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We share our reflections, experiences and lessons learned as we grapple with the field of POR for its lack of clarity, hierarchical structures, internalized ableism, and accessibility challenges, among others. To mitigate the difficulties of POR, we started by laying the groundwork for equality by embracing the principle of <jats:italic>Primus Inter Pares: First Among Equals<\/jats:italic> as the foundation of our approach. In this way, we began with what we know for certain: the inherent worth and dignity of young adults as equal partners, recognizing their expertise, worldviews, creativity, and capacity to contribute meaningfully and intentionally to the research that affects their lives and futures.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Main Body<\/jats:title>\n                <jats:p>The manuscript underscores the need to reconceptualize meaningful engagement in POR, advocating a shift from traditional, biased paradigms that fail to address the complexities faced by young adults with mental illness. It introduces what we have termed <jats:italic>Adaptive and Differential Engagement<\/jats:italic>, underscoring the necessity of tailoring participation to individual preferences and circumstances alongside a <jats:italic>Tripartite Compensation model<\/jats:italic> that promotes fair and holistic remuneration in research collaborations. Then we discuss the approaches we have conceptualized, such as <jats:italic>Equitable Dialogue, Trust Architecture, Community Continuum, Unity in Diversity, Shared Stewardship, and Agile Frameworks<\/jats:italic> that collectively aim to overcome barriers like language intimidation, power imbalances, framework fatigue, consultation burnout, trust deficits, and systemic discrimination and exclusion. The manuscript does not seek to prescribe any universal or standardized solutions; in fact, it seeks the opposite. Instead, it offers a thoughtful and transparent contribution to the POR canon, providing resources for young adults eager to engage in research and institutional researchers aspiring to collaborate with them.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>This manuscript is a product of our collective learning and critical self-evaluation. By integrating theoretical insights with practical strategies, we present a justice-oriented blueprint for an inclusive and egalitarian approach to POR. We advocate for applications of POR that are responsive to the individualized contexts of young adult PARES, ensuring their perspectives are central to the research with the resources to take the lead should they choose.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s40900-024-00576-0","type":"journal-article","created":{"date-parts":[[2024,5,8]],"date-time":"2024-05-08T11:01:46Z","timestamp":1715166106000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Primus Inter PARES: First among equals\u2014practical strategies for young adult PAtient RESearch partners (PARES) by young adult PARES"],"prefix":"10.1186","volume":"10","author":[{"given":"Sandy","family":"Rao","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gina","family":"Dimitropoulos","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rae","family":"Jardine","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julien","family":"Quickstad","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laetitia","family":"Satam","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mohammad","family":"Qureshi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thyra","family":"Bui","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Antoaneta Alexandrova","family":"Todorova","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ysabelle","family":"Tumaneng","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Abitha","family":"Suthakaran","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kaiden","family":"Dalley","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Stacie","family":"Smith","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Scott B.","family":"Patten","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"the entire HEARTS Study Team","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,5,8]]},"reference":[{"issue":"5","key":"576_CR1","doi-asserted-by":"publisher","first-page":"542","DOI":"10.1080\/14767430.2021.1995689","volume":"20","author":"P Alderson","year":"2021","unstructured":"Alderson P. 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In this manuscript, we present a reflective commentary based on our POR experiences, exempt from Research Ethics Board (REB) review as per Article 2.5 of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, TCPS 2 []. This article specifies that quality assurance and program evaluations, when aimed solely at assessment or improvement, do not constitute research requiring REB oversight. Our commentary aligns with this specification, focusing on research reflection rather than empirical research involving human participants. Although exempt from formal REB scrutiny, we have upheld ethical standards, ensuring confidentiality, respect, and transparency. Our approach adheres to the best practices of our disciplines, maintaining the integrity and ethical mindfulness expected in academic scholarship.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"45"}}