{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T23:07:55Z","timestamp":1740179275702,"version":"3.37.3"},"reference-count":15,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2022,12,2]],"date-time":"2022-12-02T00:00:00Z","timestamp":1669939200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2022,12,2]],"date-time":"2022-12-02T00:00:00Z","timestamp":1669939200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Patient Rep Outcomes"],"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Purpose<\/jats:title>\n                <jats:p>Pectus excavatum (PE) is the most common congenital chest wall deformity. It can have a negative effect in exercise tolerance. However, cosmetic features are the most frequent concerns in these patients. The PE evaluation questionnaire (PEEQ) is a patient reported outcome (PRO) tool to measure the physical and psychosocial quality-of-life changes after surgical repair of PE. No specific tool has been developed in our languages to evaluate PRO in PE patients. Our aim is to translate and culturally adapt the PEEQ to Spanish and Catalan.\n<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>Guidelines for translation of PRO were followed. The PEEQ, consisting of 34 items, was translated from English to Spanish and to Catalan. Three forward translations and one back translation were performed for each language. Cognitive debriefing interviews were developed.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>The reconciliation of the forward translations revealed a 14.7% of inconsistencies for each language. The Spanish back translation showed a 64.7% of disagreement with the source, the Catalan 58.8%. Changes in each reconciled version were made to amend the diverting items. Cognitive debriefing: Catalan version: 15 participants, 10 males, 5 patients had been operated. 12 patients showed difficulties for understanding 4 of the items. Spanish version: 17 participants, 11 males, 5 had been operated. 13 patients showed difficulties for understanding 4 of the items. We made modifications of the problematic items, in order to make them easier to understand for our patients. We tested the last version in a new group of patients. Catalan: 7 patients, 5 males. One patient showed difficulties for understanding item 11, so we added a further clarification of this item. Spanish: 7 patients, all males. There were any difficulties for understanding.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>After a thorough process of translation and cultural adaptation, we reached a Catalan and a Spanish version of PEEQ. This work constitutes the first step to reach a specific PE PRO tool in our languages. However, it needs to be validated, with a higher number of patients, before being widely used in a clinical setting.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s41687-022-00527-x","type":"journal-article","created":{"date-parts":[[2022,12,2]],"date-time":"2022-12-02T09:27:25Z","timestamp":1669973245000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Translation and cultural adaptation of the pectus excavatum evaluation questionnaire to Spanish and Catalan"],"prefix":"10.1186","volume":"6","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1330-4428","authenticated-orcid":false,"given":"Irene","family":"de Haro Jorge","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Xavier","family":"Tarrado","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Asteria","family":"Albert Cazalla","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Natalie","family":"Garc\u00eda-Smith","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alba","family":"Fern\u00e0ndez-Candial","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carlos","family":"Salcedo-Gil","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2022,12,2]]},"reference":[{"issue":"8","key":"527_CR1","doi-asserted-by":"publisher","first-page":"1275","DOI":"10.1016\/j.jpedsurg.2005.05.010","volume":"40","author":"RE Kelly","year":"2005","unstructured":"Kelly RE, Lawson ML, Paidas CN, Hruban RH (2005) Pectus excavatum in a 112-year autopsy series: Anatomic findings and the effect on survival. J Ped Surg. 40(8):1275\u20131278. https:\/\/doi.org\/10.1016\/j.jpedsurg.2005.05.010","journal-title":"J Ped Surg."},{"issue":"7","key":"527_CR2","doi-asserted-by":"publisher","first-page":"615","DOI":"10.1016\/s0022-3468(88)80629-8","volume":"23","author":"M Oncel","year":"1988","unstructured":"Oncel M, Sunam GS, Yildiran H (1988) Surgical repair of pectus excavatum. J Ped Surg 23(7):615\u2013622. https:\/\/doi.org\/10.1016\/s0022-3468(88)80629-8","journal-title":"J Ped Surg"},{"key":"527_CR3","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1007\/978-3-319-23968-2","volume-title":"Chest wall deformities and corrective procedures","author":"SK Kolvekar","year":"2016","unstructured":"Kolvekar SK (2016) Introduction. In: Kolvekar S, Pilegaard H (eds) Chest wall deformities and corrective procedures. Springer International Publishing, pp 1\u20135"},{"key":"527_CR4","first-page":"245","volume":"10","author":"RC Shamberger","year":"2000","unstructured":"Shamberger RC (2000) Cardiopulmonary effects of anterior chest wall deformities. Chest Surg Clin 10:245\u2013252","journal-title":"Chest Surg Clin"},{"issue":"2","key":"527_CR5","first-page":"57","volume":"39","author":"E Einsiedel","year":"2000","unstructured":"Einsiedel E, Clausner A (2000) Funnel chest. Psychological and psychosomatic aspects in children, youngsters, and young adults. Minerva Pneumol. 39(2):57\u201361","journal-title":"Minerva Pneumol."},{"issue":"1","key":"527_CR6","doi-asserted-by":"publisher","first-page":"58","DOI":"10.1053\/j.semtcvs.2009.04.003","volume":"21","author":"PM Colombani","year":"2009","unstructured":"Colombani PM (2009) Preoperative assessment of chest wall deformities. Semin Thorac Cardiov 21(1):58\u201363. https:\/\/doi.org\/10.1053\/j.semtcvs.2009.04.003","journal-title":"Semin Thorac Cardiov"},{"issue":"6","key":"527_CR7","doi-asserted-by":"publisher","first-page":"916","DOI":"10.1016\/s0022-3468(03)00123-4","volume":"38","author":"ML Lawson","year":"2003","unstructured":"Lawson ML, Cash TF, Akers R, Vasser E, Burke B, Tabangin M et al (2003) A pilot study of the impact of surgical repair on disease-specific quality of life among patients with pectus excavatum. J Ped Surg 38(6):916\u2013918. https:\/\/doi.org\/10.1016\/s0022-3468(03)00123-4","journal-title":"J Ped Surg"},{"issue":"2","key":"527_CR8","doi-asserted-by":"publisher","first-page":"94","DOI":"10.1111\/j.1524-4733.2005.04054.x","volume":"8","author":"D Wild","year":"2005","unstructured":"Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A et al (2005) Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR task force for translation and cultural adaptation. Value Health 8(2):94\u2013104. https:\/\/doi.org\/10.1111\/j.1524-4733.2005.04054.x","journal-title":"Value Health"},{"key":"527_CR9","doi-asserted-by":"publisher","first-page":"228","DOI":"10.1186\/s12955-017-0805-7","volume":"15","author":"E Tsangaris","year":"2017","unstructured":"Tsangaris E, Riff KWYW, Vargas F, Aguilera MP, Alarc\u00f3n MM, Cazalla AA et al (2017) Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain. Health Qual Life Outcomes 15:228. https:\/\/doi.org\/10.1186\/s12955-017-0805-7","journal-title":"Health Qual Life Outcomes"},{"issue":"6","key":"527_CR10","doi-asserted-by":"publisher","first-page":"1218","DOI":"10.1542\/peds.2007-2723","volume":"122","author":"RE Kelly","year":"2008","unstructured":"Kelly RE, Cash TF, Shamberger RC, Mitchell KK, Mellins RB, Lawson ML et al (2008) Surgical repair of pectus excavatum markedly improves body image and perceived ability for physical activity: multicenter study. Pediatrics 122(6):1218\u20131222","journal-title":"Pediatrics"},{"issue":"8","key":"527_CR11","doi-asserted-by":"publisher","first-page":"685","DOI":"10.1542\/peds.2007-2723","volume":"100","author":"N Sala-Sastre","year":"2010","unstructured":"Sala-Sastre N, Herdman M, Navarro L, de la Prada M, Pujol R, Serra C et al (2010) Occupational dermatoses: cross-cultural adaptation of the Nordic occupational skin questionnaire (NOSQ-2002) From English to Spanish and Catalan. Actas dermo-sifiliogr 100(8):685\u2013692. https:\/\/doi.org\/10.1542\/peds.2007-2723","journal-title":"Actas dermo-sifiliogr"},{"issue":"13","key":"527_CR12","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1186\/s12955-015-0264-y","volume":"9","author":"D Rofail","year":"2015","unstructured":"Rofail D, Acquadro C, Izquierdo C, Regnault A, Zarit SH (2015) Cross-cultural adaptation of the Schizophrenia Caregiver Questionnaire (SCQ) and the Caregiver Global Impression (CaGI) scales in 11 languages. Health Qual Life Outcomes 9(13):76. https:\/\/doi.org\/10.1186\/s12955-015-0264-y","journal-title":"Health Qual Life Outcomes"},{"issue":"1","key":"527_CR13","doi-asserted-by":"publisher","first-page":"29","DOI":"10.1007\/s00238-016-1247-x","volume":"40","author":"L Poulsen","year":"2017","unstructured":"Poulsen L, Rose M, Klassen A, Roessler KK, S\u00f8rensen JA (2017) Danish translation and linguistic validation of the BODY-Q: a description of the process. Eur J Plast Surg 40(1):29\u201338. https:\/\/doi.org\/10.1007\/s00238-016-1247-x","journal-title":"Eur J Plast Surg"},{"issue":"9","key":"527_CR14","doi-asserted-by":"publisher","first-page":"746","DOI":"10.1016\/j.ad.2015.05.009","volume":"106","author":"I Garc\u00eda-D\u00edez","year":"2015","unstructured":"Garc\u00eda-D\u00edez I, Curto-Barredo L, Weller K, Pujol RM, Maurer M, Gim\u00e9nez-Arnau AM (2015) Adaptaci\u00f3n transcultural del cuestionario Urticaria Control Test del alem\u00e1n al castellano. Actas dermo-sifiliogr 106(9):746\u2013752. https:\/\/doi.org\/10.1016\/j.ad.2015.05.009","journal-title":"Actas dermo-sifiliogr"},{"issue":"12","key":"527_CR15","doi-asserted-by":"publisher","first-page":"907","DOI":"10.1046\/j.1365-4362.2000.00944.x","volume":"39","author":"M Jones-Caballero","year":"2000","unstructured":"Jones-Caballero M, Pe\u00f1as PF, Gar\u00eda-D\u00edez A, Bad\u00eda X, Chren MM (2000) The Spanish version of Skindex-29. Int J Dermatol 39(12):907\u2013912. https:\/\/doi.org\/10.1046\/j.1365-4362.2000.00944.x","journal-title":"Int J Dermatol"}],"container-title":["Journal of Patient-Reported Outcomes"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-022-00527-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s41687-022-00527-x\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-022-00527-x.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,12,2]],"date-time":"2022-12-02T09:33:48Z","timestamp":1669973628000},"score":1,"resource":{"primary":{"URL":"https:\/\/jpro.springeropen.com\/articles\/10.1186\/s41687-022-00527-x"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,2]]},"references-count":15,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2022,12]]}},"alternative-id":["527"],"URL":"https:\/\/doi.org\/10.1186\/s41687-022-00527-x","relation":{},"ISSN":["2509-8020"],"issn-type":[{"type":"electronic","value":"2509-8020"}],"subject":[],"published":{"date-parts":[[2022,12,2]]},"assertion":[{"value":"5 August 2022","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"17 November 2022","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"2 December 2022","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study was evaluated and approved by the Research Ethics Board of Hospital Sant Joan de D\u00e9u (PIC-82-19) complying with the local laws on Biomedical Research. All legal guardians and patients older than 18\u00a0years provided written informed consent. Children aged 12\u201317\u00a0years old provided written assent.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate."}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"121"}}