{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,12]],"date-time":"2026-05-12T08:47:58Z","timestamp":1778575678115,"version":"3.51.4"},"reference-count":39,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T00:00:00Z","timestamp":1769472000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2026,3,4]],"date-time":"2026-03-04T00:00:00Z","timestamp":1772582400000},"content-version":"vor","delay-in-days":36,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Res Involv Engagem"],"DOI":"10.1186\/s40900-026-00844-1","type":"journal-article","created":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T06:05:14Z","timestamp":1769493914000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Evaluation and lessons learned regarding Public Involvement: a panel advising on an Alzheimer\u2019s disease and related dementia cohort study"],"prefix":"10.1186","volume":"12","author":[{"given":"Miriam","family":"Beusink","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tanja J.","family":"de Rijke","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tieneke B. M.","family":"Schaaij-Visser","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marja","family":"Berkhout","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lidwien","family":"Kroon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marlon","family":"Smeitink","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sophie M.","family":"van der Landen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kyra K. M.","family":"Kaijser","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dirk-Jan","family":"Saaltink","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Els","family":"van der Rhee","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susanne","family":"Rebers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Casper","family":"de Boer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hanneke F. M.","family":"Rhodius-Meester","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wiesje M.","family":"van der Flier","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Leonie N. C.","family":"Visser","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2026,1,27]]},"reference":[{"key":"844_CR1","volume-title":"Briefing notes for researchers: public involvement in NHS, public health and social care research","author":"H Hayes","year":"2012","unstructured":"Hayes H, Buckland S, Tarpey M. Briefing notes for researchers: public involvement in NHS, public health and social care research. Eastleigh: INVOLVE; 2012."},{"issue":"5","key":"844_CR2","doi-asserted-by":"publisher","first-page":"661","DOI":"10.1111\/hex.12158","volume":"18","author":"F Gradinger","year":"2015","unstructured":"Gradinger F, Britten N, Wyatt K, Froggatt K, Gibson A, Jacoby A, et al. Values associated with public involvement in health and social care research: a narrative review. Health Expect. 2015;18(5):661\u201375.","journal-title":"Health Expect"},{"issue":"1","key":"844_CR3","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s40900-020-00239-w","volume":"6","author":"J Russell","year":"2020","unstructured":"Russell J, Fudge N, Greenhalgh T. The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it? Res Involv Engagem. 2020;6(1):1\u20138.","journal-title":"Res Involv Engagem"},{"issue":"2","key":"844_CR4","doi-asserted-by":"publisher","first-page":"491","DOI":"10.1111\/hex.13191","volume":"24","author":"LE Vat","year":"2021","unstructured":"Vat LE, Finlay T, Robinson P, Barbareschi G, Boudes M, Diaz Ponce AM, et al. Evaluation of patient engagement in medicine development: A multi-stakeholder framework with metrics. Health Expect. 2021;24(2):491\u2013506.","journal-title":"Health Expect"},{"issue":"2","key":"844_CR5","doi-asserted-by":"publisher","first-page":"213","DOI":"10.1016\/S0168-8510(01)00214-7","volume":"61","author":"J Boote","year":"2002","unstructured":"Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy. 2002;61(2):213\u201336.","journal-title":"Health Policy"},{"issue":"7129","key":"844_CR6","doi-asserted-by":"publisher","first-page":"463","DOI":"10.1136\/bmj.316.7129.463","volume":"316","author":"VA Entwistle","year":"1998","unstructured":"Entwistle VA, Renfrew MJ, Yearley S, Forrester J, Lamont T. Lay perspectives: advantages for health research. BMJ. 1998;316(7129):463\u20136.","journal-title":"BMJ"},{"key":"844_CR7","doi-asserted-by":"crossref","unstructured":"Wilson P, Mathie E, Keenan J, McNeilly E, Goodman C, Howe A, Poland F, Staniszewska S, Kendall S, Munday D, Cowe M. ReseArch with patient and public involvement: a realist evaluation-the RAPPORT study. Health Serv Delivery Res. 2015;3(38).","DOI":"10.3310\/hsdr03380"},{"issue":"9","key":"844_CR8","doi-asserted-by":"publisher","first-page":"1208","DOI":"10.1016\/j.healthpol.2021.07.008","volume":"125","author":"A Modigh","year":"2021","unstructured":"Modigh A, Sampaio F, Moberg L, Fredriksson M. The impact of patient and public involvement in health research versus healthcare: a scoping review of reviews. Health Policy. 2021;125(9):1208\u201321.","journal-title":"Health Policy"},{"issue":"5","key":"844_CR9","doi-asserted-by":"publisher","first-page":"1397","DOI":"10.1111\/hex.12121","volume":"18","author":"CA Pittens","year":"2015","unstructured":"Pittens CA, Vonk Noordegraaf A, van Veen SC, Anema JR, Huirne JA, Broerse JE. The involvement of gynaecological patients in the development of a clinical guideline for resumption of (work) activities in the Netherlands. Health Expect. 2015;18(5):1397\u2013412.","journal-title":"Health Expect"},{"key":"844_CR10","doi-asserted-by":"publisher","first-page":"11","DOI":"10.1016\/j.jad.2018.05.061","volume":"239","author":"EF Maassen","year":"2018","unstructured":"Maassen EF, Regeer BJ, Bunders JF, Regeer EJ, Kupka RW. A research agenda for bipolar disorder developed from a patients\u2019 perspective. J Affect Disord. 2018;239:11\u20137.","journal-title":"J Affect Disord"},{"issue":"10284","key":"844_CR11","doi-asserted-by":"publisher","first-page":"1577","DOI":"10.1016\/S0140-6736(20)32205-4","volume":"397","author":"P Scheltens","year":"2021","unstructured":"Scheltens P, De Strooper B, Kivipelto M, Holstege H, Ch\u00e9telat G, Teunissen CE, et al. Alzheimer\u2019s disease. Lancet. 2021;397(10284):1577\u201390.","journal-title":"Lancet"},{"issue":"2","key":"844_CR12","doi-asserted-by":"publisher","first-page":"e105","DOI":"10.1016\/S2468-2667(21)00249-8","volume":"7","author":"E Nichols","year":"2022","unstructured":"Nichols E, Steinmetz JD, Vollset SE, Fukutaki K, Chalek J, Abd-Allah F, et al. Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the global burden of disease study 2019. Lancet Public Health. 2022;7(2):e105\u201325.","journal-title":"Lancet Public Health"},{"issue":"1","key":"844_CR13","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s13195-017-0283-5","volume":"9","author":"PS Aisen","year":"2017","unstructured":"Aisen PS, Cummings J, Jack CR, Morris JC, Sperling R, Fr\u00f6lich L, et al. On the path to 2025: Understanding the alzheimer\u2019s disease continuum. Alzheimers Res Ther. 2017;9(1):1\u201310.","journal-title":"Alzheimers Res Ther"},{"issue":"4","key":"844_CR14","doi-asserted-by":"publisher","first-page":"535","DOI":"10.1016\/j.jalz.2018.02.018","volume":"14","author":"CR Jack Jr","year":"2018","unstructured":"Jack CR Jr, Bennett DA, Blennow K, Carrillo MC, Dunn B, Haeberlein SB, et al. NIA-AA research framework: toward a biological definition of alzheimer\u2019s disease. Alzheimer\u2019s Dement. 2018;14(4):535\u201362.","journal-title":"Alzheimer\u2019s Dement"},{"issue":"5","key":"844_CR15","doi-asserted-by":"publisher","first-page":"494","DOI":"10.1038\/s43587-023-00404-2","volume":"3","author":"WM van der Flier","year":"2023","unstructured":"Van der Flier WM, de Vugt ME, Smets EM, Blom M, Teunissen CE. Towards a future where Alzheimer\u2019s disease pathology is stopped before the onset of dementia. Nat Aging. 2023;3(5):494\u2013505.","journal-title":"Nat Aging"},{"key":"844_CR16","doi-asserted-by":"publisher","first-page":"k4738","DOI":"10.1136\/bmj.k4738","volume":"363","author":"JC Crocker","year":"2018","unstructured":"Crocker JC, Ricci-Cabello I, Parker A, Hirst JA, Chant A, Petit-Zeman S, et al. Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis. BMJ. 2018;363:k4738.","journal-title":"BMJ"},{"key":"844_CR17","unstructured":"Hopper L, Bowen C. Development of a model for the National dementia registry. Dublin City University; 2021."},{"key":"844_CR18","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s12877-019-1217-9","volume":"19","author":"J Miah","year":"2019","unstructured":"Miah J, Dawes P, Edwards S, Leroi I, Starling B, Parsons S. Patient and public involvement in dementia research in the European union: a scoping review. BMC Geriatr. 2019;19:1\u201320.","journal-title":"BMC Geriatr"},{"issue":"3","key":"844_CR19","doi-asserted-by":"publisher","first-page":"691","DOI":"10.1111\/hex.13049","volume":"23","author":"C Di Lorito","year":"2020","unstructured":"Di Lorito C, Godfrey M, Dunlop M, Bosco A, Pollock K, van der Wardt V, Harwood RH. Adding to the knowledge on patient and public involvement: reflections from an experience of co-research with carers of people with dementia. Health Expect. 2020;23(3):691\u2013706.","journal-title":"Health Expect"},{"issue":"1","key":"844_CR20","doi-asserted-by":"publisher","first-page":"e14350","DOI":"10.1002\/alz.14350","volume":"21","author":"S Walter","year":"2025","unstructured":"Walter S, McArdle R, Largent EA, Edelmayer R, Sexton C, Sandoval SL, Medsger H, Meserve N, Samaroo R, Sierra C, Smeitink MM. Public and participant involvement as a pathway to inclusive dementia research. Alzheimer\u2019s Dement. 2025;21(1):e14350.","journal-title":"Alzheimer\u2019s Dement"},{"issue":"6","key":"844_CR21","doi-asserted-by":"publisher","first-page":"557","DOI":"10.1097\/YCO.0000000000000548","volume":"32","author":"A Burton","year":"2019","unstructured":"Burton A, Ogden M, Cooper C. Planning and enabling meaningful patient and public involvement in dementia research. Curr Opin Psychiatry. 2019;32(6):557\u201362.","journal-title":"Curr Opin Psychiatry"},{"issue":"8","key":"844_CR22","doi-asserted-by":"publisher","first-page":"944","DOI":"10.1177\/1471301218789292","volume":"17","author":"J Bethell","year":"2018","unstructured":"Bethell J, Commisso E, Rostad HM, Puts M, Babineau J, Grinbergs-Saull A, et al. Patient engagement in research related to dementia: a scoping review. Dementia. 2018;17(8):944\u201375.","journal-title":"Dementia"},{"key":"844_CR23","volume-title":"The public value of science","author":"J Wilsdon","year":"2005","unstructured":"Wilsdon J, Wynne B, Stilgoe J. The public value of science. London: Demos; 2005."},{"key":"844_CR24","doi-asserted-by":"crossref","unstructured":"Deane K, Delbecque L, Gorbenko O, Hamoir AM, Hoos A, Nafria B, et al. Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative. BMJ Innov. 2019;5(1).","DOI":"10.1136\/bmjinnov-2018-000317"},{"key":"844_CR25","doi-asserted-by":"crossref","unstructured":"Dreves MA, van Harten AC, Visser LN, Rhodius-Meester H, K\u00f6hler S, Kooistra M, et al. Rationale and design of the ABOARD project (A Personalized Medicine Approach for Alzheimer\u2019s Disease). Alzheimer\u2019s & Dementia: Translational Research & Clinical Interventions. 2023;9(2):e12401.","DOI":"10.1002\/trc2.12401"},{"issue":"1","key":"844_CR26","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1186\/s13195-025-01725-7","volume":"17","author":"C de Boer","year":"2025","unstructured":"De Boer C, Rhodius-Meester HFM, van der Landen SM, Claassen J, de Haan R, Papma JM, et al. Towards a national registry for Alzheimer\u2019s disease and related dementias: rationale, design, and initial observations of the ABOARD cohort. Alzheimer\u2019s Res Ther. 2025;17(1):1\u201312.","journal-title":"Alzheimers Res Ther"},{"issue":"20","key":"844_CR27","doi-asserted-by":"publisher","first-page":"2191","DOI":"10.1001\/jama.2013.281053","volume":"310","author":"World Medical Association","year":"2013","unstructured":"World Medical Association. World medical association declaration of helsinki: ethical principles for medical research involving human subjects. JAMA. 2013;310(20):2191\u20134.","journal-title":"JAMA"},{"issue":"10","key":"844_CR28","doi-asserted-by":"publisher","first-page":"3179","DOI":"10.1007\/s11606-021-06737-1","volume":"36","author":"A Sharma","year":"2021","unstructured":"Sharma A, Minh Duc NT, Luu Lam Thang T, Nam NH, Ng SJ, Abbas KS, et al. A Consensus-Based checklist for reporting of survey studies (CROSS). J Gen Intern Med. 2021;36(10):3179\u201387.","journal-title":"J Gen Intern Med"},{"key":"844_CR29","doi-asserted-by":"crossref","unstructured":"Cooper HE, Camic PM, Long DL, Panter A, Rindskopf DE, Sher KJ. APA handbook of research methods in psychology, vol 2: research designs: Quantitative, qualitative, neuropsychological, and biological. American Psychological Association; 2012.","DOI":"10.1037\/13620-000"},{"key":"844_CR30","unstructured":"Pleijers A, De Vries R. Indeling van opleiding op basis van niveau en ori\u00ebntatie. Den Haag: Centraal Bureau voor de Statistiek; 2021. https:\/\/www.cbs.nl\/nl-nl\/longread\/discussion-papers\/2021\/invulling-praktisch-en-theoretisch-opgeleiden?onepage=true#c-3--Indeling-van-opleidingen-op-basis-van-niveau-en-ori-ntatie. Accessed 22 Sep 2025."},{"key":"844_CR31","volume-title":"PIAAC 2023 Kernvaardigheden Van volwassenen: resultaten Van de nederlandse survey 2023","author":"M Buisman","year":"2024","unstructured":"Buisman M, Bollen I, Jacobs B, Huijts T, Cornelisse R, van Guilik N, et al. PIAAC 2023 Kernvaardigheden Van volwassenen: resultaten Van de nederlandse survey 2023. Amstelveen: Kohnstamm Instituut UvA BV; 2024."},{"issue":"8","key":"844_CR32","doi-asserted-by":"publisher","first-page":"976","DOI":"10.1177\/1471301218789559","volume":"17","author":"P Rapaport","year":"2018","unstructured":"Rapaport P, Webster L, Horsley R, Kyle SD, Kinnunen KM, Hallam B, et al. An intervention to improve sleep for people living with dementia: reflections on the development and co-production of DREAMS: START (Dementia related manual for sleep: strategies for RelaTives). Dementia. 2018;17(8):976\u201389.","journal-title":"Dementia"},{"issue":"8","key":"844_CR33","doi-asserted-by":"publisher","first-page":"1035","DOI":"10.1177\/1471301218789309","volume":"17","author":"R Litherland","year":"2018","unstructured":"Litherland R, Burton J, Cheeseman M, Campbell D, Hawkins M, Hawkins T, et al. Reflections on PPI from the \u2018Action on living well: asking you\u2019advisory network of people with dementia and carers as part of the IDEAL study. Dementia. 2018;17(8):1035\u201344.","journal-title":"Dementia"},{"issue":"1","key":"844_CR34","doi-asserted-by":"publisher","first-page":"54","DOI":"10.1186\/s40900-021-00297-8","volume":"7","author":"SS Masoud","year":"2021","unstructured":"Masoud SS, Glassner AA, Patel N, Mendoza M, James D, Rivette S, White CL. Engagement with a diverse stakeholder advisory Council for research in dementia care. Res Involv Engagem. 2021;7(1):54.","journal-title":"Res Involv Engagem"},{"issue":"3","key":"844_CR35","doi-asserted-by":"publisher","first-page":"318","DOI":"10.1177\/1476750315618763","volume":"14","author":"JK McKeown","year":"2016","unstructured":"McKeown JK, Fortune D, Dupuis SL. It is like stepping into another world: exploring the possibilities of using appreciative participatory action research to guide culture change work in community and long-term care. Action Res. 2016;14(3):318\u201334.","journal-title":"Action Res"},{"issue":"1","key":"844_CR36","doi-asserted-by":"publisher","first-page":"9","DOI":"10.1108\/QAOA-03-2023-0024","volume":"25","author":"M Muntinga","year":"2024","unstructured":"Muntinga M, Bendien E, Abma T, Groot B. Participatory action research and intersectionality: a critical dialogical reflection of a study with older adults. Qual Ageing Older Adults. 2024;25(1):9\u201320.","journal-title":"Qual Ageing Older Adults"},{"issue":"1","key":"844_CR37","doi-asserted-by":"publisher","first-page":"14","DOI":"10.1186\/s40900-019-0147-1","volume":"5","author":"K Staley","year":"2019","unstructured":"Staley K, Barron D. Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation? Res Involv Engagem. 2019;5(1):14.","journal-title":"Res Involv Engagem"},{"issue":"11","key":"844_CR38","doi-asserted-by":"publisher","first-page":"983","DOI":"10.1177\/10497323231191048","volume":"33","author":"N Lloyd","year":"2023","unstructured":"Lloyd N, Hyett N, Kenny A. Barriers and enablers to evaluating outcomes from public involvement in health service design: an interpretive description. Qual Health Res. 2023;33(11):983\u201394.","journal-title":"Qual Health Res"},{"issue":"1","key":"844_CR39","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1186\/s12910-022-00761-4","volume":"23","author":"B Groot","year":"2022","unstructured":"Groot B, Abma T. Ethics framework for citizen science and public and patient participation in research. BMC Med Ethics. 2022;23(1):23.","journal-title":"BMC Med Ethics"}],"container-title":["Research Involvement and Engagement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40900-026-00844-1","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00844-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00844-1.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,3,4]],"date-time":"2026-03-04T11:23:05Z","timestamp":1772623385000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s40900-026-00844-1"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,27]]},"references-count":39,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["844"],"URL":"https:\/\/doi.org\/10.1186\/s40900-026-00844-1","relation":{},"ISSN":["2056-7529"],"issn-type":[{"value":"2056-7529","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,27]]},"assertion":[{"value":"22 September 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 January 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"27 January 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The Medical Ethics Committee of the Amsterdam UMC, location AMC, declared that this study (W22_135 #22.178) is not subject to the Dutch Medical Research Involving Human Subjects Act (WMO). This study complies with ethical standards of the Helsinki Declaration. Participants signed a written informed consent form prior to the study.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"During the preparation of this manuscript, the authors used DeepL Write, Quillbot, and Perplexity to assist with grammar checking and language improvement purposes only. We also employed Napkin.ai for the creation of images. The authors reviewed and edited all AI-generated grammar and language suggestions and take full responsibility for the final version of the manuscript.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"AI statement"}},{"value":"HR performs contract research for Combinostics, all funding is paid to her institution. WF performs contract research for Biogen. Research programs of WF have been funded by ZonMW, NWO, EU-FP7, EU-JPND, Alzheimer Nederland, CardioVascular Onderzoek Nederland, Health~Holland, Topsector Life Sciences & Health, stichting Dioraphte, Gieskes-Strijbis fonds, stichting Equilibrio, Pasman stichting, stichting Alzheimer & NeuroPsychiatry Foundation, Philips, Biogen MA Inc, Novartis-NL, Life-MI, AVID, Roche BV, Fujifilm, Combinostics. WF has performed contract research for Biogen MA Inc, and Boehringer Ingelheim. WF has been an invited speaker at Boehringer Ingelheim, Biogen MA Inc, Danone, Eisai, WebMD Neurology (Medscape), Springer Healthcare. WF is consultant to Oxford Health Policy Forum CIC, Roche, and Biogen MA Inc. WF participated in advisory boards of Biogen MA Inc and Roche. All funding is paid to her institution. WF was associate editor of Alzheimer, Research & Therapy in 2020\/2021. WF is associate editor at Brain Research. Research (projects) by LV has been funded by ZonMW, Health~Holland, Topsector Life Sciences & Health, Alzheimer Nederland, EISAI, and Amsterdam Public Health research institute. The other authors (MB, TR, TS, MB, LK, MS, SL, KK, DS, ER, SR, CB) declare no competing interests.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"29"}}