{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T19:37:31Z","timestamp":1790797051651,"version":"4.1.0"},"reference-count":59,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2025,4,9]],"date-time":"2025-04-09T00:00:00Z","timestamp":1744156800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,4,9]],"date-time":"2025-04-09T00:00:00Z","timestamp":1744156800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100018934","name":"Universit\u00e4t Greifswald","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100018934","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Patient Rep Outcomes"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Using Patient Reported Outcomes (PROs) in clinical care can reduce healthcare service utilization by improving the quality of care. Telehealth, defined by WHO, as the use of \u201ctelecommunications and virtual technology to deliver healthcare outside of traditional healthcare facilities\u201d, can facilitate a dynamic dialogue between patients and healthcare providers for timely interventions. With the increased use of telehealth facilitated by the infrastructure development during the COVID-19 pandemic, there is an opportunity to utilize telehealth for PRO implementation and a need for guidelines for using PROs via telehealth. This study aimed to generate expert consensus on the utilization of PROs in telehealth.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Delphi methodology was used to achieve consensus among international experts with a predetermined consensus threshold of 70%. Experts were mainly identified through the ISOQOL Clinical Practice SIG. Surveys asked a combination of structured and open-ended questions about the conceptualization of PROs in telehealth, its applicability, target population, implementation challenges and successful strategies, evaluation approaches, and the essential stakeholders. Data from each round were iteratively analyzed using descriptive statistics (quantitative data) and content analysis (qualitative data).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Out of 24 invitations sent, 17 completed the first round, and 11 completed all three rounds. Respondents were equally distributed between clinicians and researchers and 70% had used PROs via telehealth before the pandemic. Consensus was achieved and some of the relevant aspects are monitoring patients for applicability; individuals with chronic diseases as the target population; resources, staff buy-in, and clinical workflow as the implementation challenges and strategies; utilization metrics for evaluation; and clinicians and patients as essential stakeholders. Though consensus was not reached for the conceptualization of PROs using telehealth, the modified FDA definition of telehealth with the addition of its purpose, and the mode of administration was the most acceptable version. See attached table.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The expert consensus achieved provides important insights from an international perspective on how PROs are currently used via telehealth and the needed implementation support to advance their expansion in research and practice. Lack of consensus on the definition of PROs in telehealth signals the continued rapid evolution of their use and the need for additional research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s41687-025-00872-7","type":"journal-article","created":{"date-parts":[[2025,4,9]],"date-time":"2025-04-09T14:30:46Z","timestamp":1744209046000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Expert consensus on implementing patient-reported outcomes in telehealth: findings from an international Delphi study"],"prefix":"10.1186","volume":"9","author":[{"given":"Elizabeth J.","family":"Unni","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liv Marit Valen","family":"Schougaard","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Olalekan Lee","family":"Aiyegbusi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kedar K. V.","family":"Mate","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth J.","family":"Austin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0947-6091","authenticated-orcid":false,"given":"Klara","family":"Greffin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natasha","family":"Roberts","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Birgith Engelst","family":"Grove","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Holger","family":"Muehlan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"ISOQOL Clinical practice SIG PROs in Telehealth Working Group","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,4,9]]},"reference":[{"issue":"2","key":"872_CR1","doi-asserted-by":"publisher","first-page":"e24445","DOI":"10.2196\/24445","volume":"7","author":"MYZ Wong","year":"2021","unstructured":"Wong MYZ, Gunasekeran DV, Nusinovici S, Sabanayagam C, Yeo KK, Cheng CY, Tham YC (2021) Telehealth demand trends during the COVID-19 pandemic in the top 50 most affected countries: infodemiological evaluation. JMIR Public Health Surveill 7(2):e24445. https:\/\/doi.org\/10.2196\/24445","journal-title":"JMIR Public Health Surveill"},{"issue":"2","key":"872_CR2","doi-asserted-by":"publisher","first-page":"116","DOI":"10.1089\/tmj.2020.0219","volume":"27","author":"A Dosaj","year":"2021","unstructured":"Dosaj A, Thiyagarajan D, Ter Haar C, Cheng J, George J, Wheatley C, Ramanathan A (2021) Rapid implementation of telehealth services during the COVID-19 pandemic. Telemed E-Health 27(2):116\u2013120","journal-title":"Telemed E-Health"},{"issue":"2","key":"872_CR3","doi-asserted-by":"publisher","first-page":"153","DOI":"10.4258\/hir.2012.18.2.153","volume":"2","author":"S Ryu","year":"2012","unstructured":"Ryu S (2012) Telemedicine: opportunities and developments in member States: report on the second global survey on eHealth 2009. Healthc Inf Res 2(2):153\u2013155(Global Observatory for eHealth Series","journal-title":"Healthc Inf Res"},{"key":"872_CR4","unstructured":"World Health Organization (2019) WHO Guideline: recommendations on digital interventions for health system strengthening"},{"issue":"2","key":"872_CR5","doi-asserted-by":"publisher","first-page":"87","DOI":"10.1089\/tmj.2015.02064","volume":"22","author":"RL Bashshur","year":"2016","unstructured":"Bashshur RL, Shannon GW, Smith BR et al (2016) The empirical evidence for telemedicine interventions in mental disorders. Telemed J E Health 22(2):87\u2013113. https:\/\/doi.org\/10.1089\/tmj.2015.02064","journal-title":"Telemed J E Health"},{"issue":"10","key":"872_CR6","doi-asserted-by":"publisher","first-page":"736","DOI":"10.1089\/tmj.2014.0233","volume":"21","author":"RL Bashshur","year":"2015","unstructured":"Bashshur RL, Shannon GW, Bashshur N, Yellowlees PM (2015) The efficacy of telemedicine interventions in the management of chronic physical conditions: a systematic review. Telemed J E Health 21(10):736\u2013769. https:\/\/doi.org\/10.1089\/tmj.2014.0233","journal-title":"Telemed J E Health"},{"issue":"2","key":"872_CR7","doi-asserted-by":"publisher","first-page":"154","DOI":"10.1056\/NEJMra1601705","volume":"375","author":"ER Dorsey","year":"2016","unstructured":"Dorsey ER, Topol EJ (2016) State of telehealth. N Engl J Med 375(2):154\u2013161. https:\/\/doi.org\/10.1056\/NEJMra1601705","journal-title":"N Engl J Med"},{"issue":"4","key":"872_CR8","doi-asserted-by":"publisher","first-page":"218","DOI":"10.1177\/1357633X20927615","volume":"27","author":"A Gosselin-Tardif","year":"2021","unstructured":"Gosselin-Tardif A, Lauzier S, C\u00f4t\u00e9 J et al (2021) Telemedicine and mental health: A scoping review. J Telemed Telecare 27(4):218\u2013228. https:\/\/doi.org\/10.1177\/1357633X20927615","journal-title":"J Telemed Telecare"},{"key":"872_CR9","doi-asserted-by":"crossref","unstructured":"Totten AM, Hansen RN, Wagner J et al (2019) Telehealth for Acute and Chronic Care Consultations [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); (Comparative Effectiveness Review, No. 216.) Evidence Summary. Available from: https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK547246\/","DOI":"10.23970\/AHRQEPCCER216"},{"key":"872_CR10","doi-asserted-by":"publisher","first-page":"630273","DOI":"10.3389\/fdgth.2021.630273","volume":"3","author":"MD Santos","year":"2021","unstructured":"Santos MD, Roman C, Pimentel MAF, Vollam S, Areia C, Young L, Watkinson P, Tarassenko L (2021) A Real-Time wearable system for monitoring vital signs of COVID-19 patients in a hospital setting. Front Digit Health 3:630273. https:\/\/doi.org\/10.3389\/fdgth.2021.630273","journal-title":"Front Digit Health"},{"key":"872_CR11","doi-asserted-by":"publisher","first-page":"55","DOI":"10.1136\/bmjinnov-2019-000354","volume":"6","author":"S Soon","year":"2020","unstructured":"Soon S, Svavarsdottir H, Downey C, Jayne DG (2020) Wearable devices for remote vital signs monitoring in the outpatient setting: an overview of the field. BMJ Innovations 6:55\u201371. https:\/\/doi.org\/10.1136\/bmjinnov-2019-000354","journal-title":"BMJ Innovations"},{"key":"872_CR12","doi-asserted-by":"publisher","unstructured":"Ignatowicz A, Atherton H, Bernstein CJ, Bryce C, Court R, Sturt J, Griffiths F (2019) Internet videoconferencing for patient-clinician consultations in long-term conditions: A review of reviews and applications in line with guidelines and recommendations. Digit Health 23(5). https:\/\/doi.org\/10.1177\/2055207619845831","DOI":"10.1177\/2055207619845831"},{"issue":"1","key":"872_CR13","doi-asserted-by":"publisher","first-page":"192","DOI":"10.1038\/s41746-024-01182-w","volume":"7","author":"SY Tan","year":"2024","unstructured":"Tan SY, Sumner J, Wang Y, Wenjun Yip A (2024) A systematic review of the impacts of remote patient monitoring (RPM) interventions on safety, adherence, quality-of-life and cost-related outcomes. NPJ Digit Med 7(1):192. https:\/\/doi.org\/10.1038\/s41746-024-01182-w","journal-title":"NPJ Digit Med"},{"issue":"3","key":"872_CR14","doi-asserted-by":"publisher","first-page":"525","DOI":"10.1007\/s11136-015-1207-0","volume":"25","author":"LM Schougaard","year":"2016","unstructured":"Schougaard LM, Larsen LP, Jessen A, Sidenius P, Dorflinger L, de Thurah A, Hjollund NH (2016) AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases. Qual Life Res 25(3):525\u2013534. https:\/\/doi.org\/10.1007\/s11136-015-1207-0","journal-title":"Qual Life Res"},{"issue":"4","key":"872_CR15","doi-asserted-by":"publisher","first-page":"1053","DOI":"10.1007\/s11136-022-03322-9","volume":"32","author":"NH Hjollund","year":"2023","unstructured":"Hjollund NH, Larsen LP, de Thurah AL, Grove BE, Skuladottir H, Linnet H, Friis RB, Johnsen SP, May O, Jensen AL, Hansen TK, Taarnh\u00f8j GA, Tolstrup LK, Pappot H, Ivarsen P, D\u00f8rflinger L, Jessen A, S\u00f8rensen NT, Schougaard LMV, Team TA (2023) Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years\u2019 experience with PRO-algorithm-based patient-clinician interaction (telepro) in ambuflex. Qual Life Res 32(4):1053\u20131067. https:\/\/doi.org\/10.1007\/s11136-022-03322-9","journal-title":"Qual Life Res"},{"key":"872_CR16","unstructured":"US Department of Health and Human Services Food and Drug Administration (2009) Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims. Available at: http:\/\/www.fda.gov\/downloads\/Drugs\/GuidanceComplianceRegulatoryInformation\/Guidances\/UCM193282.pdf"},{"issue":"11","key":"872_CR17","doi-asserted-by":"publisher","first-page":"e30042","DOI":"10.2196\/30042","volume":"23","author":"A Knapp","year":"2021","unstructured":"Knapp A, Harst L, Hager S, Schmitt J, Scheibe M (2021) Use of Patient-Reported outcome measures and Patient-Reported experience measures within evaluation studies of telemedicine applications: systematic review. J Med Internet Res 23(11):e30042. https:\/\/doi.org\/10.2196\/30042","journal-title":"J Med Internet Res"},{"issue":"11","key":"872_CR18","doi-asserted-by":"publisher","first-page":"3223","DOI":"10.1007\/s11136-023-03469-z","volume":"32","author":"K Greffin","year":"2023","unstructured":"Greffin K, Muehlan H, van den Berg N, Hoffmann W, Ritter O, Oeff M, Speerfork S, Schomerus G, Schmidt S (2023) Measuring context that matters: validation of the modular Tele-QoL patient-reported outcome and experience measure. Qual Life Res 32(11):3223\u20133234. https:\/\/doi.org\/10.1007\/s11136-023-03469-z","journal-title":"Qual Life Res"},{"key":"872_CR19","doi-asserted-by":"publisher","first-page":"k5267","DOI":"10.1136\/bmj.k5267","volume":"364","author":"M Calvert","year":"2019","unstructured":"Calvert M, Kyte D, Price G, Valderas JM, Hjollund NH (2019) Maximising the impact of patient reported outcome assessment for patients and society. BMJ 364:k5267. https:\/\/doi.org\/10.1136\/bmj.k5267","journal-title":"BMJ"},{"issue":"2","key":"872_CR20","doi-asserted-by":"publisher","first-page":"44","DOI":"10.1177\/01410768231152222","volume":"116","author":"O Aiyegbusi","year":"2023","unstructured":"Aiyegbusi O, Hughes S, Peipert J, Schougaard L, Wilson R, Calvert M (2023) Reducing the pressure of outpatient care: the potential role of patient-reported outcomes. J R Soc Med 116(2):44\u201364 (in press)","journal-title":"J R Soc Med"},{"issue":"3","key":"872_CR21","doi-asserted-by":"publisher","first-page":"353","DOI":"10.1002\/acr.23280","volume":"70","author":"A de Thurah","year":"2018","unstructured":"de Thurah A, Stengaard-Pedersen K, Axelsen M, Fredberg U, Schougaard LMV, Hjollund NHI, Pfeiffer-Jensen M, Laurberg TB, Tarp U, Lomborg K, Maribo T (2018) Tele-Health followup strategy for tight control of disease activity in rheumatoid arthritis: results of a randomized controlled trial. Arthritis Care Res (Hoboken) 70(3):353\u2013360","journal-title":"Arthritis Care Res (Hoboken)"},{"issue":"10098","key":"872_CR22","doi-asserted-by":"publisher","first-page":"959","DOI":"10.1016\/S0140-6736(17)31327-2","volume":"390","author":"MJ de Jong","year":"2017","unstructured":"de Jong MJ, van der Meulen-de Jong AE, Romberg-Camps MJ, Becx MC, Maljaars JP, Cilissen M et al (2017) Telemedicine for management of inflammatory bowel disease (myIBDcoach): a pragmatic, multicentre, randomised controlled trial. Lancet 390(10098):959\u2013968","journal-title":"Lancet"},{"issue":"5","key":"872_CR23","doi-asserted-by":"publisher","first-page":"e14791","DOI":"10.1111\/dme.14791","volume":"39","author":"T Laurberg","year":"2022","unstructured":"Laurberg T, Schougaard LMV, Hjollund NHI, Lomborg KE, Hansen TK, Jensen AL (2022) Randomized controlled study to evaluate the impact of flexible patient-controlled visits in people with type 1 diabetes: the diabetesflex trial. Diabet Med 39(5):e14791","journal-title":"Diabet Med"},{"key":"872_CR24","doi-asserted-by":"publisher","unstructured":"Grove BE, Schougaard LMV, Mose F, Randers E, Hjollund NH, Ivarsen P, De Thurah A (2024) Remote symptom monitoring with patient-reported outcome measures in outpatients with chronic kidney disease (PROKID): a multicentre randomised controlled non-inferiority study. Clin Kidney J 14;17(7):sfae176. https:\/\/doi.org\/10.1093\/ckj\/sfae176","DOI":"10.1093\/ckj\/sfae176"},{"issue":"7","key":"872_CR25","doi-asserted-by":"publisher","first-page":"734","DOI":"10.1200\/JCO.20.02015","volume":"39","author":"K Absolom","year":"2021","unstructured":"Absolom K, Warrington L, Hudson E, Hewison J, Morris C, Holch P, Carter R, Gibson A, Holmes M, Clayton B, Rogers Z, McParland L, Conner M, Glidewell L, Woroncow B, Dawkins B, Dickinson S, Hulme C, Brown J, Velikova G (2021) Phase III randomized controlled trial of eRAPID: eHealth intervention during chemotherapy. J Clin Oncol 39(7):734\u2013747","journal-title":"J Clin Oncol"},{"issue":"6","key":"872_CR26","doi-asserted-by":"publisher","first-page":"557","DOI":"10.1200\/JCO.2015.63.0830","volume":"34","author":"E Basch","year":"2016","unstructured":"Basch E, Deal AM, Kris MG, Scher HI, Hudis CA, Sabbatini P, Rogak L, Bennett AV, Dueck AC, Atkinson TM, Chou JF, Dulko D, Sit L, Barz A, Novotny P, Fruscione M, Sloan JA, Schrag D (2016) Symptom monitoring with Patient-Reported outcomes during routine cancer treatment: A randomized controlled trial. J Clin Oncol 34(6):557\u2013565","journal-title":"J Clin Oncol"},{"key":"872_CR27","doi-asserted-by":"crossref","unstructured":"Denis F, Lethrosne C, Pourel N, Molinier O, Pointreau Y, Domont J, Bourgeois H, Senellart H, Tr\u00e9moli\u00e8res P, Liz\u00e9e T, Bennouna J, Urban T, El Khouri C, Charron A, Septans AL, Balavoine M, Landry S, Solal-C\u00e9ligny P, Letellier C (2017) Randomized trial comparing a Web-Mediated Follow-up with routine surveillance in lung cancer patients. J Natl Cancer Inst 109(9).","DOI":"10.1093\/jnci\/djx029"},{"issue":"1","key":"872_CR28","doi-asserted-by":"publisher","first-page":"126","DOI":"10.1186\/s41687-023-00659-8","volume":"7","author":"B Bajgain","year":"2023","unstructured":"Bajgain B, Rabi S, Ahmed S, Kiryanova V, Fairie P, Santana MJ (2023) Patient-reported experiences and outcomes of virtual care during COVID-19: a systematic review. J Patient Rep Outcomes 7(1):126. https:\/\/doi.org\/10.1186\/s41687-023-00659-8","journal-title":"J Patient Rep Outcomes"},{"issue":"8","key":"872_CR29","doi-asserted-by":"publisher","first-page":"1305","DOI":"10.1007\/s11136-011-0054-x","volume":"21","author":"CF Snyder","year":"2012","unstructured":"Snyder CF, Aaronson NK, Choucair AK, Elliott TE, Greenhalgh J, Halyard MY, Hess R, Miller DM, Reeve BB, Santana M (2012) Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res 21(8):1305\u20131314","journal-title":"Qual Life Res"},{"key":"872_CR30","doi-asserted-by":"publisher","DOI":"10.1038\/s41591-024-02909-8","author":"NL Crossnohere","year":"2024","unstructured":"Crossnohere NL, Anderson N, Baumhauer J et al (2024) A framework for implementing patient-reported outcomes in clinical care: the PROTEUS-practice guide. Nat Med. https:\/\/doi.org\/10.1038\/s41591-024-02909-8","journal-title":"Nat Med"},{"key":"872_CR31","doi-asserted-by":"publisher","unstructured":"Williamson PR, Altman DG, Bagley H et al (2017) The comet handbook: version 1.0. Trials. https:\/\/doi.org\/10.1186\/s13063-017-1978-4","DOI":"10.1186\/s13063-017-1978-4"},{"key":"872_CR32","doi-asserted-by":"publisher","unstructured":"Diamond IR, Grant RC, Feldman BM, Pencharz PB, Ling SC, Moore AM, Wales PW Defining consensus: a systematic review recommends methodologic criteria for reporting of Delphi studies (2014.) J Clin Epidemiol 67(4):401\u2013409. https:\/\/doi.org\/10.1016\/j.jclinepi.2013.12.002","DOI":"10.1016\/j.jclinepi.2013.12.002"},{"key":"872_CR33","doi-asserted-by":"publisher","DOI":"10.4135\/9781071878781","volume-title":"Content analysis: an introduction to its methodology","author":"K Krippendorff","year":"2019","unstructured":"Krippendorff K (2019) Content analysis: an introduction to its methodology. SAGE, Los Angeles"},{"key":"872_CR34","doi-asserted-by":"crossref","unstructured":"Gale NK, Heath G, Cameron E, Rashid S, Redwood S (2013) Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 18;13:117","DOI":"10.1186\/1471-2288-13-117"},{"issue":"11","key":"872_CR35","doi-asserted-by":"publisher","first-page":"3015","DOI":"10.1007\/s11136-020-02564-9","volume":"30","author":"AM Stover","year":"2021","unstructured":"Stover AM, Haverman L, van Oers HA, Greenhalgh J, Potter CM, ISOQOL PROMs\/PREMs in Clinical Practice Implementation Science Work Group (2021) Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings. Qual Life Res 30(11):3015\u20133033","journal-title":"Qual Life Res"},{"key":"872_CR36","doi-asserted-by":"crossref","unstructured":"Austin E, LeRouge C, Hartzler AL, Chung AE, Segal C, Lavallee DC (2019) Opportunities and challenges to advance the use of electronic patient-reported outcomes in clinical care: a report from AMIA workshop proceedings. JAMIA Open 2(4):407\u2013410","DOI":"10.1093\/jamiaopen\/ooz042"},{"issue":"1","key":"872_CR37","doi-asserted-by":"publisher","first-page":"169","DOI":"10.1186\/s13643-021-01725-2","volume":"10","author":"AC Wolff","year":"2021","unstructured":"Wolff AC, Dresselhuis A, Hejazi S, Dixon D, Gibson D, Howard AF, Liva S, Astle B, Reimer-Kirkham S, Noonan VK, Edwards L (2021) Healthcare provider characteristics that influence the implementation of individual-level patient-centered outcome measure (PROM) and patient-reported experience measure (PREM) data across practice settings: a protocol for a mixed methods systematic review with a narrative synthesis. Syst Rev 10(1):169","journal-title":"Syst Rev"},{"issue":"6","key":"872_CR38","doi-asserted-by":"publisher","first-page":"508","DOI":"10.1136\/bmjqs-2013-002524","volume":"23","author":"MB Boyce","year":"2014","unstructured":"Boyce MB, Browne JP, Greenhalgh J (2014) The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: A systematic review of qualitative research. BMJ Qual Saf 23(6):508\u2013518","journal-title":"BMJ Qual Saf"},{"issue":"2","key":"872_CR39","doi-asserted-by":"publisher","first-page":"708","DOI":"10.1177\/0049124118799377","volume":"50","author":"NM Deterding","year":"2018","unstructured":"Deterding NM, Waters MC (2018) Flexible coding of in-depth interviews: A twenty-first-century approach. Sociol Method Res 50(2):708\u2013739","journal-title":"Sociol Method Res"},{"key":"872_CR40","unstructured":"PROTEUS Consortium (2022) The PROTEUS Consortium: Helping You Navigate the Use of Patient-Reported Outcomes in Clinical Trials and Clinical Practice. Available via https:\/\/www.isoqol.org\/the-proteus-consortium\/"},{"key":"872_CR41","doi-asserted-by":"publisher","first-page":"100117","DOI":"10.1016\/j.sintl.2021.100117","volume":"2","author":"A Haleem","year":"2021","unstructured":"Haleem A, Javaid M, Singh RP, Suman R (2021) Telemedicine for healthcare: capabilities, features, barriers, and applications. Sens Int 2:100117","journal-title":"Sens Int"},{"issue":"8","key":"872_CR42","doi-asserted-by":"publisher","first-page":"2259","DOI":"10.1007\/s11136-023-03388-z","volume":"32","author":"CJ Hyland","year":"2023","unstructured":"Hyland CJ, Mou D, Virji AZ, Sokas CM, Bokhour B, Pusic AL, Mj\u00e5set C (2023) How to make proms work: qualitative insights from leaders at united States hospitals with successful proms programs. Qual Life Res 32(8):2259\u20132269","journal-title":"Qual Life Res"},{"issue":"2","key":"872_CR43","doi-asserted-by":"publisher","first-page":"347","DOI":"10.1007\/s11136-019-02320-8","volume":"29","author":"E Austin","year":"2020","unstructured":"Austin E, LeRouge C, Hartzler AL, Segal C, Lavallee DC (2020) Capturing the patient voice: implementing patient-reported outcomes across the health system. Qual Life Res 29(2):347\u2013355","journal-title":"Qual Life Res"},{"issue":"3","key":"872_CR44","doi-asserted-by":"publisher","first-page":"337","DOI":"10.1111\/ajco.13847","volume":"19","author":"NA Roberts","year":"2020","unstructured":"Roberts NA, Dhillon HM, Paterson C, Schubach K, McJannett M, Australian, New Zealand Urogenital and Prostate Cancer Trials Group (2020) The impact of coronavirus disease 2019 on genitourinary and prostate cancer care and clinical trials: a qualitative exploration of the Australian and new Zealand experience. Asia Pac J Clin Onc 19(3):337\u2013346","journal-title":"Asia Pac J Clin Onc"},{"issue":"3","key":"872_CR45","doi-asserted-by":"publisher","first-page":"335","DOI":"10.1200\/OP.23.00462","volume":"20","author":"J Lai-Kwon","year":"2024","unstructured":"Lai-Kwon J, Rutherford C, Jefford M, Gore C, Best S (2024) Using implementation science frameworks to guide the use of electronic Patient-Reported outcome symptom monitoring in routine cancer care. JCO Oncol Pract 20(3):335\u2013349","journal-title":"JCO Oncol Pract"},{"issue":"4","key":"872_CR46","doi-asserted-by":"publisher","first-page":"754","DOI":"10.1111\/1468-0009.12091","volume":"92","author":"PJ Van Der Wees","year":"2014","unstructured":"Van Der Wees PJ, Nijhuis-Van Der Sanden MW, Ayanian JZ, Black N, Westert GP, Schneider EC (2014) Integrating the use of patient-reported outcomes for both clinical practice and performance measurement: views of experts from 3 countries. Milbank Q 92(4):754\u2013775","journal-title":"Milbank Q"},{"issue":"1","key":"872_CR47","doi-asserted-by":"publisher","first-page":"e22619","DOI":"10.2196\/22619","volume":"23","author":"AZ Valentine","year":"2021","unstructured":"Valentine AZ, Hall SS, Young E, Brown BJ, Groom MJ, Hollis C, Hall CL (2021) Implementation of telehealth services to assess, monitor, and treat neurodevelopmental disorders: systematic review. J Med Internet Res 23(1):e22619","journal-title":"J Med Internet Res"},{"issue":"12","key":"872_CR48","doi-asserted-by":"publisher","first-page":"e1943","DOI":"10.1200\/OP.22.00360","volume":"18","author":"GB Rocque","year":"2022","unstructured":"Rocque GB, Dent DN, Ingram SA, Caston NE, Thigpen HB, Lalor FR, Jamy OH, Giri S, Azuero A, Young Pierce J, McGowen CL, Daniel CL, Andrews CJ, Huang CS, Dionne-Odom JN, Weiner BJ, Howell D, Jackson BE, Basch EM, Stover AM (2022) Adaptation of remote symptom monitoring using electronic Patient-Reported outcomes for implementation in Real-World settings. JCO Oncol Pract 18(12):e1943\u2013e1952","journal-title":"JCO Oncol Pract"},{"key":"872_CR49","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1016\/j.jclinepi.2020.06.022","volume":"127","author":"NA Roberts","year":"2020","unstructured":"Roberts NA, Alexander K, Wyld D, Janda M (2020) Statistical process control assessed implementation fidelity of patient-reported outcome measures (PROMs) in routine care. J Clin Epidemiol 127:76\u201386","journal-title":"J Clin Epidemiol"},{"issue":"1","key":"872_CR50","doi-asserted-by":"publisher","first-page":"281","DOI":"10.1007\/s11136-023-03505-y","volume":"33","author":"E Unni","year":"2024","unstructured":"Unni E, Coles T, Lavallee DC, Freel J, Roberts N, Absolom K (2024) Patient adherence to patient-reported outcome measure (PROM) completion in clinical care: current Understanding and future recommendations. Qual Life Res 33(1):281\u2013290","journal-title":"Qual Life Res"},{"issue":"6","key":"872_CR51","doi-asserted-by":"publisher","first-page":"1597","DOI":"10.1007\/s11136-021-03003-z","volume":"31","author":"R Campbell","year":"2022","unstructured":"Campbell R, Ju A, King MT, Rutherford C (2022) Perceived benefits and limitations of using patient-reported outcome measures in clinical practice with individual patients: a systematic review of qualitative studies. Qual Life 31(6):1597\u20131620","journal-title":"Qual Life"},{"issue":"1","key":"872_CR52","first-page":"40","volume":"25","author":"K Donelan","year":"2019","unstructured":"Donelan K, Barreto EA, Sossong S, Michael C, Estrada JJ, Cohen AB, Wozniak J, Schwamm LH (2019) Patient and clinician experiences with telehealth for patient follow-up care. Am J Manag Care 25(1):40\u201344","journal-title":"Am J Manag Care"},{"issue":"1","key":"872_CR53","doi-asserted-by":"publisher","first-page":"546","DOI":"10.1186\/s12913-018-3352-y","volume":"18","author":"CT Mejdahl","year":"2018","unstructured":"Mejdahl CT, Schougaard LMV, Hjollund NH, Riiskj\u00e6r E, Lomborg K (2018) Exploring organisational mechanisms in PRO-based follow-up in routine outpatient care - an interpretive description of the clinician perspective. BMC Health Serv Res 18(1):546. https:\/\/doi.org\/10.1186\/s12913-018-3352-y","journal-title":"BMC Health Serv Res"},{"key":"872_CR54","doi-asserted-by":"publisher","first-page":"38","DOI":"10.1186\/s41687-018-0067-0","volume":"2","author":"CT Mejdahl","year":"2018","unstructured":"Mejdahl CT, Schougaard LMV, Hjollund NH, Riiskj\u00e6r E, Thorne S, Lomborg K (2018) PRO-based follow-up as a means of self-management support - an interpretive description of the patient perspective. J Patient Rep Outcomes 2:38. https:\/\/doi.org\/10.1186\/s41687-018-0067-0","journal-title":"J Patient Rep Outcomes"},{"issue":"2","key":"872_CR55","doi-asserted-by":"publisher","first-page":"e0281393","DOI":"10.1371\/journal.pone.0281393","volume":"18","author":"BE Grove","year":"2023","unstructured":"Grove BE, Schougaard LMV, Ivarsen P, Hjollund NH, de Thurah A, Mejdahl CT (2023) Remote follow-up based on patient-reported outcomes in patients with chronic kidney disease: A qualitative study of patient perspectives. PLoS ONE 18(2):e0281393. https:\/\/doi.org\/10.1371\/journal.pone.0281393","journal-title":"PLoS ONE"},{"issue":"3","key":"872_CR56","doi-asserted-by":"publisher","first-page":"662","DOI":"10.1111\/scs.13154","volume":"37","author":"AL Jensen","year":"2023","unstructured":"Jensen AL, Schougaard LMV, Laurberg T, Hansen TK, Lomborg K (2023) Flexible patient-reported outcome-based telehealth follow-up for type 1 diabetes: A qualitative study. Scand J Caring Sci 37(3):662\u2013676. https:\/\/doi.org\/10.1111\/scs.13154. Epub 2023 Feb 12","journal-title":"Scand J Caring Sci"},{"issue":"6","key":"872_CR57","doi-asserted-by":"publisher","first-page":"151517","DOI":"10.1016\/j.soncn.2023.151517","volume":"39","author":"LMV Schougaard","year":"2023","unstructured":"Schougaard LMV, Friis RB, Grytnes R, Grove BE, Hjollund NH, Pappot H et al (2023) Exploring the nurses\u2019 perspective on using remote electronic symptom monitoring in clinical Decision-Making among patients with metastatic lung cancer. Semin Oncol Nurs 39(6):151517","journal-title":"Semin Oncol Nurs"},{"issue":"4","key":"872_CR58","doi-asserted-by":"publisher","first-page":"301","DOI":"10.1177\/1357633X20960638","volume":"28","author":"EE Thomas","year":"2022","unstructured":"Thomas EE, Haydon HM, Mehrotra A, Caffery LJ, Snoswell CL, Banbury A, Smith AC (2022) Building on the momentum: sustaining telehealth beyond COVID-19. J Telemed Telecare 28(4):301\u2013308","journal-title":"J Telemed Telecare"},{"issue":"9","key":"872_CR59","doi-asserted-by":"publisher","first-page":"546","DOI":"10.1200\/OP.21.00438","volume":"17","author":"RT Zon","year":"2021","unstructured":"Zon RT, Kennedy EB, Adelson K, Blau S, Dickson N, Gill D, Laferriere N, Lopez AM, Mulvey TM, Patt D, Pickard TA, Purdom T, Royce TJ, Sumrall AL, Page RD (2021) Telehealth in oncology: ASCO standards and practice recommendations. JCO Oncol Pract 17(9):546\u2013564","journal-title":"JCO Oncol Pract"}],"container-title":["Journal of Patient-Reported Outcomes"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-025-00872-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s41687-025-00872-7\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-025-00872-7.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,4,10]],"date-time":"2025-04-10T00:04:19Z","timestamp":1744243459000},"score":1,"resource":{"primary":{"URL":"https:\/\/jpro.springeropen.com\/articles\/10.1186\/s41687-025-00872-7"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,4,9]]},"references-count":59,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2025,12]]}},"alternative-id":["872"],"URL":"https:\/\/doi.org\/10.1186\/s41687-025-00872-7","relation":{},"ISSN":["2509-8020"],"issn-type":[{"value":"2509-8020","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,4,9]]},"assertion":[{"value":"14 June 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 March 2025","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"9 April 2025","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"This study was deemed exempt by the Ethical Approval Board of the University of Washington.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"OLA receives funding from the NIHR Birmingham Biomedical Research Centre (BRC), NIHR Applied Research Collaboration (ARC), West Midlands, NIHR Blood and Transplant Research Unit (BTRU) in Precision Transplant and Cellular Therapeutics at the University of Birmingham and University Hospitals Birmingham NHS Foundation, LifeArc, Innovate UK (part of UK Research and Innovation), The Health Foundation, Gilead Sciences Ltd, Merck, Anthony Nolan, GSK, and Sarcoma UK. He declares personal fees from Gilead Sciences, Merck, Innovate UK, Boehringer Ingelheim, and GSK outside the submitted work. The other authors declare that they have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"40"}}