{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T02:02:47Z","timestamp":1789783367824,"version":"4.0.1"},"reference-count":53,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T00:00:00Z","timestamp":1789776000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T00:00:00Z","timestamp":1789776000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100013374","name":"NIHR School for Primary Care Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100013374","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Res Involv Engagem"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>People living with chronic pain (\u2265\u20093-months) often struggle to participate in valued activity (for example, family life, work and in their community) and are under-represented in public involvement and research. We aimed to broaden awareness and encourage engagement in public involvement and research among people living with chronic pain. We outline how we co-produced a film to capture experiences of chronic pain and the potential benefits of engaging in public involvement and research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We undertook a participatory filmmaking project guided by UK Standards for Public Involvement. A co-production team of public contributors (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20094), all with lived experience of chronic pain and experience in community outreach; a filmmaker; and a physiotherapist-researcher worked together across 5 phases, pre-funding, design and production planning, story capture and filming, editing and dissemination in a series of online meetings. The public contributors recruited additional contributors with lived experiences of chronic pain (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20097), including individuals with no prior research involvement and 2 non-English speakers. Reflective discussions were embedded throughout, and impact was documented using the Public Involvement in Research Impact Toolkit (PIRIT).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Co-production shaped all stages of the project. Public contributors within the co-production team were highly involved, using lived experience to shape priorities, and key creative, strategic and practical decisions including outreach, story capture, translation and sharing the final film. Their lived experiences formed the core content of the film. Flexible and person-centred approaches enabled contributors to exercise choice over how their experiences were captured, represented and shared. Our approach supported inclusive, accessible involvement; ensured authentic and culturally sensitive representation. It also demonstrated benefits for contributors. First\u2011person reflections from the co-production team illustrate how individuals experienced the project, including increased confidence, connection, and validation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>\n                      These insights illustrate how participatory filmmaking can move involvement beyond consultation toward shared power and meaningful partnership. The co\u2011produced film which is publicly available,\n                      <jats:italic>Your Voice Matters: Living with Chronic Pain<\/jats:italic>\n                      ,\n                      <jats:italic>Shaping the Future of Research<\/jats:italic>\n                      , was a tangible output of this process and a resource to help people make sense of chronic pain and research involvement, and to encourage future engagement.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s40900-026-00977-3","type":"journal-article","created":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T01:26:43Z","timestamp":1789781203000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Your voice matters: using participatory film to engage people with chronic pain in public involvement and research"],"prefix":"10.1186","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1304-3443","authenticated-orcid":false,"given":"Sarah A.","family":"Harrisson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samina","family":"Begum","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"Toussaint","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mark","family":"Agathangelou","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"James","family":"Rattee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie A.","family":"Holden","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krysia","family":"Canvin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,9,19]]},"reference":[{"issue":"1","key":"977_CR1","doi-asserted-by":"publisher","first-page":"28","DOI":"10.1097\/j.pain.0000000000001390","volume":"160","author":"M Nicholas","year":"2019","unstructured":"Nicholas M, Vlaeyen JWS, Rief W, et al. 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BMC Med Res Methodol. 2006;26:6.","journal-title":"BMC Med Res Methodol"}],"container-title":["Research Involvement and Engagement"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00977-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s40900-026-00977-3","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s40900-026-00977-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,19]],"date-time":"2026-09-19T01:26:50Z","timestamp":1789781210000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s40900-026-00977-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,19]]},"references-count":53,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["977"],"URL":"https:\/\/doi.org\/10.1186\/s40900-026-00977-3","relation":{},"ISSN":["2056-7529"],"issn-type":[{"value":"2056-7529","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,19]]},"assertion":[{"value":"17 March 2026","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"12 September 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"19 September 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"This manuscript reports insights from a public involvement project and not research findings from research. No data was collected that formed research and ethical approval was not required for public involvement activity. The insights reported in this manuscript evaluate our approach, the film and impact See NIHR guidance for more information, for example:\n                      \n                      . Although ethical approval was not required, we took a person-centred ethical approach throughout the project, ensuring involvement was voluntary, safe, and supportive. Strategies to safeguard contributors included using trusted networks for outreach, flexible meeting formats, plain-language and visual materials, multiple options for contributing, flexible reimbursement, and regular check-ins to monitor well-being and address any concerns. In addition, within the co-production team, we worked closely together and advocated for outreach contributors, supporting involvement and helping to ensure everyone involved felt safe and empowered. A consequence of not requiring formal ethical approval is that we did not seek consent from outreach contributors to publish their reflections. Therefore, the reflections presented in this paper are drawn exclusively from the co-production team and co-authors.","order":1,"name":"Ethics","label":"Ethics approval and consent to participate","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","label":"Consent for publication","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The authors declare no competing interests.","order":3,"name":"Ethics","label":"Competing interests","group":{"name":"EthicsHeading","label":"Declarations"}}],"article-number":"149"}}