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The aim is to translate and cross-culturally adapt the PSS-QoL into Brazilian Portuguese and to evaluate its psychometric properties.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Methods<\/jats:title>\n                <jats:p>The original English version was translated into Brazilian Portuguese by two native Brazilians who were proficient in the English language. The retranslation was conducted by two native Americans proficient in Brazilian Portuguese. A committee undertook an analysis of the translated and retranslated versions, resulting in the generation of the first Brazilian version, which was submitted to the cross-cultural adaptation phase. In this phase, 50 participants with SjD responded to the instrument in Stages I and II, resulting in the generation of the second and final Brazilian version. To assess the psychometric properties, demographic and clinical data were collected from 75 patients. The HRQoL questionnaires (final Brazilian version of the PSS-QoL, Short Form-36 Health Survey (SF-36) and EuroQoL-5 dimension (EQ-5D)) were completed. Construct validity was analyzed using the Pearson or Spearman correlation coefficient. Reliability was analyzed using Cronbach\u2019s alpha and the intraclass correlation coefficient (ICC).<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>Eight questions and one response item were revised due to an incomprehension rate of greater than 15% among the participants in the cross-cultural adaptation phase. The final Brazilian version of the PSS-QoL was validated, revealing a high correlation between the total score and functional capacity (<jats:italic>r<\/jats:italic>= \u22120.713, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001), and vitality (<jats:italic>r<\/jats:italic>= \u22120.770, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090. 001) and mental health (<jats:italic>r<\/jats:italic>= \u22120.742, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001) domains of the SF-36 and a moderate correlation with the other domains of the SF-36 and a moderate correlation with the EQ-5D-tto (<jats:italic>r<\/jats:italic>= \u22120.573, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001), and EQ-5D-VAS (<jats:italic>r<\/jats:italic>= \u22120.559, <jats:italic>p<\/jats:italic>\u2009&lt;\u20090.001). The intraobserver (ICC\u2009=\u20090.939; Cronbach\u2019s alpha\u2009=\u20090.964) and interobserver (ICC\u2009=\u20090.965; Cronbach\u2019s alpha\u2009=\u20090.964) reliability of the total score showed very high consistency.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>The Brazilian version of the PSS-QoL has been demonstrated to be a valid and reproducible instrument for the assessment of HRQoL in patients with SjD.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s42358-024-00395-7","type":"journal-article","created":{"date-parts":[[2024,8,19]],"date-time":"2024-08-19T11:03:04Z","timestamp":1724065384000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Brazilian version of the \u201cPrimary Sj\u00f6gren\u2019s Syndrome - Quality of Life questionnaire (PSS-QoL)\u201d: translation, cross-cultural adaptation and validation"],"prefix":"10.1186","volume":"64","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0609-4063","authenticated-orcid":false,"given":"Samira Tatiyama","family":"Miyamoto","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"\u00c9rica Vieira","family":"Serrano","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ana Paula Esp\u00edndula","family":"Gian\u00f3rdoli","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lara Betini","family":"Alto\u00e9","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bianca Domingos","family":"Noronha","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pedro Henrique Alves","family":"dos Santos","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ana Paula Truhlar","family":"Pedrini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicole Reis Souza","family":"da Silva","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Let\u00edcia Fonseca","family":"Favarato","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lu\u00edza Vallory","family":"Alochio","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Weider Andrade","family":"Tom\u00e9","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Angelika","family":"Lackner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Val\u00e9ria","family":"Valim","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2024,8,19]]},"reference":[{"key":"395_CR1","doi-asserted-by":"publisher","unstructured":"Seror R, Ravaud P, Bowman SJ, Baron G, Tzioufas A, Theander E, Gottenberg JE, Bootsma H, Mariette X, Vitali C, EULAR Sj\u00f6gren\u2019s Task Force. 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