{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,16]],"date-time":"2026-06-16T17:56:33Z","timestamp":1781632593246,"version":"3.54.5"},"reference-count":25,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,1,30]],"date-time":"2026-01-30T00:00:00Z","timestamp":1769731200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,2,12]],"date-time":"2026-02-12T00:00:00Z","timestamp":1770854400000},"content-version":"vor","delay-in-days":13,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100004330","name":"GlaxoSmithKline","doi-asserted-by":"publisher","award":["GlaxoSmithKline"],"award-info":[{"award-number":["GlaxoSmithKline"]}],"id":[{"id":"10.13039\/100004330","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Patient Rep Outcomes"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Chronic rhinosinusitis with nasal polyps (CRSwNP) significantly impacts patients\u2019 quality of life, yet there is a notable lack of studies addressing the disease burden and patients\u2019 perspectives compared to other conditions such as asthma and allergies. This project aimed to gather insights from both patients living with CRSwNP and healthcare professionals (HCPs) involved in its management, with the goal of better understanding their experiences and identifying shared unmet needs and expectations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>Twelve CRSwNP patients participated in2 focus groups (open-ended questions) facilitated by a moderator. The insights gathered were presented to an expert board comprising HCPs and expert patients, both of whom are members of the PAG. Patients involved in the expert board enriched the qualitative data collection providing narratives of their personal experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 24 patients with CRSwNP participated in the analysis, 124 qualitative insights, distinct observations, comments or experiences related to their conditions, were gathered. The main priorities expressed were to decrease invasive procedures; avoid chronicity\/reduce relapses; and create more opportunities for patients to be heard.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Participants expressed expectations that extended beyond disease management, emphasizing the importance of their active involvement in shaping healthcare strategies. This project highlights the critical need to actively listen to the experiences and unmet needs of both patients and HCPs, integrating their perspectives into healthcare strategies to deliver practical, patient-centered improvements in the management of CRSwNP.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s41687-025-00990-2","type":"journal-article","created":{"date-parts":[[2026,1,30]],"date-time":"2026-01-30T08:46:49Z","timestamp":1769762809000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Living with chronic rhinosinusitis with nasal polyposis (CRSwNP): an experience to amplify Italian patients\u2019 voices"],"prefix":"10.1186","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7507-9321","authenticated-orcid":false,"given":"L.","family":"Bernardi","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. R.","family":"Mollo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Sartor","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Barbaglia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Gargano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"F.","family":"Anastasi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G.","family":"Camiciottoli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Allegrini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Caruso","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"I.","family":"Baiardini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Cappellari","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,1,30]]},"reference":[{"key":"990_CR1","doi-asserted-by":"publisher","first-page":"2312","DOI":"10.1111\/all.13875","volume":"74","author":"WJ Fokkens","year":"2019","unstructured":"Fokkens WJ, Lund V, Bachert C, Mullol J, Bjermer L, Bousquet J et al (2019) EUFOREA consensus on biologics for CRSwNP with or without asthma. 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Institutional Review Board (IRB) and Research Ethics Committee (REC) approvals were not required nor sought because the research did not meet the requirements for needing ethical approval, per section\u00a01.3 of the EphMRA guidelines and as per Health Research Authority (HRA) decision tool.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}},{"value":"All the authors confirm that consent for publication has been obtained and that all patient\/personal identifiers have been removed or disguised so the patient\/person(s) described are not identifiable and cannot be identified through the details of the story.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"A poster regarding this publication was submitted, accepted and presented at SIAIIC 2023 (HOTEL SAVOIA REGENCY \u2013 Via del Pilastro 2\u201340127 Bologna; 27.10.2023).","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Congresses"}},{"value":"Authors LB, MRM, CS, and LC are employed by GSK and hold financial equities in GSK. Author GC has received consulting fees, payments or honoraria for lectures, presentations, speaker bureaus, advisory boards, support for attending meetings and\/or travel from AZ, GSK, Sanofi and Chiesi Pharmaceutical Companies. Author IB has received payments or honoraria for lectures, presentations, speaker bureaus, or educational events from AZ, Sanofi and Chiesi Pharmaceutical Companies. Author FA has received consulting fees, payments or honoraria for lectures, presentations, speaker bureaus, advisory boards, support for attending meetings and\/or travel from Sanofi, GSK, Firma and Novartis Pharmaceutical Companies. Author DG has received payment or honoraria for lectures, presentations, speaker bureaus, educational events, and support for attending meetings and\/or travel. The remaining authors declare that they have no conflicts of interest.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"22"}}