-page":"328","DOI":"10.1037\/qup0000299","volume":"11","author":"SE Byrne","year":"2024","unstructured":"Byrne SE, Casey LJ, McAloon J. Navigating treatment: A framework analysis of perspectives of male adolescents with disordered eating in clinical settings. Qualitative Psychol. 2024;11(3):328\u201347.","journal-title":"Qualitative Psychol"},{"key":"1519_CR12","doi-asserted-by":"publisher","first-page":"820043","DOI":"10.3389\/fpsyt.2022.820043","volume":"13","author":"G Halbeisen","year":"2022","unstructured":"Halbeisen G, Brandt G, Paslakis G. A plea for diversity in eating disorders research. Front Psychiatry. 2022;13:820043.","journal-title":"Front Psychiatry"},{"issue":"5","key":"1519_CR13","doi-asserted-by":"publisher","first-page":"845","DOI":"10.1007\/s40519-019-00770-0","volume":"24","author":"E Kinnaird","year":"2019","unstructured":"Kinnaird E, Norton C, Pimblett C, Stewart C, Tchanturia K. \"There\u2019s nothing there for guys\". Do men with eating disorders want treatment adaptations? A qualitative study. Eat Weight Disord. 2019;24(5):845\u201352.","journal-title":"Eat Weight Disord"},{"key":"1519_CR14","unstructured":"Life Stories Diary. Dear Diary Blog [No Publication Date]. https:\/\/lifestoriesdiary.com\/blog\/"},{"key":"1519_CR15","unstructured":"Alexander J. 51% free: the turning point in my eating disorder recovery. Life Stories Diary. 23rd June 2025. https:\/\/lifestoriesdiary.com\/2025\/06\/23\/51-free-the-turning-point-in-my-eating-disorder-recovery\/"},{"key":"1519_CR16","unstructured":"Alexander J. Emerging whole: a life reclaimed. Life Stories Diary. 28th July 2025. https:\/\/lifestoriesdiary.com\/2025\/07\/28\/emerging-whole-a-life-reclaimed\/"},{"key":"1519_CR17","unstructured":"Alexander J. Living without anorexia nervosa: a dream come true. Life Stories Diary. 18th August 2025. https:\/\/lifestoriesdiary.com\/2025\/08\/18\/living-without-anorexia-nervosa-a-dream-come-true\/"},{"key":"1519_CR18","unstructured":"Alexander J. When feeling the freedom replaces feeling the fear. Life Stories Diary. 1st September 2025. https:\/\/lifestoriesdiary.com\/2025\/09\/01\/when-feeling-the-freedom-replaces-feeling-the-fear\/"},{"issue":"1","key":"1519_CR19","doi-asserted-by":"publisher","first-page":"107","DOI":"10.1186\/s40337-023-00823-x","volume":"11","author":"A Asaria","year":"2023","unstructured":"Asaria A. 'Terminal anorexia\u2019: a lived experience perspective. J Eat Disord. 2023a;11(1):107.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR20","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1186\/s40337-022-00548-3","volume":"10","author":"JL Gaudiani","year":"2022","unstructured":"Gaudiani JL, Bogetz A, Yager J. Terminal anorexia nervosa: three cases and proposed clinical characteristics. J Eat Disord. 2022;10(1):23.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR21","doi-asserted-by":"publisher","first-page":"2","DOI":"10.1186\/s40337-022-00729-0","volume":"11","author":"R Elwyn","year":"2023","unstructured":"Elwyn R. A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope. J Eat Disord. 2023;11(1):2.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR22","doi-asserted-by":"publisher","first-page":"66","DOI":"10.1186\/s40337-023-00791-2","volume":"11","author":"SL Sharpe","year":"2023","unstructured":"Sharpe SL, Adams M, Smith EK, Urban B, Silverstein S. Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of terminal anorexia nervosa. J Eat Disord. 2023;11(1):66.","journal-title":"J Eat Disord"},{"issue":"1","key":"1519_CR23","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1186\/s40337-025-01279-x","volume":"13","author":"JL Gaudiani","year":"2025","unstructured":"Gaudiani JL. Listening and learning: the need for a compassionate and patient-centered approach for longstanding AN. J Eat Disord. 2025;13(1):81.","journal-title":"J Eat Disord"},{"key":"1519_CR24","unstructured":"39 Essex Chambers. Anorexia and the Court of Protection. 23rd January 2024. https:\/\/www.39essex.com\/events\/anorexia-and-court-protection"},{"key":"1519_CR25","unstructured":"Mind. Borderline Personality Disorder (BPD) - About BPD [No Publication Date]. https:\/\/www.mind.org.uk\/information-support\/types-of-mental-health-problems\/borderline-personality-disorder-bpd\/about-bpd\/"}],"container-title":["Journal of Eating Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40337-025-01519-0.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40337-025-01519-0","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40337-025-01519-0.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T23:02:12Z","timestamp":1769986932000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s40337-025-01519-0"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,2]]},"references-count":25,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["1519"],"URL":"https:\/\/doi.org\/10.1186\/s40337-025-01519-0","relation":{},"ISSN":["2050-2974"],"issn-type":[{"value":"2050-2974","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,2]]},"assertion":[{"value":"5 October 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"24 December 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"2 February 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"42"}}