{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,7]],"date-time":"2026-05-07T06:24:17Z","timestamp":1778135057007,"version":"3.51.4"},"reference-count":10,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,10,9]],"date-time":"2024-10-09T00:00:00Z","timestamp":1728432000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,10,9]],"date-time":"2024-10-09T00:00:00Z","timestamp":1728432000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/100013594","name":"Alpha Foundation","doi-asserted-by":"crossref","award":["AFC618SP-88"],"award-info":[{"award-number":["AFC618SP-88"]}],"id":[{"id":"10.13039\/100013594","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100013594","name":"Alpha Foundation","doi-asserted-by":"crossref","award":["AFC618SP-88"],"award-info":[{"award-number":["AFC618SP-88"]}],"id":[{"id":"10.13039\/100013594","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100013594","name":"Alpha Foundation","doi-asserted-by":"crossref","award":["AFC618SP-88"],"award-info":[{"award-number":["AFC618SP-88"]}],"id":[{"id":"10.13039\/100013594","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Rheumatol"],"abstract":"<jats:title>Abstract<\/jats:title><jats:sec>\n                <jats:title>Objective<\/jats:title>\n                <jats:p>To assess agreement between patient survey report and physician recorded arthritic conditions and medication use in order to validate population-based epidemiologic approaches to auto-immune arthritic conditions.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>Rheumatologists in the U.S. Appalachian region recruited men 50 years or older with a confirmed rheumatoid arthritis (RA) diagnosis. For each participating patient, the treating specialist completed a brief chart abstraction that included rheumatic diagnosis and corresponding treatment. Patients participated in a telephone interview using the same questionnaire as applied in a larger random digit dial survey that queried arthritis diagnosis and treatment. We assessed patient-clinician agreement with the Prevalence Adjusted and Biased Adjusted Kappa (PABAK) statistic.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>We included 36 patient-clinician dyads in this analysis. All clinicians and patients concurred in the RA diagnosis (PABAK\u2009=\u20091). For concomitant systemic lupus and scleroderma, we observed generally concordant responses (PABAK 0.89 and 1, respectively). For medication use, for hydroxychloroquine or sulfasalazine was associated with the lowest PABAK (0.39), intermediate values for methotrexate and for the \u201cother conventional synthetic DMARDs\u201d category (0.67), and with the highest agreement PABAK value for the \u201cbiologic DMARD or JAK 2 inhibitor\u201d category (0.89).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>Survey-based self-report of RA offers a useful approach in epidemiological investigation. This is particularly relevant to population-based approaches to autoimmune arthritis related to occupational and environmental factors.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s41927-024-00425-3","type":"journal-article","created":{"date-parts":[[2024,10,9]],"date-time":"2024-10-09T09:02:01Z","timestamp":1728464521000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Survey self-report of rheumatoid arthritis and treatments versus specialist clinician confirmation"],"prefix":"10.1186","volume":"8","author":[{"given":"Shamil","family":"Jugnundan","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gabriela","family":"Schmajuk","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Trupin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul D.","family":"Blanc","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,10,9]]},"reference":[{"key":"425_CR1","doi-asserted-by":"publisher","first-page":"3289","DOI":"10.3390\/jcm10153289","volume":"10","author":"Y Xu","year":"2021","unstructured":"Xu Y, Wu Q. Prevalence trend and disparities in rheumatoid arthritis among US adults, 2005\u20132018. J Clin Med. 2021;10:3289.","journal-title":"J Clin Med"},{"key":"425_CR2","doi-asserted-by":"publisher","first-page":"1209","DOI":"10.1002\/acr.23874","volume":"71","author":"G Schmajuk","year":"2019","unstructured":"Schmajuk G, Trupin L, Yelin E, Blanc PD. Prevalence of arthritis and rheumatoid arthritis in coal mining counties of the U.S. Arthritis Care Res (Hoboken). 2019;71:1209\u201315.","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"425_CR3","doi-asserted-by":"publisher","first-page":"308","DOI":"10.1136\/oemed-2021-107899","volume":"79","author":"G Schmajuk","year":"2022","unstructured":"Schmajuk G, Trupin L, Yelin EH, Blanc PD. Dusty trades and associated rheumatoid arthritis in a population-based study in the coal mining counties of Appalachia. Occup Environ Med. 2022;79:308\u201314.","journal-title":"Occup Environ Med"},{"key":"425_CR4","doi-asserted-by":"publisher","first-page":"e2236738","DOI":"10.1001\/jamanetworkopen.2022.36738","volume":"5","author":"PD Blanc","year":"2022","unstructured":"Blanc PD, Trupin L, Yelin EH, Schmajuk G. Assessment of risk of rheumatoid arthritis among underground hard rock and other mining industry workers in Colorado, New Mexico, and Utah. JAMA Netw Open. 2022;5:e2236738.","journal-title":"JAMA Netw Open"},{"key":"425_CR5","doi-asserted-by":"publisher","first-page":"423","DOI":"10.1016\/0895-4356(93)90018-V","volume":"46","author":"T Byrt","year":"1993","unstructured":"Byrt T, Bishop J, Carlin JB. Bias, prevalence and kappa. J Clin Epidemiol. 1993;46:423\u20139.","journal-title":"J Clin Epidemiol"},{"key":"425_CR6","doi-asserted-by":"publisher","first-page":"5","DOI":"10.1186\/1471-2288-9-5","volume":"9","author":"G Chen","year":"2009","unstructured":"Chen G, Faris P, Hemmelgarn B, Walker RL, Quan H. Measuring agreement of administrative data with chart data using prevalence unadjusted and adjusted kappa. BMC Med Res Methodol. 2009;9:5.","journal-title":"BMC Med Res Methodol"},{"issue":"4","key":"425_CR7","doi-asserted-by":"publisher","first-page":"555","DOI":"10.1111\/1756-185X.13549","volume":"22","author":"P Heidari","year":"2019","unstructured":"Heidari P, Cross W, Weller C, Nazarinia M, Crawford K. Medication adherence and cost-related medication non-adherence in patients with rheumatoid arthritis: a cross-sectional study. Int J Rheum Dis. 2019;22(4):555\u201366.","journal-title":"Int J Rheum Dis"},{"issue":"7","key":"425_CR8","doi-asserted-by":"publisher","first-page":"644","DOI":"10.1136\/ard.62.7.644","volume":"62","author":"HS Picavet","year":"2003","unstructured":"Picavet HS, Hazes JM. Prevalence of self reported musculoskeletal diseases is high. Ann Rheum Dis. 2003;62(7):644\u201350.","journal-title":"Ann Rheum Dis"},{"issue":"3","key":"425_CR9","doi-asserted-by":"publisher","first-page":"419","DOI":"10.1002\/acr.23598","volume":"71","author":"KN Jordan","year":"2019","unstructured":"Jordan KN, Pennebaker JW, Petrie KJ, Dalbeth N. Googling gout: exploring perceptions about gout through a linguistic analysis of online search activities. Arthritis Care Res (Hoboken). 2019;71(3):419\u201326.","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"425_CR10","doi-asserted-by":"publisher","first-page":"239","DOI":"10.1002\/acr2.11229","volume":"3","author":"MJ Booth","year":"2021","unstructured":"Booth MJ, Clauw D, Janevic MR, Kobayashi LC, Piette JD. Validation of self-reported rheumatoid arthritis using Medicare claims: a nationally Representative Longitudinal Study of older adults. ACR Open Rheumatol. 2021;3:239\u201349.","journal-title":"ACR Open Rheumatol"}],"container-title":["BMC Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41927-024-00425-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/article\/10.1186\/s41927-024-00425-3\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s41927-024-00425-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,10,9]],"date-time":"2024-10-09T20:20:20Z","timestamp":1728505220000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcrheumatol.biomedcentral.com\/articles\/10.1186\/s41927-024-00425-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,10,9]]},"references-count":10,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["425"],"URL":"https:\/\/doi.org\/10.1186\/s41927-024-00425-3","relation":{},"ISSN":["2520-1026"],"issn-type":[{"value":"2520-1026","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,10,9]]},"assertion":[{"value":"10 July 2024","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"30 September 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"9 October 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Declarations"}},{"value":"The study was approved by the University of California, San Francisco Institutional Review Board (IRB) and all patients provided written consent to participate in the study. Four of the five practices relied on the UCSF IRB and one established its own protocol under the auspices of its institutional IRB, following the same procedures as the main protocol.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"Not applicable.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"Clinical trial number: not applicable.","order":4,"name":"Ethics","group":{"name":"EthicsHeading","label":"Clinical trial number in the manuscript"}},{"value":"The authors declare no competing interests.","order":5,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"51"}}