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This article describes how we co\u2011produced video resources to support inclusion in the LifeMap\u2011QUEST clinical study. LifeMap is a new approach to diagnosing people who may be at risk of Sudden Cardiac Death (SCD). Recognising the longstanding under\u2011representation of ethnic minority groups in research, and the barriers posed by language, literacy, and trust, the LifeMap\u2011QUEST Patient and Public Involvement (PPI) Advisory Group worked with community partners and clinicians to develop participant information videos in English, Gujarati, and Hindi. This article explains how this collaborative process unfolded. As part of our co\u2011production approach, we tested AI translation tools such as ChatGPT. However, the translations produced were too formal, used complex terminology, and did not capture the tone or cultural context needed. We therefore adopted a collaborative method with a local charity, South Asian Health Action (SAHA), using forward\u2013back translation, validation by native speakers within the PPI Advisory Group, and review by cardiac consultants who spoke Gujarati and Hindi. This ensured both accuracy and cultural appropriateness. Filming used a simple \u201ctalking\u2011head\u201d style to create a friendly, approachable tone. Members of the PPI Advisory Group reviewed the videos and offered constructive feedback. The article highlights the challenges of developing participant information in multiple languages, emphasising the need for PPI, community partners, and expert clinical oversight. We hope that by describing what we did and the lessons we learnt, it will support others to make participant information videos in different languages.<\/jats:p>","DOI":"10.1186\/s40900-026-00858-9","type":"journal-article","created":{"date-parts":[[2026,3,11]],"date-time":"2026-03-11T10:45:24Z","timestamp":1773225924000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["PPI in LifeMap-QUEST: an example of co-producing videos in different languages to support inclusion in a clinical study"],"prefix":"10.1186","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9278-9138","authenticated-orcid":false,"given":"David C.","family":"Clayton","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5718-8767","authenticated-orcid":false,"given":"William B.","family":"Nicolson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-0121-861X","authenticated-orcid":false,"given":"Sarah","family":"Anthony","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Hobson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"LifeMap-QUEST PPI Advisory Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Batchelor","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Khandu","family":"Chauhan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon","family":"Hack","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tony","family":"Locke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Noorie","family":"Majothi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Harish","family":"Mistry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kirit","family":"Mistry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pratiba","family":"Mkdami","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nina","family":"Prajapati","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Harold","family":"Palmer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ballu","family":"Patel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keval","family":"Sachdev","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Purshottam","family":"Vallabh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ranjan","family":"Vallabh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5965-0671","authenticated-orcid":false,"given":"G. 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In this respect, the LifeMap-QUEST PPI Advisory Group were not acting as research subjects but as advisors contributing their knowledge and expertise by experience. South Asian Health Action (SAHA) arranged participation in and secured the consent of their colleagues who featured in the videos. Ethical approval for the use and distribution of the videos is currently being undertaken, along with approvals for all participant information for the clinical trial. The videos will be stored and distributed according to this approval.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"All involved consented to the publication of any photos included in the additional files.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"47"}}