{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,29]],"date-time":"2025-10-29T13:37:14Z","timestamp":1761745034600,"version":"3.37.3"},"reference-count":30,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2019,10,7]],"date-time":"2019-10-07T00:00:00Z","timestamp":1570406400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2019,10,7]],"date-time":"2019-10-07T00:00:00Z","timestamp":1570406400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001774","name":"University of Sydney","doi-asserted-by":"crossref","award":["Cross Cultural Public Health Research Award"],"award-info":[{"award-number":["Cross Cultural Public Health Research Award"]}],"id":[{"id":"10.13039\/501100001774","id-type":"DOI","asserted-by":"crossref"}]},{"name":"The George Institute","award":["John Chalmers Program Grant Scholarship"],"award-info":[{"award-number":["John Chalmers Program Grant Scholarship"]}]},{"DOI":"10.13039\/501100001030","name":"National Heart Foundation of Australia","doi-asserted-by":"crossref","award":["10034"],"award-info":[{"award-number":["10034"]}],"id":[{"id":"10.13039\/501100001030","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["1441328","101767","APP1056434"],"award-info":[{"award-number":["1441328","101767","APP1056434"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001773","name":"University of New South Wales","doi-asserted-by":"crossref","award":["Scientia Fellow"],"award-info":[{"award-number":["Scientia Fellow"]}],"id":[{"id":"10.13039\/501100001773","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["BMC Psychiatry"],"published-print":{"date-parts":[[2019,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n              <jats:sec>\n                <jats:title>Background<\/jats:title>\n                <jats:p>Research can inform culturally-appropriate care to strengthen social and emotional wellbeing (SEWB) among Aboriginal and Torres Strait Islander (hereafter, the term \u2018Indigenous Peoples\u2019 is respectfully used and refers to all Aboriginal and\/or Torres Strait Islander Peoples of Australia). We acknowledge the cultural diversity of Australia\u2019s Indigenous First Peoples and they do not represent a homogenous group.) (hereafter Indigenous) Peoples. We explore the perspectives of primary healthcare staff and Indigenous patients about their willingness to and experiences participating in SEWB research.<\/jats:p>\n              <\/jats:sec>\n              <jats:sec>\n                <jats:title>Method<\/jats:title>\n                <jats:p>Process evaluation using grounded theory approaches of <jats:italic>Getting it Right<\/jats:italic>: <jats:italic>The validation study<\/jats:italic>, a national validation designed Indigenous SEWB research project (<jats:italic>N<\/jats:italic>\u2009=\u2009500). Primary healthcare staff (<jats:italic>n<\/jats:italic>\u2009=\u200936) and community members (<jats:italic>n<\/jats:italic>\u2009=\u20094) from nine of ten primary healthcare services involved with the research project completed qualitative semi-structured interviews. Interview data were triangulated with participant feedback (responses to structured questions and free-text feedback collected during <jats:italic>Getting it Right<\/jats:italic>), study administrative data (participant screening logs, communication logs, study protocol, deviation logs and ethics correspondence) and interviewer field notes.<\/jats:p>\n              <\/jats:sec>\n              <jats:sec>\n                <jats:title>Results<\/jats:title>\n                <jats:p>Three themes about staff, patient and community perspectives concerning research participation developed: (1) considering the needs, risk, preferences and impact of participation in research for staff, patients and community; (2) building staff confidence speaking to patients about research and SEWB problems and (3) patients speaking openly about their SEWB. Some staff described pressure to ensure patients had a positive experience with the research, to respond appropriately if patients became upset or SEWB problems were identified during interviews, or due to their dual role as community member and researcher. Patients and staff reported that patients were more likely to participate if they knew the staff outside of the service, especially staff with a shared cultural background, and they perceived SEWB as a community priority. Staff reported their skills speaking to patients about the research and SEWB improved during the research, which built their confidence. Contrary to staff preconceptions, staff and patients reported that many patients appreciated the opportunity to speak about their SEWB and contributing to research that may eventually enhance SEWB in their community.<\/jats:p>\n              <\/jats:sec>\n              <jats:sec>\n                <jats:title>Conclusion<\/jats:title>\n                <jats:p>Our research project was considered acceptable by most staff and patients. The positive outcomes reported by staff and feedback from patients highlights the importance of providing opportunities for people to speak about their SEWB and for research-informed SEWB PHC care.<\/jats:p>\n              <\/jats:sec>\n              <jats:sec>\n                <jats:title>Trial registration<\/jats:title>\n                <jats:p>Getting it Right is registered on <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"https:\/\/www.anzctr.org.au\/Trial\/Registration\/TrialReview.aspx?id=366510\">ANZCTR12614000705684<\/jats:ext-link>.<\/jats:p>\n              <\/jats:sec>","DOI":"10.1186\/s12888-019-2263-8","type":"journal-article","created":{"date-parts":[[2019,10,7]],"date-time":"2019-10-07T13:19:37Z","timestamp":1570454377000},"update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["\u2018We\u2019re here to listen and help them as well\u2019: a qualitative study of staff and Indigenous patient perceptions about participating in social and emotional wellbeing research at primary healthcare services"],"prefix":"10.1186","volume":"19","author":[{"name":"on behalf of the Getting it Right Investigators","sequence":"first","affiliation":[]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7013-1079","authenticated-orcid":false,"given":"Sara","family":"Farnbach","sequence":"first","affiliation":[]},{"given":"Graham","family":"Gee","sequence":"additional","affiliation":[]},{"given":"Anne-Marie","family":"Eades","sequence":"additional","affiliation":[]},{"given":"John Robert","family":"Evans","sequence":"additional","affiliation":[]},{"given":"Jamie","family":"Fernando","sequence":"additional","affiliation":[]},{"given":"Belinda","family":"Hammond","sequence":"additional","affiliation":[]},{"given":"Matty","family":"Simms","sequence":"additional","affiliation":[]},{"given":"Karrina","family":"DeMasi","sequence":"additional","affiliation":[]},{"given":"Maree L.","family":"Hackett","sequence":"additional","affiliation":[]}],"member":"297","published-online":{"date-parts":[[2019,10,7]]},"reference":[{"key":"2263_CR1","unstructured":"Laycock A, Walker D, Harrison N, Brands J. Researching Indigenous health: a practical guide for researchers. Melbourne: The Lowitija Institute; 2011."},{"key":"2263_CR2","unstructured":"Flood J. The original Australians: story of the Aboriginal people. Crows Nest: Allen and Unwin; 2006."},{"key":"2263_CR3","unstructured":"Australian Government. National Aboriginal and Torres Strait Islander health plan 2013\u20132023. Canberra: Commonwealth of Australia; 2013."},{"key":"2263_CR4","doi-asserted-by":"crossref","unstructured":"Langham E, McCalman J, Matthews V, Bainbridge R, Nattabi B, Kinchin I, et al. Social and emotional wellbeing screening for Aboriginal and Torres Strait Islanders within primary health care: A series of missed opportunities? Public Health Front. 2017;5:159.","DOI":"10.3389\/fpubh.2017.00159"},{"key":"2263_CR5","doi-asserted-by":"crossref","unstructured":"Le Grande M, Ski C, Thompson D, Scuffham P, Kularatna S, Jackson A, et al. Social and emotional wellbeing assessment instruments for use with Indigenous Australians: a critical review. Soc Sci Med. 2017;187:164\u201373.","DOI":"10.1016\/j.socscimed.2017.06.046"},{"key":"2263_CR6","unstructured":"Australian Bureau of Statistics [Internet]. Canberra: Australian Aboriginal and Torres Strait Islander Health Survey: First Results 2012\u201313. [Cited 23\/09\/2014]. Available from: \n                    http:\/\/www.abs.gov.au\/ausstats\/abs@.nsf\/Latestproducts\/9F3C9BDE98B3C5F1CA257C2F00145721?opendocument\n                    \n                  ."},{"issue":"1","key":"2263_CR7","doi-asserted-by":"publisher","first-page":"517","DOI":"10.1186\/s12913-014-0517-1","volume":"14","author":"F Mc Loughlin","year":"2014","unstructured":"Mc Loughlin F, Hadgraft N, Atkinson D, Marley J. Aboriginal health research in the remote Kimberley: an exploration of perceptions, attitudes and concerns of stakeholders. BMC Health Serv Res. 2014;14(1):517\u201328.","journal-title":"BMC Health Serv Res"},{"key":"2263_CR8","unstructured":"Grieves V. Aboriginal spirituality: Aboriginal philosophy, the basis of Aboriginal social and emotional wellbeing (discussion paper no. 9). Darwin: Cooperative Research Centre for Aboriginal Health; 2009."},{"issue":"16","key":"2263_CR9","doi-asserted-by":"publisher","first-page":"3361","DOI":"10.1017\/S0033291714001299","volume":"44","author":"T Dazzi","year":"2014","unstructured":"Dazzi T, Gribble R, Wessely S, Fear NT. Does asking about suicide and related behaviours induce suicidal ideation? What is the evidence? Psychol Med. 2014;44(16):3361\u20133.","journal-title":"Psychol Med"},{"key":"2263_CR10","unstructured":"National Health and Medical Research Council. Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research. Canberra: Commonwealth of Australia; 2003."},{"issue":"1","key":"2263_CR11","doi-asserted-by":"publisher","first-page":"16","DOI":"10.5694\/mja11.11642","volume":"197","author":"Lisa M Jamieson","year":"2012","unstructured":"Jamieson L, Paradies Y, Eades S, Chong A, Maple-Brown L, Morris P, et al. Ten principles relevant to health research among Indigenous Australian populations. Med J Aust. 2012;197(1):16\u20138.","journal-title":"Medical Journal of Australia"},{"issue":"12","key":"2263_CR12","doi-asserted-by":"publisher","first-page":"e015009","DOI":"10.1136\/bmjopen-2016-015009","volume":"6","author":"M Hackett","year":"2016","unstructured":"Hackett M, Farnbach S, Glozier N, Skinner T, Teixeira-Pinto A, Askew D, et al. Getting it Right: Study protocol to determine the diagnostic accuracy of a culturally-specific measure to screen for depression in Aboriginal and\/or Torres Strait Islander people. BMJ open. 2016;6(12):e015009.","journal-title":"BMJ open"},{"issue":"11","key":"2263_CR13","doi-asserted-by":"publisher","first-page":"e017612","DOI":"10.1136\/bmjopen-2017-017612","volume":"7","author":"S Farnbach","year":"2017","unstructured":"Farnbach S, Evans J, Eades A-M, Gee G, Fernando J, Hammond B, et al. Process evaluation of a primary healthcare validation study of a culturally adapted depression screening tool for use by Aboriginal and Torres Strait Islander people: Study protocol. BMJ open. 2017;7(11):e017612.","journal-title":"BMJ open"},{"issue":"mar19 6","key":"2263_CR14","doi-asserted-by":"publisher","first-page":"h1258","DOI":"10.1136\/bmj.h1258","volume":"350","author":"G. F. Moore","year":"2015","unstructured":"Moore G, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions: Medical Research Council guidance. BMJ. 2015;350:h1258.","journal-title":"BMJ"},{"key":"2263_CR15","volume-title":"Basics of qualitative research: techniques and procedures for developing grounded theory","author":"J Corbin","year":"2015","unstructured":"Corbin J, Strauss A. Basics of qualitative research: techniques and procedures for developing grounded theory. Thousand Oaks: SAGE Publications; 2015."},{"issue":"2","key":"2263_CR16","doi-asserted-by":"publisher","first-page":"211","DOI":"10.1007\/s00127-015-1100-8","volume":"51","author":"Alex Brown","year":"2015","unstructured":"Brown A, Mentha R, Howard M, Rowley K, Reilly R, Paquet C, et al. Men, hearts and minds: developing and piloting culturally specific psychometric tools assessing psychosocial stress and depression in central Australian Aboriginal men. Soc Psychiatry Psychiatr Epidemiol. 2016;51(2):211\u201323.","journal-title":"Social Psychiatry and Psychiatric Epidemiology"},{"issue":"Suppl 20","key":"2263_CR17","first-page":"22","volume":"59","author":"D Sheehan","year":"1998","unstructured":"Sheehan D, Lecrubier Y, Sheehan K, Amorim P, Janavs J, Weiller E, et al. The Mini-international neuropsychiatric interview (M.I.N.I.): the development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. J Clin Psychiatry. 1998;59(Suppl 20):22\u201333.","journal-title":"J Clin Psychiatry"},{"key":"2263_CR18","unstructured":"Gee G, Dudgeon P, Schultz C, Hart A, Kelly K. Aboriginal and Torres Strait islander social and emotional wellbeing (Ch 4). In: Purdie N, Dudgeon P, Walker R, editors. Working together: aboriginal and Torres Strait Islander mental health and wellbeing principles and practice. 2nd ed. Canberra: Department of Health and Aging; 2014. p. 55\u201368."},{"key":"2263_CR19","unstructured":"QSR International Pty Ltd [Software]. 2013 NVivo 10 for Windows. Available from: \n                    http:\/\/www.qsrinternational.com\/product\n                    \n                  . Accessed 1 Nov 2015."},{"key":"2263_CR20","doi-asserted-by":"publisher","first-page":"40","DOI":"10.1016\/j.cpr.2015.05.004","volume":"40","author":"A Jaffe","year":"2015","unstructured":"Jaffe A, DiLillo D, Hoffman L, Haikalis M, Dykstra R. Does it hurt to ask? A meta-analysis of participant reactions to trauma research. Clin Psychol Rev. 2015;40:40\u201356.","journal-title":"Clin Psychol Rev"},{"issue":"6","key":"2263_CR21","doi-asserted-by":"publisher","first-page":"429","DOI":"10.1080\/10508422.2010.521443","volume":"20","author":"J-P Legerski","year":"2010","unstructured":"Legerski J-P, Bunnell S. The risks, benefits, and ethics of trauma-focused research participation. Ethics Behav. 2010;20(6):429\u201342.","journal-title":"Ethics Behav"},{"issue":"1","key":"2263_CR22","doi-asserted-by":"publisher","first-page":"21","DOI":"10.1177\/1757975914528961","volume":"22","author":"M Glover","year":"2014","unstructured":"Glover M, Kira A, Johnston V, Walker N, Thomas D, Change A, et al. A systematic review of barriers and facilitators to participation in randomized controlled trials by indigenous people from New Zealand, Australia, Canada and the United States. Glob Health Promot. 2014;22(1):21\u201331.","journal-title":"Glob Health Promot"},{"key":"2263_CR23","doi-asserted-by":"crossref","unstructured":"Artuso S, Cargo M, Brown A, Daniel M. Factors influencing health care utilisation among Aboriginal cardiac patients in Central Australia: a qualitative study. BMC Health Serv Res. 2013;13(1):83.","DOI":"10.1186\/1472-6963-13-83"},{"issue":"6","key":"2263_CR24","doi-asserted-by":"publisher","first-page":"260","DOI":"10.1111\/j.1440-1584.2003.00531.x","volume":"11","author":"C Mincham","year":"2003","unstructured":"Mincham C, Toussaint S, Mak D, Plant A. Patient views on the management of rheumatic fever and heart disease in the Kimberley: a qualitative study. Aust J Rural Health. 2003;11(6):260\u20135.","journal-title":"Aust J Rural Health"},{"issue":"4","key":"2263_CR25","doi-asserted-by":"publisher","first-page":"e010792","DOI":"10.1136\/bmjopen-2015-010792","volume":"6","author":"Christian Young","year":"2016","unstructured":"Young C, Tong A, Sherriff S, Kalucy D, Fernando P, Muthayya S, et al. Building better research partnerships by understanding how Aboriginal health communities perceive and use data: a semistructured interview study. BMJ Open. 2016;6(4):e010792.","journal-title":"BMJ Open"},{"issue":"6","key":"2263_CR26","doi-asserted-by":"publisher","first-page":"565","DOI":"10.1080\/13698575.2012.701274","volume":"14","author":"Chelsea Bond","year":"2012","unstructured":"Bond C, Brough M, Spurling G, Hayman N. \u201cIt had to be my choice\u201d Indigenous smoking cessation and negotiations of risk, resistance and resilience. Health, Risk Soc. 2012;14(6):565\u201381.","journal-title":"Health, Risk & Society"},{"issue":"2","key":"2263_CR27","doi-asserted-by":"publisher","first-page":"109","DOI":"10.2307\/1409555","volume":"14","author":"L Rigney","year":"1999","unstructured":"Rigney L. Internationalization of an indigenous anticolonial cultural critique of research methodologies: a guide to Indigenist research methodology and its principles. Wicazo sa review. 1999;14(2):109\u201321.","journal-title":"Wicazo sa review"},{"issue":"1","key":"2263_CR28","first-page":"21","volume":"19","author":"C Williams","year":"2003","unstructured":"Williams C. Aboriginal health workers, emotional labour, obligatory community labour and occupational health and safety. J Occup Health and Saf Aust N Z. 2003;19(1):21.","journal-title":"J Occup Health and Saf Aust N Z"},{"key":"2263_CR29","volume-title":"Aboriginal health Workers in South Australia: future pathways. Review of the status, support arrangements and training needs of aboriginal health Workers in South Australia","author":"J Dollard","year":"1999","unstructured":"Dollard J, Bradley H, Blue I, Fuller J, Hopps M, Moss J. Aboriginal health Workers in South Australia: future pathways. Review of the status, support arrangements and training needs of aboriginal health Workers in South Australia. South Australian Centre for Rural and Remote Health: Whyalla Norrie, South Australia; 1999."},{"issue":"Suppl 5","key":"2263_CR30","doi-asserted-by":"publisher","first-page":"S2","DOI":"10.1186\/1471-2458-11-S5-S2","volume":"11","author":"T Koolmatrie","year":"2011","unstructured":"Koolmatrie T. Finding my ground in public health research: Lessons from my Grandmother\u2019s kitchen. BMC Public Health. 2011;11(Suppl 5):S2.","journal-title":"BMC Public Health"}],"container-title":["BMC Psychiatry"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12888-019-2263-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/article\/10.1186\/s12888-019-2263-8\/fulltext.html","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/link.springer.com\/content\/pdf\/10.1186\/s12888-019-2263-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,10,5]],"date-time":"2020-10-05T23:10:08Z","timestamp":1601939408000},"score":1,"resource":{"primary":{"URL":"https:\/\/bmcpsychiatry.biomedcentral.com\/articles\/10.1186\/s12888-019-2263-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,10,7]]},"references-count":30,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2019,12]]}},"alternative-id":["2263"],"URL":"https:\/\/doi.org\/10.1186\/s12888-019-2263-8","relation":{},"ISSN":["1471-244X"],"issn-type":[{"type":"electronic","value":"1471-244X"}],"subject":[],"published":{"date-parts":[[2019,10,7]]},"assertion":[{"value":"11 July 2018","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"29 August 2019","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"7 October 2019","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"This research was reviewed and approved by: The University of Sydney Human Research Ethics Committee [2014\/361], Aboriginal Health and Medical Research Council of NSW [1044\/14], ACT Health HREC [ETH.8.14.207], Queensland Health Metro South HREC [HREC\/14\/QPAH\/503], Central Australian HREC [HREC-15-287], Menzies School of Health Research [2014\u20132289], Aboriginal Health Council of South Australia [04\u201317-705], Western Australian Aboriginal Health Ethics Committee [607]. All participants provided written informed consent to participate in this research project.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate"}},{"value":"All participants provided written informed consent to participate in this research project including the publication of data collected during this project and in <i>Getting it Right<\/i>: <i>The validation study<\/i>.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Consent for publication"}},{"value":"The authors declare that they have no competing interests.","order":3,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"294"}}