{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T22:46:36Z","timestamp":1787957196704,"version":"build-2784847793"},"reference-count":9,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T00:00:00Z","timestamp":1776038400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,5,26]],"date-time":"2026-05-26T00:00:00Z","timestamp":1779753600000},"content-version":"vor","delay-in-days":43,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"name":"Curtin University"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Patient Rep Outcomes"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient\u2011reported experience measures (PREMs) and patient\u2011reported outcome measures (PROMs) play an increasingly important role in assessing the quality and safety of healthcare. However, their application in maternity care is relatively contemporary, and progress is hindered by the absence of high\u2011quality, validated, maternity\u2011specific tools. In Australia, there are no nationally standardized maternity PREMs or PROMs capable of capturing whether care provided during the transformative period of childbearing aligns with the needs, expectations, and priorities of those giving birth. Without genuine consumer co\u2011design, current approaches to developing maternity PREMs and PROMs risk failing to capture the complexity and diversity of women\u2019s experiences and outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Main text<\/jats:title>\n                    <jats:p>The development of national consumer co-designed maternity PREMs and PROMs in Australia is a critical opportunity to ensure that which is measured, genuinely reflects what matters to women. Globally however, maternity care lacks validated PREMs and PROMs that have been meaningfully co\u2011designed with consumers. Addressing this gap requires intentional, rigorous co\u2011design grounded in five core principles: authentic consumer leadership; diverse and inclusive representation; iterative, continuous engagement; respectful and reciprocal partnership supported by equitable reimbursement; and alignment with best\u2011practice frameworks that safeguard against tokenism. Together, these principles underpin contemporary models of consumer involvement, including dedicated consumer leadership roles and structured advisory groups, to meaningfully embed lived experience to co-design maternity care PREMs and PROMs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>A co-design approach that centers women as active partners, rather than passive participants, is essential for producing PREMs and PROMs that are relevant, acceptable and impactful in real-world maternity care. Rigorous, inclusive co\u2011design provides the foundation for measurement systems capable of driving meaningful and lasting improvements in the safety, quality, and person\u2011centeredness of maternity care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1186\/s41687-026-01065-6","type":"journal-article","created":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T16:22:50Z","timestamp":1776097370000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["From participants to partners: a strategy for establishing a national consumer fellow to lead the co-design of maternity patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs)"],"prefix":"10.1186","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-3602-8202","authenticated-orcid":false,"given":"Karen","family":"Schlage","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren C.","family":"Spark","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily J.","family":"Callander","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Leefhelm","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zoe","family":"Bradfield","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2026,4,13]]},"reference":[{"issue":"4","key":"1065_CR1","doi-asserted-by":"publisher","first-page":"mzad098","DOI":"10.1093\/intqhc\/mzad098","volume":"35","author":"P Casaca","year":"2023","unstructured":"Casaca P, Sch\u00e4fer W, Nunes AB, Sousa P (2023) Using patient-reported outcome measures and patient-reported experience measures to elevate the quality of healthcare. Int J Qual Health Care 35(4):mzad098. https:\/\/doi.org\/10.1093\/intqhc\/mzad098","journal-title":"Int J Qual Health Care"},{"issue":"10","key":"1065_CR2","doi-asserted-by":"publisher","first-page":"101102","DOI":"10.1016\/j.ajogmf.2023.101102","volume":"5","author":"C Bull","year":"2023","unstructured":"Bull C, Carrandi A, Slavin V, Teede H, Callander EJ (2023) Development, woman-centricity and psychometric properties of maternity patient-reported experience measures: a systematic review. Am J Obstet Gynecol MFM 5(10):101102","journal-title":"Am J Obstet Gynecol MFM"},{"issue":"6","key":"1065_CR3","doi-asserted-by":"publisher","first-page":"e563","DOI":"10.1016\/j.wombi.2023.05.009","volume":"36","author":"M Battershell","year":"2023","unstructured":"Battershell M, Vu H, Callander EJ, Slavin V, Carrandi A, Teede H, Bull C (2023) Development, women-centricity and psychometric properties of maternity patient-reported outcome measures (PROMs): a systematic review. Women Birth 36(6):e563\u2013e573","journal-title":"Women Birth"},{"issue":"4","key":"1065_CR4","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1016\/j.wombi.2025.101927","volume":"38","author":"Z Bradfield","year":"2025","unstructured":"Bradfield Z, Griffin G, Wood J, Finley L, Barnes C, Mahoney S, White S, Kindinger L (2025) Perspectives and experiences of induction of labour: an Australian cross-sectional study. Women Birth 38(4):1\u201310. https:\/\/doi.org\/10.1016\/j.wombi.2025.101927","journal-title":"Women Birth"},{"key":"1065_CR5","unstructured":"Australian Government Department of Health (2019) Woman-centred care: strategic directions for Australian maternity services. Canberra: Australian Government Department of Health. https:\/\/www.health.gov.au\/resources\/publications\/woman-centred-care-strategic-directions-for-australian-maternity-services. Accessed 25 June 2025"},{"key":"1065_CR6","doi-asserted-by":"publisher","unstructured":"New South Wales Parliament. Legislative Council. Select Committee on Birth Trauma (2024) Birth trauma: Report no. 1. Sydney: Parliament of New South Wales. https:\/\/www.parliament.nsw.gov.au\/lcdocs\/inquiries\/2965\/FINAL%20Birth%20Trauma%20Report%20-%2029%20April%202024.pdf. Accessed 27 June 2025. https:\/\/doi.org\/10.1093\/intqhc\/mzad098","DOI":"10.1093\/intqhc\/mzad098"},{"key":"1065_CR7","doi-asserted-by":"publisher","DOI":"10.1101\/2025.06.18.25329896v1","author":"LC Spark","year":"2025","unstructured":"Spark LC, Schlage K, Callander EJ, Leefhelm E, Hobday MB, Wakgari N, Bradfield Z (2025) Developing Patient-Reported Experience Measures (PREMs) and Patient-Reported Outcome Measures (PROMs) for Maternity Care in Australia: A Study Protocol. MedRxiv. https:\/\/www.medrxiv.org\/content\/https:\/\/doi.org\/10.1101\/2025.06.18.25329896v1","journal-title":"MedRxiv"},{"key":"1065_CR8","unstructured":"World Health Organization (WHO) (2023) WHO framework for meaningful engagement of people with lived experience. https:\/\/www.who.int\/groups\/gcm\/meaningful-engagement-of-people-with-lived-experience. Accessed 09 February 2026"},{"key":"1065_CR9","unstructured":"COSMIN (2018) COSMIN methodology for assessing the content validity of PROMs: User manual version 1.0. https:\/\/www.cosmin.nl\/wp-content\/uploads\/COSMIN-methodology-for-content-validity-user-manual-v1.pdf. Accessed 27 June 2025"}],"container-title":["Journal of Patient-Reported Outcomes"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s41687-026-01065-6","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-026-01065-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41687-026-01065-6.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,6,16]],"date-time":"2026-06-16T21:57:43Z","timestamp":1781647063000},"score":1,"resource":{"primary":{"URL":"https:\/\/link.springer.com\/10.1186\/s41687-026-01065-6"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,4,13]]},"references-count":9,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,12]]}},"alternative-id":["1065"],"URL":"https:\/\/doi.org\/10.1186\/s41687-026-01065-6","relation":{},"ISSN":["2509-8020"],"issn-type":[{"value":"2509-8020","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,4,13]]},"assertion":[{"value":"30 June 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"6 April 2026","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 April 2026","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"Not applicable.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"Authors have no competing interests.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"84"}}