{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,1]],"date-time":"2026-11-01T04:23:53Z","timestamp":1793507033468,"version":"4.5.0"},"reference-count":11,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T00:00:00Z","timestamp":1788134400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"},{"start":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T00:00:00Z","timestamp":1788134400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Res Involv Engagem"],"DOI":"10.1186\/s40900-026-00973-7","type":"journal-article","created":{"date-parts":[[2026,8,31]],"date-time":"2026-08-31T16:06:11Z","timestamp":1788192371000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["From patient to partner: reflections on being a patient leader in the COMFORT Nursing Programme"],"prefix":"10.1186","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-1095-4094","authenticated-orcid":false,"given":"Malene","family":"Deele","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2646-0227","authenticated-orcid":false,"given":"Jeanette","family":"Finderup","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,8,31]]},"reference":[{"issue":"2","key":"973_CR1","doi-asserted-by":"publisher","first-page":"65","DOI":"10.1159\/000548903","volume":"150","author":"J Finderup","year":"2026","unstructured":"Finderup J, Agerskov H, Deele M, Frandsen CE, Kristensen IV, Bonner A, Konradsen H. Tailored Complex Symptom Management Intervention for Adults with Advanced Kidney Disease and Their Informal Caregivers: Protocol for the COMFORT Research Program. Nephron. 2026;150(2):65\u201375.","journal-title":"Nephron"},{"issue":"1","key":"973_CR2","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1186\/s40900-023-00432-7","volume":"9","author":"H S\u00f8ndergaard","year":"2023","unstructured":"S\u00f8ndergaard H, Deele M, Agerskov H, Lomborg K, Finderup J. The value of partnership in patient-driven as well as in researcher-driven projects. Res Involv Engagem. 2023;9(1):20.","journal-title":"Res Involv Engagem"},{"issue":"1","key":"973_CR3","doi-asserted-by":"publisher","first-page":"3","DOI":"10.1186\/s40900-023-00533-3","volume":"10","author":"PC Skovlund","year":"2024","unstructured":"Skovlund PC, Finderup J, Aabo S, Jensen F, S\u00f8ndergaard H, Rodkj\u00e6r L\u00d8. Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Res Involv Engagem. 2024;10(1):3.","journal-title":"Res Involv Engagem"},{"key":"973_CR4","doi-asserted-by":"publisher","first-page":"13","DOI":"10.1186\/s40900-017-0062-2","volume":"3","author":"S Staniszewska","year":"2017","unstructured":"Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, Altman DG, Moher D, Barber R, Denegri S, Entwistle A, Littlejohns P, Morris C, Suleman R, Thomas V, Tysall C. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. Res Involv Engagem. 2017;3:13.","journal-title":"Res Involv Engagem"},{"issue":"1","key":"973_CR5","doi-asserted-by":"publisher","first-page":"43","DOI":"10.1186\/s40900-022-00378-2","volume":"8","author":"J Finderup","year":"2022","unstructured":"Finderup J, Buur LE, Tscherning SC, Jensen AL, Kristensen AW, Petersen AP, Toft BS, Rasmussen GS, Skovlund P, Vedel\u00f8 TW, Rodkj\u00e6r L\u00d8. Developing and testing guidance to support researchers engaging patient partners in health-related research. Res Involv Engagem. 2022;8(1):43.","journal-title":"Res Involv Engagem"},{"issue":"1","key":"973_CR6","doi-asserted-by":"publisher","first-page":"72","DOI":"10.1186\/s40900-023-00490-x","volume":"9","author":"KE Dengs\u00f8","year":"2023","unstructured":"Dengs\u00f8 KE, Lindholm ST, Herling SF, Pedersen M, N\u00f8rskov KH, Collet MO, Nielsen IH, Christiansen MG, Engedal MS, Moen HW, Piil K, Egerod I, H\u00f8rder M, Jarden M. Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice. Res Involv Engagem. 2023;9(1):72.","journal-title":"Res Involv Engagem"},{"issue":"1","key":"973_CR7","doi-asserted-by":"publisher","first-page":"e70007","DOI":"10.1111\/jorc.70007","volume":"51","author":"M Deele","year":"2025","unstructured":"Deele M. Chronic Kidney Disease Symptoms: The Informal Caregiver\u2019s Experience. J Ren Care. 2025;51(1):e70007.","journal-title":"J Ren Care"},{"key":"973_CR8","unstructured":"ERA \u2013 A Pinch of Salt. #42 A patient\u2019s view of nephrology, with Malene Deele [Internet]. YouTube. 2025 Apr 10 [cited 2025 Sep 5]. Available from: https:\/\/www.youtube.com\/watch?v=BU5b0evj3P4."},{"issue":"5","key":"973_CR9","doi-asserted-by":"publisher","first-page":"e0302525","DOI":"10.1371\/journal.pone.0302525","volume":"19","author":"M Matthews","year":"2024","unstructured":"Matthews M, McKeaveney C, Noble H, Reid J. Exploring the unmet needs and experiences of informal caregivers of patients with end-stage kidney disease (ESKD) receiving haemodialysis - a qualitative study. PLoS ONE. 2024;19(5):e0302525.","journal-title":"PLoS ONE"},{"issue":"3","key":"973_CR10","doi-asserted-by":"publisher","first-page":"523","DOI":"10.1111\/hex.13040","volume":"23","author":"M Bird","year":"2020","unstructured":"Bird M, Ouellette C, Whitmore C, Li L, Nair K, McGillion MH, Yost J, Banfield L, Campbell E, Carroll SL. Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research. Health Expect. 2020;23(3):523\u201339.","journal-title":"Health Expect"},{"issue":"1","key":"973_CR11","doi-asserted-by":"publisher","first-page":"78","DOI":"10.1186\/s40900-025-00755-7","volume":"11","author":"SC Tscherning","year":"2025","unstructured":"Tscherning SC, Jensen AL, Bekker HL, Vedel\u00f8 TW, Finderup J, Rasmussen GS, \u00d8stergaard JA, Jensen FO, Rodkjaer L\u00d8. How are patient partners involved in health service research? A scoping review of reviews. Res Involv Engagem. 2025;11(1):78.","journal-title":"Res Involv Engagem"}],"container-title":["Research Involvement and Engagement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00973-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40900-026-00973-7","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00973-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T05:02:55Z","timestamp":1788238975000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s40900-026-00973-7"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8,31]]},"references-count":11,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["973"],"URL":"https:\/\/doi.org\/10.1186\/s40900-026-00973-7","relation":{},"ISSN":["2056-7529"],"issn-type":[{"value":"2056-7529","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,8,31]]},"assertion":[{"value":"30 June 2026","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"27 August 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"31 August 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"136"}}