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Psychological trauma was predominantly reported when caregivers communicated the diagnosis to children. 22% have a high risk of post-traumatic stress, relating the feeling of unpreparedness in communicating this to the child.<\/jats:p>\n              <\/jats:sec><jats:sec>\n                <jats:title>Conclusions<\/jats:title>\n                <jats:p>It was identified that the failure in communication is the main factor for negative repercussions on the autonomy of children and their guardians, with self-reported psychological trauma, besides the high risk for post-traumatic stress syndrome.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12887-022-03552-3","type":"journal-article","created":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T12:02:54Z","timestamp":1660737774000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Communicating the Spinal Muscular Atrophy diagnosis to children and the principle of autonomy"],"prefix":"10.1186","volume":"22","author":[{"given":"Isabella Araujo Mota","family":"Fernandes","sequence":"first","affiliation":[]},{"given":"Renata Oliveira Almeida","family":"Menezes","sequence":"additional","affiliation":[]},{"given":"Guilhermina","family":"Rego","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2022,8,17]]},"reference":[{"issue":"9","key":"3552_CR1","doi-asserted-by":"publisher","first-page":"1349","DOI":"10.1007\/s10072-014-1869-3","volume":"35","author":"T Breitenfeld","year":"2014","unstructured":"Breitenfeld T, Jurasic MJ, Breitenfeld D. 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